Society Welcomes Dr. Jeffrey Brown to the Board of Trustees

New York, NY | December 6, 2022 – The Huntington’s Disease Society of America (HDSA) is excited to announce that Teresa Srajer has been appointed Chair of HDSA’s National Board of Trustees. Teresa replaces Dr. Victor Sung following his two-year term as Board Chair.

“I am honored to serve as the HDSA Board of Trustees chair,” said Teresa Srajer. “As an HD family member, the HDSA vision of a world free of Huntington’s disease matches my greatest hope for the next generation of my family members along will all our HD families.  As the scientists grow closer every day to disease modifying treatments, HDSA continues to position itself for where the science leads us in the improvement of the lives of everyone affected by HD and their families.”

Teresa’s grandmother began battling HD before Teresa’s birth and the disease continues to impact her family including losing her father in 1998.  Her family are long-time supporters of HD families since the Committee to Combat Huntington’s Disease (CCHD) days. Teresa earned a Bachelor of Science in Psychology and an MBA in her educational pursuits. She works as an IT Project Manager for an agricultural and construction manufacturing company. Teresa along with her husband, Craig, give back to HDSA and other charities to recognize their life contains more blessings than negatives.

In addition to Teresa’s appointment, HDSA has also added Jeffrey Brown, PhD to the National Board of Trustees. Dr. Brown is a seasoned biotech leader with deep experience in preclinical and IND-enabling research, with a particular focus on genetically defined disorders and has worked across multiple therapeutic areas, including neuropsychiatry.

“I am very excited to be part of the HDSA team,” said Dr. Jeffrey Brown. “Having learned so much from this community while working on HD therapeutics, this opportunity provides a way of giving back to patients, their families, and working to fulfill the mission of HDSA to improve the lives of everyone affected by Huntington’s disease and their families.”

In other Board news, Jenne Coler-Dark has been appointed Chair-Elect and Jay Hughes will fill the role of Secretary. To learn more about HDSA’s Board of Trustees please visit HDSA.org/trustees.  

“The all-volunteer leadership of HDSA is amazing team of compassionate leaders who draw on their personal and professional experiences to ensure that HD families can count on our organization to improve the lives of everyone affected by HD,” said HDSA President & CEO Louise Vetter. “Their unwavering commitment to HD care, cure and community is moving us closer to a world free of HD.”

The Huntington’s Disease Society of America would like to thank Dan Brennan, Stacy Coen and E.J. Garner who have completed their terms of service on HDSA’s Board of Trustees. 

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes HD. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at risk of inheriting the disease. The symptoms of HD are described as having, ALS, Parkinson’s and Alzheimer’s – simultaneously.


The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with HD and their families. To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.HDSA.org or call (800) 345-HDSA.



Chris Cosentino

Director of Marketing & Communications

(212)242-1968 x229