Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

February 28th is Rare Disease Day 

Posted on February 25, 2021

When you have a rare disease, you face two battles – one being the illness itself, and the other, living…

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HDBuzz Explores a Novel Huntingtin-lowering Strategy

Posted on February 18, 2021

Huntingtin-lowering is an HD treatment strategy that usually involves targeting the HD gene itself, but some researchers are exploring roundabout ways to achieve…

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Upcoming HDSA 2020 Year in Review Webinar

Posted on February 11, 2021

As we mentioned in January, we’ll be hosting an HD Research Year in Review webinar on Thursday, February 18th, at 12 PM…

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HDSA Announces 54 Centers of Excellence for 2021  

Posted on February 4, 2021

HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. On February 2nd, HDSA announced…

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Recap: PROOF-HD Webinar 

Posted on January 28, 2021

If you missed this week’s research webinar, in which Dr. Sandra Kostyk and Dr. Andrew Feigin discussed a new HD…

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Enroll-HD: A Resource For Everyone

Posted on January 21, 2021

Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…

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Ask the Doctor…Anything! 

Posted on January 14, 2021

Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…

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Happy New Year From HDSA 

Posted on January 7, 2021

Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…

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Happy Holidays from the HDSA Family 

Posted on December 24, 2020

Despite the challenges of 2020, your support of HDSA this year has continued to remind all of us that in the fight against Huntington’s…

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Publication from an HDSA Fellow 

Posted on December 17, 2020

Congratulations to 2019 Berman-Topper Fellow Dr. Lauren Byrne, whose work was recently published in the Journal Science Translational Medicine. She tweeted this week about…

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The Marker: HDSA’s Annual Research Report

Posted on December 10, 2020

Each year HDSA’s annual research report, The Marker, covers the past year in HD science and HDSA research activities. Check…

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HDSA Announces Four 2020 Human Biology Fellows

Posted on December 3, 2020

This week, HDSA announced the winners of the 2020 HD Human Biology Fellowship. HDSA’s largest research initiative, the Human Biology Project supports projects that focus…

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Happy Thanksgiving

Posted on November 26, 2020

Happy Thanksgiving and a big thank you to members of the HD community for your participation in research. Medicine moves…

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PTC Therapeutics Initiates Phase 1 Clinical Trial

Posted on November 19, 2020

PTC Therapeutics is a company focused on developing genetic and small molecule therapies for rare and serious disorders. This week they issued…

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Triplet Therapeutics SHIELD-HD study fully recruited 

Posted on November 12, 2020

Triplet Therapeutics is a Boston-based biotech company that is developing therapies for CAG repeat disorders like HD. Their focus is studying…

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HDBuzz: Clinical Research Updates from the HSG Conference

Posted on November 5, 2020

The Huntington Study Group hosted a virtual conference from October 29th – 31st, covering clinical trial updates, education, and training for HD…

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HSG 2020: HD in Focus

Posted on October 29, 2020

The Huntington Study Group is a clinical research network focused exclusively on Huntington disease. Each year they host a conference that provides education…

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Novartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment

Posted on October 22, 2020

This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…

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uniQure Trial Proceeds; Voyager Receives Regulatory Feedback

Posted on October 15, 2020

This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…

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HDBuzz Covers Virtual EHDN Conference

Posted on October 8, 2020

The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…

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