February 28th is Rare Disease Day
Posted on February 25, 2021
When you have a rare disease, you face two battles – one being the illness itself, and the other, living…
Read MoreHDBuzz Explores a Novel Huntingtin-lowering Strategy
Posted on February 18, 2021
Huntingtin-lowering is an HD treatment strategy that usually involves targeting the HD gene itself, but some researchers are exploring roundabout ways to achieve…
Read MoreUpcoming HDSA 2020 Year in Review Webinar
Posted on February 11, 2021
As we mentioned in January, we’ll be hosting an HD Research Year in Review webinar on Thursday, February 18th, at 12 PM…
Read MoreHDSA Announces 54 Centers of Excellence for 2021
Posted on February 4, 2021
HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. On February 2nd, HDSA announced…
Read MoreRecap: PROOF-HD Webinar
Posted on January 28, 2021
If you missed this week’s research webinar, in which Dr. Sandra Kostyk and Dr. Andrew Feigin discussed a new HD…
Read MoreEnroll-HD: A Resource For Everyone
Posted on January 21, 2021
Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…
Read MoreAsk the Doctor…Anything!
Posted on January 14, 2021
Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…
Read MoreHappy New Year From HDSA
Posted on January 7, 2021
Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…
Read MoreHappy Holidays from the HDSA Family
Posted on December 24, 2020
Despite the challenges of 2020, your support of HDSA this year has continued to remind all of us that in the fight against Huntington’s…
Read MorePublication from an HDSA Fellow
Posted on December 17, 2020
Congratulations to 2019 Berman-Topper Fellow Dr. Lauren Byrne, whose work was recently published in the Journal Science Translational Medicine. She tweeted this week about…
Read MoreThe Marker: HDSA’s Annual Research Report
Posted on December 10, 2020
Each year HDSA’s annual research report, The Marker, covers the past year in HD science and HDSA research activities. Check…
Read MoreHDSA Announces Four 2020 Human Biology Fellows
Posted on December 3, 2020
This week, HDSA announced the winners of the 2020 HD Human Biology Fellowship. HDSA’s largest research initiative, the Human Biology Project supports projects that focus…
Read MoreHappy Thanksgiving
Posted on November 26, 2020
Happy Thanksgiving and a big thank you to members of the HD community for your participation in research. Medicine moves…
Read MorePTC Therapeutics Initiates Phase 1 Clinical Trial
Posted on November 19, 2020
PTC Therapeutics is a company focused on developing genetic and small molecule therapies for rare and serious disorders. This week they issued…
Read MoreTriplet Therapeutics SHIELD-HD study fully recruited
Posted on November 12, 2020
Triplet Therapeutics is a Boston-based biotech company that is developing therapies for CAG repeat disorders like HD. Their focus is studying…
Read MoreHDBuzz: Clinical Research Updates from the HSG Conference
Posted on November 5, 2020
The Huntington Study Group hosted a virtual conference from October 29th – 31st, covering clinical trial updates, education, and training for HD…
Read MoreHSG 2020: HD in Focus
Posted on October 29, 2020
The Huntington Study Group is a clinical research network focused exclusively on Huntington disease. Each year they host a conference that provides education…
Read MoreNovartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment
Posted on October 22, 2020
This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…
Read MoreuniQure Trial Proceeds; Voyager Receives Regulatory Feedback
Posted on October 15, 2020
This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…
Read MoreHDBuzz Covers Virtual EHDN Conference
Posted on October 8, 2020
The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…
Read More