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12 Days of NYA

Join us as we share the power of advocacy, connection, and resilience!

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Happy Holidays from all of us at the Huntington’s Disease Society of America!

Our offices will be closed for the holidays from December 24 through January 1. During this time, our staff will respond to time-sensitive voicemails and emails. All other communications will be addressed as soon as possible upon our return. If you are looking for resources please visit the Locate Resources. If you would like to make a contribution please click on the learn more button.

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Watch the recordings of the  HDSA EL-PFDD Meeting!

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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HD Symptoms and Treatment Impact Survey

This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

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2023 HDSA ANNUAL REPORT


We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we’ve achieved as One HDSA.

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SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025
This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

  

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HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA‘s achievements and top stories from 2023 in the latest Year In Review Magazine. 

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HDSA Centers of Excellence Program Expands to 68 Sites

The Huntington’s Disease Society of America (HDSA) is expanding its HDSA Centers of Excellence network of comprehensive care clinics with 57 grants totaling $2,100,285. In addition to the 57 grant funded facilities, eleven regional partner sites were also named, ensuring expert HD care at 68 distinct medical facilities in 37 states across the nation and Washington, DC.

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The Marker: 2023 HDSA Research Report

The Marker highlights HDSA’s efforts in research supported directly by the organization to keeping the larger community informed about what is happening in HD science. The latest issue of The Marker is now available!

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Let’s protect the ones we love this National Estate Planning Awareness Week with HDSA’s new partnership with FreeWill!

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INTRODUCING THE HDSA PODCAST

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington’s disease community and get a behind-the-scenes look at the Huntington’s Disease Society of America.

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region. 

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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PARTICIPATE IN AN HDSA EVENT NEAR YOU

From Team Hope Walks and Celebrations of Hope Galas to Education Days and Webinars, HDSA has events across the country for you and your family to get involved in the fight against Huntington’s disease.

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