New York, NY (June 11, 2019) – The Huntington’s Disease Society of America (HDSA) is excited to welcome Allison Bartlett, Esq. to the newly created position of Manager of Disability Programs. Ms. Bartlett is a disability attorney who specializes in guiding people with rare, chronic conditions, like Huntington’s disease, through the complex Social Security disability system. She comes to HDSA from the Caring Voice Coalition, where she represented patients with rare diseases, including HD, in their navigation of the legal processes associated with securing disability support.

“We are thrilled to welcome Allison Bartlett to the HDSA team,” said Louise Vetter, HDSA’s President & Chief Executive Officer. “She is a passionate advocate for HD families, and working with HDSA’s Centers of Excellence and social workers, her experience and insight will be a valuable resource in community efforts to remove barriers to accessing Social Security benefits.”

Allison has more than ten years of experience in the non-profit field, working on a variety of issues including human rights, domestic violence, social justice and environmental protections. She has travelled extensively and has spent time working in England and studying in Argentina and Switzerland. Allison holds a J.D. from the University of Cincinnati College of Law and a B.A. in International Affairs from James Madison University. She is admitted to the Virginia Bar.

This position was made possible by generosity of the Adira Foundation. To contact Allison regarding disability inquiries she can be reached at and 212-242-1968.


Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes HD. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America visit or call (800) 345-HDSA.



Christopher Cosentino

Director of Marketing & Communications

(212) 242-1968 ext. 229