On July 29, 2021, the House Energy and Commerce Subcommittee on Health held a vitally important hearing spotlighting Huntington’s disease (HD).

Kala Booth, an HD patient and caregiver, testified to the distinct challenges of living with HD, its multi-generational impact, and the importance of improving access to vital health benefits as outlined in the bipartisan Huntington’s Disease Parity Act (H.R. 2050, S. 868). The HD Parity Act will waive the two-year Medicare waiting period, as well as waive the five-month benefit waiting period for individuals with Huntington’s disease (HD) accessing Social Security Disability Insurance (SSDI).