We know the COVID-19 pandemic is a difficult time for all and may be particularly challenging for those living with or supporting someone with Huntington’s disease. HDSA is committed to sharing the latest updates and resources as we face this public health crisis together.
Below please find resources and communications from HDSA related to the COVID-19 (coronavirus) pandemic.
COMMUNITY UPDATES RELATED TO COVID-19 FROM HDSA’S PRESIDENT & CEO, LOUISE VETTER
HDSA CONVENTION
35TH Annual HDSA Convention Went Virtual
HD & COVID-19 RESOURCES FROM HDSA
Here’s the Deal with COVID-19 & Huntington’s Disease
HDSA’s Here’s The Deal tackles important topics to help you navigate through your journey with Huntington’s disease (HD). In this episode Jennifer Simpson, LCSW sits down with Dr. Victor Sung & Dr. Arik Johnson to discuss COVID-19 & HD.
Allison Bartlett, Esq., HDSA’s Manager of Disability Programs, compiled a list of frequently asked questions (FAQs) related to disability amidst the COVID-19 pandemic. If you have questions about how COVID-19 may impact your situation, please contact Allison at
FACE MASKS
From Rush University: Making and Wearing a Face Mask
INFOGRAPHICS
Caregiving Tips for HD Families: Finding ways to relieve stress while social distancing
HDBuzz
What does COVID-19 mean for Huntington’s disease families and HD research?
STAYING CONNECTED VIRTUALLY
Get the support you need from the comfort & safety of your home – FOR FREE!
Participate in HDSA’s FREE Online Support groups can offer vital emotional support, valuable advice about community-based resources as well as guidance from other group members about many of HD’s most challenging situations.
HDSA’s FREE Telehealth Program, powered by Amwell, makes it easy for you to talk to mental health therapists from the comfort of your home.
LOCAL HDSA EVENTS
Due to social distancing requirements, all of HDSA events have transitioned to a virtual platform. We encourage you to visit the event calendar at HDSA.org for the most up-to-date information about events in your community. View HDSA’s Event Calendar. Importantly, HDSA’s Walk Program is going virtual!
STAYING CONNECTED WITH HDSA
HDSA’s Helpline: (800) 345-HDSA weekdays between 9am-5pm (Eastern Time)
Email: info@hdsa.org
Social Media: Facebook , Instagram , Twitter , Youtube
MORE COVID-19 INFORMATION
Centers of Disease Control & Prevention (CDC) COVID-19 (coronavirus)
US Food & Drug Administration (FDA) COVID-19 Resources
DISCLAIMER
The information on HDSA’s website is for informational purposes only.
