News
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03/22/2019
HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
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03/21/2019
COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
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03/21/2019
BLOG: This Week in HD Research
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03/14/2019
HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
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03/04/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
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03/01/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
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02/11/2019
Huntington’s Disease Featured On The Today Show
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02/06/2019
HDSA Expands Centers of Excellence Program to Forty-Seven
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01/30/2019
HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
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01/28/2019
First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
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01/24/2019
HDSA Publishes 2018 Year In Review Magazine
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01/22/2019
uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
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01/16/2019
HDSA Launches Youth Social Worker Program
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12/19/2018
BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
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12/11/2018
HDSA’s 2018 Research Report Now Available
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12/10/2018
EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
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12/04/2018
HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
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11/10/2018
Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
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10/23/2018
HDSA Awards Five HD Human Biology Project Fellowships for 2018
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10/17/2018
FAQs: Upcoming Genentech/Roche Studies
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10/03/2018
HDBuzz: Kids Get Huntington’s Disease Too
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09/26/2018
RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
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09/18/2018
HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
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09/16/2018
Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
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09/16/2018
Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
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08/03/2018
Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
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08/02/2018
IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
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08/01/2018
Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
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07/10/2018
HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
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06/27/2018
VIDEO: 33rd Annual HDSA Convention Recap
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06/13/2018
33rd Annual HDSA Convention Recap
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06/13/2018
VIDEO: HD Buzz at the 33rd Annual HDSA Convention
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Research Forum
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Opening Ceremony
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06/07/2018
Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
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05/15/2018
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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04/27/2018
FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
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04/24/2018
New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
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04/24/2018
HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
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04/20/2018
Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
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04/19/2018
HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
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03/29/2018
VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
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03/12/2018
HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
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03/05/2018
HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
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03/05/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
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03/01/2018
IONIS-HTT Rx Community Statement
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03/01/2018
IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
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03/01/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
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02/28/2018
HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
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02/13/2018
HDSA Announces Forty-Three Centers of Excellence
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02/02/2018
CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
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12/12/2017
FAQs: Ionis Huntingtin-Lowering Trial
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12/11/2017
Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
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12/11/2017
BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
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11/20/2017
Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
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11/14/2017
HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
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11/14/2017
HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
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11/02/2017
HDBUZZ: Switch off the genome editor when you’re done
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10/15/2017
Update confirms Huntington’s disease ‘gene silencing’ trial on track
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10/12/2017
Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
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09/25/2017
HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
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09/19/2017
Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
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09/18/2017
Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
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08/01/2017
HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
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07/28/2017
HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
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07/17/2017
Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
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06/29/2017
Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
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06/22/2017
Exciting News: IONIS provides update on Huntingtin lowering trial
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06/21/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
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06/08/2017
New study reveals a potential HD biomarker
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05/30/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
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05/24/2017
Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
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05/16/2017
Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
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05/15/2017
Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
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05/15/2017
Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
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05/08/2017
Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
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05/02/2017
Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 3
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 2
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04/27/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 1
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04/21/2017
Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
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04/14/2017
Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
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04/05/2017
HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
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04/03/2017
Teva Announces FDA Approval of AUSTEDO™ (deutetrabenazine) Tablets for the Treatment of Chorea Associated with Huntington’s Disease
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03/29/2017
Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
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03/28/2017
2017 National Awards Nominations
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03/13/2017
Save the Date- For the largest global gathering of the HD community!
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02/28/2017
Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
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02/24/2017
Weeding out the truth: can cannabis improve Huntington’s?
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02/22/2017
Huntingtin grabs a hammer: DNA repair in HD
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02/10/2017
The benefits of migration, highlighted in Huntington’s disease
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02/08/2017
Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
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01/19/2017
Huntington’s Disease Society of America Unveils HDNavigator Mobile App
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01/12/2017
HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
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12/19/2016
Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
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12/06/2016
HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
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12/02/2016
Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
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11/22/2016
HDSA Earns Top-Rating from CharityWatch
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11/15/2016
Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
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11/01/2016
Important advances in next generation genome editing tools for Huntington’s Disease
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10/03/2016
HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
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09/23/2016
EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
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09/19/2016
Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
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08/30/2016
New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
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08/22/2016
HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
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08/17/2016
Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
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08/02/2016
A support system gone wrong – glial cells contribute to HD symptoms
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07/18/2016
Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
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07/08/2016
Huntington’s Disease Community Scores Major Victory with Social Security Criteria
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07/05/2016
Slightly long CAG repeats are more common than we thought
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06/29/2016
Early exposure to the HD protein may cause life-long symptoms
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06/21/2016
WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
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06/20/2016
Electron beam snaps best images yet of Huntington’s disease protein
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06/14/2016
Select Videos From HDSA’s 31st Annual Convention Now Available
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06/10/2016
Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
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06/07/2016
Huntingtin takes a trip: harmful proteins pass between brain cells
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06/03/2016
Watch us Live from the 31st Annual HDSA Convention
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06/01/2016
HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
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05/17/2016
Postcard from Palm Springs
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05/10/2016
Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
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05/03/2016
Important drug targets yielded by new genetic study of HD
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05/02/2016
Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
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04/28/2016
Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
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04/18/2016
Thinking clearly about the earliest symptoms of HD and which brain regions control them
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04/18/2016
Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
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03/28/2016
2016 HDSA NATIONAL AWARDS NOMINATIONS
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03/10/2016
How NOT to write a news article about a clinical trial
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02/29/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
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02/26/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
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02/24/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
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02/05/2016
Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
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02/01/2016
Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
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02/01/2016
Harnessing the power of viruses to treat Huntington’s disease
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01/25/2016
Through a Broader Lens: Looking at Non-Motor Symptoms in HD
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01/22/2016
HDSA Releases 2015 Year in Review
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12/23/2015
HDSA Releases 2015 Research Investor’s Report
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12/18/2015
Looking Past the Spin: Results from a Clinical Trial of Cysteamine
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12/15/2015
An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
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12/10/2015
Raptor Plans to Advance RP103 in a Registration Study
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12/07/2015
New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
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12/02/2015
Through the eyes of a friend: changes in mood and behavior in early HD
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12/02/2015
Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
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12/01/2015
Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
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11/25/2015
A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
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11/25/2015
Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
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11/03/2015
Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
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11/02/2015
Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
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10/20/2015
HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
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10/09/2015
HDBuzz primer: Clinical trial designs and phases
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10/05/2015
Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
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09/23/2015
FDA Opens 60 Day Open Comment Period
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09/22/2015
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
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09/17/2015
HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
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09/11/2015
CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
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08/31/2015
Deadline To Tell Us Your Thoughts Has Been Extended!
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08/17/2015
HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
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08/05/2015
Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
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07/30/2015
Scientists identify genetic factors that alter the clinical onset of HD in landmark study
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07/29/2015
Would ewe believe it? GM1, sheep and Huntington’s disease
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07/21/2015
ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
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07/02/2015
30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
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06/22/2015
Calling all HD families: Our time to be heard is now!
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06/19/2015
Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
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06/19/2015
HDSA Supports 21st Century Cures Act
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06/16/2015
NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
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06/02/2015
Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
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06/02/2015
HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
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05/26/2015
2015 Postcard from Palm Springs
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05/13/2015
HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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05/12/2015
2015 Huntington’s Disease Therapeutics Conference and taking part in trials
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05/07/2015
Gene variant determines early or late onset of Huntington’s disease
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05/01/2015
Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
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04/22/2015
Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
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04/21/2015
Lighting the way: A new biomarker for Huntington’s disease
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04/07/2015
Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
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04/07/2015
New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
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01/29/2015
Law Enforcement Toolkit II Webinar Now Available
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01/29/2015
Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
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01/29/2015
Huntington’s Disease Society of America Endorses Enroll-HD
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01/29/2015
Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
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01/29/2015
Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
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01/29/2015
HDSA appoints Director of Marketing & Communications
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01/29/2015
World leader in movement disorders Professor Ira Shoulson joins Prana Board
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01/29/2015
Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
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01/28/2015
Huntington’s Disease Society of America Launches First “HD News” App
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01/28/2015
2CARE HD Clinical Trial Stopped Early for Lack of Benefit
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01/28/2015
HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
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01/28/2015
Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
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01/28/2015
Huntington’s Disease Society of America Awards Additional HD Human Biology Project
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01/28/2015
Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
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01/28/2015
Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
Events
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3/23/2019 10AM
Ankeny Hoop-a-Thon
1100 SE Sharon Drive , Ankeny, IA -
3/24/2019 1PM
Strike Out HD- St. Louis, MO
7202 Weil , St. Louis, MO -
3/30/19 7PM
Spring Fling for HD
1211 South New Wilke Road , Arlington Heights, IL -
3/30/2019
25th Annual HDSA Hoop a thon
Our Lady Star of the Sea School , Staten Island, NY -
3/30/2019 9AM
CT Education Day
326 Washington St. , Norwich, Ct -
3/31/2019
NC Hoops 4 Hope
801 Westover Terrace , Greensboro, NC -
4/6/2019 6PM
2019 Albany Corks & Forks
677 Prime Steakhouse , Albany, NY -
4/6/2019 9:30AM
Strides for Huntington’s
500 Parkway Dr , Melbourne, FL -
4/6/2019 12PM
2019 Fun Out Of The Sun Bowl-a-thon
Park Tavern Bowling 3401 Louisiana Ave. , St. Louis Park, MN -
4/7/2019 1PM
Strike out HD- Rhode Island
225 Niantic Avenue Lang’s Bowlarama , Cranstton, RI -
4/13/2019 9AM
2019 HDSA Illinois State Conference
9000 W. College Parkway , Palos Hills, IL -
4/13/2019 9AM
Boone NC ‘Tom Moore’ Team Hope Walk
1179 State Farm Road , Boone, NC -
4/27/2019 8AM
Fighting Strong Against HD – Walk & Bike-A-Thon
101 N. MacArthur Ave , Dillon, SC -
4/27/2019 9AM
15th Annual North Florida Team Hope Walk
11751 McCormick Rd , Jacksonville, FL -
4/27/2019 10AM
St. Louis, MO Team Hope Walk
9551 Litzsinger Road , Ladue, MO
