Interview Study, HD History, Participant’s Experience
Posted on September 21, 2023
Paid Interview Study Opportunity with Design Science Design Science is seeking opinions from people with HD and their partners about…
Read MoreFounder’s Day, Suicide Prevention, & My VIBE Podcast
Posted on September 14, 2023
HDSA Founder’s Day of Giving 55 Years ago, Marjorie Guthrie sought out volunteers from across the country and created…
Read MoreGenetic Modifiers, CSF Flow, and Sleep in HD
Posted on September 7, 2023
HD Buzz on Genetic Modifiers in HD People with an expanded section of CAG repeats in a copy their huntingtin…
Read MoreLeaving a Legacy, HD Drug Delivery, Valbenazine for HD
Posted on August 31, 2023
Leaving a Legacy: Brain Donation in HD Webinar available online Last week, HDSA was joined by leading researchers, a neurologist…
Read MoreValbenazine Approved, HD History, Gene therapy success
Posted on August 24, 2023
FDA approves Valbenazine to treat HD chorea Last week, on August 18th, Neurocrine Biosciences shared that the FDA has approved…
Read MoreLeaving a Legacy, HD Advocates, vUHDRS
Posted on August 17, 2023
Leaving a Legacy: National Make a Will Month & Brain Donation Research Webinar August is National Make-a-Will month, a…
Read MoreResearch Webinar, Renewing HD brain cells, HD History
Posted on August 10, 2023
HDSA Research Webinar: Leaving a Legacy, Brain Donation for HD Research Brain donation is an invaluable gift that makes a…
Read MorePostcard from Dubrovnik, History of Observational Studies, Cell Transplants to Treat HD
Posted on August 3, 2023
Postcard from Dubrovnik In April of 2023, more than 400 scientists from around the world met in Dubrovnik Croatia for…
Read MoreHD Trialfinder, FOCUS-HD, & Young HD Investigators
Posted on July 27, 2023
HD Trialfinder: Sign up or Re-Match Today! If you’re interested in participating in HD research, HDTrialfinder is a great…
Read MoreSummer Survey Extravaganza: Participate today!
Posted on July 20, 2023
Summer Survey Extravaganza Summertime means dodging heatwaves between beach days, ice cream sundaes, and now, online surveys! HDSA works with…
Read MoreConvention Videos Live, NIH Funds HD, AD Drug Approval
Posted on July 13, 2023
2023 HDSA Annual Convention content now available online Whether you were unable to join us for this year’s Annual Convention…
Read MoreResearch from HDSA Fellows, Global HD News
Posted on July 6, 2023
Publications from HDSA Berman-Topper Fellows Dr. Rachel Harding received the 2018 Berman-Topper Fellowship for her work on the structure…
Read MoreParticipate in Research, HD History, Scientific Optimism
Posted on June 29, 2023
Participate in HD Research: HD Data Collection Initiative, HD Trialfinder, and more Deciding whether to participate in research and…
Read MoreClinical Research Updates, CHDI Therapeutics Conference, Up & Coming HD Scientists
Posted on June 22, 2023
Clinical Trials News: positive updates from uniQure and PTC Therapeutics This week, we had two updates from major players…
Read MoreDisability Umbrella, Research Awards, & Brain Health
Posted on June 15, 2023
The Disability Umbrella with Allison Bartlett, Esq In her weekly blog, HDSA’s resident expert on social security disability, Allison Bartlett,…
Read MoreHDSA Convention, Research Participation, HDF Webinar
Posted on June 8, 2023
Thank you for attending HDSA’s 38th Annual Convention! HDSA was delighted to welcome over 800 attendees to this year’s…
Read MoreResearch Fellows, HD Awareness, Annual Convention
Posted on May 25, 2023
HDSA Awards 2023 Berman-Topper Family HD Career Development Fellowship This week, HDSA announced the newest recipient of the Berman-Topper Family…
Read MoreResearch Support, HD Data Collection Initiative, Clinical Trials Day
Posted on May 18, 2023
Supporting HD families through the ups and downs of clinical trials Clinical trials are critical for getting us closer…
Read MoreHD & Mental Health, Research Webinar, 2023 trials
Posted on May 11, 2023
May Awareness: Mental Health and HD May is Huntington’s Disease Awareness Month, and HDSA needs your help to turn up…
Read MoreHD Research Webinar, HD Awareness, & Youth Research
Posted on May 4, 2023
HDSA & HSC Research Webinar TOMORROW Tomorrow at 1PM ET, HDSA and the Huntington’s Society of Canada (HSC) will co-host…
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