Grieving Setbacks with Hope for the Future
Posted on April 15, 2021
The difficult news of clinical setbacks from Roche and Wave have turned the recent weeks into an emotional rollercoaster for…
Read MorePositive News from uniQure: Successful Study Recruitment
Posted on April 8, 2021
uniQure shared a press release this week stating that their safety trial of an HD gene therapy drug, AMT-130, is…
Read MoreMore Disappointment in Wave PRECISION-HD Study Results
Posted on April 1, 2021
This Monday, March 29th, Wave Life Sciences shared a press release and community letter explaining that data from their PRECISION-HD1…
Read MoreDisappointing news from Roche about GENERATION-HD1 study
Posted on March 25, 2021
We were saddened to learn on March 22nd via a press release and community statement from Roche that their Phase 3 study of tominersen, known as…
Read MoreBrain Awareness Week
Posted on March 18, 2021
Brain Awareness Week is a (March 15th – 21st, 2021) is a global campaign to foster public enthusiasm and support for brain science,…
Read MoreHDSA Research Webinar: KINECT-HD
Posted on March 11, 2021
If you missed this week’s research webinar about the KINECT-HD clinical study, it is now available on HDSA’s YouTube channel. Dr….
Read MoreUpcoming HDSA Webinars
Posted on March 4, 2021
HDSA & Me is a web series presenting unique programming to educate and to brighten your day. TODAY, March 4th, at 2:00…
Read MoreFebruary 28th is Rare Disease Day
Posted on February 25, 2021
When you have a rare disease, you face two battles – one being the illness itself, and the other, living…
Read MoreHDBuzz Explores a Novel Huntingtin-lowering Strategy
Posted on February 18, 2021
Huntingtin-lowering is an HD treatment strategy that usually involves targeting the HD gene itself, but some researchers are exploring roundabout ways to achieve…
Read MoreUpcoming HDSA 2020 Year in Review Webinar
Posted on February 11, 2021
As we mentioned in January, we’ll be hosting an HD Research Year in Review webinar on Thursday, February 18th, at 12 PM…
Read MoreHDSA Announces 54 Centers of Excellence for 2021
Posted on February 4, 2021
HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. On February 2nd, HDSA announced…
Read MoreRecap: PROOF-HD Webinar
Posted on January 28, 2021
If you missed this week’s research webinar, in which Dr. Sandra Kostyk and Dr. Andrew Feigin discussed a new HD…
Read MoreEnroll-HD: A Resource For Everyone
Posted on January 21, 2021
Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…
Read MoreAsk the Doctor…Anything!
Posted on January 14, 2021
Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…
Read MoreHappy New Year From HDSA
Posted on January 7, 2021
Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…
Read MoreHappy Holidays from the HDSA Family
Posted on December 24, 2020
Despite the challenges of 2020, your support of HDSA this year has continued to remind all of us that in the fight against Huntington’s…
Read MorePublication from an HDSA Fellow
Posted on December 17, 2020
Congratulations to 2019 Berman-Topper Fellow Dr. Lauren Byrne, whose work was recently published in the Journal Science Translational Medicine. She tweeted this week about…
Read MoreThe Marker: HDSA’s Annual Research Report
Posted on December 10, 2020
Each year HDSA’s annual research report, The Marker, covers the past year in HD science and HDSA research activities. Check…
Read MoreHDSA Announces Four 2020 Human Biology Fellows
Posted on December 3, 2020
This week, HDSA announced the winners of the 2020 HD Human Biology Fellowship. HDSA’s largest research initiative, the Human Biology Project supports projects that focus…
Read MoreHappy Thanksgiving
Posted on November 26, 2020
Happy Thanksgiving and a big thank you to members of the HD community for your participation in research. Medicine moves…
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