- HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $523,320 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
- The Huntington’s Disease Society of America Welcomes Jenne Coler-Dark as New Chair of the Board of Trustees
- uniQure Announces Alignment with FDA on Key Elements of Accelerated Approval Pathway for AMT-130 in Huntington’s Disease
- Exciting News: PTC Therapeutics Enters into a Global License and Collaboration Agreement with Novartis for PTC518 Huntington’s Disease Program
- HDSA Podcast- New Episode Now Available!
- Spark Therapeutics Community Letter
- November 2024: HDSA Today Newsletter
- Championing Hope: HDSA’s Unwavering Commitment to Huntington’s Disease Families
- October 2024 HDSA TODAY Newsletter
- 2023 HDSA Annual Report
- BLOG: This Week in HD Research
- We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey
- HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS
- HDSA Awards Six 2024 Donald A. King Summer Research Fellowships
- uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease
- Farewell & Leadership Transition at HDSA
- Wave Life Sciences Update: Results from SELECT-HD Community Letter
- PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter
- A message from Louise Vetter, President & CEO
- Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA
- HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting
- Now Accepting Human Biology Project LOIs
- Act Fast: Early Bird Rate for HDSA Convention Ends March 31st!
- HDSA Publishes 2023 Year in Review
- Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine.
- HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES
- 2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN
- 2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN
- ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication
- uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
- uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
- HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
- TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
- Now Accepting 2024 HDSA Centers of Excellence Applications
- 2022 HDSA Annual Report
- BLOG: Disability Tips
- FREEZE HD Update
- HDSA Earns Four-Star Rating From Charity Navigator
- Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference
- uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
- uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
- Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
- HDSA Partnership with Rare-X Community Letter & FAQ
- HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
- Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
- HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
- HDBUZZ: PROOF-HD study of pridopidine ends with negative result
- Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
- The HDSA Podcast Episode #3
- Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets
- HDBuzz: Roche Phase II GENERATION HD2 study underway
- Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
- Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
- HDSA Publishes 2022 Year in Review Magazine
- Introducing The HDSA Podcast
- Roche-Genentech Community Letter: GENERATION HD2 study now open
- 38th Annual HDSA Convention in New Orleans Registration Now Open
- The Marker: HDSA’s 2022 Research Report is now available
- HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
- HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
- Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
- Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
- Team HDSA Raises More Than $100,000 at the New York City Marathon
- Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
- HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
- Breaking News: uniQure provides update on AMT-130
- Eighth Annual Freeze HD Raises More Than $200,000
- PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
- Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
- HDSA Publishes 2021 Annual Report
- HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
- Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
- BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
- HDSA Disability Chat: JHD & Social Security
- HDSA Research Webinar: All You Need To Know About PROOF-HD
- HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
- Novartis Provides Community Update Regarding VIBRANT-HD
- HDSA Research Webinar: HD Clinical Trials Update
- Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
- Sage Therapeutics Provides Positive Update on the SURVEYOR Study
- HDSA Films presents KING’S CRUSADE (Part 2)
- HDSA Statement Regarding VIBRANT-HD Trial
- uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
- HDSA Films presents KING’S CRUSADE (Part 1)
- Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
- HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
- uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
- HDBuzz: How clever computers are helping us understand Huntington’s disease
- New system that defines Huntington’s disease will ‘revolutionise’ drug trials
- HDBuzz: A new roadmap to track Huntington’s disease progression
- 37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
- Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
- HDSA Films presents THE STORY OF E.J. + KATY
- HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
- HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
- PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
- HDBuzz: A spoonful of branaplam helps the huntingtin go down
- HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
- HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
- HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
- Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
- HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
- Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
- uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
- HDBuzz: Oral drug may change the story for huntingtin lowering
- Register Today for the 37th Annual HDSA Convention in Atlanta
- HDSA Publishes 2021 Year In Review Magazine
- BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
- VIDEO: Roche Community Presentation of New Tominersen Data
- BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
- Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment
- VIDEO: Happy Holidays from Louise Vetter
- uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
- The Marker is Now Available! Read HDSA’s 2021 Research Report
- Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
- Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
- HDSA Coffee Walk with Jennifer Simpson
- TAKE ACTION: HDSA’s 7 Days of Action
- HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
- HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
- More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
- HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
- Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
- HDSA Awards $749,000 to HD Human Biology Projects
- HDBuzz: Q&A with Roche about GENERATION-HD1
- HDSA Publishes 2020 Annual Report
- Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
- Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
- HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
- HDBuzz: Unpacking Recent Gene Therapy Press
- Update from Voyager Therapeutics
- HDSA Films Presents The Osborns: Our Legacy
- VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
- HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
- HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
- NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
- Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
- HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
- HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
- uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
- HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
- HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
- HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
- HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
- HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
- Now Accepting 2021 National Award Nominations
- uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
- Register Today For Free | Virtual 36th Annual HDSA Convention
- HDBuzz: Wave Life Sciences PRECISION-HD Trials
- Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
- VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
- RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
- HDBuzz: Sad News From Roche
- Roche Provides a Disappointing Update on Tominersen
- HDSA Reintroduces the HD Parity Act
- HDSA Films presents My Father, My Hero
- Now Accepting 2021 Human Biology Project Letters of Intent
- HDBuzz: Vaccines and HD
- The 36th Annual HDSA Convention Goes Virtual!
- HDSA Expands Centers of Excellence Program to Fifty-Four Sites
- HDSA Publishes 2020 Year In Review Magazine
- Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
- Happy New Year!
- NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
- HDSA Publishes The Marker: 2020 Research Report
- HDSA Awards Four HD Human Biology Project Fellowships For 2020
- HDBUZZ: Updates from the EHDN Plenary Meeting 2020
- VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
- HDSA Publishes 2019 Annual Report
- HDBuzz: When genes are unstable: Targeting somatic instability in HD
- NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
- HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
- HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
- Anne Leserman announces her retirement from HDSA
- Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
- NEW EPISODE: Here’s The Deal with End of Life & HD
- Huntington’s Disease Featured on ABC News Live Prime
- HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
- uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
- Virtual HDSA Convention Recorded Sessions Now Available
- Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
- HDSA Supports The Fight Against Racism
- Register for the Virtual 35th Annual HDSA Convention
- Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
- HDSA Awards Berman-Topper Family HD Career Development Fellowship
- International Huntington’s Disease Awareness Day – May 15th
- HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
- COMMUNITY STATEMENT: Update On Tominersen (RG6042)
- NEW EPISODE: Here’s The Deal with Self-Care
- HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
- HD & COVID-19 PANDEMIC RESOURCES
- NEW EPISODE: Here’s The Deal with COVID-19 & HD
- FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
- Community Statement
- NEW EPISODE: Here’s The Deal with Disability
- HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
- HDSA Community Update: HD & COVID-19
- HDSA Community Update
- HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
- HDSA Convention Community Statement
- HDBuzz: Day 3 at HD Therapeutics Conference
- HDSA Films Presents ALLIE & JOE
- HDBuzz: Day 2 at HD Therapeutics Conference
- HDBuzz: Day 1 at HD Therapeutics Conference
- HDSA Announces Fifty 2020 Centers of Excellence
- HDSA Publishes 2019 Year In Review Magazine
- REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
- Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
- Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
- HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
- HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
- HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
- HDSA Welcomes Three Trustees to National Board
- HDSA Publishes The Marker – 2019 Research Report
- HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
- HDSA Awards Five 2019 HD Human Biology Project Fellowships
- Community Statement from Roche / Genentech
- View 5th Annual Freeze HD Red Carpet and Event Photos
- 5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
- 2018 HDSA Annual Report
- HDBUZZ: Exciting New Huntingtin Lowering Tool Described
- Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
- VIDEO: Here’s The Deal With Caregiving While Positive
- VIDEO: 34th Annual HDSA Convention Recap
- HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
- Community Statement from uniQure
- HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
- HDSA Adds Allison Bartlett as Manager of Disability Programs
- HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
- Huntington’s Disease Parity Act Is Reintroduced
- HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
- Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
- HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
- HDSA Films Presents “The Hodgsons” Short Film
- Update on PRECISION-HD program
- BLOG: This Week in HD Research
- HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
- COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
- HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
- HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
- HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
- Huntington’s Disease Featured On The Today Show
- HDSA Expands Centers of Excellence Program to Forty-Seven
- HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
- First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
- HDSA Publishes 2018 Year In Review Magazine
- uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
- HDSA Launches Youth Social Worker Program
- BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
- HDSA’s 2018 Research Report Now Available
- EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
- HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
- Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
- HDSA Awards Five HD Human Biology Project Fellowships for 2018
- FAQs: Upcoming Genentech/Roche Studies
- HDBuzz: Kids Get Huntington’s Disease Too
- RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
- HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
- Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
- Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
- Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
- IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
- Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
- HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
- VIDEO: 33rd Annual HDSA Convention Recap
- 33rd Annual HDSA Convention Recap
- VIDEO: HD Buzz at the 33rd Annual HDSA Convention
- VIDEO: 33rd Annual HDSA Convention Research Forum
- VIDEO: 33rd Annual HDSA Convention Opening Ceremony
- Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
- HDSA Awards Berman-Topper Family HD Career Development Fellowship
- FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
- New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
- HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
- Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
- HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
- VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
- HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
- HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
- HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
- IONIS-HTT Rx Community Statement
- IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
- HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
- HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
- HDSA Announces Forty-Three Centers of Excellence
- CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
- FAQs: Ionis Huntingtin-Lowering Trial
- Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
- BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
- Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
- HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
- HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
- HDBUZZ: Switch off the genome editor when you’re done
- Update confirms Huntington’s disease ‘gene silencing’ trial on track
- Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
- HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
- Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
- Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
- HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
- HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
- Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
- Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
- Exciting News: IONIS provides update on Huntingtin lowering trial
- HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
- New study reveals a potential HD biomarker
- HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
- Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
- Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
- Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
- Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
- Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
- Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
- Huntington’s Disease Therapeutics Conference 2017 – Day 3
- Huntington’s Disease Therapeutics Conference 2017 – Day 2
- Huntington’s Disease Therapeutics Conference 2017 – Day 1
- Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
- Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
- HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
- Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
- 2017 National Awards Nominations
- Save the Date- For the largest global gathering of the HD community!
- Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
- Weeding out the truth: can cannabis improve Huntington’s?
- Huntingtin grabs a hammer: DNA repair in HD
- The benefits of migration, highlighted in Huntington’s disease
- Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
- Huntington’s Disease Society of America Unveils HDNavigator Mobile App
- HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
- Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
- HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
- Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
- HDSA Earns Top-Rating from CharityWatch
- Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
- Important advances in next generation genome editing tools for Huntington’s Disease
- HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
- EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
- Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
- New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
- HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
- Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
- A support system gone wrong – glial cells contribute to HD symptoms
- Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
- Huntington’s Disease Community Scores Major Victory with Social Security Criteria
- Slightly long CAG repeats are more common than we thought
- Early exposure to the HD protein may cause life-long symptoms
- WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
- Electron beam snaps best images yet of Huntington’s disease protein
- Select Videos From HDSA’s 31st Annual Convention Now Available
- Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
- Huntingtin takes a trip: harmful proteins pass between brain cells
- Watch us Live from the 31st Annual HDSA Convention
- HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
- Postcard from Palm Springs
- Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
- Important drug targets yielded by new genetic study of HD
- Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
- Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
- Thinking clearly about the earliest symptoms of HD and which brain regions control them
- Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
- 2016 HDSA NATIONAL AWARDS NOMINATIONS
- How NOT to write a news article about a clinical trial
- HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
- HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
- HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
- Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
- Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
- Harnessing the power of viruses to treat Huntington’s disease
- Through a Broader Lens: Looking at Non-Motor Symptoms in HD
- HDSA Releases 2015 Year in Review
- HDSA Releases 2015 Research Investor’s Report
- Looking Past the Spin: Results from a Clinical Trial of Cysteamine
- An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
- Raptor Plans to Advance RP103 in a Registration Study
- New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
- Through the eyes of a friend: changes in mood and behavior in early HD
- Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
- Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
- A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
- Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
- Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
- Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
- HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
- HDBuzz primer: Clinical trial designs and phases
- Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
- FDA Opens 60 Day Open Comment Period
- Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
- HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
- CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
- Deadline To Tell Us Your Thoughts Has Been Extended!
- HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
- Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
- Scientists identify genetic factors that alter the clinical onset of HD in landmark study
- Would ewe believe it? GM1, sheep and Huntington’s disease
- ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
- 30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
- Calling all HD families: Our time to be heard is now!
- Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
- HDSA Supports 21st Century Cures Act
- NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
- Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
- HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
- 2015 Postcard from Palm Springs
- HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
- 2015 Huntington’s Disease Therapeutics Conference and taking part in trials
- Gene variant determines early or late onset of Huntington’s disease
- Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
- Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
- Lighting the way: A new biomarker for Huntington’s disease
- Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
- New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
- Law Enforcement Toolkit II Webinar Now Available
- Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
- Huntington’s Disease Society of America Endorses Enroll-HD
- Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
- Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
- HDSA appoints Director of Marketing & Communications
- World leader in movement disorders Professor Ira Shoulson joins Prana Board
- Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
- Huntington’s Disease Society of America Launches First “HD News” App
- 2CARE HD Clinical Trial Stopped Early for Lack of Benefit
- HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
- Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
- Huntington’s Disease Society of America Awards Additional HD Human Biology Project
- Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
- Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
