August is National Make-A-Will Month

Planning ahead is one of the most powerful ways to protect the people and causes you care about most. During National Make-A-Will Month, HDSA encourages you to take this important step for your family.

Creating a will is simple and secure. Whether you’re just getting started or need to update an existing plan, now is the perfect time.

2025 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP RECIPIENT

Meet Dr. Elizabeth Tidwell, postdoctoral fellow in the lab of Dr. Melanie Ohi, at the University of Michigan.

Now Streaming: 40th Annual HDSA Convention Workshop & Highlights! 

Couldn’t join us in Indianapolis? You can still experience the magic!
Catch the powerful moments, inspiring stories, and unforgettable sessions from the 40th Annual HDSA Convention — now available to watch online.
Reconnect. Relive. Be inspired.

HDSA Publishes 2024 Year In Review Magazine

Take a look back on HDSA‘s achievements and top stories from 2024 in the latest Year In Review Magazine. 

HDSA Centers of Excellence Program Expands to 69 Sites

The Huntington’s Disease Society of America (HDSA) is expanding its HDSA Centers of Excellence network of comprehensive care clinics with 69 grants totaling $1,810,400. In addition to the 60 grant funded facilities, nine regional partner sites were also named, ensuring expert HD care at 69 distinct medical facilities in 37 states across the nation and Washington, DC.

The Marker: 2024 HDSA Research Report

The Marker highlights HDSA’s efforts in research supported directly by the organization to keeping the larger community informed about what is happening in HD science. The latest issue of The Marker is now available!

VOLUNTEERS NEEDED!

If you are looking to put your passion for helping others to meaningful use, we want YOU!

Watch the recordings of the  HDSA EL-PFDD Meeting!

2023 HDSA ANNUAL REPORT


We’re
thrilled to announce the release of the
2023 HDSA Annual Report, highlighting the amazing progress we’ve achieved as One HDSA.

INTRODUCING THE HDSA PODCAST

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington’s disease community and get a behind-the-scenes look at the Huntington’s Disease Society of America.

HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region. 

HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

PARTICIPATE IN AN HDSA EVENT NEAR YOU

From Team Hope Walks and Celebrations of Hope Galas to Education Days and Webinars, HDSA has events across the country for you and your family to get involved in the fight against Huntington’s disease.

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