This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Novartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications

Posted on December 8, 2022

Novartis Shares Update on VIBRANT-HD   Today Novartis shared that they will end development of branaplam for HD. This difficult news…

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Thank You Thursday, HD-ISS, and Gene Therapy 101

Posted on December 1, 2022

Happy Thank You Thursday from HDSA   Support from HD families like you is what allows HDSA to fight for a…

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Celebrate #GivingTuesday with HDSA

Posted on November 17, 2022

At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…

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Highlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day

Posted on November 10, 2022

Highlights from HSG’s Annual Meeting 2022  Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…

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HDSA Research Awards, Clinical Trials Updates & HD Podcasts

Posted on November 3, 2022

HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022  After thoughtful deliberation by its Scientific Advisory Board,…

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HDSA Research Webinar, HD Care, & HD History

Posted on October 27, 2022

HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial  Last week, PTC Therapeutics shared that its Phase 2…

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Clinical Trial News & New Online Survey

Posted on October 20, 2022

PTC Therapeutics provides enrollment update  PTC Therapeutics shared a press release this week to confirm that enrollment is active and…

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HDSA Surveys & Support the HD Parity Act!

Posted on October 13, 2022

Participate in HDSA-Vetted Research Surveys  Researchers, clinicians, healthcare professionals, and students studying HD frequently design surveys to get input from…

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This Week’s Blog: 10.6.2022

Posted on October 6, 2022

HDBuzz on ASO headlines: What’s the latest on huntingtin-lowering?   Recent weeks have brought news for familiar players in the…

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This Week’s Blog: 9.29.22

Posted on September 29, 2022

Summer Research Recap   This summer was full of ups and downs in HD research. Following a research webinar in August that recapped challenging clinical trials…

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This Week’s Blog: 9.22.22

Posted on September 22, 2022

Wave Life Sciences announces positive results from SELECT-HD  Earlier this week, Wave Life Sciences shared a positive update from the…

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Celebrate HDSA Founder’s Day on September 18th

Posted on September 15, 2022

55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…

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HDSA Research Webinar Recording: All you need to know about PROOF-HD

Posted on September 8, 2022

This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…

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HDSA webinar Sept 7th: All you Need to Know About PROOF-HD

Posted on September 1, 2022

In its Phase III trial, PROOF-HD, Prilenia is currently studying the effects of pridopidine on total functional capacity in people with HD. On…

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Novartis releases community update on VIBRANT-HD

Posted on August 25, 2022

This week, Novartis released a community update on VIBRANT-HD, the phase 2b study of branaplam in adults with HD. The statement…

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HDSA Centers of Excellence program now accepting LOI’s for 2023 designation  

Posted on August 18, 2022

HDSA Centers of Excellence program now accepting LOI’s for 2023 designation   HDSA’s Centers of Excellence (COE) Program is the…

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#LetsTalkAboutHD Clinical Trials

Posted on August 11, 2022

Multiple pieces of news about ongoing clinical trials were shared this week by companies developing therapies for HD. We discuss…

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HDSA Center of Excellence Directors discuss biomarkers for HD

Posted on August 4, 2022

Neurofilament Light Chain (NfL) is a structural protein found in brain cells. In neurodegenerative diseases, circulating levels of NfL tend to be…

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ENROLL-HD Celebrates 10-year Anniversary

Posted on July 28, 2022

On July 25, 2012, the first participant entered ENROLL-HD,  the world’s largest observational study of Huntington’s disease that monitors how the disease…

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HD Buzz Roundtable: HD Scientists talk research with Help4HD

Posted on July 21, 2022

In a new  series on the Help4HD podcast, host Lauren Holder will meet with members of the HDBuzz editorial staff…

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