For Immediate Release
Contact: Christopher Cosentino
Director of Marketing & Communications
Phone: (212) 242-1968 x229

 Powerful documentary highlighting Huntington’s disease and Juvenile HD receives outstanding reviews

New York, NY (May 15, 2017) – On May 11th, the Huntington’s Disease Society of America (HDSA) premiered the film Her Mother’s Daughter at the NYIT Auditorium on Broadway in New York City. The 48-minute documentary was directed by Rae Maxwell and produced by HDSA. Her Mother’s Daughter introduces the world to Kathi O’Donnell and shows the devastating impact that Huntington’s disease (HD) & juvenile Huntington’s disease (JHD) has had on the O’Donnell family.

Her Mother’s Daughter is a window into Kathi’s inspiring journey as a caregiver as we see the different stages of HD & Juvenile Huntington’s disease,” said HDSA’s CEO Louise Vetter. “The purpose of this film was to educate audiences about HD by telling one of the many inspiring stories from a brave family that battle this devastating brain disorder.”

The film will be shown again at HDSA’s 32nd Annual Convention in Schaumburg, Illinois on June 23rd. The film will be made available for the public in the Fall of 2017. For more information about Her Mother’s Daughter please visit

The world premiere event was sponsored by Tagi Pharmaceuticals, Teva Pharmaceuticals and Wave Life Sciences.




Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes the disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The symptoms of HD are described as having ALS, Parkinson’s & Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call (800)345-HDSA.