News
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10/06/2022
BLOG: This Week in HD Research
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09/30/2022
HDSA Publishes 2021 Annual Report
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09/30/2022
HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
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09/26/2022
BLOG: Disability Tips
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09/20/2022
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
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09/18/2022
BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
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09/14/2022
HDSA Disability Chat: JHD & Social Security
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09/08/2022
HDSA Research Webinar: All You Need To Know About PROOF-HD
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08/29/2022
HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
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08/24/2022
Novartis Provides Community Update Regarding VIBRANT-HD
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08/12/2022
HDSA Research Webinar: HD Clinical Trials Update
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08/11/2022
Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
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08/10/2022
Sage Therapeutics Provides Positive Update on the SURVEYOR Study
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08/10/2022
HDSA Films presents KING’S CRUSADE (Part 2)
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08/09/2022
HDSA Statement Regarding VIBRANT-HD Trial
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08/09/2022
uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
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07/26/2022
HDSA Films presents KING’S CRUSADE (Part 1)
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07/12/2022
Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
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06/30/2022
HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
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06/23/2022
uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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06/20/2022
HDBuzz: How clever computers are helping us understand Huntington’s disease
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06/16/2022
New system that defines Huntington’s disease will ‘revolutionise’ drug trials
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06/15/2022
HDBuzz: A new roadmap to track Huntington’s disease progression
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06/14/2022
37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
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06/07/2022
Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
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05/28/2022
HDSA Films presents THE STORY OF E.J. + KATY
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05/20/2022
HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
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05/11/2022
HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
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03/31/2022
PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
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03/18/2022
HDBuzz: A spoonful of branaplam helps the huntingtin go down
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03/08/2022
HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
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03/04/2022
HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
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03/03/2022
HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
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02/22/2022
Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
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02/18/2022
HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
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02/09/2022
Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
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02/07/2022
uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
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02/02/2022
HDBuzz: Oral drug may change the story for huntingtin lowering
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02/01/2022
Register Today for the 37th Annual HDSA Convention in Atlanta
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01/31/2022
HDSA Publishes 2021 Year In Review Magazine
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01/27/2022
BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
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01/21/2022
VIDEO: Roche Community Presentation of New Tominersen Data
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01/18/2022
BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
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01/04/2022
Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment
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12/24/2021
VIDEO: Happy Holidays from Louise Vetter
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12/16/2021
uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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12/08/2021
The Marker is Now Available! Read HDSA’s 2021 Research Report
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12/07/2021
Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
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12/03/2021
Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
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11/16/2021
HDSA Coffee Walk with Jennifer Simpson
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11/15/2021
TAKE ACTION: HDSA’s 7 Days of Action
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11/12/2021
HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
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11/10/2021
HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
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11/10/2021
More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
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11/01/2021
HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
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10/19/2021
Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
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10/14/2021
HDSA Awards $749,000 to HD Human Biology Projects
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09/29/2021
HDBuzz: Q&A with Roche about GENERATION-HD1
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09/22/2021
HDSA Publishes 2020 Annual Report
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09/16/2021
Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
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09/10/2021
Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
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08/30/2021
HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
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08/16/2021
HDBuzz: Unpacking Recent Gene Therapy Press
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08/09/2021
Update from Voyager Therapeutics
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08/06/2021
HDSA Films Presents The Osborns: Our Legacy
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08/04/2021
VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
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07/29/2021
HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
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07/21/2021
HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
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07/02/2021
NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
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06/14/2021
Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
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06/12/2021
HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
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06/10/2021
HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
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05/28/2021
uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
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04/30/2021
HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
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04/30/2021
HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
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04/29/2021
HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
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04/28/2021
HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
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04/26/2021
HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
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04/21/2021
Now Accepting 2021 National Award Nominations
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04/05/2021
uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
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04/02/2021
Register Today For Free | Virtual 36th Annual HDSA Convention
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03/30/2021
HDBuzz: Wave Life Sciences PRECISION-HD Trials
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03/29/2021
Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
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03/26/2021
VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
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03/25/2021
RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
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03/23/2021
HDBuzz: Sad News From Roche
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03/22/2021
Roche Provides a Disappointing Update on Tominersen
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03/19/2021
HDSA Reintroduces the HD Parity Act
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03/18/2021
HDSA Films presents My Father, My Hero
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03/12/2021
Now Accepting 2021 Human Biology Project Letters of Intent
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02/25/2021
HDBuzz: Vaccines and HD
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02/18/2021
The 36th Annual HDSA Convention Goes Virtual!
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02/02/2021
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
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01/29/2021
HDSA Publishes 2020 Year In Review Magazine
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01/06/2021
Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
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01/01/2021
Happy New Year!
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12/17/2020
NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
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12/10/2020
HDSA Publishes The Marker: 2020 Research Report
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12/03/2020
HDSA Awards Four HD Human Biology Project Fellowships For 2020
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10/06/2020
HDBUZZ: Updates from the EHDN Plenary Meeting 2020
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09/28/2020
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
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09/10/2020
HDSA Publishes 2019 Annual Report
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08/26/2020
HDBuzz: When genes are unstable: Targeting somatic instability in HD
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08/25/2020
NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
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08/18/2020
HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
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08/14/2020
HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
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08/10/2020
Anne Leserman announces her retirement from HDSA
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07/28/2020
Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
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07/22/2020
NEW EPISODE: Here’s The Deal with End of Life & HD
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07/06/2020
Huntington’s Disease Featured on ABC News Live Prime
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06/24/2020
HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
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06/19/2020
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
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06/15/2020
Virtual HDSA Convention Recorded Sessions Now Available
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06/10/2020
Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
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06/03/2020
HDSA Supports The Fight Against Racism
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06/01/2020
Register for the Virtual 35th Annual HDSA Convention
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05/29/2020
Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
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05/27/2020
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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05/15/2020
International Huntington’s Disease Awareness Day – May 15th
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05/07/2020
HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
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04/20/2020
COMMUNITY STATEMENT: Update On Tominersen (RG6042)
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04/17/2020
NEW EPISODE: Here’s The Deal with Self-Care
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04/06/2020
HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
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04/03/2020
HD & COVID-19 PANDEMIC RESOURCES
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04/02/2020
NEW EPISODE: Here’s The Deal with COVID-19 & HD
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03/27/2020
FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
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03/27/2020
Community Statement
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03/26/2020
NEW EPISODE: Here’s The Deal with Disability
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03/20/2020
HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
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03/18/2020
HDSA Community Update: HD & COVID-19
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03/13/2020
HDSA Community Update
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03/13/2020
HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
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03/05/2020
HDSA Convention Community Statement
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03/03/2020
HDBuzz: Day 3 at HD Therapeutics Conference
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03/02/2020
HDSA Films Presents ALLIE & JOE
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03/02/2020
HDBuzz: Day 2 at HD Therapeutics Conference
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02/28/2020
HDBuzz: Day 1 at HD Therapeutics Conference
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02/05/2020
HDSA Announces Fifty 2020 Centers of Excellence
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01/17/2020
HDSA Publishes 2019 Year In Review Magazine
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01/17/2020
REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
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12/30/2019
Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
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12/30/2019
Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
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12/23/2019
HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
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12/23/2019
HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
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12/05/2019
HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
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11/27/2019
HDSA Welcomes Three Trustees to National Board
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11/19/2019
HDSA Publishes The Marker – 2019 Research Report
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11/06/2019
HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
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10/15/2019
HDSA Awards Five 2019 HD Human Biology Project Fellowships
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10/15/2019
Community Statement from Roche / Genentech
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10/01/2019
View 5th Annual Freeze HD Red Carpet and Event Photos
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10/01/2019
5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
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09/11/2019
2018 HDSA Annual Report
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08/05/2019
HDBUZZ: Exciting New Huntingtin Lowering Tool Described
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07/30/2019
Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
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07/23/2019
VIDEO: Here’s The Deal With Caregiving While Positive
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07/15/2019
VIDEO: 34th Annual HDSA Convention Recap
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07/01/2019
HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
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06/28/2019
Community Statement from uniQure
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06/20/2019
HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
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06/11/2019
HDSA Adds Allison Bartlett as Manager of Disability Programs
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05/31/2019
HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
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05/15/2019
Huntington’s Disease Parity Act Is Reintroduced
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05/07/2019
HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
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04/18/2019
Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
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04/16/2019
HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
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04/11/2019
HDSA Films Presents “The Hodgsons” Short Film
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04/10/2019
Update on PRECISION-HD program
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04/04/2019
BLOG: This Week in HD Research
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03/22/2019
HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
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03/21/2019
COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
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03/14/2019
HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
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03/04/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
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03/01/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
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02/11/2019
Huntington’s Disease Featured On The Today Show
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02/06/2019
HDSA Expands Centers of Excellence Program to Forty-Seven
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01/30/2019
HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
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01/28/2019
First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
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01/24/2019
HDSA Publishes 2018 Year In Review Magazine
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01/22/2019
uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
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01/16/2019
HDSA Launches Youth Social Worker Program
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12/19/2018
BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
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12/11/2018
HDSA’s 2018 Research Report Now Available
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12/10/2018
EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
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12/04/2018
HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
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11/10/2018
Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
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10/23/2018
HDSA Awards Five HD Human Biology Project Fellowships for 2018
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10/17/2018
FAQs: Upcoming Genentech/Roche Studies
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10/03/2018
HDBuzz: Kids Get Huntington’s Disease Too
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09/26/2018
RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
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09/18/2018
HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
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09/16/2018
Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
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09/16/2018
Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
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08/03/2018
Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
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08/02/2018
IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
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08/01/2018
Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
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07/10/2018
HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
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06/27/2018
VIDEO: 33rd Annual HDSA Convention Recap
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06/13/2018
33rd Annual HDSA Convention Recap
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06/13/2018
VIDEO: HD Buzz at the 33rd Annual HDSA Convention
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Research Forum
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Opening Ceremony
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06/07/2018
Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
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05/15/2018
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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04/27/2018
FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
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04/24/2018
New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
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04/24/2018
HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
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04/20/2018
Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
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04/19/2018
HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
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03/29/2018
VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
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03/12/2018
HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
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03/05/2018
HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
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03/05/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
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03/01/2018
IONIS-HTT Rx Community Statement
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03/01/2018
IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
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03/01/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
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02/28/2018
HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
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02/13/2018
HDSA Announces Forty-Three Centers of Excellence
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02/02/2018
CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
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12/12/2017
FAQs: Ionis Huntingtin-Lowering Trial
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12/11/2017
Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
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12/11/2017
BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
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11/20/2017
Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
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11/14/2017
HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
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11/14/2017
HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
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11/02/2017
HDBUZZ: Switch off the genome editor when you’re done
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10/15/2017
Update confirms Huntington’s disease ‘gene silencing’ trial on track
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10/12/2017
Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
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09/25/2017
HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
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09/19/2017
Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
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09/18/2017
Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
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08/01/2017
HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
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07/28/2017
HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
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07/17/2017
Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
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06/29/2017
Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
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06/22/2017
Exciting News: IONIS provides update on Huntingtin lowering trial
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06/21/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
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06/08/2017
New study reveals a potential HD biomarker
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05/30/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
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05/24/2017
Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
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05/16/2017
Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
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05/15/2017
Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
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05/15/2017
Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
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05/08/2017
Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
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05/02/2017
Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 3
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 2
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04/27/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 1
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04/21/2017
Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
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04/14/2017
Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
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04/05/2017
HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
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03/29/2017
Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
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03/28/2017
2017 National Awards Nominations
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03/13/2017
Save the Date- For the largest global gathering of the HD community!
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02/28/2017
Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
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02/24/2017
Weeding out the truth: can cannabis improve Huntington’s?
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02/22/2017
Huntingtin grabs a hammer: DNA repair in HD
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02/10/2017
The benefits of migration, highlighted in Huntington’s disease
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02/08/2017
Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
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01/19/2017
Huntington’s Disease Society of America Unveils HDNavigator Mobile App
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01/12/2017
HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
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12/19/2016
Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
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12/06/2016
HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
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12/02/2016
Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
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11/22/2016
HDSA Earns Top-Rating from CharityWatch
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11/15/2016
Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
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11/01/2016
Important advances in next generation genome editing tools for Huntington’s Disease
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10/03/2016
HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
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09/23/2016
EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
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09/19/2016
Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
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08/30/2016
New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
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08/22/2016
HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
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08/17/2016
Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
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08/02/2016
A support system gone wrong – glial cells contribute to HD symptoms
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07/18/2016
Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
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07/08/2016
Huntington’s Disease Community Scores Major Victory with Social Security Criteria
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07/05/2016
Slightly long CAG repeats are more common than we thought
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06/29/2016
Early exposure to the HD protein may cause life-long symptoms
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06/21/2016
WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
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06/20/2016
Electron beam snaps best images yet of Huntington’s disease protein
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06/14/2016
Select Videos From HDSA’s 31st Annual Convention Now Available
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06/10/2016
Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
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06/07/2016
Huntingtin takes a trip: harmful proteins pass between brain cells
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06/03/2016
Watch us Live from the 31st Annual HDSA Convention
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06/01/2016
HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
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05/17/2016
Postcard from Palm Springs
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05/10/2016
Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
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05/03/2016
Important drug targets yielded by new genetic study of HD
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05/02/2016
Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
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04/28/2016
Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
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04/18/2016
Thinking clearly about the earliest symptoms of HD and which brain regions control them
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04/18/2016
Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
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03/28/2016
2016 HDSA NATIONAL AWARDS NOMINATIONS
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03/10/2016
How NOT to write a news article about a clinical trial
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02/29/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
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02/26/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
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02/24/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
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02/05/2016
Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
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02/01/2016
Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
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02/01/2016
Harnessing the power of viruses to treat Huntington’s disease
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01/25/2016
Through a Broader Lens: Looking at Non-Motor Symptoms in HD
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01/22/2016
HDSA Releases 2015 Year in Review
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12/23/2015
HDSA Releases 2015 Research Investor’s Report
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12/18/2015
Looking Past the Spin: Results from a Clinical Trial of Cysteamine
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12/15/2015
An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
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12/10/2015
Raptor Plans to Advance RP103 in a Registration Study
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12/07/2015
New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
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12/02/2015
Through the eyes of a friend: changes in mood and behavior in early HD
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12/02/2015
Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
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12/01/2015
Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
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11/25/2015
A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
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11/25/2015
Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
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11/03/2015
Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
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11/02/2015
Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
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10/20/2015
HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
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10/09/2015
HDBuzz primer: Clinical trial designs and phases
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10/05/2015
Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
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09/23/2015
FDA Opens 60 Day Open Comment Period
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09/22/2015
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
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09/17/2015
HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
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09/11/2015
CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
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08/31/2015
Deadline To Tell Us Your Thoughts Has Been Extended!
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08/17/2015
HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
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08/05/2015
Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
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07/30/2015
Scientists identify genetic factors that alter the clinical onset of HD in landmark study
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07/29/2015
Would ewe believe it? GM1, sheep and Huntington’s disease
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07/21/2015
ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
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07/02/2015
30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
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06/22/2015
Calling all HD families: Our time to be heard is now!
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06/19/2015
Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
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06/19/2015
HDSA Supports 21st Century Cures Act
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06/16/2015
NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
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06/02/2015
Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
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06/02/2015
HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
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05/26/2015
2015 Postcard from Palm Springs
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05/13/2015
HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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05/12/2015
2015 Huntington’s Disease Therapeutics Conference and taking part in trials
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05/07/2015
Gene variant determines early or late onset of Huntington’s disease
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05/01/2015
Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
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04/22/2015
Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
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04/21/2015
Lighting the way: A new biomarker for Huntington’s disease
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04/07/2015
Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
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04/07/2015
New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
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01/29/2015
Law Enforcement Toolkit II Webinar Now Available
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01/29/2015
Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
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01/29/2015
Huntington’s Disease Society of America Endorses Enroll-HD
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01/29/2015
Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
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01/29/2015
Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
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01/29/2015
HDSA appoints Director of Marketing & Communications
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01/29/2015
World leader in movement disorders Professor Ira Shoulson joins Prana Board
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01/29/2015
Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
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01/28/2015
Huntington’s Disease Society of America Launches First “HD News” App
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01/28/2015
2CARE HD Clinical Trial Stopped Early for Lack of Benefit
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01/28/2015
HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
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01/28/2015
Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
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01/28/2015
Huntington’s Disease Society of America Awards Additional HD Human Biology Project
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01/28/2015
Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
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01/28/2015
Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
Events
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10/7-10/8
HDSA Tennessee Education Day
Hilton Nashville Green Hills, 3801 Cleghorn Ave , Nashville, TN 37215 -
10/7/2022 10AM
2022 Northeast Ohio Golf For A Cure
Shale Creek 5420 Wolff Rd. , Medina, MI 44256 -
10/7/2022 7PM
A Night at Ferus Artisan Ales – Benefiting HDSA
Ferus Artisan Ales, 101 Beech St. Suite 111 , Trussville, AL 35173 -
10/9/2022 10AM
Team Hope Walk- Maine
Ellsworth High School 24 Lejok Street , Ellsworth, ME 04605 -
10/8/2022 9:00 AM
Team Hope Walk- Liberty, MO
Liberty Community Center 1600 South Withers Road , Liberty, MO 64068 -
10/15/2022 1PM
MN Celebration of Hope: Art & Auction
Lord Fletcher's Old Lake Lodge, 3746 Sunset Drive , Spring Park, MN 55384 -
10/15/2022
2022 Omaha Tailgate Party
Skyybox Bar & Grill 6720 S 168th St , Omaha, NE 68131 -
10/16/2022 1PM
Team Hope Walk- Southwest Michigan
Sherman Lake YMCA & Outdoor Center 6225 N. 39th Street , Augusta, MI 49012 -
10/16/2022 12:30PM
Team Hope Walk- Greater North Texas
Mary Heads Carter Park 2320 Heads Ln , Carrollton, TX 75006 -
10/17/2022 8am
8th Annual Golf for the Cure Tournament
Eagle Wath, 3055 Eagle Watch Dr , Woodstock, GA 30189 -
10/22/2022 10AM
Team Hope Walk- Tewksbury, MA (Lowell, MA)
Heritage State Park Sampas Pavilion 160 Pawtucket Boulevard , Lowell, MA 01854 -
10/22/2022 10AM
Team Hope Walk- Tulsa, OK
LaFortune Partk, 5202 S. Hudson Ave , Tulsa, OK 74135 -
10/22/2022 6:00PM
8th Annual Freeze HD
Avalon Hollywood 1735 Vine St, , Los Angeles, CA 90028 -
10/22/2022 9:00AM
Team Hope Walk- San Diego
Coronada Tidelands Park, 2000 Mullinix Drive , Coronada, CA 92113 -
10/22/2022
Team Hope Walk- Philadelphia, PA
League Island Park The Navy Yard , Philadelphia, PA 19112 -
10/23/2022 9:00AM
Team Hope Walk- Hudson Valley, NY
Walkway Over The Hudson State Historic Park, 87 Haviland Rd , Highland, NY 126528 -
10/25/2022 8:00AM
2022 Nashville Hope for Huntington’s Golf Tournament
Hermitage Golf Course, 3939 Old Hickory Blvd , Old Hickory, TN 37138 -
10/29/2022 10AM
Team Hope Walk- North Carolina
Lowe's Grove Middle School, 4418 S Alston Ave , Durham, NC 27713 -
10/29/2022 9:00 AM
Team Hope Walk- Las Vegas, NV
Craig Ranch Regional Park, 628 W Craig Rd , North Las Vegas, NV 89032 -
10/30/2022 2:00PM
Team Hope Walk- Columbia, SC *New Date*
Community Park of Irmo 7507 Eastview Drive , Irmo, SC 29063 -
10/1-10/31
PacWest ParTee
, CA -
11/5/2022 9AM
Team Hope Walk- Tucson, AZ
Reid Park 900 S Randolph Way , Tucson, AZ 85716 -
11/5/2022 9:00AM
Wisconsin Chapter Education Conference
Bridgewood Resort Hotel & Conference Center, 1000 Cameron Way , Neenah, WI 54956 -
11/5/2022 9AM
Team Hope Walk- Los Angeles, CA
Johnny Carson Park, 400 Bob Hope Drive , Burbank, CA 91505 -
11/5/2022 9:00 AM
Team Hope Walk- Austin, TX
Martin Middle School, 1601 Haskell St , Austin, TX 78702 -
11/8/2022 12PM
Disability Chat: Disability Planning and JHD: An overview of the legal, financial, and educational options for children and young adults.
, NY -
11/10/2022 6:30PM
Celebration of Hope – Painting A Future Without HD
Strongwater Food & Spirits, 401 W Town St. , Columbus, OH 43215 -
11/12/2022 9:00AM
HD Patient & Family Symposium
Rush University Downtown Campus, 1725 West Harrison Street , Chicago, IL 60612 -
11/12/2022 6:00PM
All That Jazz
Holiday Inn Des Moines Mercy Campus, 1050 6th Ave. , Des Moines, IA 50314 -
11/12/2022 6PM
2022 Indiana Chapter- Celebration of Hope
Half Liter BBQ 5301 Winthrop , Indianapolis, IN 46220 -
11/13/2022 10AM
Team Hope Walk- Orlando, FL
Cranes Roost County Park 274 Cranes Roost Blvd, , Altamonte Springs, FL 32701 -
11/18/2022 6:30PM
Missouri Celebration of Hope- Family Is Everything Harvest
Shrewsbury City Center- Sunset Room, 5200 Shrewsbury , St. Louis, MO 63119 -
11/19/2022 9:30AM
Huntington’s Disease Memphis Area Education Day
New Hope Christian Church, 3300 Kirby Whitten Rd , Bartlett, TN 3813 -
11/30/2022 10AM
Team Hope Walk- Burlington, VT
, Burlington, VT -
12/3/2022 8AM
2022 Team Hope Walk- Tampa, FL
Lowry Park - Shelter 120, 7525 N Blvd , Tampa, FL 33604 -
12/4/2022 1PM
2022 Chicago Celebration of Hope
The Ivy Room 12 East Ohio Street Suite 100 , Chicago, IL 60611
