This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

HD Advocate Testifies on HD Parity Act

Posted on July 29, 2021

Kala Booth, a Huntington’s disease positive individual and caregiver to her mother, will appear TODAY before the House Committee on Energy & Commerce subcommittee on neurodegenerative diseases. Kala…

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Now Accepting Letters of Intent for 2022 HDSA Centers of Excellence!

Posted on July 22, 2021

HDSA Centers of Excellence provide comprehensive multidisciplinary clinical services to families affected by HD, including neurology, psychology, genetic counseling/testing, social…

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New Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD

Posted on July 15, 2021

Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…

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Recorded Sessions From The HDSA Convention Are Now Available

Posted on July 8, 2021

The Virtual 36th Annual HDSA Convention was a spectacular time for researchers, clinicians, family members, and affected individuals to come together for…

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Opportunities to participate in online HD research

Posted on July 1, 2021

Research participation is essential in the quest for HD treatments and knowledge, not only in pursuit of drug development but also to improve care…

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HDSA Awards Two Berman-Topper Family HD Career Development Fellowships

Posted on June 24, 2021

After careful Scientific Advisory Board review, HDSA is excited to award the Berman-Topper Family HD Career Development Fellowship to Dr. Eduardo Silva Ramos (Max…

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Thank you for attending HDSA’s Virtual 36th Annual Convention!

Posted on June 17, 2021

Thank you to all who attended HDSA’s virtual 36th Annual Convention! If you missed us this time around, don’t stress—recorded sessions will be…

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Virtual 36th Annual HDSA Convention Begins TODAY!

Posted on June 10, 2021

Join us TODAY for the Virtual 36th Annual HDSA Convention of four days full of meet-and-greets, presentations, Q&A’s, support groups, and more. If you’re…

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Register TODAY: Virtual 36th Annual HDSA Convention

Posted on June 3, 2021

Join us virtually from June 10th-13th for the 36th Annual HDSA Convention, beginning one week from today. Register for free…

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uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial

Posted on May 27, 2021

uniQure announced today that they will move forward with the Phase I/II Clinical Trial of AMT-130, a gene therapy candidate for treatment…

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Happy International Clinical Trials Day: Thank You Researchers & Participants

Posted on May 20, 2021

May 20th is recognized as Clinical Trials Day to commemorate what is regarded as the first randomized clinical trial initiated…

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Webinar TODAY! HDSA & Me: HD 101 – Getting Started

Posted on May 13, 2021

HDSA is excited to announce a new educational series that will begin TODAY, May 13th at 2PM ET, HDSA &…

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HDSA Announces 2021 Donald A. King Summer Research Fellows

Posted on May 6, 2021

After Scientific Advisory Board review, HDSA is excited to award the Donald A. King Summer Research Fellowship, to two undergraduate researchers. This program, named for former…

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Webinar TODAY: Roche Community Update on GENERATION-HD1

Posted on April 29, 2021

Since the announcement in late March that dosing of tominersen in the GENERATION-HD1 trial had been halted, HD researchers and…

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Volunteer Appreciation Week

Posted on April 22, 2021

This is Volunteer Appreciation Week and we would like to thank all the brave individuals who have volunteered their time…

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Grieving Setbacks with Hope for the Future

Posted on April 15, 2021

The difficult news of clinical setbacks from Roche and Wave have turned the recent weeks into an emotional rollercoaster for…

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Positive News from uniQure: Successful Study Recruitment

Posted on April 8, 2021

uniQure shared a press release this week stating that their safety trial of an HD gene therapy drug, AMT-130, is…

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More Disappointment in Wave PRECISION-HD Study Results 

Posted on April 1, 2021

This Monday, March 29th, Wave Life Sciences shared a press release and community letter explaining that data from their PRECISION-HD1…

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Disappointing news from Roche about GENERATION-HD1 study 

Posted on March 25, 2021

We were saddened to learn on March 22nd via a press release and community statement from Roche that their Phase 3 study of tominersen, known as…

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Brain Awareness Week

Posted on March 18, 2021

Brain Awareness Week is a (March 15th – 21st, 2021) is a global campaign to foster public enthusiasm and support for brain science,…

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