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NOMINATIONS ARE NOW OPEN!
Nominate the extraordinary individuals, families and organizations in your community and the HDSA Chapter or Affiliate that has accomplished great things during 2024.

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Registration is now OPEN!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025
This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

  

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The Marker: 2024 HDSA Research Report

The Marker highlights HDSA’s efforts in research supported directly by the organization to keeping the larger community informed about what is happening in HD science. The latest issue of The Marker is now available!

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MEET OUR NEW PRESIDENT AND CEO
AMY GRAY

 

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

 

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VOLUNTEERS NEEDED!

If you are looking to put your passion for helping others to meaningful use, we want YOU!

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Watch the recordings of the  HDSA EL-PFDD Meeting!

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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2023 HDSA ANNUAL REPORT


We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we’ve achieved as One HDSA.

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HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA‘s achievements and top stories from 2023 in the latest Year In Review Magazine. 

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HDSA Centers of Excellence Program Expands to 69 Sites

The Huntington’s Disease Society of America (HDSA) is expanding its HDSA Centers of Excellence network of comprehensive care clinics with 69 grants totaling $1,810,400. In addition to the 60 grant funded facilities, nine regional partner sites were also named, ensuring expert HD care at 69 distinct medical facilities in 37 states across the nation and Washington, DC.

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Let’s protect the ones we love this National Estate Planning Awareness Week with HDSA’s new partnership with FreeWill!

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INTRODUCING THE HDSA PODCAST

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington’s disease community and get a behind-the-scenes look at the Huntington’s Disease Society of America.

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region. 

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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PARTICIPATE IN AN HDSA EVENT NEAR YOU

From Team Hope Walks and Celebrations of Hope Galas to Education Days and Webinars, HDSA has events across the country for you and your family to get involved in the fight against Huntington’s disease.

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