May 20th is recognized as Clinical Trials Day to commemorate what is regarded as the first randomized clinical trial initiated by James Lind on May 20, 1747. In this momentous study, Lind analyzed possible treatments of scurvy in shipmates aboard the HMS Salisbury of the British Royal Navy.
As we commemorate 247 years of clinical trials and the vast advances in medical treatment and science that have been brought about from them, HDSA extends its gratitude to clinical researchers, healthy volunteers, and trial participants who allow us to press on in the search for novel therapies and cures for Huntington’s Disease.
Two Years is Too Long: Jennifer Simpson talks HD Parity Act with We Have a Voice Radio
James Valvano, host of We Have a Voice Radio and founder of WeHaveAFace.org Inc., recently interviewed HDSA’s own Jennifer Simpson in a discussion that covered all things HD Parity Act. The podcast broke down the struggle endured by the HD community in the current two-year waiting period to access Medicare disability coverage, the momentum behind the bill thus far, the need for advocates to voice their support to their members of congress, and the community’s need for this legislation. Click here to listen to the full podcast, and visit the HD Advocacy caucus website to learn more about how you can use your voice to affect change for the HD community
Survey: Effects of Daily Stressors on Young People Affected by HD
Researchers at Monash University in Australia are conducting research to understand how young people ages 18-35 are affected by HD. If you have HD in your family, consider participating in this online survey to make your voice heard! For more info check out the study flyer or head to the research surveys page on HDSA’s website.
Researcher Spotlight: Nicholas Caron, PhD
2019 Berman-Topper HD Career-Development Fellow, Dr. Nicholas Caron, shared with HDSA his academic trajectory into HD research and the goals of his current research study on delivery mechanisms for ASOs to maximize their efficacy and distribution to deep regions of the brain. To read Nick’s full spotlight article, click here.