Misunderstanding HD

In the course of serving and protecting the public, law enforcement officials often encounter unusual or dangerous behavior: agitation, confusion, aggression, problems with gait or motor control, and slurred or hard to understand speech. This conduct can indicate a number of medical conditions. Huntington’s disease is an example of a serious neurological disorder that can cause any or all of these symptoms. There have been documented cases of people with HD having difficult interactions with law enforcement because their symptoms are misidentified, misunderstood or mishandled. Sadly, there can be negative outcomes, including harm to the individual or even suicide; negative outcomes which may have been preventable.

HDSA’s Law Enforcement Training Guide

The HDSA Law Enforcement Training Guide purpose is threefold:

  • To help law enforcement officials recognize the symptoms common to individuals with Huntington’s disease (HD)
  • To provide suggestions for addressing behaviors associated with HD
  • To recommend solutions that will end the encounter safely and successfully.

CLICK HERE TO DOWNLOAD

 

 

FOR HD INDIVIDUALS & FAMILIES:
Caregiver Guide & Support Documents

This booklet contains general guidelines for working with law enforcement, feedback regarding situations that may cause confrontations, and information about what to do in case of arrest or detainment.

DOWNLOADS:
CAREGIVER GUIDE: Click for a FREE PDF DOWNLOAD.

I have HD Card: A wallet card with information about HD.

HD Profile Card: A form that can be personalized with an individual’s photo and identifying information.

My Crisis Template: A form that can be personalized with emergency numbers.

 

To order a hard copy of the Law Enforcement Tool Kit please fill out the form below


Huntington’s Disease ID Bracelet

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Help prevent law enforcement interactions from escalating and inform medical professionals with your new Huntington’s disease ID bracelet!

ID Bracelet Features:

  • Adjustable wristbands are a soft, latex-free elastic.
  • Lightweight, nylon plastic compartment is highly water resistant.
  • Includes 4 waterproof Tyvek inserts to write your medical background & emergency contact information.

    Click here to Purchase