SELECT-HD Update, PIVOT-HD Update, PT Guidelines
Posted on June 27, 2024
Wave Life Sciences shares SELECT-HD Update Earlier this week, Wave Life Sciences shared the results of SELECT-HD, a small phase…
Read MorePTC518 Update, POWER-HD, The HDSA Podcast
Posted on June 20, 2024
PTC Therapeutics shares update on PTC-518 PTC Therapeutics announced today results from PIVOT-HD, the Phase 2 study of PTC518 for HD….
Read MoreSage Update, HD Research Webinar, Blood Brain Barrier
Posted on June 13, 2024
Sage Therapeutics announces SURVEYOR update Earlier this week, Sage Therapeutics announced the results of the SURVEYOR trial of a…
Read MoreConvention, uniQure news, HTT-lowering & CAG Expansion, Talking HD
Posted on June 6, 2024
HDSA’s 39th Annual Convention Last week, HDSA welcomed over 750 members of the HD community to Spokane, WA for its…
Read MoreInternational Clinical Trials Day, Postcard from Palm Springs, MyHDStory Results
Posted on May 23, 2024
This Week in Research History: International Clinical Trials Day May 20th is recognized as Clinical Trials Day to commemorate what…
Read MoreHD Awareness Day, Today in HD History , HDBuzz at HDA
Posted on May 16, 2024
International HD Awareness Day The global Huntington’s Disease community celebrates May 15 as the International Huntington’s Disease Awareness Day, a…
Read MoreBrain Donation & Mental Health Awareness, CHDI online
Posted on May 9, 2024
Brain Donation Awareness Day HD is frequently studied in animal models that reveal important information about the disease, but…
Read MoreHD Awareness Month, INGREZZA Update, Research Webinar
Posted on May 2, 2024
Happy HD Awareness Month! May is Huntington’s Disease Awareness Month, and we need your help to turn up the volume…
Read MoreNew Research on CAGs, The HDSA Podcast, Online Surveys
Posted on April 25, 2024
HDBuzz: “How many is too many?” New research on CAGs HD is caused by an expansion of C-A-Gs in the…
Read MoreSAGE-718 on Help4HD, TEVA on AUSTEDO, PolyQ research
Posted on April 18, 2024
Help4HD discusses SAGE-718 Cognitive changes are a frequent early symptom of HD that can have major impacts on quality of…
Read MoreTracks of HD tears, Genetic testing impacts, HD history
Posted on April 11, 2024
Tracks of HD Tears: HD Buzz on new markers of HD progression Researchers from Germany and the Netherlands have been…
Read MoreTalk on Tau, Research Webinar, HD on TEDxBath Stage
Posted on April 4, 2024
The Talk on Tau: Cognitive changes in HD The onset of HD symptoms varies; even individuals with the same number…
Read More2024 Human Biology Project Launch, HD History, The Buzz on CAG’s
Posted on March 28, 2024
HDSA Launches 2024 HD Human Biology Project Letter of Intent HDSA is proud to announce the 2024 Request for Proposals…
Read MoreThis Week in HD Research, Survey Opportunities
Posted on March 21, 2024
This Week in HD Research: Discovery of the HD Gene and HD Gratitude Day On March 26th, 1993, the discovery…
Read MorePridopidine update, HDBuzz on Brains, Interview Study
Posted on March 14, 2024
Update from Prilenia: Pursuing pridopidine for HD Earlier this week, Prilenia issued a press release and community letter announcing…
Read MoreCHDI Updates: Experts and Advocates; Research Webinar
Posted on March 7, 2024
HDBuzz Updates from the 2024 HD Therapeutics Conference Last week, from February 26th – March 1st, HD researchers from…
Read MoreRare Disease Day, CHDI, Convention Scholarships
Posted on February 22, 2024
Celebrate Rare Disease Day with HDSA on February 29th When you have a rare disease, you face two battles –…
Read More2024 HDSA COE Awards, CRISPR News, Research Webinar
Posted on February 15, 2024
HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024 This week, HDSA announced its Centers of…
Read MoreConvention Scholarships, Research Webinar, DNA Repair
Posted on February 8, 2024
HDSA Convention Scholarship Applications due March 1st Join HDSA in Spokane, Washington from May 30th – June 1st for…
Read MoreResearch Webinar with uniQure, Online Surveys
Posted on February 1, 2024
Upcoming Research Webinar: uniQure discusses AMT-130 Join HDSA on February 13th for a research webinar in which uniQure will present…
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