Prilenia Therapeutics and HSG announce completion of participant enrollment in PROOF-HD
Posted on October 21, 2021
In a recent press release, Prilenia Therapeutics and the Huntington’s Study Group (HSG) announced the completion of participant enrollment in PROOF-HD,…
Read MoreHDSA Awards Five Huntington’s Disease Human Biology Project Research Grants
Posted on October 14, 2021
After thoughtful deliberation by its Scientific Advisory Board, HDSA will award five the Huntington’s Disease Human Biology Project research grants to Joan O’Keefe,…
Read MoreDr. Francis S. Collins to Step Down from Head of NIH
Posted on October 7, 2021
On Tuesday of this week, Francis S. Collins, MD, PhD, announced he would step down from his role as Director of the…
Read MoreHD Buzz: Real talk with Roche on GENERATION-HD1
Posted on September 30, 2021
The editors of HD Buzz recently sat down with leaders from Roche to ask questions on behalf of the HD community…
Read MoreHDSA Research Webinar TODAY!
Posted on September 23, 2021
Join HDSA TODAY at 12PM (ET) for the next HDSA Research Webinar! HDSA Human Biology Project Fellows Dr. Michael Placzek (Massachusetts General…
Read MoreRoche Regroups: New Partnerships forged in HD Research
Posted on September 16, 2021
After an unexpected dosing halt in the GENERATION-HD1 study nearly 6 months ago, Roche is gearing up to increase their…
Read MoreWave Life Sciences begins SELECT-HD Trial
Posted on September 9, 2021
Wave Life Sciences shared a press release this morning announcing that dosing has begun in the SELECT-HD trial. The study…
Read MoreAdvances in Gene Therapy: HDBuzz Covers Exciting New Regulatory System, Xon
Posted on September 2, 2021
Researchers at the Children’s Hospital of Philadelphia have created a system to better regulate gene editing by administration of a secondary activator drug. This novel system, dubbed Xon, acts…
Read MoreKINECT-HD2: Rollover Study of Valbenazine for Chorea in HD
Posted on August 26, 2021
KINECT-HD2, the open-label extension of KINECT-HD, is seeking 30 new participants to join a study of valbenazine for chorea in Huntington’s disease….
Read MoreHDBuzz on Recent News in the HD Research Pipeline
Posted on August 19, 2021
The August 9th press release from Voyager Therapeutics left many of us scratching our heads. Luckily, HDBuzz swooped in with their latest…
Read MoreVoyager Therapeutics Shifts Directions
Posted on August 12, 2021
Voyager Therapeutics issued a press release on Monday about their finances, recent leadership transitions, and importantly, a major shift in their…
Read MoreHD Parity Act and Pro-Patient Advocacy in the Neurological Disease Community
Posted on August 5, 2021
Last week, Kala Booth, a Huntington’s disease patient, caregiver, advocate, and the 4th known generation in her family to test HD positive appeared before the House…
Read MoreHD Advocate Testifies on HD Parity Act
Posted on July 29, 2021
Kala Booth, a Huntington’s disease positive individual and caregiver to her mother, will appear TODAY before the House Committee on Energy & Commerce subcommittee on neurodegenerative diseases. Kala…
Read MoreNow Accepting Letters of Intent for 2022 HDSA Centers of Excellence!
Posted on July 22, 2021
HDSA Centers of Excellence provide comprehensive multidisciplinary clinical services to families affected by HD, including neurology, psychology, genetic counseling/testing, social…
Read MoreNew Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD
Posted on July 15, 2021
Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…
Read MoreRecorded Sessions From The HDSA Convention Are Now Available
Posted on July 8, 2021
The Virtual 36th Annual HDSA Convention was a spectacular time for researchers, clinicians, family members, and affected individuals to come together for…
Read MoreOpportunities to participate in online HD research
Posted on July 1, 2021
Research participation is essential in the quest for HD treatments and knowledge, not only in pursuit of drug development but also to improve care…
Read MoreHDSA Awards Two Berman-Topper Family HD Career Development Fellowships
Posted on June 24, 2021
After careful Scientific Advisory Board review, HDSA is excited to award the Berman-Topper Family HD Career Development Fellowship to Dr. Eduardo Silva Ramos (Max…
Read MoreThank you for attending HDSA’s Virtual 36th Annual Convention!
Posted on June 17, 2021
Thank you to all who attended HDSA’s virtual 36th Annual Convention! If you missed us this time around, don’t stress—recorded sessions will be…
Read MoreVirtual 36th Annual HDSA Convention Begins TODAY!
Posted on June 10, 2021
Join us TODAY for the Virtual 36th Annual HDSA Convention of four days full of meet-and-greets, presentations, Q&A’s, support groups, and more. If you’re…
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