Contact: Christopher Cosentino
Director, Marketing & Communications
(212) 242-1968 ext. 229      


New York, NY, November 23, 2016,– The Huntington’s Disease Society of America was notified this week that it had once again achieved Top-Rating status from CharityWatch.

As one of the nation’s top nonprofit evaluators, CharityWatch performs in-depth analyses of charities’ audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. The CharityWatch mission is to maximize the effectiveness of every dollar contributed to charity by providing donors with the information they need to make more informed giving decisions.

“We are delighted to hear that HDSA has received such impressive feedback from CharityWatch,” said Louise Vetter HDSA CEO. “Our dedication to improving the lives of everyone affected by Huntington’s disease is paramount. It’s wonderful to be recognized for doing what we know is right — being accountable to our donors and prudent in our fiscal practices so that we make the most impact with every dollar that is so generously entrusted to our fight against HD.”

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call 1-800-345-HDSA.



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