This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Prilenia Therapeutics and HSG announce completion of participant enrollment in PROOF-HD

Posted on October 21, 2021

In a recent press release, Prilenia Therapeutics and the Huntington’s Study Group (HSG) announced the completion of participant enrollment in PROOF-HD,…

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HDSA Awards Five Huntington’s Disease Human Biology Project Research Grants

Posted on October 14, 2021

After thoughtful deliberation by its Scientific Advisory Board, HDSA will award five the Huntington’s Disease Human Biology Project research grants to Joan O’Keefe,…

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Dr. Francis S. Collins to Step Down from Head of NIH

Posted on October 7, 2021

On Tuesday of this week, Francis S. Collins, MD, PhD, announced he would step down from his role as Director of the…

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HD Buzz: Real talk with Roche on GENERATION-HD1

Posted on September 30, 2021

The editors of HD Buzz recently sat down with leaders from Roche to ask questions on behalf of the HD community…

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HDSA Research Webinar TODAY!

Posted on September 23, 2021

Join HDSA TODAY at 12PM (ET) for the next HDSA Research Webinar! HDSA Human Biology Project Fellows Dr. Michael Placzek (Massachusetts General…

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Roche Regroups: New Partnerships forged in HD Research

Posted on September 16, 2021

After an unexpected dosing halt in the GENERATION-HD1 study nearly 6 months ago, Roche is gearing up to increase their…

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Wave Life Sciences begins SELECT-HD Trial

Posted on September 9, 2021

Wave Life Sciences shared a press release this morning announcing that dosing has begun in the SELECT-HD trial. The study…

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Advances in Gene Therapy: HDBuzz Covers Exciting New Regulatory System, Xon

Posted on September 2, 2021

Researchers at the Children’s Hospital of Philadelphia have created a system to better regulate gene editing by administration of a secondary activator drug. This novel system, dubbed Xon, acts…

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KINECT-HD2: Rollover Study of Valbenazine for Chorea in HD

Posted on August 26, 2021

KINECT-HD2, the open-label extension of KINECT-HD, is seeking 30 new participants to join a study of valbenazine for chorea in Huntington’s disease….

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HDBuzz on Recent News in the HD Research Pipeline

Posted on August 19, 2021

The August 9th press release from Voyager Therapeutics left many of us scratching our heads. Luckily, HDBuzz swooped in with their latest…

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Voyager Therapeutics Shifts Directions

Posted on August 12, 2021

Voyager Therapeutics issued a press release on Monday about their finances, recent leadership transitions, and importantly, a major shift in their…

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HD Parity Act and Pro-Patient Advocacy in the Neurological Disease Community

Posted on August 5, 2021

Last week, Kala Booth, a Huntington’s disease patient, caregiver, advocate, and the 4th known generation in her family to test HD positive appeared before the House…

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HD Advocate Testifies on HD Parity Act

Posted on July 29, 2021

Kala Booth, a Huntington’s disease positive individual and caregiver to her mother, will appear TODAY before the House Committee on Energy & Commerce subcommittee on neurodegenerative diseases. Kala…

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Now Accepting Letters of Intent for 2022 HDSA Centers of Excellence!

Posted on July 22, 2021

HDSA Centers of Excellence provide comprehensive multidisciplinary clinical services to families affected by HD, including neurology, psychology, genetic counseling/testing, social…

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New Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD

Posted on July 15, 2021

Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…

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Recorded Sessions From The HDSA Convention Are Now Available

Posted on July 8, 2021

The Virtual 36th Annual HDSA Convention was a spectacular time for researchers, clinicians, family members, and affected individuals to come together for…

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Opportunities to participate in online HD research

Posted on July 1, 2021

Research participation is essential in the quest for HD treatments and knowledge, not only in pursuit of drug development but also to improve care…

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HDSA Awards Two Berman-Topper Family HD Career Development Fellowships

Posted on June 24, 2021

After careful Scientific Advisory Board review, HDSA is excited to award the Berman-Topper Family HD Career Development Fellowship to Dr. Eduardo Silva Ramos (Max…

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Thank you for attending HDSA’s Virtual 36th Annual Convention!

Posted on June 17, 2021

Thank you to all who attended HDSA’s virtual 36th Annual Convention! If you missed us this time around, don’t stress—recorded sessions will be…

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Virtual 36th Annual HDSA Convention Begins TODAY!

Posted on June 10, 2021

Join us TODAY for the Virtual 36th Annual HDSA Convention of four days full of meet-and-greets, presentations, Q&A’s, support groups, and more. If you’re…

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