Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Happy Thanksgiving

Posted on November 26, 2020

Happy Thanksgiving and a big thank you to members of the HD community for your participation in research. Medicine moves…

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PTC Therapeutics Initiates Phase 1 Clinical Trial

Posted on November 19, 2020

PTC Therapeutics is a company focused on developing genetic and small molecule therapies for rare and serious disorders. This week they issued…

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Triplet Therapeutics SHIELD-HD study fully recruited

Posted on November 12, 2020

Triplet Therapeutics is a Boston-based biotech company that is developing therapies for CAG repeat disorders like HD. Their focus is studying…

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HDBuzz: Clinical Research Updates from the HSG Conference

Posted on November 5, 2020

The Huntington Study Group hosted a virtual conference from October 29th – 31st, covering clinical trial updates, education, and training for HD…

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HSG 2020: HD in Focus

Posted on October 29, 2020

The Huntington Study Group is a clinical research network focused exclusively on Huntington disease. Each year they host a conference that provides education…

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Novartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment

Posted on October 22, 2020

This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…

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uniQure Trial Proceeds; Voyager Receives Regulatory Feedback

Posted on October 15, 2020

This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…

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HDBuzz Covers Virtual EHDN Conference

Posted on October 8, 2020

The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…

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HD Trialfinder: Study Updates

Posted on October 1, 2020

HDSA’s HD Trialfinder is an easy-to-use website that lists currently recruiting HD clinical trials in the United States and Canada. By answering some basic questions about…

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SIGNAL study of pepinemab does not meet key goals for HD patients

Posted on September 24, 2020

The SIGNAL study was carried out by a company called Vaccinex to test whether their drug, pepinemab, could combat brain inflammation and ease symptoms…

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Highlights from the EHDN Virtual Congress

Posted on September 17, 2020

This week the 2020 European Huntington’s Disease Network (EHDN) hosted a virtual plenary meeting to discuss the latest in HD research…

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You Asked the Scientists!

Posted on September 10, 2020

The recording from the latest HDSA Research Webinar, Ask the Scientist Anything, is now available on HDSA’s YouTube channel. Dr….

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Research Webinar: Ask the Scientist…Anything!

Posted on September 3, 2020

This coming Tuesday, September 8th, at 12 PM Eastern, Dr. Ed Wild and Dr. Jeff Carroll, creators of HDBuzz, as well as HDBuzz writers Dr….

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HDBuzz on Somatic Instability

Posted on August 27, 2020

The cause of Huntington’s disease is an extra-long stretch of CAG repeats in the DNA, in a single gene called huntingtin. In…

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Research Spotlight: Telemedicine for Huntington’s Disease

Posted on August 20, 2020

Participants diagnosed with HD, ages 18-70, in the Chicago area, are needed for an HDSA-funded study on Telemedicine at Northwestern…

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HDBuzz: CRISPR Requires Caution

Posted on August 13, 2020

CRISPR is a gene editing technique that has been touted for its potential to treat HD someday in the future. However,…

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Throwback Thursday: This Week in HD History

Posted on August 6, 2020

The exact sequence and location of the gene that causes Huntington’s disease was published in 1993, but the hunt had…

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Becoming an HDSA Center of Excellence

Posted on July 30, 2020

This week, HDSA began soliciting Letters of Interest from Huntington’s disease clinics that would like to be considered for HDSA Center…

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Triplet Therapeutics: Clinical Candidate and Natural History Study

Posted on July 23, 2020

One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…

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Huntington’s Disease Featured on ABC News

Posted on July 16, 2020

Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…

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