This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Interview Study, HD History, Participant’s Experience

Posted on September 21, 2023

Paid Interview Study Opportunity with Design Science  Design Science is seeking opinions from people with HD and their partners about…

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Founder’s Day, Suicide Prevention, & My VIBE Podcast

Posted on September 14, 2023

HDSA Founder’s Day of Giving   55 Years ago, Marjorie Guthrie sought out volunteers from across the country and created…

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Genetic Modifiers, CSF Flow, and Sleep in HD

Posted on September 7, 2023

HD Buzz on Genetic Modifiers in HD  People with an expanded section of CAG repeats in a copy their huntingtin…

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Leaving a Legacy, HD Drug Delivery, Valbenazine for HD

Posted on August 31, 2023

Leaving a Legacy: Brain Donation in HD Webinar available online  Last week, HDSA was joined by leading researchers, a neurologist…

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Valbenazine Approved, HD History, Gene therapy success

Posted on August 24, 2023

FDA approves Valbenazine to treat HD chorea Last week, on August 18th, Neurocrine Biosciences shared that the FDA has approved…

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Leaving a Legacy, HD Advocates, vUHDRS

Posted on August 17, 2023

Leaving a Legacy: National Make a Will Month & Brain Donation Research Webinar   August is National Make-a-Will month, a…

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Research Webinar, Renewing HD brain cells, HD History

Posted on August 10, 2023

HDSA Research Webinar: Leaving a Legacy, Brain Donation for HD Research   Brain donation is an invaluable gift that makes a…

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Postcard from Dubrovnik, History of Observational Studies, Cell Transplants to Treat HD

Posted on August 3, 2023

Postcard from Dubrovnik  In April of 2023, more than 400 scientists from around the world met in Dubrovnik Croatia for…

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HD Trialfinder, FOCUS-HD, & Young HD Investigators

Posted on July 27, 2023

HD Trialfinder: Sign up or Re-Match Today!   If you’re interested in participating in HD research, HDTrialfinder is a great…

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Summer Survey Extravaganza: Participate today!

Posted on July 20, 2023

Summer Survey Extravaganza  Summertime means dodging heatwaves between beach days, ice cream sundaes, and now, online surveys! HDSA works with…

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Convention Videos Live, NIH Funds HD, AD Drug Approval

Posted on July 13, 2023

2023 HDSA Annual Convention content now available online  Whether you were unable to join us for this year’s Annual Convention…

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Research from HDSA Fellows, Global HD News

Posted on July 6, 2023

Publications from HDSA Berman-Topper Fellows   Dr. Rachel Harding received the 2018 Berman-Topper Fellowship for her work on the structure…

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Participate in Research, HD History, Scientific Optimism

Posted on June 29, 2023

Participate in HD Research: HD Data Collection Initiative, HD Trialfinder, and more   Deciding whether to participate in research and…

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Clinical Research Updates, CHDI Therapeutics Conference, Up & Coming HD Scientists

Posted on June 22, 2023

Clinical Trials News: positive updates from uniQure and PTC Therapeutics   This week, we had two updates from major players…

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Disability Umbrella, Research Awards, & Brain Health

Posted on June 15, 2023

The Disability Umbrella with Allison Bartlett, Esq  In her weekly blog, HDSA’s resident expert on social security disability, Allison Bartlett,…

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HDSA Convention, Research Participation, HDF Webinar

Posted on June 8, 2023

Thank you for attending HDSA’s 38th Annual Convention!   HDSA was delighted to welcome over 800 attendees to this year’s…

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Research Fellows, HD Awareness, Annual Convention

Posted on May 25, 2023

HDSA Awards 2023 Berman-Topper Family HD Career Development Fellowship  This week, HDSA announced the newest recipient of the Berman-Topper Family…

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Research Support, HD Data Collection Initiative, Clinical Trials Day  

Posted on May 18, 2023

Supporting HD families through the ups and downs of clinical trials   Clinical trials are critical for getting us closer…

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HD & Mental Health, Research Webinar, 2023 trials

Posted on May 11, 2023

May Awareness: Mental Health and HD   May is Huntington’s Disease Awareness Month, and HDSA needs your help to turn up…

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HD Research Webinar, HD Awareness, & Youth Research

Posted on May 4, 2023

HDSA & HSC Research Webinar TOMORROW  Tomorrow at 1PM ET, HDSA and the Huntington’s Society of Canada (HSC) will co-host…

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