PARTICIPATE IN AN HDSA EVENT NEAR YOU
From Team Hope Walks and Celebrations of Hope Galas to Education Days and Webinars, HDSA has events across the country for you and your family to get involved in the fight against Huntington’s disease.
August is National Make-A-Will Month
Planning ahead is one of the most powerful ways to protect the people and causes you care about most. During National Make-A-Will Month, HDSA encourages you to take this important step for your family.
Creating a will is simple and secure. Whether you’re just getting started or need to update an existing plan, now is the perfect time.
2025 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP RECIPIENT
Meet Dr. Elizabeth Tidwell, postdoctoral fellow in the lab of Dr. Melanie Ohi, at the University of Michigan.
Now Streaming: 40th Annual HDSA Convention Workshop & Highlights!
Couldn’t join us in Indianapolis? You can still experience the magic!
Catch the powerful moments, inspiring stories, and unforgettable sessions from the 40th Annual HDSA Convention — now available to watch online.
Reconnect. Relive. Be inspired.
HDSA Publishes 2024 Year In Review Magazine
Take a look back on HDSA‘s achievements and top stories from 2024 in the latest Year In Review Magazine.
HDSA Centers of Excellence Program Expands to 69 Sites
The Huntington’s Disease Society of America (HDSA) is expanding its HDSA Centers of Excellence network of comprehensive care clinics with 69 grants totaling $1,810,400. In addition to the 60 grant funded facilities, nine regional partner sites were also named, ensuring expert HD care at 69 distinct medical facilities in 37 states across the nation and Washington, DC.
The Marker: 2024 HDSA Research Report
The Marker highlights HDSA’s efforts in research supported directly by the organization to keeping the larger community informed about what is happening in HD science. The latest issue of The Marker is now available!
VOLUNTEERS NEEDED!
If you are looking to put your passion for helping others to meaningful use, we want YOU!
Watch the recordings of the HDSA EL-PFDD Meeting!
2023 HDSA ANNUAL REPORT
We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we’ve achieved as One HDSA.
INTRODUCING THE HDSA PODCAST
The HDSA Podcast gives listeners an opportunity to meet members of the Huntington’s disease community and get a behind-the-scenes look at the Huntington’s Disease Society of America.
HDSA SOCIAL WORKERS
HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.
HDSA SUPPORT GROUPS
HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.
PARTICIPATE IN AN HDSA EVENT NEAR YOU
From Team Hope Walks and Celebrations of Hope Galas to Education Days and Webinars, HDSA has events across the country for you and your family to get involved in the fight against Huntington’s disease.
August is National Make-A-Will Month
Planning ahead is one of the most powerful ways to protect the people and causes you care about most. During National Make-A-Will Month, HDSA encourages you to take this important step for your family.
Creating a will is simple and secure. Whether you’re just getting started or need to update an existing plan, now is the perfect time.
News
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08/11/2025
Novartis HD Community Letter – August 2025
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08/07/2025
Huntington’s Disease Society Of America Announces 2025 Berman-Topper Family HD Career Development Fellowship
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07/25/2025
40th Annual HDSA Convention Workshop Recordings Now Streaming
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06/12/2025
Roche-Spark HD Community Letter
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05/27/2025
HDSA Now Accepting Letters of Intent for the 2025 HD Human Biology Project
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05/19/2025
HDSA AWARDS THREE 2025 DONALD A. KING SUMMER RESEARCH FELLOWSHIPS
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05/01/2025
Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower This May, Celebrate and Raise Awareness with HDSA
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04/17/2025
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $1.8 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-NINE SITES
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04/17/2025
Genentech/Roche GENERATION HD2 study Update: Community Letter
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02/24/2025
Demand NO CUTS to Medicaid!
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02/18/2025
HDSA Berman-Topper & Donald A. King Fellowship Applications Now Open
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02/03/2025
Amy Gray Appointed as New President & CEO of HDSA (Huntington’s Disease Society of America)
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12/16/2024
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $523,320 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
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12/16/2024
The Huntington’s Disease Society of America Welcomes Jenne Coler-Dark as New Chair of the Board of Trustees
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12/10/2024
uniQure Announces Alignment with FDA on Key Elements of Accelerated Approval Pathway for AMT-130 in Huntington’s Disease
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12/03/2024
Exciting News: PTC Therapeutics Enters into a Global License and Collaboration Agreement with Novartis for PTC518 Huntington’s Disease Program
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12/01/2024
HDSA Podcast- New Episode Now Available!
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11/18/2024
Spark Therapeutics Community Letter
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11/18/2024
November 2024: HDSA Today Newsletter
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11/08/2024
Championing Hope: HDSA’s Unwavering Commitment to Huntington’s Disease Families
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10/09/2024
October 2024 HDSA TODAY Newsletter
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10/09/2024
2023 HDSA Annual Report
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08/22/2024
BLOG: This Week in HD Research
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08/01/2024
We Need Your Voice! Take The HD Symptoms And Treatment Impact Survey
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07/10/2024
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS TWO 2024 BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS
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07/10/2024
HDSA Awards Six 2024 Donald A. King Summer Research Fellowships
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07/09/2024
uniQure Announces Positive Interim Data Update Demonstrating Slowing of Disease Progression in Phase I/II Trials of AMT-130 for Huntington’s Disease
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06/27/2024
Farewell & Leadership Transition at HDSA
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06/25/2024
Wave Life Sciences Update: Results from SELECT-HD Community Letter
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06/20/2024
PTC Therapeutics Update: Interim PIVOT-HD Results Community Letter
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05/23/2024
A message from Louise Vetter, President & CEO
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05/01/2024
Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower, Culminating with the Annual HDSA Convention in Spokane, WA
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04/16/2024
HDSA to Host Externally-led Patient Focused Drug Development (PFDD) Meeting
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04/05/2024
Now Accepting Human Biology Project LOIs
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03/27/2024
Act Fast: Early Bird Rate for HDSA Convention Ends March 31st!
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03/27/2024
HDSA Publishes 2023 Year in Review
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03/12/2024
Prilenia has shared a community letter announcing that they plan to take steps toward applying to the European Medicines Agency for approval of pridopidine.
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02/13/2024
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS MORE THAN $2.1 MILLION TO EXPAND HDSA CENTERS OF EXCELLENCE NETWORK TO SIXTY-EIGHT SITES
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01/09/2024
2024 DONALD A. KING SUMMER RESEARCH FELLOWSHIP APPLICATION NOW OPEN
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01/09/2024
2024 HDSA BERMAN/TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIP APPLICATION NOW OPEN
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12/20/2023
ROCHE UPDATE: Roche-Genentech GENERATION HD2 Study updates & NEJM Publication
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12/19/2023
uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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12/19/2023
uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
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12/04/2023
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS $898,194 TO HUNTINGTON’S DISEASE HUMAN BIOLOGY PROJECTS
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11/14/2023
TEAM HDSA RAISES MORE THAN $126,000 AT THE NEW YORK CITY MARATHON TO SUPPORT THE HUNTINGTON’S DISEASE SOCIETY OF AMERICA
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10/13/2023
Now Accepting 2024 HDSA Centers of Excellence Applications
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10/06/2023
2022 HDSA Annual Report
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10/04/2023
BLOG: Disability Tips
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10/02/2023
FREEZE HD Update
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09/18/2023
HDSA Earns Four-Star Rating From Charity Navigator
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08/02/2023
Postcard from Dubrovnik: Highlights from the 2023 CHDI HD Therapeutics Conference
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06/21/2023
uniQure Community Letter: Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
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06/21/2023
uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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05/24/2023
Huntington’s Disease Society of America Awards 2023 Berman-Topper Family HD Career Development Fellowship
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05/17/2023
HDSA Partnership with Rare-X Community Letter & FAQ
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05/17/2023
HDSA and RARE-X Launch HD Data Collection Initiative to Accelerate Treatments for Huntington’s disease
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05/16/2023
Now Available in the U.S.: Once-Daily AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
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05/08/2023
HDSA Awards Four 2023 Donald A. King Summer Research Fellowships
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04/26/2023
HDBUZZ: PROOF-HD study of pridopidine ends with negative result
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04/25/2023
Prilenia Announces Important Update About The Topline Results From Phase 3 Study, PROOF-HD.
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03/28/2023
The HDSA Podcast Episode #3
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02/21/2023
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO® (deutetrabenazine) Tablets
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02/14/2023
HDBuzz: Roche Phase II GENERATION HD2 study underway
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02/13/2023
Huntington’s Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US
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02/10/2023
Louise Vetter provides statement in support of the FDA Listening Session on Juvenile Onset Huntington’s Disease
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02/02/2023
HDSA Publishes 2022 Year in Review Magazine
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01/31/2023
Introducing The HDSA Podcast
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01/11/2023
Roche-Genentech Community Letter: GENERATION HD2 study now open
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01/03/2023
38th Annual HDSA Convention in New Orleans Registration Now Open
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12/21/2022
The Marker: HDSA’s 2022 Research Report is now available
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12/20/2022
HDSA Community Statement: FY23 Omnibus Appropriations Package Fails HD Families
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12/09/2022
HDBuzz: Disappointing news from Novartis about branaplam and the VIBRANT-HD trial
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12/08/2022
Novartis provides status of VIBRANT-HD, the study of branaplam/LMI070 in Huntington’s disease
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12/06/2022
Teresa Srajer Appointed Chair of HDSA’s National Board of Trustees
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11/21/2022
Team HDSA Raises More Than $100,000 at the New York City Marathon
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11/04/2022
Neurocrine Biosciences Presents Additional Phase 3 Data for KINECT-HD Study Evaluating Valbenazine
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11/02/2022
HDSA Awards $886,785 to Huntington’s Disease Human Biology Projects
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11/02/2022
Breaking News: uniQure provides update on AMT-130
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10/25/2022
Eighth Annual Freeze HD Raises More Than $200,000
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10/18/2022
PTC Provides Update on Ongoing Global PIVOT-HD Trial For PTC518
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10/18/2022
Three-year study shows that AUSTEDO® is safe, tolerable, and controls chorea in people with HD
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09/30/2022
HDSA Publishes 2021 Annual Report
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09/30/2022
HDBuzz: Forward momentum for Roche & Wave in latest news about huntingtin-lowering trials
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09/20/2022
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
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09/18/2022
BREAKING NEWS: Roche/Genentech Announce Plans For GENERATION-HD2
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09/14/2022
HDSA Disability Chat: JHD & Social Security
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09/08/2022
HDSA Research Webinar: All You Need To Know About PROOF-HD
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08/29/2022
HDBuzz: Serious side effects reported for some people treated with the huntingtin-lowering drug AMT-130, currently in clinical trials
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08/24/2022
Novartis Provides Community Update Regarding VIBRANT-HD
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08/12/2022
HDSA Research Webinar: HD Clinical Trials Update
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08/11/2022
Now Accepting 2023 HDSA Centers of Excellence Letters of Intent
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08/10/2022
Sage Therapeutics Provides Positive Update on the SURVEYOR Study
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08/10/2022
HDSA Films presents KING’S CRUSADE (Part 2)
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08/09/2022
HDSA Statement Regarding VIBRANT-HD Trial
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08/09/2022
uniQure Announces Second Quarter 2022 Financial Results and Highlights Recent Company Progress
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07/26/2022
HDSA Films presents KING’S CRUSADE (Part 1)
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07/12/2022
Highlights from CHDI’s 17th Annual Huntington’s Disease Therapeutics Conference
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06/30/2022
HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
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06/23/2022
uniQure Announces Update on Low-Dose Cohort in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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06/20/2022
HDBuzz: How clever computers are helping us understand Huntington’s disease
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06/16/2022
New system that defines Huntington’s disease will ‘revolutionise’ drug trials
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06/15/2022
HDBuzz: A new roadmap to track Huntington’s disease progression
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06/14/2022
37th Annual HDSA Convention In Atlanta Brings The Global Huntington’s Disease Community Together Again
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06/07/2022
Annexon Biosciences announces positive results from a Phase 2 clinical trial evaluating ANX005 in people with HD
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05/28/2022
HDSA Films presents THE STORY OF E.J. + KATY
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05/20/2022
HDSA Wins 2022 HD Hockey Classic & Raises More Than $15,000
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05/11/2022
HDSA Announces Winners of the 2022 Donald A. King Summer Research Fellowship
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03/31/2022
PTC Therapeutics Announces Initiation of PIVOT-HD Phase 2 Clinical Trial to Evaluate PTC518 in Patients with Huntington’s Disease
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03/18/2022
HDBuzz: A spoonful of branaplam helps the huntingtin go down
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03/08/2022
HDBuzz: Day 3 of the 2022 HD Therapeutics Conference
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03/04/2022
HDBuzz: Day 2 of the 2022 HD Therapeutics Conference
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03/03/2022
HDBuzz: Day 1 of the 2022 HD Therapeutics Conference
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02/22/2022
Sage Therapeutics Provides Important Update On The Clinical Development Program For Sage’s Investigational Drug, SAGE-718.
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02/18/2022
HDBuzz: Shining a spotlight on huntingtin: a tool to measure huntingtin-lowering in real time
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02/09/2022
Huntington’s Disease Society of America Awards Nearly $1.9 Million to Network of Fifty-Five HDSA Centers Of Excellence
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02/07/2022
uniQure Announces Dosing of First Patients in European Open-Label Clinical Trial of AMT-130 Gene Therapy in Huntington’s Disease
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02/02/2022
HDBuzz: Oral drug may change the story for huntingtin lowering
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02/01/2022
Register Today for the 37th Annual HDSA Convention in Atlanta
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01/31/2022
HDSA Publishes 2021 Year In Review Magazine
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01/27/2022
BREAKING NEWS: Novartis Provides Community Update On The Status Of The VIBRANT-HD Trial
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01/21/2022
VIDEO: Roche Community Presentation of New Tominersen Data
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01/18/2022
BREAKING NEWS: Roche Has Announced That The Tominersen Research Programme Will Continue With A New Phase II Trial
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01/04/2022
Annexon Biosciences Reports Promising Interim Phase 2 Data Showing Improvement in Clinical Measures with ANX005 in Huntington’s Disease Following Six-Month Treatment
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12/24/2021
VIDEO: Happy Holidays from Louise Vetter
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12/16/2021
uniQure Announces Clinical Update on First Patients in Phase I/II Clinical Trial of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
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12/08/2021
The Marker is Now Available! Read HDSA’s 2021 Research Report
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12/07/2021
Neurocrine Biosciences Announces Positive Phase 3 Data for KINECT-HD Study Evaluating Valbenazine for Chorea Associated with Huntington’s Disease
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12/03/2021
Dr. Jeff Carroll & Dr. Beth Hoffman Join HDSA’s National Board of Trustees
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11/16/2021
HDSA Coffee Walk with Jennifer Simpson
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11/15/2021
TAKE ACTION: HDSA’s 7 Days of Action
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11/12/2021
HDSA Films presents THE DOHERTYS: FINDING THE FUNNY
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11/10/2021
HDSA Applauds Chairman Neal on Inclusion of Paid Family & Medical Leave in Build Back Better Act
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11/10/2021
More than $64,000 Raised at the TCS New York City Marathon to Support HDSA
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11/01/2021
HDSA Welcomes Dr. Arik Johnson as New Chief Mission Officer
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10/19/2021
Virtual 7th Annual Freeze HD Raises More Than $211,000 To Support The Fight Against Huntington’s Disease
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10/14/2021
HDSA Awards $749,000 to HD Human Biology Projects
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09/29/2021
HDBuzz: Q&A with Roche about GENERATION-HD1
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09/22/2021
HDSA Publishes 2020 Annual Report
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09/16/2021
Sage Therapeutics Receives Fast Track Designation for SAGE-718 for the Treatment of Huntington’s Disease
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09/10/2021
Community Statement from Roche-Genentech Regarding GENERATION-HD1 Data
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08/30/2021
HDBuzz: Creation of a molecular “dimmer switch” advances gene editing
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08/16/2021
HDBuzz: Unpacking Recent Gene Therapy Press
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08/09/2021
Update from Voyager Therapeutics
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08/06/2021
HDSA Films Presents The Osborns: Our Legacy
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08/04/2021
VIDEO: Watch Kala Booth Discuss Huntington’s Disease & the HD Parity Act In Front of Congress
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07/29/2021
HDSA Applauds E&C Subcommittee for Highlighting Burden of Huntington’s Disease, Reiterates Call to Pass Bipartisan HD Parity Act
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07/21/2021
HDBuzz: A First For CRISPR Gene Editing Could Have Wider Applications For Human Disease
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07/02/2021
NOW AVAILABLE: Virtual 36th Annual HDSA Convention Recorded Sessions
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06/14/2021
Virtual 36th Annual HDSA Convention Welcomes Thousands from Around the Globe
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06/12/2021
HDSA Awards Two Berman-Topper Family HD Career Development Fellowships
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06/10/2021
HDSA Partners with PatientsLikeMe to Create an Integrated Online Community for both Patients & Caregivers
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05/28/2021
uniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
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04/30/2021
HDSA RESEARCH WEBINAR: Roche Presents GENERATION-HD1 Data
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04/30/2021
HDBuzz: Day 3 Recap from the 2021 HD Therapeutics Conference
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04/29/2021
HDBuzz: Day 2 Recap from the 2021 HD Therapeutics Conference
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04/28/2021
HDBuzz: Day 1 Recap from the 2021 HD Therapeutics Conference
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04/26/2021
HDSA Announces Winners of 2021 Donald A. King Summer Research Fellowship
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04/21/2021
Now Accepting 2021 National Award Nominations
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04/05/2021
uniQure Announces Completion of Enrollment in First Cohort of Phase I/II Clinical Trial of AMT-130
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04/02/2021
Register Today For Free | Virtual 36th Annual HDSA Convention
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03/30/2021
HDBuzz: Wave Life Sciences PRECISION-HD Trials
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03/29/2021
Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials
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03/26/2021
VIDEO: A Message from Roche about the GENERATION-HD1 Trial News
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03/25/2021
RESEARCH WEBINAR | Generation-HD1 Trial News: What does this mean and where do we go from here?
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03/23/2021
HDBuzz: Sad News From Roche
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03/22/2021
Roche Provides a Disappointing Update on Tominersen
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03/19/2021
HDSA Reintroduces the HD Parity Act
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03/18/2021
HDSA Films presents My Father, My Hero
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03/12/2021
Now Accepting 2021 Human Biology Project Letters of Intent
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02/25/2021
HDBuzz: Vaccines and HD
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02/18/2021
The 36th Annual HDSA Convention Goes Virtual!
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02/02/2021
HDSA Expands Centers of Excellence Program to Fifty-Four Sites
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01/29/2021
HDSA Publishes 2020 Year In Review Magazine
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01/06/2021
Dr. Victor Sung Named Chair of HDSA’s National Board of Trustees
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01/01/2021
Happy New Year!
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12/17/2020
NEW EPISODE: Here’s The Deal with Dick Johnson Is Dead
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12/10/2020
HDSA Publishes The Marker: 2020 Research Report
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12/03/2020
HDSA Awards Four HD Human Biology Project Fellowships For 2020
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10/06/2020
HDBUZZ: Updates from the EHDN Plenary Meeting 2020
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09/28/2020
VIRTUAL 6TH ANNUAL FREEZE HD RAISES $200,000 FOR HDSA
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09/10/2020
HDSA Publishes 2019 Annual Report
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08/26/2020
HDBuzz: When genes are unstable: Targeting somatic instability in HD
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08/25/2020
NEW EPISODE: Here’s The Deal with Talking to Kids about Huntington’s Disease
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08/18/2020
HDBuzz: Changes In Brain Development Mean Some Brain Regions May Be Slacking Off
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08/14/2020
HDBuzz: Caution Urged for the Use of Gene-Editing Technology CRISPR
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08/10/2020
Anne Leserman announces her retirement from HDSA
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07/28/2020
Submit Your Letter of Interest to Become a 2021 HDSA Center of Excellence
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07/22/2020
NEW EPISODE: Here’s The Deal with End of Life & HD
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07/06/2020
Huntington’s Disease Featured on ABC News Live Prime
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06/24/2020
HDSA Center of Excellence at Ohio State Conducts First Gene Therapy Clinical Trial for HD
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06/19/2020
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease
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06/15/2020
Virtual HDSA Convention Recorded Sessions Now Available
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06/10/2020
Virtual 35th Annual HDSA Convention Welcomes Thousands from Across the Globe
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06/03/2020
HDSA Supports The Fight Against Racism
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06/01/2020
Register for the Virtual 35th Annual HDSA Convention
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05/29/2020
Postcard from Palm Springs: Highlights from the 2020 CHDI HD Therapeutics Conference
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05/27/2020
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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05/15/2020
International Huntington’s Disease Awareness Day – May 15th
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05/07/2020
HDSA Announces Winners of 2020 Donald A. King Summer Research Fellowship
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04/20/2020
COMMUNITY STATEMENT: Update On Tominersen (RG6042)
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04/17/2020
NEW EPISODE: Here’s The Deal with Self-Care
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04/06/2020
HDBuzz: What does COVID-19 mean for Huntington’s disease families and HD research?
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04/03/2020
HD & COVID-19 PANDEMIC RESOURCES
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04/02/2020
NEW EPISODE: Here’s The Deal with COVID-19 & HD
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03/27/2020
FREQUENTLY ASKED QUESTIONS: Disability & COVID-19
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03/27/2020
Community Statement
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03/26/2020
NEW EPISODE: Here’s The Deal with Disability
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03/20/2020
HDSA Community Update: HDSA’s 35th Annual Convention Goes Virtual!
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03/18/2020
HDSA Community Update: HD & COVID-19
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03/13/2020
HDSA Community Update
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03/13/2020
HDBuzz: New Molecule Can Reverse The Huntington’s Disease Mutation In Lab Models
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03/05/2020
HDSA Convention Community Statement
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03/03/2020
HDBuzz: Day 3 at HD Therapeutics Conference
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03/02/2020
HDSA Films Presents ALLIE & JOE
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03/02/2020
HDBuzz: Day 2 at HD Therapeutics Conference
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02/28/2020
HDBuzz: Day 1 at HD Therapeutics Conference
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02/05/2020
HDSA Announces Fifty 2020 Centers of Excellence
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01/17/2020
HDSA Publishes 2019 Year In Review Magazine
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01/17/2020
REGISTER TODAY! 35th Annual HDSA Convention in New Orleans
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12/30/2019
Community Letter from Wave Life Sciences Regarding Topline Results from PRECISION-HD2
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12/30/2019
Wave Life Sciences Announces Topline Data and Addition of Higher Dose Cohort in Ongoing Phase 1b/2a PRECISION-HD2 Trial in Huntington’s Disease
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12/23/2019
HDSA Earns Fourth Consecutive 4-Star Rating From Charity Navigator
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12/23/2019
HDSA Awards Inaugural Clinical Research Pilot Grants to Four Centers of Excellence
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12/05/2019
HDSA Listed As Top 10 Volunteer Opportunities In New York City By Great Nonprofits
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11/27/2019
HDSA Welcomes Three Trustees to National Board
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11/19/2019
HDSA Publishes The Marker – 2019 Research Report
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11/06/2019
HDSA’s New York City Marathon Team Raises More Than $133,000 To Support The Fight Against HD
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10/15/2019
HDSA Awards Five 2019 HD Human Biology Project Fellowships
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10/15/2019
Community Statement from Roche / Genentech
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10/01/2019
View 5th Annual Freeze HD Red Carpet and Event Photos
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10/01/2019
5th Annual Freeze HD Raises More Than $420,000 To Support HDSA
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09/11/2019
2018 HDSA Annual Report
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08/05/2019
HDBUZZ: Exciting New Huntingtin Lowering Tool Described
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07/30/2019
Now Accepting 2020 HDSA Centers of Excellence Letters of Interest
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07/23/2019
VIDEO: Here’s The Deal With Caregiving While Positive
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07/15/2019
VIDEO: 34th Annual HDSA Convention Recap
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07/01/2019
HDSA Sets New Attendance Record at the 34th Annual HDSA Convention in Boston
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06/28/2019
Community Statement from uniQure
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06/20/2019
HDSA & CHDI Foundation Launch HD Legacy to Promote Brain Donation for HD Research
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06/11/2019
HDSA Adds Allison Bartlett as Manager of Disability Programs
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05/31/2019
HDSA Awards 2019 Berman-Topper Family HD Career Development Fellowships
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05/15/2019
Huntington’s Disease Parity Act Is Reintroduced
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05/07/2019
HDBUZZ: Fresh Updates from First Huntingtin Lowering Study Publication
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04/18/2019
Postcard from Palm Springs: Highlights from the 2019 CHDI HD Therapeutics Conference
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04/16/2019
HDSA Announces Winners of 2019 Donald A. King Summer Research Fellowship
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04/11/2019
HDSA Films Presents “The Hodgsons” Short Film
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04/10/2019
Update on PRECISION-HD program
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04/04/2019
BLOG: This Week in HD Research
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03/22/2019
HDBUZZ: An Updated Trial Design for Roche’s Huntingtin Lowering Trial: Roche announces an update to the GENERATION HD1 trial after reviewing the ASO open label extension study
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03/21/2019
COMMUNITY STATEMENT FROM ROCHE/GENENTECH: Amendment to the RG6042 Phase III GENERATION HD1 study design
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03/14/2019
HDBUZZ: Genetic Hiccups That Protect Against Huntington’s Disease
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03/04/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 3 Recap
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03/01/2019
HDBUZZ: Huntington’s Disease Therapeutics Conference 2019 – Day 2 Recap
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02/11/2019
Huntington’s Disease Featured On The Today Show
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02/06/2019
HDSA Expands Centers of Excellence Program to Forty-Seven
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01/30/2019
HDBuzz: Huntington’s Disease Goes Viral as uniQure Inches Ahead in Gene Therapy Race
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01/28/2019
First Patients Enrolled in HD Natural History & GENERATION HD1 Clinical Studies
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01/24/2019
HDSA Publishes 2018 Year In Review Magazine
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01/22/2019
uniQure Announces FDA Clearance of Investigational New Drug Application for AMT-130 in Huntington’s Disease
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01/16/2019
HDSA Launches Youth Social Worker Program
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12/19/2018
BREAKING NEWS: Roche/Genentech Announces US Locations of GENERATION-HD1 Drug Study
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12/11/2018
HDSA’s 2018 Research Report Now Available
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12/10/2018
EJ Garner Appointed as Chair of HDSA’s National Board of Trustees
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12/04/2018
HDBUZZ: Advances on many fronts in the battle against the protein that causes Huntington’s disease
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11/10/2018
Genentech/Roche Announces US & Canadian Locations of Observational Natural History Study
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10/23/2018
HDSA Awards Five HD Human Biology Project Fellowships for 2018
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10/17/2018
FAQs: Upcoming Genentech/Roche Studies
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10/03/2018
HDBuzz: Kids Get Huntington’s Disease Too
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09/26/2018
RESEARCH WEBINAR: Update from Roche/Genentech on GENERATION-HD1 & RG6042
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09/18/2018
HDBuzz: The GENERATION-HD1 trial will test whether RG6042 – formerly Ionis-HTTRx – slows the progression of Huntington’s disease
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09/16/2018
Update on RG6042 (formerly known as IONIS-HTTRx) Huntington’s disease global development programme: Two clinical studies to begin by end of 2018
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09/16/2018
Roche’s Phase 3 Trial for RG6042 (formerly IONIS HTT-Rx) has been announced: GENERATION-HD1
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08/03/2018
Roche Media Release Regarding PRIME Designation Granted by European Medicines Agency for RG6042 (formerly IONIS-HTT Rx)
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08/02/2018
IONIS-HTT Rx (RG6042) Granted PRIME Designation by the European Medicines Agency for the Treatment of People with Huntington’s Disease
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08/01/2018
Now Accepting 2019 HDSA Centers of Excellence Letters of Interest
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07/10/2018
HDBUZZ: First Dolly, now Piglet; a new Huntington’s disease pig knock-in model confirmed
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06/27/2018
VIDEO: 33rd Annual HDSA Convention Recap
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06/13/2018
33rd Annual HDSA Convention Recap
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06/13/2018
VIDEO: HD Buzz at the 33rd Annual HDSA Convention
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Research Forum
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06/13/2018
VIDEO: 33rd Annual HDSA Convention Opening Ceremony
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06/07/2018
Getting to know Roche & Genentech, RG6042 (formerly known as IONIS-HTTRx )
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05/15/2018
HDSA Awards Berman-Topper Family HD Career Development Fellowship
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04/27/2018
FAQs Regarding the Latest Huntingtin-Lowering Update from Ionis & Roche
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04/24/2018
New Data from IONIS-HTT Rx Phase 1/2 Study Demonstrates Correlation Between Reduction of Disease-causing Protein and Improvement in Clinical Measures of Huntington’s Disease
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04/24/2018
HDSA Announces Winners of 2018 Donald A. King Summer Research Fellowship
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04/20/2018
Roche Community Statement Regarding RG6042 (formerly known as IONIS-HTTRx )
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04/19/2018
HDBuzz: Exciting Experiments in “Open Science” by Huntington’s Researchers
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03/29/2018
VIDEO: Postcard from CHDI Meetings in Palm Springs & Malta
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03/12/2018
HDSA Partners with the ALS Association & Teva Pharmaceuticals to Identify Novel Therapeutic Targets for CNS Disorders
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03/05/2018
HDSA Earns Second Consecutive 4-Star Rating from Charity Navigator
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03/05/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 3
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03/01/2018
IONIS-HTT Rx Community Statement
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03/01/2018
IONIS-HTT Rx : Top-Line Data Demonstrate Significant Reductions of Disease-Causing Mutant Huntingtin Protein in People with Huntington’s Disease
-
03/01/2018
HDBUZZ: Huntington’s disease therapeutics conference 2018 – day 2
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02/28/2018
HDBUZZ- Huntington’s disease therapeutics conference 2018 – day 1
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02/13/2018
HDSA Announces Forty-Three Centers of Excellence
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02/02/2018
CEO Memo: Chorea Medication Co-Pay Assistance Programs Information
-
12/12/2017
FAQs: Ionis Huntingtin-Lowering Trial
-
12/11/2017
Statement by Louise Vetter, President & CEO of the Huntington’s Disease Society of America regarding Ionis-HTTRx Announcement
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12/11/2017
BREAKING NEWS: Update on the Status of the IONIS-HTTRx Program and its Future
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11/20/2017
Huntington’s Disease Society of America Announces the Launch of a Three-Part Online Accredited Continuing Education Course for Community Based Primary Care Providers, Neurologists and Psychiatrists
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11/14/2017
HDSA Honors Sportscaster Chris Berman & Raises More Than $250,000
-
11/14/2017
HDSA Pays Tribute to Founder Marjorie Guthrie & 50 Years of the Guthrie Family Legacy
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11/02/2017
HDBUZZ: Switch off the genome editor when you’re done
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10/15/2017
Update confirms Huntington’s disease ‘gene silencing’ trial on track
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10/12/2017
Huntington’s Disease Society of America Awards Four HD Human Biology Project Fellowships for 2017
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09/25/2017
HDBUZZ: New roles for huntingtin: removing a healthy protein to understand its function
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09/19/2017
Global Huntington’s Disease Patient Advocacy Organizations Unite to Form Huntington’s Disease Coalition for Patient Engagement (HD-COPE)
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09/18/2017
Huntington’s Disease Society of America’s 50th Anniversary to Celebrate the Life & Legacy of Its Founder Marjorie Guthrie
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08/01/2017
HealthWell Foundation Opens Huntington’s Disease Fund to Assist Medicare Patients
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07/28/2017
HDBUZZ: A step forward for gene editing: CRISPR-Cas9 and HD
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07/17/2017
Wave Life Sciences Initiates Two Phase 1b/2a Clinical Trials: PRECISION-HD1 and PRECISION-HD2 in Patients with Huntington’s Disease
-
06/29/2017
Exclusive HDBuzz interview with Prof Lesley Jones (Cardiff University) and Prof Sarah Tabrizi (University College London) about their new paper describing a ‘genetic modifier’ for Huntington’s disease.
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06/22/2017
Exciting News: IONIS provides update on Huntingtin lowering trial
-
06/21/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA LAUNCHES FIRST-OF-ITS-KIND FREE TELEHEALTH COUNSELING FOR HD FAMILIES
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06/08/2017
New study reveals a potential HD biomarker
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05/30/2017
HUNTINGTON’S DISEASE SOCIETY OF AMERICA AWARDS BERMAN-TOPPER FAMILY HD CAREER DEVELOPMENT FELLOWSHIPS RESEARCHERS FROM CALIFORNIA AND CANADA AWARDED PRESTIGIOUS GRANT
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05/24/2017
Huntington’s Disease Parity Act Reintroduced to Waive Two-Year Waiting Period for Medicare Coverage for those with Huntington’s Disease
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05/16/2017
Huntington’s Disease Society of America Raises Nearly $40,000 at Guthrie Sessions Live in New York City
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05/15/2017
Huntington’s Disease Society of America Announces Winners of 2017 Donald A. King Summer Research Fellowship
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05/15/2017
Huntington’s Disease Society of America Premieres Her Mother’s Daughter Documentary During HD Awareness Month
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05/08/2017
Has a “wonder drug” for dementia been discovered? (Spoiler alert: no.)
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05/02/2017
Huntington’s Disease Society of America Collaborates with HealthWell Foundation to Launch Movement Disorders Fund to Provide Financial Assistance to Medicare Patients
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 3
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05/01/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 2
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04/27/2017
Huntington’s Disease Therapeutics Conference 2017 – Day 1
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04/21/2017
Two recent studies show how a cellular border control system goes wrong in HD, opening new avenues for HD research.
-
04/14/2017
Pope Francis To Meet With The Global Huntington’s Community To Shine A Light On And Lift Stigma Of Disease
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04/05/2017
HDBuzz article – FDA approves a new drug for symptoms of Huntington’s disease
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03/29/2017
Sheep can help us to identify HD biomarkers and recognize metabolic changes that occur before symptoms develop.
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03/28/2017
2017 National Awards Nominations
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03/13/2017
Save the Date- For the largest global gathering of the HD community!
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02/28/2017
Huntington’s Disease Society of America Announces Premiere for Juvenile Huntington’s Disease Documentary
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02/24/2017
Weeding out the truth: can cannabis improve Huntington’s?
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02/22/2017
Huntingtin grabs a hammer: DNA repair in HD
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02/10/2017
The benefits of migration, highlighted in Huntington’s disease
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02/08/2017
Huntington’s Disease Society of America Announces Forty-One 2017 HDSA Centers of Excellence
-
01/19/2017
Huntington’s Disease Society of America Unveils HDNavigator Mobile App
-
01/12/2017
HDBuzz: Treasure your exceptions – using outliers to understand Huntington’s disease onset and progression
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12/19/2016
Pfizer Amaryllis trial ends : no improvement in Huntington’s disease symptoms
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12/06/2016
HDSA has published the 2016 Research Report which provides in-depth Huntington’s disease research information and highlights from 2016.
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12/02/2016
Huntington’s Disease Society of America to Provide 1,000 Free Liftware Level Devices to People Living with Huntington’s Disease
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11/22/2016
HDSA Earns Top-Rating from CharityWatch
-
11/15/2016
Huntington’s Disease Society of America AWARDS $930,000 to nine new HD Human Biology fellows
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11/01/2016
Important advances in next generation genome editing tools for Huntington’s Disease
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10/03/2016
HDBuzz helps untangle the results of the PRIDE-HD trial of pridopidine
-
09/23/2016
EuroBuzz 2016: The Euro-HD Network Meeting in The Hague
-
09/19/2016
Exciting Press Release from Teva Regarding Pridopidine: Possibly the first disease modifying drug for HD
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08/30/2016
New technology enables researchers to find ultra-rare mutations in the HD gene, distinct from the one causing HD
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08/22/2016
HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona
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08/17/2016
Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no? Not exactly…
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08/02/2016
A support system gone wrong – glial cells contribute to HD symptoms
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07/18/2016
Huntington’s Disease Society of America’s 2017 HDSA Center of Excellence Program Now Accepting Letters of Interest
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07/08/2016
Huntington’s Disease Community Scores Major Victory with Social Security Criteria
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07/05/2016
Slightly long CAG repeats are more common than we thought
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06/29/2016
Early exposure to the HD protein may cause life-long symptoms
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06/21/2016
WAVE Life Sciences Receives Orphan Drug Designation from FDA for its Lead Candidate Designed to Treat Huntington’s Disease
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06/20/2016
Electron beam snaps best images yet of Huntington’s disease protein
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06/14/2016
Select Videos From HDSA’s 31st Annual Convention Now Available
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06/10/2016
Huntington’s Disease Society of America Hosts the 2nd Largest Convention in 31 Years
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06/07/2016
Huntingtin takes a trip: harmful proteins pass between brain cells
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06/03/2016
Watch us Live from the 31st Annual HDSA Convention
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06/01/2016
HDSA National Board of Trustees is asking for your help developing a new five-year plan that will chart the organization’s goals from 2017-2021.
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05/17/2016
Postcard from Palm Springs
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05/10/2016
Huntington’s Disease Society of America awards first-ever Berman-topper Family HD Career Development Fellowship
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05/03/2016
Important drug targets yielded by new genetic study of HD
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05/02/2016
Huntington’s Disease Society of America Launches #LetsTalkAboutHD Campaign During Huntington’s Disease Awareness Month in May
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04/28/2016
Huntington’s Disease Society of America Releases Updated “Genetic Testing Protocol for Huntington’s Disease”
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04/18/2016
Thinking clearly about the earliest symptoms of HD and which brain regions control them
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04/18/2016
Huntington’s Disease Society of America Announces Winners of 2016 Donald A. King Summer Research Fellowship
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03/28/2016
2016 HDSA NATIONAL AWARDS NOMINATIONS
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03/10/2016
How NOT to write a news article about a clinical trial
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02/29/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 3
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02/26/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 2
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02/24/2016
HDBuzz article – Huntington’s Disease Therapeutics Conference 2016 – day 1
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02/05/2016
Huntington’s Disease Society of America Partners with WeHaveAFace.org to Increase Access to The Huntington’s Disease Project: Removing the Mask
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02/01/2016
Huntington’s Disease Society of America Announces Thirty-Nine 2016 HDSA Centers of Excellence
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02/01/2016
Harnessing the power of viruses to treat Huntington’s disease
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01/25/2016
Through a Broader Lens: Looking at Non-Motor Symptoms in HD
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01/22/2016
HDSA Releases 2015 Year in Review
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12/23/2015
HDSA Releases 2015 Research Investor’s Report
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12/18/2015
Looking Past the Spin: Results from a Clinical Trial of Cysteamine
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12/15/2015
An existing drug could give a boost to HD brain cells – but it may need more testing before it’s back in the clinic
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12/10/2015
Raptor Plans to Advance RP103 in a Registration Study
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12/07/2015
New HD Career Development Fellowship Announced by Huntington’s Disease Society of America
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12/02/2015
Through the eyes of a friend: changes in mood and behavior in early HD
-
12/02/2015
Huntington’s Disease Society of America Adds Call Center Component to HD TrialFinder
-
12/01/2015
Huntington’s Disease Society of America Receives 4-Star Rating From Charity Navigator
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11/25/2015
A multiple sclerosis drug that works for Huntington’s disease: the real deal or too good to be true?
-
11/25/2015
Huntington’s Disease Society of America Now Accepting Applications for the 2016 Donald A. King Summer Research Fellowship
-
11/03/2015
Huntington’s Disease Society of America’s New York City Marathon Team Raises More Than $125,000
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11/02/2015
Fourth Annual Strike Out HD Bowling Event Hosted by New York Giant Geoff Schwartz Raises Nearly $50,000
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10/20/2015
HDBuzz- Liftoff: First humans treated with gene silencing drugs for HD!
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10/09/2015
HDBuzz primer: Clinical trial designs and phases
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10/05/2015
Huntington’s Disease Society of America Announces 2015 HD Human Biology Project Grant Recipients
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09/23/2015
FDA Opens 60 Day Open Comment Period
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09/22/2015
Hundreds of HD Families Join FDA Hearing to Shape Drug Development for Huntington’s Disease
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09/17/2015
HDBUZZ- A Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells
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09/11/2015
CNN “NEW DAY” Hosts Alisyn Camerota & Chris Cuomo raise $10,000 for the Huntington’s Disease Society of America
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08/31/2015
Deadline To Tell Us Your Thoughts Has Been Extended!
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08/17/2015
HDSA Announces 2016 Call for Letters of Interest for Center of Excellence Program
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08/05/2015
Patient-Focused Drug Discovery Meeting at the FDA on Huntington’s Disease
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07/30/2015
Scientists identify genetic factors that alter the clinical onset of HD in landmark study
-
07/29/2015
Would ewe believe it? GM1, sheep and Huntington’s disease
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07/21/2015
ISIS Pharmaceuticals Initiates Clinical Study of Huntingtin Lowering Drug in HD Patients
-
07/02/2015
30th Annual Convention is a Huge Success for the Huntington’s Disease Society of America
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06/22/2015
Calling all HD families: Our time to be heard is now!
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06/19/2015
Huntington’s Disease Society Of America Receives CHARITYWATCH Top-Rated Status
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06/19/2015
HDSA Supports 21st Century Cures Act
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06/16/2015
NIH Names Walter J. Koroshetz, M.D. Director of the National Institute of Neurological Disorders and Stroke
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06/02/2015
Life in HD Earns Rave Reviews for the Huntington’s Disease Society of America
-
06/02/2015
HDBUZZ: Switching it up: variety in the HD gene affects symptom onset
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05/26/2015
2015 Postcard from Palm Springs
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05/13/2015
HDBuzz article – A faulty filter? Blood vessel changes in Huntington’s disease
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05/12/2015
2015 Huntington’s Disease Therapeutics Conference and taking part in trials
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05/07/2015
Gene variant determines early or late onset of Huntington’s disease
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05/01/2015
Life in HD: A Conversation with Lisa Genova Tickets Now on Sale
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04/22/2015
Huntington’s Disease Society of America Announces Winners of 2015 Donald A. King Summer Research Fellowship
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04/21/2015
Lighting the way: A new biomarker for Huntington’s disease
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04/07/2015
Huntington’s Disease Society of America Launches HD TrialFinder First-Of-Its-Kind Clinical Trial Matching Service For Huntington’s Disease
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04/07/2015
New York Times Bestselling Author Lisa Genova to release Inside the O’Briens
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01/29/2015
Law Enforcement Toolkit II Webinar Now Available
-
01/29/2015
Huntington’s Disease Society of America Announces First-Ever HD Human Biology Project Awards
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01/29/2015
Huntington’s Disease Society of America Endorses Enroll-HD
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01/29/2015
Huntington’s Disease Society of America Announces Winners of the 2014 Donald A. King Summer Research Fellowship
-
01/29/2015
Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease
-
01/29/2015
HDSA appoints Director of Marketing & Communications
-
01/29/2015
World leader in movement disorders Professor Ira Shoulson joins Prana Board
-
01/29/2015
Pitt Study Demonstrates How Huntington’s Disease Protein Disrupts a Novel Cellular Pathway to Cause Death of Neurons
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01/28/2015
Huntington’s Disease Society of America Launches First “HD News” App
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01/28/2015
2CARE HD Clinical Trial Stopped Early for Lack of Benefit
-
01/28/2015
HDBuzz: 2CARE Study of Coenzyme Q for Huntington’s Disease Ends
-
01/28/2015
Auspex Pharmaceuticals Completes Enrollment in Phase 3 Clinical Trial of SD-809 in Chorea Associated With Huntington’s Disease (FIRST-HD)
-
01/28/2015
Huntington’s Disease Society of America Awards Additional HD Human Biology Project
-
01/28/2015
Jang-Ho Cha, MD, PhD Appointed Chairman of the Board of Trustees at the Huntington’s Disease Society of America
-
01/28/2015
Global Outcomes Data and Possible New Therapies in the Huntington’s Pipeline
Events
-
Hiking Mt. Kilimanjaro for HDSA!
Anthony Lutz - Climbing Mt. Kilimanjaro -
5/20/2025 2:00 PM
Introduction to Disability Services and Financial Planning Webinar
-
8/16/2025 10:00 AM
2025 Team Hope Walk – Eau Claire, WI
Carson Park, Pine Pavilion 199 Carson Park Dr. , Eau Claire, WI 54701 -
8/16/2025 9:00 AM
2025 Grahlman Golf Tournament
Jester Park Golf Club 11949 NW 118th Avenue , Granger, IA 50109 -
8/16/2025 8:00 AM
2025 Tee Off Fore HD Golf Tournament
Spring Creek Country Club 27122 480th Ave , Harrisburg, SD -
8/16/2025 10:15 am
2025 Team Hope 5k – Bozeman, MT
BOGERT PARK 325 S Church Ave , Bozeman, MT 59715 -
8/17/2025 12:00 PM
2025 Team Hope Walk & Family Fun Day – Buffalo
River Works 359 Ganson Street , Buffalo, NY 14203 -
8/17/2025 10:00 AM
2025 Team Hope Walk – Madison, WI
McKee Farms Park 29930 Chapel Valley Rd. , Fitchburg, WI 53711 -
8/22/2025 10:00 AM
2025 Education Day, Florida – USF
Hilton Garden Inn Tampa North - 3305 Tampa Oaks Blvd , Temple Terrace, FL 33637 -
8/23/2025 10:00 AM
2025 Education Day – Memphis, TN
White Station Church of Christ 1106 Colonial Rd , Memphis, TN 38117 -
8/23/2025 9:30 AM
2025 Team Hope Fishy Frolic – Walk, 5K & Fun Run
Corning Preserve Jenny's Landing 1 Quay St , Albany, NY 12207 -
8/24/2025 9:00 AM
2025 Team Hope Walk – Omaha, NE
Lake Zorinsky Park 156th & F Street - Shelter #5 , Omaha, NE 68135 -
8/24/2025 10:00 AM
2025 Team Hope Jim Christus Memorial Walk
Fox Brook Park 2925 N Baker Rd. , Brookfield, WI 53045 -
9/6/2025 9:30 AM
2025 Team Hope Walk – Santa Barbara
Ledbetter Park 801 Shoreline Dr , Santa Barbara, CA 93109 -
9/6/2025 11:00 AM
2025 Team Hope Walk – Duluth
Lakewalk Park at Endion Station Canal Park , Duluth, MN 55802 -
9/6/2025 10:30 AM
2025 Team Hope – Casper, WY
ADVENTURE PARK 1081 N Poplar St, , Casper, WY 82601 -
9/7/2025 3PM
2025 Team Hope Walk- West Virginia
, Barbour County Fairgrounds 1154 Point Pleasant Road, West Virginia 26250 -
9/13/2025 10:00 AM
2025 Team Hope Walk – Portland, OR
LAURELHURST PARK SE Cesar E Chavez Blvd & Stark St , Portland, OR 92714 -
9/13/2025 10:00 AM
2025 Team Hope Walk – Lehigh Valley, PA
Hopewell Park Pavilion 4695 West Hopewell Rd , Center Valley, PA 18036 -
9/13/2025 10:00 AM
2025 Team Hope Walk – Gainesville, FL
Depot Park 874 SE 4th Street , Gainesville, FL 32601 -
9/13/2025 9:30 AM
2025 Team Hope Walk – Sacramento
RIVER WALK PARK 651 2nd St , West Sacramento, CA 95605 -
9/13/2025 9:00 AM
2025 Education Day – San Diego
Marina Village Conference Center 1936 Quivira Way , San Diego, CA 92109 -
9/13/2025 3:00 PM
2025 Team Hope Walk – Springfield, MO
JR Martin Park 300 East Hines , Republic, MO 65738 -
9/14/2025 10:00 AM
2025 Team Hope Walk – Fairfield, CT
Sherwood Island State Park Sherwood Island Connector , Westport, CT 06880 -
9/14/2025 11 AM - 7:00 PM
2025 Smashed Burger Block Party – NYC
Bk Backyard Bar , Brooklyn, New York -
9/14/2025 10:00 AM
2025 Team Hope Walk – Long Island, NY
Wantagh Park 1 King Road , Wantagh, NY 11783 -
9/14/2025 1:00 PM
2025 Team Hope Walk – Adrian, MI
Trestle Park 302 W Hunt Street , Adrian, MI 49221 -
9/14/2025 2:00 PM - 6:00 PM
2025 Education Day – LA Hope & Cope
Ronald Reagan UCLA Medical Center Tamkin Auditorium (Room B-130) , Los Angeles, CA 90095 -
9/20/2025 10:00 AM
2025 Team Hope Walk – St. Louis, MO
Tilles Park 9551 Litzsinger , St. Louis, MO 63124 -
9/20/2025 10:00 AM
2025 Education Day – Iowa
Hampton Inn 1200 1st Avenue , Coralville, IA 52441 -
9/20/2025 11:00 AM
2025 Team Hope Walk – Zionsville, IN
Mulberry Fields 9645 Whitestown Rd , Zionsville, IN 46077 -
9/20/2025 1:00 PM
2025 Team Hope Walk – NYC
Hudson River Park Pier 46 Hudson River Park Pier 46 , New York, NY 10014 -
9/20/2025 9:00 AM
2025 Johns Hopkins & HDSA Annual Education Day
Johns Hopkins Medical Campus Zayed Tower 2117 Arcade Conference Room 1800 Orleans Street , Baltimore, MD 21287 -
9/21/2025 9:00 AM
2025 Team Hope Walk & 5K – Georgia
Bess Walker Park 59 Lakeshore Drive , Avondale Estates, GA 30002 -
9/21/2025 10:00 AM
2025 Team Hope Walk – Detroit, MI
Normandy Oaks Park 4234 Delemere Blvd , Royal Oak, MI 48073 -
9/21/2025 4:00 PM
2025 Team Hope Walk – Kentucky
The Harbor Lawn at Waterfront 231 Witherspoon St , Louisville, KY, 40202 -
9/27/2025 9:00
2025 Team Hope Walk & 5K Run – Erie, PA
Presque Isle State Park, Beach 1 301 Peninsula Drive , Erie, PA 16505 -
9/27/2025 10:00 AM
2025 Team Hope Walk and Hounds for Hope – Central Ohio
Blacklick Park 6975 East Livingston Avenue , Reynoldsburg, OH 43068 -
9/27/2025 11:00 AM
2025 Team Hope Walk – Arkansas
Rock City Harley Davidson 400 Gateway Grove Loop , Little Rock, AR 72210 -
9/27/2025 9:30 AM
2025 Team Hope 5k Walk & Fun Run – Utah
West Jordan Park 1985 W 7800 S , West Jordan, UT 84088 -
9/27/2025 11:00 AM
2025 Team Hope Walk – Edison, New Jersey
Roosevelt Park Meet at Grove 1A 151 Parsonage Road , Edison, NJ 08837 -
9/27/2025 8:00 AM
2025 Hope for Huntington’s Golf Tournament
Palm Beach National Golf Club 7500 St. Andrews Road , Lake Worth, FL 33467, FL 33467 -
9/27/2025 10:00 AM
2025 Team Hope Walk – Twin Cities, MN
Hyland Lake Park 10145 East Bush Lake Road , Bloomington, MN 55438 -
9/27/2025 11:00 AM
2025 Team Hope Walk – Rhode Island
Colt State Park - Bristol Sports Complex 50 Asylum Road , Bristol, RI 02809 -
9/28/2025 12:30 PM
2025 Midwest Region Golf Tournament – St. Louis
Crescent Farms Golf Club 745 Lewis Rd , Eureka, MO 63025 -
9/28/2025 11:30 AM
The 2025 Fall Education Day – Sanford Medical Center – Schroeder Auditorium
Sanford Hospital 1305 W 18th , Sioux Falls, SD 57103 -
9/28/2025 12:00 PM
2025 Team Hope Walk – Seattle, WA
Magnuson Park 7400 Sand Point Way NE , Seattle, WA 98115 -
9/28/2025 3:00 PM
2025 Music on the Vine
Heartstone Farm and Winery 468 CT-87 , Columbia,, CT 06237 -
10/4/2025 10:00 AM
2025 Team Hope 5k Walk & Fun Run – San Francisco
Sports Basement Presidio 610 Old Mason St , San Francisco, CA 95008 -
10/4/2025 9:00
2025 Team Hope Walk – San Diego
Coronado Tidelands Park 2000 Mullinex Drive, Coronado , Coronado, CA 92118 -
10/4/2025 10:00 AM
2025 Education Day – Plattsburgh, NY
Hampton Inn 586 State Route 3 & Suites Plattsburgh , Plattsburgh, NY 12901 -
10/5/2025 10:00 AM
2025 Team Hope Walk – Ohio Valley
Voice of America Park Fieldhouse 8187 VOA Park Drive West , West Chester Township, OH 45069 -
10/11/2025 12:00 PM
2025 Team Hope Walk – Central Michigan
Michigan Theatre 124 North Mechanic Street , Jackson, MI 49201 -
10/11/2025 8:00 AM
2025 Team Hope Walk – Los Angeles
Johnny Carson Park 400 Bob Hope Drive , Burbank, CA 91505 -
10/11/2025 9:30
2025 Hounds for Huntington’s – Columbia MO
Twin Lakes Recreation Area 2500 Chapel Hill Road , Columbia, MO 65203 -
10/12/2025 12:00 PM
2025 Team Hope Walk – Orange County, CA
Cedar Grove Park 11385 Pioneer Road , Tustin, CA 92782 -
10/12/2025 2:00 PM
2025 Team Hope Walk – Columbia, SC
Moore Park 7507 Eastview Drive , Irmo, SC 29063 -
10/17/2025 10:30 AM
The 5th Annual Brittany Bosson Hope for Huntington’s Memorial Golf Tournament
East Bay Golf Club 702 Country Club Drive Largo, FL 33771 , Largo, FL 33771 -
10/18/2025 10:00 AM
2025 Team Hope Walk – Boise, ID
Julius M Kleiner Memorial Park 1900 N. Records Avenue , Meridian, ID 83642 -
10/18/2025 9:00 AM
2025 Education Day – Denver, CO
University of Colorado Anschutz Medical Campus 12700 E 19th Avenue, , Aurora, CO 80045 -
10/18/2025 9:30 AM
2025 Education Day – Michigan
Hannah Community Center 819 Abbot Road , East Lansing, MI 48823 -
10/18/2025 12:00 PM
2025 Team Hope Walk – Greater North Texas
Mike Lewis Park 2600 North Carrier Parkway , Grand Prairie,, TX 75050 -
10/18/2025 10:00 AM
2025 Team Hope Walk – Delaware
Cape Henlopen State Park Main Pavilion/Bike Loop 15099 Cape Henlopen Drive , Lewes, DE 19958 -
10/18/2025 10:00 AM
2025 Team Hope Walk – Baton Rouge, LA
Highland Road Community Park [Grand Pavilion] 13653 Highland Road , Baton Rouge, LA 70810 -
10/19/25 10:30 AM
2025 Team Hope Walk – West Michigan
Grand Ravines Lodge 9920 42nd Avenue , Georgetown Township, MI 49428 -
10/19/2025 10:30 AM
2025 TopGolf – Canton, MA
TopGolf - 777 Dedham Street , Canton, MA 02021 -
10/25/2025 9:00 AM
2025 Team Hope Walk – Las Vegas
Lorenzi Park 3333 W Washington Ave , Las Vegas, NV 89107 -
10/25/2025 9:15 AM
2025 Education Day – Albany
The Century House Main Ballroom and CH North Room 997 Loudon Road , Latham, NY 12110 -
10/25/2025 10:00 AM
2025 Team Hope Walk – Liberty, MO
Liberty Community Center 1600 S Withers Rd , Liberty, MO 64068 -
10/25/2025 10:00 AM
2025 Team Hope Walk – Grand Junction, CO
Imondi Wake Zone 1583 Cipolla Road , Fruita, CO 81521 -
10/26/2025 12:00 PM
2025 Team Hope Walk – Tucson, AZ
Reid Park 67 W Culver St. , Phoenix, AZ, 85003, AZ 85003 -
10/26/2025 10:00 AM
2025 Team Hope Walk – Hudson Valley, NY
Walkway Over The Hudson State Historic Park 87 Haviland Road , Highland, NY 12528 -
11/1/2025 10:00 AM
2025 Tee Off Fore HD – Topgolf Hillsboro, OR
TOPGOLF HILLSBORO 5505 NE Huffman St, , Hillsboro, OR 97124 -
11/1/2025 8:00 AM
2025 Hack a Tee for HD – Greater North Texas
Bear Creek Golf Club 3500 Bear Creek Court , Dallas, TX 75261 -
11/1/2025 9:00 AM
2025 Education Day – Wisconsin
Chula Vista Resort and Waterpark 1000 Chula Vista Parkway , Wisconsin Dells,, WI 53965 -
11/1/2025 11:00 AM
2025 Team Hope Walk – North Carolina
Morrisville Community Park 1520 Morrisville Parkway , Morrisville, NC 27560 -
11/1/2025 9:30 AM
2025 Education Day – South Carolina
University of S. Carolina School of Medicine Two Medical Park [Lower Level Conference Room] 2 Medical Park Road , Columbia, SC 29203 -
11/2/2025
2025 Celebration of Hope – Chicago
The Icy Room 12 E Ohio St, , Chicago, IL 60611 -
11/2/2025 10:30 AM
2025 New Jersey HD Community Day – Lakewood
Leisure Chateau Care & Rehabilitation 962 River Ave , Lakewood, NJ 08701 -
11/2/2025 10:00 AM
2025 Team Hope Walk – Philadelphia, PA
The Discovery Center 3401 Reservoir Drive , Philadelphia,, PA 19121 -
11/7/2025 6:30 PM
2025 Celebration of Hope – Cleveland: Fire & Ice
LANDERHAVEN 6111 Landerhaven Dr. , Mayfield Heights, OH 44124 -
11/8/2025 9:30
2025 Team Hope Walk – Orlando, FL
Cranes Roost Park 150 Cranes Roost Boulevard , Altamonte Springs, FL 32701 -
11/8/2025 8:30 AM
2025 Team Hope 5K Tyler, TX
Rose Rudman Park 450 Shiloh Road , Tyler, TX 75703 -
11/8/25025 11:00 AM
2025 Team Hope Walk – San Antonio, TX
Woodlawn Lake Park 1103 Cincinnati Avenue , San Antonio,, TX 78201 -
11/15/2025 6:30 PM
2025 Celebration of Hope Missouri – All Star Tribute
Shrewsbury City Center 5200 Shrewsbury , St. Louis, MO 63119 -
11/15/2025 5:30 PM
2025 Celebration of Hope: High-Roller Casino Gala Event
Glen Oaks Country Club 1401 Glen Oaks Dr , West Des Moines, IA, 50266, IA 50266 -
11/15/2025 10:30 AM
2025 Education Day – New England
Bentley University 175 Forest Street Room LaCava 300 , Waltham, MA 02452 -
11/15/2025 9:00 AM
2025 Team Hope Anita Sabedra Walk – Houston
Middlebrook Greenbelt Park 16203 Dunmoor Drive , Houston, TX 77059 -
12/6/2025 10:00 AM
2025 Team Hope Walk – Tampa, FL
Lowry Park 7525 North Boulevard , Tampa, FL 33604
