Novartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications
Posted on December 8, 2022
Novartis Shares Update on VIBRANT-HD Today Novartis shared that they will end development of branaplam for HD. This difficult news…
Read MoreThank You Thursday, HD-ISS, and Gene Therapy 101
Posted on December 1, 2022
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
Read MoreCelebrate #GivingTuesday with HDSA
Posted on November 17, 2022
At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…
Read MoreHighlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day
Posted on November 10, 2022
Highlights from HSG’s Annual Meeting 2022 Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…
Read MoreHDSA Research Awards, Clinical Trials Updates & HD Podcasts
Posted on November 3, 2022
HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022 After thoughtful deliberation by its Scientific Advisory Board,…
Read MoreHDSA Research Webinar, HD Care, & HD History
Posted on October 27, 2022
HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial Last week, PTC Therapeutics shared that its Phase 2…
Read MoreClinical Trial News & New Online Survey
Posted on October 20, 2022
PTC Therapeutics provides enrollment update PTC Therapeutics shared a press release this week to confirm that enrollment is active and…
Read MoreHDSA Surveys & Support the HD Parity Act!
Posted on October 13, 2022
Participate in HDSA-Vetted Research Surveys Researchers, clinicians, healthcare professionals, and students studying HD frequently design surveys to get input from…
Read MoreThis Week’s Blog: 10.6.2022
Posted on October 6, 2022
HDBuzz on ASO headlines: What’s the latest on huntingtin-lowering? Recent weeks have brought news for familiar players in the…
Read MoreThis Week’s Blog: 9.29.22
Posted on September 29, 2022
Summer Research Recap This summer was full of ups and downs in HD research. Following a research webinar in August that recapped challenging clinical trials…
Read MoreThis Week’s Blog: 9.22.22
Posted on September 22, 2022
Wave Life Sciences announces positive results from SELECT-HD Earlier this week, Wave Life Sciences shared a positive update from the…
Read MoreCelebrate HDSA Founder’s Day on September 18th
Posted on September 15, 2022
55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…
Read MoreHDSA Research Webinar Recording: All you need to know about PROOF-HD
Posted on September 8, 2022
This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…
Read MoreHDSA webinar Sept 7th: All you Need to Know About PROOF-HD
Posted on September 1, 2022
In its Phase III trial, PROOF-HD, Prilenia is currently studying the effects of pridopidine on total functional capacity in people with HD. On…
Read MoreNovartis releases community update on VIBRANT-HD
Posted on August 25, 2022
This week, Novartis released a community update on VIBRANT-HD, the phase 2b study of branaplam in adults with HD. The statement…
Read MoreHDSA Centers of Excellence program now accepting LOI’s for 2023 designation
Posted on August 18, 2022
HDSA Centers of Excellence program now accepting LOI’s for 2023 designation HDSA’s Centers of Excellence (COE) Program is the…
Read More#LetsTalkAboutHD Clinical Trials
Posted on August 11, 2022
Multiple pieces of news about ongoing clinical trials were shared this week by companies developing therapies for HD. We discuss…
Read MoreHDSA Center of Excellence Directors discuss biomarkers for HD
Posted on August 4, 2022
Neurofilament Light Chain (NfL) is a structural protein found in brain cells. In neurodegenerative diseases, circulating levels of NfL tend to be…
Read MoreENROLL-HD Celebrates 10-year Anniversary
Posted on July 28, 2022
On July 25, 2012, the first participant entered ENROLL-HD, the world’s largest observational study of Huntington’s disease that monitors how the disease…
Read MoreHD Buzz Roundtable: HD Scientists talk research with Help4HD
Posted on July 21, 2022
In a new series on the Help4HD podcast, host Lauren Holder will meet with members of the HDBuzz editorial staff…
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