Summary

- Celebrate Rare Disease Day with HDSA on February 29th  
- Next Week in HD Research: CHDI’s 18th Annual HD Therapeutics Conference  
- HDSA Convention Scholarship Applications due March 1st   

Celebrate Rare Disease Day with HDSA on February 29th  

When you have a rare disease, you face two battles – one being the illness itself, and the other, living in a world where so few people understand what you’re up against. The HD community is no stranger to these battles, but we also know firsthand that while we may be rare, we are mighty and getting stronger together each day. Thursday, February 29th is Rare Disease Day 2024, and HDSA is joining forces with individuals from over 7,000 rare diseases affecting 300 million people ,their families, and carers to raise awareness about rare disorders like HD. Check out https://www.rarediseaseday.org/ to learn more about the rare disease community and the events happening worldwide.  Visit hdsa.org/rarediseaseday to join us in turning up the global volume for Huntington’s disease awareness and to support HD research and world-class HD resources for families across the country. 

Next Week in HD Research: CHDI’s 18th Annual HD Therapeutics Conference  

Next week, distinguished HD researchers from across the globe will gather in Palm Springs, CA for CHDI’s 19th Annual HD Therapeutics Conference. The meeting will cover hot topics in HD science, from innovations in our basic understanding of the disease to novel therapeutic approaches to treating it. While this event will not be live streamed, the editors of HD Buzz will be on the scene to give us a play by play in their yearly live tweets from the event. If you’d like a refresher on the HD research landscape before you follow along, this blog is a great place to start, as are recent articles from HDBuzz and HDSA’s HD Research in the Pipeline page. 

HDSA Convention Scholarship Applications due March 1st   

Join HDSA in Spokane, Washington from May 30th – June 1st  for HDSA’s 39th annual Convention! To reserve your spot today at the early-bird rate or to see an overview about Convention scholarships, click here and scroll down the page. If you are interested in applying for a scholarship to attend, submissions are due on Friday, March 1st. More information about Convention scholarships and the application can be found on this page. There are scholarships available for first-time attendees, Washington residents, and New Jersey and Kentucky residents.  

This year’s Convention will feature plenty of research programming, including a showcase of actively recruiting clinical trials, an opportunity to ask HD scientists questions, talks from HDSA-funded researchers, and more. We hope to see you there!