For Immediate Release
Contact: Christopher Cosentino, Director of Marketing & Communications
Phone: (212) 242-1968 x229


New York, NY (December 2015) – On December 1st, the Huntington’s Disease Society of America (HDSA) received a 4-star rating from Charity Navigator. Charity Navigator is recognized as America’s top evaluator of nonprofit organizations.

“On behalf of Charity Navigator, I wish to congratulate Huntington’s Disease Society of America on achieving our coveted 4-star rating for sound fiscal management and commitment to accountability and transparency,” said Michael Thatcher, Charity Navigator’s President and CEO. “Receiving four out of a possible four stars indicates that HDSA adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way. Approximately a quarter of the charities we evaluate have received our highest rating, indicating that Huntington’s Disease Society of America outperforms most other charities in America.”

“We’re honored to receive this rating as confirmation of the high ethics that we hold ourselves to in our faithful execution of our mission – to improve the lives of everyone affected by HD and their families,” said Louise Vetter, HDSA’s CEO. “This recognition would not be possible without the commitment to excellence exhibited by all of the volunteers throughout HDSA. Their dedication is what really sets us apart.”

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call (800)345-HDSA.