What the AMT-130 News Means for the HD Community Webinar
DATE: 10/30/2025 2PM EDT
LINK: https://hdsa-org.zoom.us/webinar/register/3817615807788/WN_lsxS7Pq_RFeOaOwyvrNnig
Hiking Mt. Kilimanjaro for HDSA!
LOCATION: Anthony Lutz - Climbing Mt. Kilimanjaro
LINK: https://app.donorview.com/Donation/DonationInfo?prm=tqITQp5N0w3BYK94HwsDgB1WosiCtMQprdkQ_yrGx2fJMJ-MHmXx2ZGQ8DNYz-ID95O7AnDE0R-1zUQD0mvQFQ_NKHNEzi1X7SqAthLR9N9KsauLQj1nCZd1MH69jIexvL9myIGwFFEwX2LHcsVT9hWRSV-NAETQs7nCbbkE0TWWl38S5_Vg9b5d9D3n4nwxs34YVFE2VW30GdVrrqceH-UuQBCYmgHSnx1PUQoJTo73Y3kOTDh-CAO3hbJ1LtbJ0
2025 Team Hope Walk & 5K Miami
DATE: 1/18/2025 9:00 AM
LOCATION: Kendall Indian Hammocks Park 11395 SW 79th ST, Miami, FL 33173
LINK: https://florida.hdsa.org/events/2025-team-hope-walk-5k-miami-fl
2025 ReProm: Disco Fever – Madison, WI
DATE: 2/15/2025
LOCATION: Event Location: Madison Monona Terrace Community & Convention Center One John Nolen Drive, Madison, WI 53703
LINK: https://wisconsin.hdsa.org/events/2025-reprom-disco-fever
Community Seminar with Dr. Sarah Tabrizi
DATE: 2/19/2025 4:00 PM
LOCATION: UCI Sue & Bill Gross Stem Cell Research Center, 4th Foor, 845 Health Sciences Rd Thorp Conference Center - 4001, Irvine, CA 92697
LINK: https://docs.google.com/forms/d/e/1FAIpQLSfxRntSIFyeTx7dp0tKT_IIJvsBw6wCQ2E4ZpnxidEIzH1Qvg/viewform
2025 Team Hope Glow Walk – Phoenix, AZ
DATE: 2/22/2025 5:00 PM
LOCATION: Margaret T. Hance Park 67 W Culver St, Phoenix, AZ 85003
LINK: https://arizona.hdsa.org/events/2025-team-hope-glow-walk-phoenix-az
HDSA HD Symptoms and Treatment Impact Survey Results
DATE: 2/26/2025 6:00 PM
LINK: https://hdsa-org.zoom.us/webinar/register/7117385948677/WN_gr-nWJdYQmi8mIiX8SQFag
2025 Curling for a Cure
DATE: 3/1/2025 11:00 AM - 6:00 PM
LOCATION: 1 Curling Lane/138 Rice Road, Wayland, MA 01778
LINK: https://massri.hdsa.org/events/2025-curling-for-a-cure
2025 Bowl-A-Thon Omaha
DATE: 3/2/2025
LOCATION: Maplewood Lanes 3030 N 101st St, Omaha, NE 68134
LINK: https://omaha.hdsa.org/events/-2025-bowl-a-thon-omaha
2025 Tee-Off Fore HD – Edison, NJ
DATE: 3/9/2025 12:00 PM - 3:00 PM
LOCATION: 1013 U.S. Route 1, Edison, NJ 08817
LINK: https://newjersey.hdsa.org/events/2025-tee-off-fore-hd-edison-nj
2025 Virtual Bourbon Tasting
DATE: 3/13/2025 6:30 PM (Central)
LOCATION: Virtual
LINK: https://app.dvforms.net/api/dv/874z6p
2025 Whim ‘n Rhythm Concert for HD – Malibu CA
DATE: 3/13/2025 6:30 PM
LOCATION: Point Dume Club of Malibu - Clubhouse 29500 Heathercliff Rd, Malibu, CA 90265
LINK: https://greaterla.hdsa.org/events/2025-whim-n-rhythm-concert-for-hd-malibu-ca
2025 Bowl-A-Thon – Indiana
DATE: 3/15/2025 4:00 PM
LOCATION: Woodland Bowl 3421 East 96th ST, Indianapolis, IN 46240
LINK: https://indiana.hdsa.org/events/2025-bowl-a-thon-indiana
2025 Curling for a Cure – Lakewood, CA
DATE: 3/15/2025 8:00 PM
LOCATION: Orange County Curling Club at Lakewood Ice 3975 Pixie Ave, Lakewood, CA 90712
2025 Drag Queen Bingo – Denver, CO
DATE: 3/16/2025 3:00 PM
LOCATION: HAMBURGER MARY'S - 1336 E 17th Ave, Denver, CO 80218
LINK: https://rockymountain.hdsa.org/events/2025-drag-queen-bingo-denver-co
2025 Hack a Tee for HD – Jacksonville, FL
DATE: 3/21/2025 9:00 AM
LOCATION: Queen's Harbour Yacht & Country Club 1131 Queens Harbor Blvd, Jacksonsville, FL 32225
LINK: https://florida.hdsa.org/events/2025-golf-classic-jacksonville-fl
2025 HDSA Illinois Chapter: Euchre & Bingo
DATE: 3/22/2025 5:00 PM
LOCATION: St. Peters Catholic Church Hall 450 East 3rd Avenue ], Clifton, IL 60927
LINK: https://illinois.hdsa.org/events/2025-hdsa-illinois-chapter-euchre-bingo
2025 Corks & Forks – Albany, NY
DATE: 3/28/2025 6:00 PM
LOCATION: Duo at the Dunes 257 Washington Ave Ext, Albany, NY 12205
LINK: https://albany.hdsa.org/events/2025-corks-forks-albany-ny
2025 – Central Ohio Hoop-A-Thon
DATE: 4/5/2025 9:30 AM - 2:00 PM
LOCATION: St. John's Lutheran Church 3220 Columbus Street, Columbus, OH 43123
LINK: https://centralohio.hdsa.org/events/2025-central-ohio-hoop-a-thon
2025 Medstar/Georgetown HD-CERC Education Day
DATE: 4/5/2025 10:00 AM
LOCATION: Residence Inn Bethesda 7335 Wisconsin Ave, Bethesda, MD 20814
LINK: https://northeast.hdsa.org/events/2025-medstar-georgetown-hd-cerc-education-day
The 2025 Spring Education Day – South Dakota Chapter
DATE: 4/5/2025 11:00 AM
LOCATION: Ronning Library 3100 E 49th St, Sioux Falls, SD 57103
LINK: https://southdakota.hdsa.org/events/the-2025-spring-education-day-south-dakota-chapter
2025 Omaha Brad Zielie Volleyball Tournament
DATE: 5/10/2025
LOCATION: Buena Vista High School 5616 L St, Omaha, NE 68117
LINK: https://omaha.hdsa.org/events/2025-omaha-brad-zielie-volleyball-tournament
2025 HDSA Songs for Hope
DATE: 7/14/2025 5:00 PM
LOCATION: The Bluebird Cafe 4104 Hillsboro Pike, Nashville, TN
LINK: https://tennessee.hdsa.org/events/2025-hdsa-songs-for-hope-
2025 Masquerade Dance Party
DATE: 8/2/2025 2:00 PM
LOCATION: 550 South 50 West, Kaysville, UT 84307
LINK: https://utah.hdsa.org/events/2025-masquerade-dance-party
2025 Team Hope Walk – Baton Rouge, LA
DATE: 10/18/2025 9:00 AM
LOCATION: 13653 Highland Road, Baton Rouge, LA 70810
LINK: https://louisiana.hdsa.org/events/2025-team-hope-walk-baton-rouge-la
Let’s Talk: uniQure & FDA news
DATE: 11/18/2025 6:00 PM
LINK: https://heypeers.com/meetings/47329/details
2025 Team Hope Walk – Tampa, FL
DATE: 12/6/2025 10:00 AM
LOCATION: Lowry Park 7525 North Boulevard, Tampa, FL 33604
LINK: https://florida.hdsa.org/events/2025-team-hope-walk-tampa-fl
2025 Team Hope Walk – Orlando, FL
DATE: 12/13/2025
LOCATION: Blue Jacket Park (Fountain Area) 2501 General Rees Ave, Orlando, FL 3281
