For Immediate Release
Contact: Christopher Cosentino
Director of Marketing & Communications
Phone: (212) 242-1968 x229


Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May


New York, NY (May 2016) – The Huntington’s Disease Society of America (HDSA) has launched a massive social media campaign called #LetsTalkAboutHD during Huntington’s Disease Awareness Month in May. HDSA, the world’s largest non-profit organization dedicated to Huntington’s disease, has already secured several endorsement videos from celebrities and other supporters which will roll out daily in May.

The initiative encourages anyone affected by Huntington’s disease to share their experiences on social media through videos, photos or personal stories using #LetsTalkAboutHD. You can follow and contribute to the conversation on Twitter (@HDSA) and Facebook (

LetsTalkAboutHD will educate the world about the devastating impact of Huntington’s disease,” said Louise Vetter, CEO of HDSA. “HD impacts every individual and family differently and it’s time the world knows our story.”

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of carrying the faulty gene that causes HD.

Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Many describe the symptoms of HD as having, ALS, Parkinson’s and Alzheimer’s diseases – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with HD and their families.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call (800) 345-HDSA.