American Society of Human Genetics Chooses Huntington’s Disease as Topic for 2019 Essay Contest

Posted on January 10, 2019

The American Society of Human Genetics (ASHG) is a nonprofit organization whose mission is to advance human genetics in science, health, and society through excellence in research, education, and advocacy. They hold a yearly essay contest for high schoolers, grades 9-12, promoting education and reflection upon genetic topics and awareness of DNA Day (Thursday, April…

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2018 Research Year in Review Webinar

Posted on January 3, 2019

To complement our 2018 Research Report, George and Leora will be sharing this year’s HD research highlights in our 2018 Research Year in Review Webinar on Wednesday, January 16th, 2019, from 12-1 pm Eastern time. Register to attend the webinar here.   New Year, New SAB Member HDSA’s Scientific Advisory Board (SAB) is composed of…

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Roche/Genentech Announces Locations of GENERATION HD1 Drug Study

Posted on December 20, 2018

On Wednesday, December 19th, Roche/Genentech announced the US and Canadian locations for their upcoming study to test efficacy of the huntingtin-lowering therapy RG6042. This will be a 2-year study in people with early diagnosed HD. It will involve monthly lumbar punctures (spinal injections) to deliver RG6042 or a placebo, as well as clinical tests and scans…

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HDSA’s 2018 Research Report Is Now Available

Posted on December 13, 2018

This week, HDSA published the 2018 Research Report, a written re-cap of global HD research progress and how HDSA research dollars were put to use this year. We cover the work of HDSA-supported fellows, this year’s hot topics, conferences, clinical research news, and more, in a redesigned format. It’s a great summary of what happened…

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HD Buzz on Huntingtin-Lowering Strategies

Posted on December 6, 2018

The Ionis/Roche/Genentech Huntington’s program has received a lot of press in recent months. However, several additional companies have been working towards the same goal of developing therapies to target the genetic source of HD. One company is testing an antisense oligonucleotide (ASO) therapy, already in clinical trials, while others have novel drugs in the works…

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Happy Thanksgiving!

Posted on November 29, 2018

We hope you had a Happy Thanksgiving, and a big thank you to our readers for your interest in research news and scientific activities at HDSA. Medicine moves forward through community engagement and research participation, along with the work of hundreds of health workers and scientists who have dedicated their lives to fighting HD. We’re…

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Roche/Genentech Announces US & Canadian Locations of Observational Natural History Study

Posted on November 15, 2018

On Saturday at the Huntington Study Group Meeting in Houston, Roche/Genentech announced the US and Canadian locations for their Natural History Study. This study does not involve drug treatments. It will monitor people with early manifest Huntington’s disease by testing their symptoms and measuring their mutant huntingtin levels over time. It will last for 16…

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Dr. Amber Southwell Featured on UCF Website

Posted on November 8, 2018

HDSA-supported researcher Dr. Amber Southwell is featured this week in an article about huntingtin-lowering. Her lab’s recent publication showed that an antisense oligonucleotide (ASO) designed to lower mutant huntingtin improved cognitive and behavioral problems in HD mice. Dr. Southwell was a 2015 HD Human Biology Fellow, and with HDSA’s support was able to transition to…

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HDSA Now Accepting Applications for Two HD Research Funding Opportunities

Posted on November 1, 2018

This week, we have opened up applications for HDSA research funding. Learn about how we support HD research and pass it on these opportunities to the scientists in your life! 2019 Berman/Topper Family HD Career Development Fellowship The Huntington’s Disease Society of America (HDSA) believes we must ensure that the pipeline of passionate and bright…

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HDSA Names Five HD Human Biology Fellows For 2018

Posted on October 25, 2018

This week, we announced the winners of the 2018 HD Human Biology Fellowship. These young scientists were chosen for their well-designed projects that focus on understanding Huntington’s disease as it occurs in humans. Below are their names and the basic questions they will focus on in their HD research.  Rossana Foti, University of Copenhagen, Denmark:…

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