Happy International Clinical Trials Day: Thank You Researchers & Participants
Posted on May 20, 2021
May 20th is recognized as Clinical Trials Day to commemorate what is regarded as the first randomized clinical trial initiated…
Read MoreWebinar TODAY! HDSA & Me: HD 101 – Getting Started
Posted on May 13, 2021
HDSA is excited to announce a new educational series that will begin TODAY, May 13th at 2PM ET, HDSA &…
Read MoreHDSA Announces 2021 Donald A. King Summer Research Fellows
Posted on May 6, 2021
After Scientific Advisory Board review, HDSA is excited to award the Donald A. King Summer Research Fellowship, to two undergraduate researchers. This program, named for former…
Read MoreWebinar TODAY: Roche Community Update on GENERATION-HD1
Posted on April 29, 2021
Since the announcement in late March that dosing of tominersen in the GENERATION-HD1 trial had been halted, HD researchers and…
Read MoreVolunteer Appreciation Week
Posted on April 22, 2021
This is Volunteer Appreciation Week and we would like to thank all the brave individuals who have volunteered their time…
Read MoreGrieving Setbacks with Hope for the Future
Posted on April 15, 2021
The difficult news of clinical setbacks from Roche and Wave have turned the recent weeks into an emotional rollercoaster for…
Read MorePositive News from uniQure: Successful Study Recruitment
Posted on April 8, 2021
uniQure shared a press release this week stating that their safety trial of an HD gene therapy drug, AMT-130, is…
Read MoreMore Disappointment in Wave PRECISION-HD Study Results
Posted on April 1, 2021
This Monday, March 29th, Wave Life Sciences shared a press release and community letter explaining that data from their PRECISION-HD1…
Read MoreDisappointing news from Roche about GENERATION-HD1 study
Posted on March 25, 2021
We were saddened to learn on March 22nd via a press release and community statement from Roche that their Phase 3 study of tominersen, known as…
Read MoreBrain Awareness Week
Posted on March 18, 2021
Brain Awareness Week is a (March 15th – 21st, 2021) is a global campaign to foster public enthusiasm and support for brain science,…
Read MoreHDSA Research Webinar: KINECT-HD
Posted on March 11, 2021
If you missed this week’s research webinar about the KINECT-HD clinical study, it is now available on HDSA’s YouTube channel. Dr….
Read MoreUpcoming HDSA Webinars
Posted on March 4, 2021
HDSA & Me is a web series presenting unique programming to educate and to brighten your day. TODAY, March 4th, at 2:00…
Read MoreFebruary 28th is Rare Disease Day
Posted on February 25, 2021
When you have a rare disease, you face two battles – one being the illness itself, and the other, living…
Read MoreHDBuzz Explores a Novel Huntingtin-lowering Strategy
Posted on February 18, 2021
Huntingtin-lowering is an HD treatment strategy that usually involves targeting the HD gene itself, but some researchers are exploring roundabout ways to achieve…
Read MoreUpcoming HDSA 2020 Year in Review Webinar
Posted on February 11, 2021
As we mentioned in January, we’ll be hosting an HD Research Year in Review webinar on Thursday, February 18th, at 12 PM…
Read MoreHDSA Announces 54 Centers of Excellence for 2021
Posted on February 4, 2021
HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. On February 2nd, HDSA announced…
Read MoreRecap: PROOF-HD Webinar
Posted on January 28, 2021
If you missed this week’s research webinar, in which Dr. Sandra Kostyk and Dr. Andrew Feigin discussed a new HD…
Read MoreEnroll-HD: A Resource For Everyone
Posted on January 21, 2021
Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…
Read MoreAsk the Doctor…Anything!
Posted on January 14, 2021
Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…
Read MoreHappy New Year From HDSA
Posted on January 7, 2021
Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…
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