News
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05/25/2023
BLOG: This Week in HD Research
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05/24/2023
Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
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05/22/2023
BLOG: Disability Tips
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05/17/2023
HDSA Partnership with Rare-X Community Letter & FAQ
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05/17/2023
HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
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05/16/2023
Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
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05/08/2023
HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
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04/26/2023
HDBUZZ: PROOF-HD study of pridopidine ends with negative result
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04/25/2023
Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
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03/28/2023
The HDSA Podcast Episode #3
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02/21/2023
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets
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02/14/2023
HDBuzz: Roche Phase II GENERATION HD2 study underway
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02/13/2023
Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
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02/10/2023
Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
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02/02/2023
HDSA Publishes 2022 Year in Review Magazine
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01/31/2023
Introducing The HDSA Podcast
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01/11/2023
Roche-Genentech Community Letter: GENERATION HD2 study now open
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01/03/2023
38th Annual HDSA Convention in New Orleans Registration Now Open
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12/21/2022
The Marker: HDSA’s 2022 Research Report is now available
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12/20/2022
HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
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12/09/2022
HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
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12/08/2022
Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
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12/06/2022
Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
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11/21/2022
Team HDSA Raises More Than $100,000 at the New York City Marathon
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11/15/2022
HDSA Earns Four-Star Rating From Charity Navigator
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11/04/2022
Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
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11/02/2022
HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
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11/02/2022
Breaking News: uniQure provides update on AMT-130
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10/25/2022
Eighth Annual Freeze HD Raises More Than $200,000
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10/18/2022
PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
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10/18/2022
Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
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09/30/2022
HDSA Publishes 2021 Annual Report
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09/30/2022
HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
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09/20/2022
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
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09/18/2022
BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
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09/14/2022
HDSA Disability Chat: JHD & Social Security
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09/08/2022
HDSA Research Webinar: All You Need To Know About PROOF-HD
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08/29/2022
HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
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08/24/2022
Novartis Provides Community Update Regarding VIBRANT-HD
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08/12/2022
HDSA Research Webinar: HD Clinical Trials Update
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08/11/2022
Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
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08/10/2022
Sage Therapeutics Provides Positive Update on the SURVEYOR Study
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08/10/2022
HDSA Films presents KING’S CRUSADE (Part 2)
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08/09/2022
HDSA Statement Regarding VIBRANT-HD Trial
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08/09/2022
uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
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07/26/2022
HDSA Films presents KING’S CRUSADE (Part 1)
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07/12/2022
Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
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06/30/2022
HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
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06/23/2022
uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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06/20/2022
HDBuzz: How clever computers are helping us understand Huntington’s disease
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06/16/2022
New system that defines Huntington’s disease will ‘revolutionise’ drug trials
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06/15/2022
HDBuzz: A new roadmap to track Huntington’s disease progression
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06/14/2022
37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
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06/07/2022
Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
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05/28/2022
HDSA Films presents THE STORY OF E.J. + KATY
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05/20/2022
HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
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05/11/2022
HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
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03/31/2022
PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
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03/18/2022
HDBuzz: A spoonful of branaplam helps the huntingtin go down
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03/08/2022
HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
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03/04/2022
HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
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03/03/2022
HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
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02/22/2022
Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
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02/18/2022
HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
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02/09/2022
Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
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02/07/2022
uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
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02/02/2022
HDBuzz: Oral drug may change the story for huntingtin lowering
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02/01/2022
Register Today for the 37th Annual HDSA Convention in Atlanta
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01/31/2022
HDSA Publishes 2021 Year In Review Magazine
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01/27/2022
BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
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01/21/2022
VIDEO: Roche Community Presentation of New Tominersen Data
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01/18/2022
BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
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01/04/2022
Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment
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12/24/2021
VIDEO: Happy Holidays from Louise Vetter
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12/16/2021
uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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12/08/2021
The Marker is Now Available! Read HDSA’s 2021 Research Report
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12/07/2021
Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
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12/03/2021
Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
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11/16/2021
HDSA Coffee Walk with Jennifer Simpson
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11/15/2021
TAKE ACTION: HDSA’s 7 Days of Action
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11/12/2021
HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
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11/10/2021
HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
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11/10/2021
More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
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11/01/2021
HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
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10/19/2021
Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
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10/14/2021
HDSA Awards $749,000 to HD Human Biology Projects
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09/29/2021
HDBuzz: Q&A with Roche about GENERATION-HD1
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09/22/2021
HDSA Publishes 2020 Annual Report
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09/16/2021
Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
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09/10/2021
Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
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08/30/2021
HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
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08/16/2021
HDBuzz: Unpacking Recent Gene Therapy Press
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08/09/2021
Update from Voyager Therapeutics
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08/06/2021
HDSA Films Presents The Osborns: Our Legacy
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08/04/2021
VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
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07/29/2021
HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
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07/21/2021
HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
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07/02/2021
NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
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06/14/2021
Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
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06/12/2021
HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
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06/10/2021
HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
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05/28/2021
uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
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04/30/2021
HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
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04/30/2021
HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
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04/29/2021
HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
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04/28/2021
HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
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04/26/2021
HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
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04/21/2021
Now Accepting 2021 National Award Nominations
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04/05/2021
uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
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04/02/2021
Register Today For Free | Virtual 36th Annual HDSA Convention
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03/30/2021
HDBuzz: Wave Life Sciences PRECISION-HD Trials
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03/29/2021
Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
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03/26/2021
VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
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03/25/2021
RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
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03/23/2021
HDBuzz: Sad News From Roche
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03/22/2021
Roche Provides a Disappointing Update on Tominersen
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03/19/2021
HDSA Reintroduces the HD Parity Act
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03/18/2021
HDSA Films presents My Father, My Hero
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03/12/2021
Now Accepting 2021 Human Biology Project Letters of Intent
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02/25/2021
HDBuzz: Vaccines and HD
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02/18/2021
The 36th Annual HDSA Convention Goes Virtual!
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02/02/2021
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
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01/29/2021
HDSA Publishes 2020 Year In Review Magazine
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01/06/2021
Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
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01/01/2021
Happy New Year!
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12/17/2020
NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
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12/10/2020
HDSA Publishes The Marker: 2020 Research Report
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12/03/2020
HDSA Awards Four HD Human Biology Project Fellowships For 2020
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10/06/2020
HDBUZZ: Updates from the EHDN Plenary Meeting 2020
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09/28/2020
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
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09/10/2020
HDSA Publishes 2019 Annual Report
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08/26/2020
HDBuzz: When genes are unstable: Targeting somatic instability in HD
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08/25/2020
NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
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08/18/2020
HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
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08/14/2020
HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
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08/10/2020
Anne Leserman announces her retirement from HDSA
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07/28/2020
Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
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07/22/2020
NEW EPISODE: Here’s The Deal with End of Life & HD
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07/06/2020
Huntington’s Disease Featured on ABC News Live Prime
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06/24/2020
HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
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06/19/2020
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
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06/15/2020
Virtual HDSA Convention Recorded Sessions Now Available
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06/10/2020
Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
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06/03/2020
HDSA Supports The Fight Against Racism
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06/01/2020
Register for the Virtual 35th Annual HDSA Convention
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05/29/2020
Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
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05/27/2020
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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05/15/2020
International Huntington’s Disease Awareness Day – May 15th
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05/07/2020
HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
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04/20/2020
COMMUNITY STATEMENT: Update On Tominersen (RG6042)
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04/17/2020
NEW EPISODE: Here’s The Deal with Self-Care
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04/06/2020
HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
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04/03/2020
HD & COVID-19 PANDEMIC RESOURCES
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04/02/2020
NEW EPISODE: Here’s The Deal with COVID-19 & HD
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03/27/2020
FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
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03/27/2020
Community Statement
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03/26/2020
NEW EPISODE: Here’s The Deal with Disability
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03/20/2020
HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
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03/18/2020
HDSA Community Update: HD & COVID-19
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03/13/2020
HDSA Community Update
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03/13/2020
HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
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03/05/2020
HDSA Convention Community Statement
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03/03/2020
HDBuzz: Day 3 at HD Therapeutics Conference
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03/02/2020
HDSA Films Presents ALLIE & JOE
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03/02/2020
HDBuzz: Day 2 at HD Therapeutics Conference
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02/28/2020
HDBuzz: Day 1 at HD Therapeutics Conference
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02/05/2020
HDSA Announces Fifty 2020 Centers of Excellence
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01/17/2020
HDSA Publishes 2019 Year In Review Magazine
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01/17/2020
REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
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12/30/2019
Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
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12/30/2019
Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
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12/23/2019
HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
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12/23/2019
HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
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12/05/2019
HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
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11/27/2019
HDSA Welcomes Three Trustees to National Board
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11/19/2019
HDSA Publishes The Marker – 2019 Research Report
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11/06/2019
HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
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10/15/2019
HDSA Awards Five 2019 HD Human Biology Project Fellowships
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10/15/2019
Community Statement from Roche / Genentech
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10/01/2019
View 5th Annual Freeze HD Red Carpet and Event Photos
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10/01/2019
5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
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09/11/2019
2018 HDSA Annual Report
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08/05/2019
HDBUZZ: Exciting New Huntingtin Lowering Tool Described
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07/30/2019
Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
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07/23/2019
VIDEO: Here’s The Deal With Caregiving While Positive
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07/15/2019
VIDEO: 34th Annual HDSA Convention Recap
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07/01/2019
HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
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06/28/2019
Community Statement from uniQure
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06/20/2019
HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
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06/11/2019
HDSA Adds Allison Bartlett as Manager of Disability Programs
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05/31/2019
HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
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05/15/2019
Huntington’s Disease Parity Act Is Reintroduced
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05/07/2019
HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
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04/18/2019
Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
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04/16/2019
HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
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04/11/2019
HDSA Films Presents “The Hodgsons” Short Film
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04/10/2019
Update on PRECISION-HD program
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04/04/2019
BLOG: This Week in HD Research
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03/22/2019
HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
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03/21/2019
COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
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03/14/2019
HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
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03/04/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
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03/01/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
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02/11/2019
Huntington’s Disease Featured On The Today Show
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02/06/2019
HDSA Expands Centers of Excellence Program to Forty-Seven
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01/30/2019
HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
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01/28/2019
First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
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01/24/2019
HDSA Publishes 2018 Year In Review Magazine
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01/22/2019
uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
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01/16/2019
HDSA Launches Youth Social Worker Program
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12/19/2018
BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
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12/11/2018
HDSA’s 2018 Research Report Now Available
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12/10/2018
EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
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12/04/2018
HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
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11/10/2018
Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
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10/23/2018
HDSA Awards Five HD Human Biology Project Fellowships for 2018
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10/17/2018
FAQs: Upcoming Genentech/Roche Studies
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10/03/2018
HDBuzz: Kids Get Huntington’s Disease Too
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09/26/2018
RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
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09/18/2018
HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
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09/16/2018
Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
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09/16/2018
Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
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08/03/2018
Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
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08/02/2018
IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
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08/01/2018
Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
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07/10/2018
HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
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06/27/2018
VIDEO: 33rd Annual HDSA Convention Recap
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06/13/2018
33rd Annual HDSA Convention Recap
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06/13/2018
VIDEO: HD Buzz at the 33rd Annual HDSA Convention
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Research Forum
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Opening Ceremony
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06/07/2018
Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
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05/15/2018
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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04/27/2018
FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
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04/24/2018
New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
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04/24/2018
HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
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04/20/2018
Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
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04/19/2018
HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
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03/29/2018
VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
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03/12/2018
HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
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03/05/2018
HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
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03/05/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
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03/01/2018
IONIS-HTT Rx Community Statement
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03/01/2018
IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
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03/01/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
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02/28/2018
HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
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02/13/2018
HDSA Announces Forty-Three Centers of Excellence
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02/02/2018
CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
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12/12/2017
FAQs: Ionis Huntingtin-Lowering Trial
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12/11/2017
Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
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12/11/2017
BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
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11/20/2017
Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
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11/14/2017
HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
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11/14/2017
HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
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11/02/2017
HDBUZZ: Switch off the genome editor when you’re done
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10/15/2017
Update confirms Huntington’s disease ‘gene silencing’ trial on track
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10/12/2017
Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
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09/25/2017
HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
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09/19/2017
Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
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09/18/2017
Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
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08/01/2017
HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
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07/28/2017
HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
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07/17/2017
Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
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06/29/2017
Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
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06/22/2017
Exciting News: IONIS provides update on Huntingtin lowering trial
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06/21/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
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06/08/2017
New study reveals a potential HD biomarker
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05/30/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
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05/24/2017
Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
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05/16/2017
Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
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05/15/2017
Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
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05/15/2017
Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
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05/08/2017
Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
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05/02/2017
Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 3
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 2
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04/27/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 1
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04/21/2017
Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
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04/14/2017
Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
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04/05/2017
HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
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03/29/2017
Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
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03/28/2017
2017 National Awards Nominations
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03/13/2017
Save the Date- For the largest global gathering of the HD community!
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02/28/2017
Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
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02/24/2017
Weeding out the truth: can cannabis improve Huntington’s?
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02/22/2017
Huntingtin grabs a hammer: DNA repair in HD
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02/10/2017
The benefits of migration, highlighted in Huntington’s disease
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02/08/2017
Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
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01/19/2017
Huntington’s Disease Society of America Unveils HDNavigator Mobile App
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01/12/2017
HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
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12/19/2016
Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
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12/06/2016
HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
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12/02/2016
Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
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11/22/2016
HDSA Earns Top-Rating from CharityWatch
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11/15/2016
Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
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11/01/2016
Important advances in next generation genome editing tools for Huntington’s Disease
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10/03/2016
HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
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09/23/2016
EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
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09/19/2016
Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
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08/30/2016
New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
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08/22/2016
HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
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08/17/2016
Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
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08/02/2016
A support system gone wrong – glial cells contribute to HD symptoms
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07/18/2016
Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
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07/08/2016
Huntington’s Disease Community Scores Major Victory with Social Security Criteria
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07/05/2016
Slightly long CAG repeats are more common than we thought
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06/29/2016
Early exposure to the HD protein may cause life-long symptoms
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06/21/2016
WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
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06/20/2016
Electron beam snaps best images yet of Huntington’s disease protein
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06/14/2016
Select Videos From HDSA’s 31st Annual Convention Now Available
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06/10/2016
Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
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06/07/2016
Huntingtin takes a trip: harmful proteins pass between brain cells
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06/03/2016
Watch us Live from the 31st Annual HDSA Convention
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06/01/2016
HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
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05/17/2016
Postcard from Palm Springs
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05/10/2016
Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
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05/03/2016
Important drug targets yielded by new genetic study of HD
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05/02/2016
Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
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04/28/2016
Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
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04/18/2016
Thinking clearly about the earliest symptoms of HD and which brain regions control them
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04/18/2016
Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
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03/28/2016
2016 HDSA NATIONAL AWARDS NOMINATIONS
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03/10/2016
How NOT to write a news article about a clinical trial
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02/29/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
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02/26/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
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02/24/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
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02/05/2016
Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
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02/01/2016
Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
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02/01/2016
Harnessing the power of viruses to treat Huntington’s disease
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01/25/2016
Through a Broader Lens: Looking at Non-Motor Symptoms in HD
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01/22/2016
HDSA Releases 2015 Year in Review
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12/23/2015
HDSA Releases 2015 Research Investor’s Report
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12/18/2015
Looking Past the Spin: Results from a Clinical Trial of Cysteamine
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12/15/2015
An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
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12/10/2015
Raptor Plans to Advance RP103 in a Registration Study
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12/07/2015
New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
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12/02/2015
Through the eyes of a friend: changes in mood and behavior in early HD
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12/02/2015
Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
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12/01/2015
Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
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11/25/2015
A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
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11/25/2015
Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
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11/03/2015
Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
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11/02/2015
Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
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10/20/2015
HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
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10/09/2015
HDBuzz primer: Clinical trial designs and phases
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10/05/2015
Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
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09/23/2015
FDA Opens 60 Day Open Comment Period
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09/22/2015
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
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09/17/2015
HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
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09/11/2015
CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
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08/31/2015
Deadline To Tell Us Your Thoughts Has Been Extended!
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08/17/2015
HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
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08/05/2015
Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
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07/30/2015
Scientists identify genetic factors that alter the clinical onset of HD in landmark study
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07/29/2015
Would ewe believe it? GM1, sheep and Huntington’s disease
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07/21/2015
ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
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07/02/2015
30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
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06/22/2015
Calling all HD families: Our time to be heard is now!
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06/19/2015
Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
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06/19/2015
HDSA Supports 21st Century Cures Act
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06/16/2015
NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
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06/02/2015
Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
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06/02/2015
HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
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05/26/2015
2015 Postcard from Palm Springs
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05/13/2015
HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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05/12/2015
2015 Huntington’s Disease Therapeutics Conference and taking part in trials
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05/07/2015
Gene variant determines early or late onset of Huntington’s disease
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05/01/2015
Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
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04/22/2015
Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
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04/21/2015
Lighting the way: A new biomarker for Huntington’s disease
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04/07/2015
Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
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04/07/2015
New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
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01/29/2015
Law Enforcement Toolkit II Webinar Now Available
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01/29/2015
Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
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01/29/2015
Huntington’s Disease Society of America Endorses Enroll-HD
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01/29/2015
Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
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01/29/2015
Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
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01/29/2015
HDSA appoints Director of Marketing & Communications
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01/29/2015
World leader in movement disorders Professor Ira Shoulson joins Prana Board
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01/29/2015
Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
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01/28/2015
Huntington’s Disease Society of America Launches First “HD News” App
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01/28/2015
2CARE HD Clinical Trial Stopped Early for Lack of Benefit
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01/28/2015
HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
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01/28/2015
Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
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01/28/2015
Huntington’s Disease Society of America Awards Additional HD Human Biology Project
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01/28/2015
Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
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01/28/2015
Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
Events
-
9/23/23 8AM
Greater North Texas Education Day
Create Arlington 304 W Main Street , Arlington, TX 76010 -
6/1-6/3
38th Annual HDSA Convention
Sheraton New Orleans 500 Canal Street , New Orleans, LA 70130 -
6/25/23 10:00 AM
Tee-off Fore HD
Top Golf 1700 Freedom Wy , Roseville, CA 95678 -
6/3/23 6:00PM
Shine A Light on HD: Salt & Sage
Westchester, CA BLDG 29 , Westchester, CA -
6/3/23 5PM
HDSA San Diego Chapter Pickleball Tournament
Bobby Riggs Racket & Paddle 875 Santa Fe Dr , Encinitas, CA 92024 -
6/3/23 6:00PM
2023 Bowling For HD- Omaha
Maplewood Lanes, 3030 N 101st St , Omaha, NE 68134 -
6/10/23 9:00AM
Team Hope Walk- Boston, MA
Castle Island 2010 William J Day BLVD , Boston, MA 02127 -
6/10/2023 10:00AM
Team Hope Walk- Chesapeake Bay
University of Maryland, Baltimore County (On the Quad) 1000 Hilltop Circle , Baltimore, MD 21201 -
6/10/2023 10:00AM
Team Hope Walk- New Hampshire
Rollings Park 33 Bow St , Concord, NH 03301 -
6/11/23 2:00PM
Arizona Celebration for Hope
Mavrix 9139 Talking Stick Way , Scottsdale, AZ 85250 -
6/17/23 10:30 AM
Team Hope Walk- North West Indiana
Central Park 600 N. Broad St. , Griffith, IN 46319 -
6/17/23 10:00AM
Ohio Valley Hoop-a-thon
LeBlond CRC- Outdoor Court 2335 Riverside Drive , Cincinnati, OH 45202 -
6/17/2023 8:00AM
Team Hope 10k Run & 5k Walk- San Jose, CA
Campbell Park E Campbell Ave &, Gilman Ave , Campbell, CA 95008 -
6/24/2023 9:30AM
Yoga at the Park
Shain Park 270 Merrill St , Birmingham, MI 48009 -
6/25/23 9:30AM
Kickball Day Tournament
Ridgefield Park, 31 Partridge St , Albany, NY 12208 -
6/25/23 10:00AM
Tee-off Fore HD
Top Golf 1700 Freedom Wy , Roseville, CA 95678 -
7/14-7/16
National Youth Alliance Retreat (July)
, Louisville, KY -
7/15/23 11:00AM
HDSA Education Day- Cincinnati
Gardner Neuroscience Institute First Floor Auditorium, Room 1010 3113 Bellevue Avenue , Cincinnati, OH 45219 -
7/29/23 10:00AM
Orange County Education Day
University of California, Irvine 101 The City Dr S , Orange, CA 92868 -
7/29/23 10:00AM
Team Hope Walk- Boyne City
Boyne City Pavilion- Veterans Park 207 North Lake St. , Boyne City, MI 49712 -
7/29/23 5:00PM
Trivia Night- Missouri Chapter
Shrewsbury City Center- Sunset Room 5200 Shrewsbury , St. Louis, MO 63119 -
8/3/2023 11:00 AM
Team Hope Walk- Aberdeen, OH
Aberdeen Park 886 High Street , Aberdeen, OH 45101 -
8/5/23 11:00AM
Team Hope Walk- West Michigan
Grand Ravines Lodge, 9920 42nd Ave , Georgetown Twp, MI 49428 -
8/12/23 10:00AM
Team Hope Walk- Traverse City, MI
Sunset Park 635 E Front Street , Traverse City, NY 49686 -
8/12/23 10:00AM
Team Hope Walk- Montana
Bogart Park 325 S Church Ave , Bozeman, MT 59715 -
8/13/2023 10:00AM
Team Hope Walk- Fox Valley, WI
Riverside Park 500 E Wisconsin Ave , Neenah, WI 54956 -
8/20/23 8:30 AM
Team Hope Walk- Cleveland, OH
Cleveland Metro Parks Zoo 3900 Wildlife Way , Cleveland, OH 44109 -
8/19/2023 8:00AM
2023 Tee Off Fore HD
Spring Creek County Club 27122 480th Ave , Harrisburg, SD 57032 -
8/19/2023 10:00AM
Team Hope Walk- Eau Claire, WI
Carson Park - Pine Pavillion 199 Carson Park Dr , Eau Claire, WI 54701 -
8/20/2023 10:00AM
Team Hope Walk- Madison, WI
McKee Farms Park 2930 Chapel Valley Rd , Fitchburg, WI 53711 -
8/20/23 1:00PM
Day at the Races for HD
Hawthorne Race Course 3501 South Laramie , Stickney, IL 60804 -
8/25-27 2:00PM
Arizona Family Retreat Weekend
Redemptorist Renewal Center , 7101 W Picture Rocks Rd , Tucson, AZ 85743 -
8/27/2023 10:00AM
Team Hope Walk- Jim Christus Memorial Run/Walk
Fox Brook Park 2925 N Barker Rd , Brookfield, WI 53045 -
8/27/23 12:00PM
Team Hope Walk- Seattle, WA
Juanita Beach Park 9703 Juanita Dr NE , Kirkland, WA 98034 -
9/9/23 8:00AM
Team Hope Walk- Loda, IL
Lakeview Country Club, 147 E 200 North , Loda, IL 60648 -
9/9/23 9:00AM
Team Hope Walk- Lehigh Valley
Hopewell Park 4695 West Hopewell Road , Center Valley, PA 18034 -
9/10/23 10:00AM
Team Hope Walk- Ohio Valley
Voice of America Park (Fieldhouse) 7850 VOA Park Drive , West Chester, OH 45069 -
9/16/2023 4:00PM
Team Hope Walk- Central Michigan
Grand River Farmers Market Pavilion 117 W Louis Glick Hwy , Jackson, MI 49201 -
9/16/23 9:00AM
Team Hope Walk- San Diego, CA
Coronado Tidelands Park 2000 Mullinex Dr , Coronado, CA 92118 -
9/16/23 10:00AM
Team Hope Walk- Detroit, MI
Royal Oak Memorial Park 31050 Woodward Ave , Royal Oak, MI 48703 -
9/16/23 9:00 AM
Team Hope Walk- Boise, ID
Julius M. Kleiner Memorial Park 1900 N. Records Avenue , Boise, ID 83642 -
9/16/2023 10:00AM
Team Hope Walk- Missouri
Tilles Park, 9551 Litzsinger Road , St. Louis, MO 63124 -
9/16/2023 1:00PM
Team Hope Walk- Springfield, MO
JR Martin Park, 300 E Hines , Republic, MO 65738 -
9/16/23 11:00AM
Team Hope Walk- Indianapolis, IN
Mulberry Fields 9645 Whitestown Rd , Zionville, IN 46077 -
9/17/23 9:00 AM
Team Hope Walk- Long Island, NY
Wantagh Park 1 King Rd Red Barn Shelter 1 & 2 , Wantagh, NY 11793 -
9/17/23 12:00PM
Team Hope Walk- Adrian, MI
Trestle Park 302 W. Hunt St. , Adrian, MI 49221 -
9/23/23 9:00AM
Team Hope Walk- Sacramento, CA
Riverwalk 651 2nd St , West Sacramento, CA 95605 -
9/23/23 10:00AM
Team Hope Walk- Spokane, WA
Orchard Park 20298 E Indiana Ave. , Liberty Lake, WA 99019 -
9/29-10/1
National Youth Alliance Retreat (September)
, Denver, CO -
9/30/23 10:00AM
Team Hope Walk- Utah
Sugar House Park 1330 2100 S , Salt Lake City, UT 84106 -
9/23/2023 1:00PM
Team Hope Walk- Lowell, MA
Heritage State Park Sampas Pavilion 160 Pawtucket Boulevard , Lowell, MA 01854 -
9/24/23 12:30PM
MidWest STL Golf
Crescent Farms Golf Club 745 Lewis Rd , Eureka, MO 63025 -
9/30/23 9:00AM
Team Hope Walk & 5K- Erie, PA
Presque Isle State Park 301 Peninsula Drive Beach 1 , Erie, PA 16505 -
9/24/2023 9:00AM
Team Hope Walk- Rhode Island
Bristol Sports Complex in Colt State Park 50 Asylum Road , Bristol, RI 02809 -
9/30/23 10:00AM
Team Hope Walk- Central Ohio
Blacklick Park 6975 E. Livingston Ave , Reynoldsburg, OH 43068 -
9/30/23 10:00 AM
Team Hope Walk- Delaware
Cape Henlopen State Park Main Pavilion/Bike Loop 15099 Cape Henlopen Drive , lewes, De 19958 -
9/30/23 6PM
Corks & Forks
677 Prime Restaurant 677 Broadway , Albany, NY 12207 -
10/1/23 10:00 AM
New Mexico Top Golf
Top Golf 1600 Desert Surf Circle NE , Top Golf 1600 Desert Surf Circle NE, NM 87107 -
10/8/2023 1:00PM
Team Hope Walk- Buffalo, NY
Ronald J Pilozzi Pavilion, Niawanda Park, 600 Niagra St. , Tonawanda, NY 14150 -
10/1/2023-10/31/2023
(Virtual) Team Hope Walk- Maine Affiliate
, Maine -
10/14/23 9:00 AM
Team Hope Walk- Liberty, MO
Liberty Community Center 1600 S Withers Rd , Liberty, MO 64068 -
10/14/2023 9:00AM
Team Hope 5k Walk & Fun Run- San Francisco
Sports Basement Presidio 610 Old Mason St , San Francisco, CA 94129 -
10/15/2023 9AM
Team Hope Walk- Orlando, FL
UCF- Memory Mall , Orlando, FL -
10/28/23 10:00AM
Team Hope Walk- Hudson Valley, NY
Walkway Over the Hudson 87 Haviland Road , Highland, NY 12528 -
10/22/23 10:00AM
Team Hope Walk- Philadelphia
Philadelphia Navy Yard, League Island Park, Corner of 12th St and Kitty Hawk Ave , Philadelphia, PA 11912 -
10/28/23 1:00PM
Washington Celebration of Hope
Flatstick Redmond 7530 164th Ave NE Suite A108 , Redmond, WA 98052 -
10/28/23 9:00AM
Team Hope Walk- Las Vegas, NV
Lorenzi Park 3333 W Washington Ave , Las Vegas, NV 8910 -
10/29/23 12:00PM
Team Hope Walk- Grand Junction, CO
River Front Trail access 16 Road / Imondi , Grand Junction, CO 81505 -
11/4/2023 6:00PM
2023 Celebration of Hope- Missouri- A Tour Of Italy
Shrewsbury City Center 5200 Shrewsbury , Shrewsbury, MO 63119 -
11/4/2023 10:00AM
Team Hope Walk- Los Angeles, CA
Johnny Carson Park 400 Bob Hope Drive BLDG 29 , Los Angeles, CA 91505 -
11/5/23 10:00 AM
Team Hope Walk- Orange County
William H. Mason Park 18712 University Dr , Irvine, CA 92612 -
11/10-11/12
National Youth Alliance Retreat (November)
, City TBD, CA -
11/18/23 7:00PM
Indiana Celebration of Hope
Half Liter BBQ 5301 Winthrop , Indianapolis, IN 46220 -
11/18/23 9:00AM
Team Hope Walk- Houston, TX
Midlebrook Greenbelt Park 16203 Dunmoor Drive , Houston, TX 77059 -
12/2/2023 6:00 PM
Northeast Celebration of Hope
The Village Club 83 Morton St , Needham, MA 02494 -
12/2/23 8:00 AM
2023 Duck Pluck
Tampa Team Hope Walk , Tampa, FL
