News
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07/29/2021
HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
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07/29/2021
BLOG: This Week in HD Research
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07/21/2021
HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
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07/02/2021
NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
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06/14/2021
Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
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06/12/2021
HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
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06/10/2021
HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
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05/28/2021
uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
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04/30/2021
HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
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04/30/2021
HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
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04/29/2021
HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
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04/28/2021
HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
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04/26/2021
HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
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04/21/2021
Now Accepting 2021 National Award Nominations
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04/05/2021
uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
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04/02/2021
Register Today For Free | Virtual 36th Annual HDSA Convention
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03/30/2021
HDBuzz: Wave Life Sciences PRECISION-HD Trials
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03/29/2021
Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
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03/26/2021
VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
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03/25/2021
RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
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03/23/2021
HDBuzz: Sad News From Roche
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03/22/2021
Roche Provides a Disappointing Update on Tominersen
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03/19/2021
HDSA Reintroduces the HD Parity Act
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03/18/2021
HDSA Films presents My Father, My Hero
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03/12/2021
Now Accepting 2021 Human Biology Project Letters of Intent
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02/25/2021
HDBuzz: Vaccines and HD
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02/18/2021
The 36th Annual HDSA Convention Goes Virtual!
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02/02/2021
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
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01/29/2021
HDSA Publishes 2020 Year In Review Magazine
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01/06/2021
Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
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01/01/2021
Happy New Year!
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12/17/2020
NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
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12/10/2020
HDSA Publishes The Marker: 2020 Research Report
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12/03/2020
HDSA Awards Four HD Human Biology Project Fellowships For 2020
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10/06/2020
HDBUZZ: Updates from the EHDN Plenary Meeting 2020
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09/28/2020
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
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09/10/2020
HDSA Publishes 2019 Annual Report
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08/26/2020
HDBuzz: When genes are unstable: Targeting somatic instability in HD
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08/25/2020
NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
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08/18/2020
HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
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08/14/2020
HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
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08/10/2020
Anne Leserman announces her retirement from HDSA
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07/28/2020
Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
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07/22/2020
NEW EPISODE: Here’s The Deal with End of Life & HD
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07/06/2020
Huntington’s Disease Featured on ABC News Live Prime
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06/24/2020
HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
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06/19/2020
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
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06/15/2020
Virtual HDSA Convention Recorded Sessions Now Available
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06/10/2020
Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
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06/03/2020
HDSA Supports The Fight Against Racism
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06/01/2020
Register for the Virtual 35th Annual HDSA Convention
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05/29/2020
Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
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05/27/2020
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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05/15/2020
International Huntington’s Disease Awareness Day – May 15th
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05/07/2020
HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
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04/20/2020
COMMUNITY STATEMENT: Update On Tominersen (RG6042)
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04/17/2020
NEW EPISODE: Here’s The Deal with Self-Care
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04/06/2020
HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
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04/03/2020
HD & COVID-19 PANDEMIC RESOURCES
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04/02/2020
NEW EPISODE: Here’s The Deal with COVID-19 & HD
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03/27/2020
FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
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03/27/2020
Community Statement
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03/26/2020
NEW EPISODE: Here’s The Deal with Disability
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03/20/2020
HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
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03/18/2020
HDSA Community Update: HD & COVID-19
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03/13/2020
HDSA Community Update
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03/13/2020
HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
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03/05/2020
HDSA Convention Community Statement
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03/03/2020
HDBuzz: Day 3 at HD Therapeutics Conference
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03/02/2020
HDSA Films Presents ALLIE & JOE
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03/02/2020
HDBuzz: Day 2 at HD Therapeutics Conference
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02/28/2020
HDBuzz: Day 1 at HD Therapeutics Conference
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02/05/2020
HDSA Announces Fifty 2020 Centers of Excellence
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01/17/2020
HDSA Publishes 2019 Year In Review Magazine
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01/17/2020
REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
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12/30/2019
Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
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12/30/2019
Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
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12/23/2019
HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
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12/23/2019
HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
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12/05/2019
HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
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11/27/2019
HDSA Welcomes Three Trustees to National Board
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11/19/2019
HDSA Publishes The Marker – 2019 Research Report
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11/06/2019
HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
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10/15/2019
HDSA Awards Five 2019 HD Human Biology Project Fellowships
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10/15/2019
Community Statement from Roche / Genentech
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10/01/2019
View 5th Annual Freeze HD Red Carpet and Event Photos
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10/01/2019
5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
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09/11/2019
2018 HDSA Annual Report
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08/05/2019
HDBUZZ: Exciting New Huntingtin Lowering Tool Described
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07/30/2019
Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
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07/23/2019
VIDEO: Here’s The Deal With Caregiving While Positive
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07/15/2019
VIDEO: 34th Annual HDSA Convention Recap
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07/01/2019
HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
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06/28/2019
Community Statement from uniQure
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06/20/2019
HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
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06/11/2019
HDSA Adds Allison Bartlett as Manager of Disability Programs
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05/31/2019
HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
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05/15/2019
Huntington’s Disease Parity Act Is Reintroduced
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05/07/2019
HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
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04/18/2019
Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
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04/16/2019
HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
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04/11/2019
HDSA Films Presents “The Hodgsons” Short Film
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04/10/2019
Update on PRECISION-HD program
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04/04/2019
BLOG: This Week in HD Research
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03/22/2019
HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
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03/21/2019
COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
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03/14/2019
HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
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03/04/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
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03/01/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
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02/11/2019
Huntington’s Disease Featured On The Today Show
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02/06/2019
HDSA Expands Centers of Excellence Program to Forty-Seven
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01/30/2019
HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
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01/28/2019
First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
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01/24/2019
HDSA Publishes 2018 Year In Review Magazine
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01/22/2019
uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
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01/16/2019
HDSA Launches Youth Social Worker Program
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12/19/2018
BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
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12/11/2018
HDSA’s 2018 Research Report Now Available
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12/10/2018
EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
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12/04/2018
HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
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11/10/2018
Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
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10/23/2018
HDSA Awards Five HD Human Biology Project Fellowships for 2018
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10/17/2018
FAQs: Upcoming Genentech/Roche Studies
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10/03/2018
HDBuzz: Kids Get Huntington’s Disease Too
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09/26/2018
RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
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09/18/2018
HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
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09/16/2018
Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
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09/16/2018
Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
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08/03/2018
Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
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08/02/2018
IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
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08/01/2018
Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
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07/10/2018
HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
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06/27/2018
VIDEO: 33rd Annual HDSA Convention Recap
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06/13/2018
33rd Annual HDSA Convention Recap
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06/13/2018
VIDEO: HD Buzz at the 33rd Annual HDSA Convention
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Research Forum
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Opening Ceremony
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06/07/2018
Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
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05/15/2018
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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04/27/2018
FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
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04/24/2018
New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
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04/24/2018
HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
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04/20/2018
Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
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04/19/2018
HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
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03/29/2018
VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
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03/12/2018
HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
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03/05/2018
HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
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03/05/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
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03/01/2018
IONIS-HTT Rx Community Statement
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03/01/2018
IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
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03/01/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
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02/28/2018
HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
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02/13/2018
HDSA Announces Forty-Three Centers of Excellence
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02/02/2018
CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
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12/12/2017
FAQs: Ionis Huntingtin-Lowering Trial
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12/11/2017
Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
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12/11/2017
BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
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11/20/2017
Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
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11/14/2017
HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
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11/14/2017
HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
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11/02/2017
HDBUZZ: Switch off the genome editor when you’re done
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10/15/2017
Update confirms Huntington’s disease ‘gene silencing’ trial on track
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10/12/2017
Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
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09/25/2017
HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
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09/19/2017
Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
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09/18/2017
Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
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08/01/2017
HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
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07/28/2017
HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
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07/17/2017
Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
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06/29/2017
Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
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06/22/2017
Exciting News: IONIS provides update on Huntingtin lowering trial
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06/21/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
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06/08/2017
New study reveals a potential HD biomarker
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05/30/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
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05/24/2017
Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
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05/16/2017
Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
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05/15/2017
Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
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05/15/2017
Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
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05/08/2017
Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
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05/02/2017
Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 3
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 2
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04/27/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 1
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04/21/2017
Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
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04/14/2017
Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
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04/05/2017
HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
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03/29/2017
Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
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03/28/2017
2017 National Awards Nominations
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03/13/2017
Save the Date- For the largest global gathering of the HD community!
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02/28/2017
Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
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02/24/2017
Weeding out the truth: can cannabis improve Huntington’s?
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02/22/2017
Huntingtin grabs a hammer: DNA repair in HD
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02/10/2017
The benefits of migration, highlighted in Huntington’s disease
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02/08/2017
Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
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01/19/2017
Huntington’s Disease Society of America Unveils HDNavigator Mobile App
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01/12/2017
HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
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12/19/2016
Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
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12/06/2016
HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
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12/02/2016
Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
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11/22/2016
HDSA Earns Top-Rating from CharityWatch
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11/15/2016
Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
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11/01/2016
Important advances in next generation genome editing tools for Huntington’s Disease
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10/03/2016
HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
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09/23/2016
EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
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09/19/2016
Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
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08/30/2016
New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
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08/22/2016
HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
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08/17/2016
Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
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08/02/2016
A support system gone wrong – glial cells contribute to HD symptoms
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07/18/2016
Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
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07/08/2016
Huntington’s Disease Community Scores Major Victory with Social Security Criteria
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07/05/2016
Slightly long CAG repeats are more common than we thought
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06/29/2016
Early exposure to the HD protein may cause life-long symptoms
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06/21/2016
WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
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06/20/2016
Electron beam snaps best images yet of Huntington’s disease protein
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06/14/2016
Select Videos From HDSA’s 31st Annual Convention Now Available
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06/10/2016
Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
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06/07/2016
Huntingtin takes a trip: harmful proteins pass between brain cells
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06/03/2016
Watch us Live from the 31st Annual HDSA Convention
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06/01/2016
HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
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05/17/2016
Postcard from Palm Springs
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05/10/2016
Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
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05/03/2016
Important drug targets yielded by new genetic study of HD
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05/02/2016
Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
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04/28/2016
Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
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04/18/2016
Thinking clearly about the earliest symptoms of HD and which brain regions control them
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04/18/2016
Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
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03/28/2016
2016 HDSA NATIONAL AWARDS NOMINATIONS
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03/10/2016
How NOT to write a news article about a clinical trial
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02/29/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
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02/26/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
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02/24/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
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02/05/2016
Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
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02/01/2016
Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
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02/01/2016
Harnessing the power of viruses to treat Huntington’s disease
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01/25/2016
Through a Broader Lens: Looking at Non-Motor Symptoms in HD
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01/22/2016
HDSA Releases 2015 Year in Review
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12/23/2015
HDSA Releases 2015 Research Investor’s Report
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12/18/2015
Looking Past the Spin: Results from a Clinical Trial of Cysteamine
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12/15/2015
An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
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12/10/2015
Raptor Plans to Advance RP103 in a Registration Study
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12/07/2015
New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
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12/02/2015
Through the eyes of a friend: changes in mood and behavior in early HD
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12/02/2015
Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
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12/01/2015
Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
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11/25/2015
A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
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11/25/2015
Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
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11/03/2015
Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
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11/02/2015
Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
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10/20/2015
HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
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10/09/2015
HDBuzz primer: Clinical trial designs and phases
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10/05/2015
Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
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09/23/2015
FDA Opens 60 Day Open Comment Period
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09/22/2015
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
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09/17/2015
HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
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09/11/2015
CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
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08/31/2015
Deadline To Tell Us Your Thoughts Has Been Extended!
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08/17/2015
HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
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08/05/2015
Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
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07/30/2015
Scientists identify genetic factors that alter the clinical onset of HD in landmark study
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07/29/2015
Would ewe believe it? GM1, sheep and Huntington’s disease
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07/21/2015
ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
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07/02/2015
30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
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06/22/2015
Calling all HD families: Our time to be heard is now!
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06/19/2015
Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
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06/19/2015
HDSA Supports 21st Century Cures Act
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06/16/2015
NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
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06/02/2015
Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
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06/02/2015
HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
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05/26/2015
2015 Postcard from Palm Springs
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05/13/2015
HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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05/12/2015
2015 Huntington’s Disease Therapeutics Conference and taking part in trials
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05/07/2015
Gene variant determines early or late onset of Huntington’s disease
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05/01/2015
Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
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04/22/2015
Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
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04/21/2015
Lighting the way: A new biomarker for Huntington’s disease
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04/07/2015
Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
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04/07/2015
New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
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01/29/2015
Law Enforcement Toolkit II Webinar Now Available
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01/29/2015
Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
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01/29/2015
Huntington’s Disease Society of America Endorses Enroll-HD
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01/29/2015
Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
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01/29/2015
Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
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01/29/2015
HDSA appoints Director of Marketing & Communications
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01/29/2015
World leader in movement disorders Professor Ira Shoulson joins Prana Board
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01/29/2015
Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
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01/28/2015
Huntington’s Disease Society of America Launches First “HD News” App
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01/28/2015
2CARE HD Clinical Trial Stopped Early for Lack of Benefit
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01/28/2015
HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
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01/28/2015
Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
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01/28/2015
Huntington’s Disease Society of America Awards Additional HD Human Biology Project
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01/28/2015
Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
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01/28/2015
Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
Events
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7/29/2021 6:00PM
New England Gala Murder Mystery Night
Braeburn Country Club , 326 Fuller St , Newton, MA 02465 -
7/31/2021 9AM
Team Hope Walk- Tulsa, OK
Lafortune Park, 5202 S Hudson Ave , Tulsa, OK 74135 -
8/8/2021 10AM
Team Hope Walk/Run- Fox Valley, WI
Riverside Park, 500 E. Wisconsin Street , Neenah, WI 54956 -
8/14/2021 8:30AM
Grahlman Best Shot Golf Outing
Jester Park, 11121 NW Jester Park Drive , Granger, IA 50109 -
8/14/2021 10AM
Team Hope Run/Walk Eau Claire, WI
Carson Park - Oak Pavillion, 100 Carson Park Drive , Erie Claire, Wi 54701 -
8/14/2021 10AM
Team Hope Walk- Traverse City, MI
Sunset Park 635 East Front Street , Traverse City, MI 49686 -
8/15/2021 10AM
Team Hope Walk- Madison, WI
McKee Farms Park, 2930 Chapel Valley Road , Fitchburg, WI 53711 -
8/15/2021 10AM
Team Hope Walk & 5K- Cleveland, OH
Cleveland Zoo, 3900 Wildlife Way , Cleveland, OH 49083 -
8/21/2021 10AM
Team Hope Walk- Adrian, MI
Trestle Park 302 West Hunt Street , Adrian, MI 49221 -
8/21/2021 5PM
Night Out for A Cure
Crosstown Brewery, 1264 Concourse Avenue , Memphis, TN 38104 -
8/21/2021 7:30AM
Fairways For Hope
Raccoon Creek Golf Course, 7301 W Bowles Ave , Littleton, CO 80123 -
8/21/2021 8AM
Tee Off Fore HD!
Spring Creek Country Club, 27122 480th Ave , Harrisburg, SD 57032 -
8/20-22/2021 9AM
HDSA Arizona Family Retreat
Redemptorist Renewal Center, 7101 W. Picture Rocks Road , Tucson, AZ 85743 -
8/28/2021 8:00AM
Paula’s Ironman Challenge for HD
Vilano Beach , Vilano Beach, FL 32084 -
8/28/2021 4PM
IL Baggo Tournament
, Rolling Meadows, IL 60008 -
8/28/2021 9:00AM
Team Hope Walk- West Michigan
Kollen Park, 240 Kollen Park Dr. , Holland, MI 49423 -
8/28/2021 8:45AM
Fishy Frolic 5K/10K/Walk
Albany Corning Preserve, Jennings Landing, 1 Quay Street , Albany, NY 12207 -
8/29/2021 10AM
Team Hope Walk- Milwaukee, WI
Fox Brook Park, 2925 N Barker Road , Brookfield, WI 53045 -
8/29/2021 9:00AM
Team Hope Walk- Omaha, NE
Lake Zorinsky Park- Zorinsky Shelter #5 , Omaha, NE 68144 -
9/3/2021 1:00 PM
Team Hope Walk – Memphis, TN
Harding Academy Memphos, 1100 Cherry Road , Memphis, TN 38117 -
9/11/2021 10:00AM
Team Hope Walk- Twin Cities, MN
Hyland Lake Park Reserve 10145 East Bush Lake Road , Bloomington, MN 55438 -
9/11/2021 10AM
Team Hope Walk- Portland, OR
Floyd Light Middle School, 10800 SE Washington St , Portland, OR 97216 -
9/11/2021 10:00AM
Team Hope Walk- Indiana
, Indianapolis, IN -
9/11/2021 9:30AM
Team Hope Walk- Columbia, MO
Twin Lakes Park, 2500 Chapel Hill , Columbia, MO 65203 -
9/11/2021 10:00AM
Team Hope Walk- New Hampshire
Surrette Park at the Winnipeasaukee River Trail, off Park Street, Route 132 , Northfield, NH 03276 -
9/11/2021 9AM
17th Heroes and Villains Team Hope 5K Run/Walk Rocky Mountain Chapter
Stapleton Central Park, 8601 Martin Luther King Blvd. , Denver, CO -
9/11/2021 8:00AM
Team Hope Walk, Loda, IL
Lakeview Country Club, 147 E 200 N. Rd. , Loda, IL 60948 -
9/12/2021 9AM
Virtual Team Hope Walk- Orange County, CA
17955 Sky Park Circle, Ste. E , Irvine, CA 92614 -
9/12/2021 12:00PM
Team Hope Walk- Western Washington
Magnuson Park Shelter, 7400 Sand Point Way NE , Seattle, WA 98115 -
9/12/2021 9:00AM
Team Hope Walk- Long Island, NY
Wantagh Park, 1 King Road , Wantagh, NY 11793 -
9/12/2021 4PM
Team Hope Walk- Louisville, KY
Harbor Lawn: Waterfront Park 231 Witherspoon St , Louisville, KY 40202 -
9/18/2021 12PM
Team Hope Walk- Boise, ID
Julis M Kleiner Park, 1900 N. Records Ave. , Meridian, ID 83642 -
9/18/2021 10AM
Team Hope Walk- St. Louis, MO
Tilles Park 9551 Litzsinger Road , St. Louis, MO 63124 -
9/18/2021 10AM
Team Hope Walk- Tewksbury, MA
Tewksbury Hospital Saunders Building , Tewksbury, MA 01876 -
9/18/2021 7:30AM
Team Hope 10K Run/5K Walk- San Jose, CA
Campbell Ave and Gillman Ave , Campbell, CA 95008 -
9/18/2021 10AM
Team Hope Walk- Sacramento, CA
River Walk Park 651 Second St. , West Sacramento, CA -
9/18/2021 10AM
Team Hope Walk & 5K- Lansing, MI
Granger Meadows Park 1745 Granger Meadows Lane , Lansing, MI 48906 -
9/18/2021 1PM
Team Hope Walk- Springfield, MO
JR Martin Park 300 E. Hines , Republic, MO 65738 -
9/19/2021 9:00AM
Team Hope Walk- Erie, PA
Presque Isle Beach One, 301 Peninsula Drive , Erie, PA 16505 -
9/24/2021 8:30AM
HDSA Northeast Ohio Golf Outing
Shale Creek Golf Club, 5420 Wolf Rd. , Medina, OH 44256 -
9/25/2021 10:00AM
Team Hope Walk- Spokane- Coeur d’Alene
Riverfront Park Forestry Shelter, 808 W. Spokane Falls Blvd. , Spokane, CA 42560 -
9/25/2021 9:00AM
Team Hope Walk- Baton Rouge, LA
Highland Rd. Park, 1141 Bullrush Dr , Baton Rouge, LA 70810 -
9/25/2021 2:00PM
Team Hope Walk- New York City
Hudson River Park, Pier 45 , New York, NY 10014 -
9/25/2021 10:00AM
Team Hope Walk- Arkansas
Pulaski Heights Middle School Track Field, 401 N Pine St , Little Rock, AR 72205 -
9/25/2021 11:00AM
Team Hope Walk- Duluth, MN
Endion Park- Lakewalk 200 Lake Place Drive , Duluth, MN 55802 -
9/25/2021 6:30PM
7th Annual Freeze HD
Avalon Hollywood 1735 Vine St, , Los Angeles, CA 90028 -
9/26/2021 1PM
STL Golf Tournament
, St. Louis, MO -
9/26/2021 10AM
Team Hope Walk- Detroit, MI
Memorial Park, 25355 Lawrence Ave , Center Line, MI 48015 -
9/26/2021 10AM
Team Hope Walk- Rhode Island
Colt State Park Beach Pavillion , Bristol, RI 02809 -
10/2/21 10AM
Team Hope Walk- Central Ohio
, OH -
10/2/2021 9:00AM
Team Hope Walk- Anita Sabedra
Middlebrook Greenbelt, 16203 Dunmoor Drive , Houston, TX 77059 -
10/2/2021 10:00 AM
Team Hope Walk-San Francisco, CA
Sports Basement At Crissy Field, 610 Old Mason Road , San Francisco, CA 94129 -
10/2/2021 11:30AM
Team Hope Walk- New Jersey
Roosevelt Park, 151 Parsonage Road , Edison, NJ 08837 -
10/3/2021 2:00PM
Team Hope Walk- Columbia, SC
Community Park of Irmo, 7507 Eastview Drive , Irmo, SC -
10/9/2021 9AM
Team Hope Walk- Liberty, MO
Liberty Community Center 1600 S. Withers Road , Liberty, MO 64068 -
10/9-10/2021 7AM
Long Beach Marathon and Half Marathon1/2
Aquarium of the Pacific or "Virtual", 100 Aquarium Way , Long Beach, CA 90802 -
10/10/2021 7:30AM
Team Hope Walk- Miami, FL
Tropical Park, 7900 SW 40th St. , Miami, FL 33155 -
10/11/2021 9:30AM
7th Annual Golf for The Cure Tournament- Georgia
Bradshaw Farms Golf Course, 3030 Bradshaw Club Dr. , Woodstock, GA 30188 -
10/16/2021 9:00AM
Team Hope Walk- Delaware
Cape Henlopen State Park Main Beach Pavilion/Bike Loop, 15099 Cape Henlopen Drive , Lewes, DE 19958 -
10/16/2021
Omaha Tailgate at the Skyybox
Skyybox Bar & Grill, 6720 S 168th St #5 , Omaha, NE 68135 -
10/16/2021 10AM
Team Hope Walk Phoenix, AZ
Desert Breeze Park 650 North Desert Breeze Blvd. East , Chandler, AZ 85226 -
10/16/2021 10:00AM
Team Hope Walk- Salt Lake City, UT
Sugar House Park, 2100 South Street , Salt Lake City, UT 84106 -
10/16/2021 9:00AM
Team Hope Walk- San Diego
, CA -
10/16/2021 10AM
Team Hope Walk- Orlando, FL
Cranes Roost Park 274 Cranes Roost Blvd. , Altamont, FL 32701 -
10/17/2021 1PM
Team Hope Walk- SouthWest Michigan
Sherman Lake YMCA, 6225 North 39th Street , Augusta, MI 49012 -
10/17/2021 9:00AM
Team Hope Walk- Maine
Ellsworth High School, 24 Lejok Street , Ellsworth, ME 04605 -
10/18/2021 10:30AM
Brittany’s Hope for Huntington’s Charity Golf Tournament
East Bay Golf Club, 702 Country Club Drive , Largo, FL 33771 -
10/24/2021 9:00AM
Team Hope Walk- Hudson Valley, NY
Walkway Over The Hudson State Historic Park, 5 Parker Avenue , Poughkeepsie, NY 12601 -
10/24/21 12:30PM
Team Hope Walk- Greater North Texas
Mary Heads Carter Park, 2320 Heads Lane , Carolton, TX 75006 -
10/23-24/2021 8:00AM
2021 HDSA Pickleball
Ting Park, 1151 N Mail Street , Holly Springs, NC 27540 -
10/26/2021 8:00AM
HDSA Nashville Hope for Huntington’s Golf Tournament
Hermitage Golf Course, 3939 Old Hickory Blvd , Old Hickory, TN 37138 -
11/6/2021 8AM
Team Hope Walk- Austin, TX
Martin Middle School , 1601 Haskell St , Austin, TX 78702 -
11/6/2021 6PM
2021 Iowa Chapter Grand Gala
West Des Moines Marriott, 1250 Jordan Creek Parkway , West Des Moines, IA 50266 -
11/7/21 1:30PM
Team Hope Walk- Virginia Beach, VA
Mount Trashmore, 310 Edwin Drive , Virginia Beach, VA 23462 -
11/13/21 10AM
Virtual Team Hope Walk- Tennessee
, TN
