HDSA Expands Centers of Excellence Program to 50 Sites
Posted on February 6, 2020
HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. Professionals at these locations include neurologists,…
Read MoreNOW AVAILABLE: Research Year in Review Webinar
Posted on January 30, 2020
HDSA’s annual Research Year in Review webinar is now available to view. Check it out for an overview of HDSA’s research…
Read MoreHDSA Publishes 2019 Year in Review
Posted on January 23, 2020
This week HDSA issued the 2019 edition of our Year In Review Magazine, which features highlights from HDSA’s Mission-related programs and…
Read MoreNew Online Application System for HDSA Research Grants
Posted on January 15, 2020
HDSA’s research program has expanded in recent years, and in 2020 we’re using a new online platform to help smooth…
Read MoreUpcoming HDSA Research Webinar
Posted on January 9, 2020
2019 was a big year for HD research, and we’ll be recapping HDSA’s research activities, and the field’s major discoveries…
Read MoreWave Life Sciences Announces Data and Expansion of PRECISION-HD Studies
Posted on January 3, 2020
Happy New Year from HDSA! To wrap up 2019, we received some exciting clinical trial news. Wave Life Sciences is conducting…
Read MoreHDSA Awards $50,000 in Clinical Research Pilot Grants
Posted on December 24, 2019
This year HDSA was able to offer a new grant mechanism to foster novel clinical research studies within our Centers…
Read MoreRoche Video About HD Features Berman-Topper Fellow
Posted on December 11, 2019
Roche recently created a video about Huntington’s disease that is narrated by HDSA Berman-Topper Fellow Lauren Byrne. The video is a…
Read MoreSTAT Article: HD Clinical Trials Bring Hope
Posted on December 5, 2019
This week an article in STAT talks about the ongoing Roche GENERATION-HD1 trial. The story explains Huntington’s disease and covers the experiences…
Read MoreHappy Thanksgiving from HDSA
Posted on November 27, 2019
Happy Thanksgiving from all of us at HDSA! We are especially grateful for your engagement in research – it’s how medicine moves…
Read MoreThe Marker: HDSA’s 2019 Research Report
Posted on November 21, 2019
Each year, HDSA prepares a report that covers what happened in HD research this year. This year, The Marker includes HDSA research activities…
Read MoreHSG Announces New Phase 3 Study To Test Drug For HD Chorea
Posted on November 13, 2019
The Huntington Study Group issued a press release about a new study to treat the movements associated with HD, known as chorea….
Read MoreScientists Experiment with a New Huntingtin-Lowering Strategy
Posted on November 7, 2019
The huntingtin-lowering drugs in clinical trials right now are focused on attacking mutant huntingtin on the RNA level – essentially…
Read MoreInsights on HD Age of Onset
Posted on October 31, 2019
Several groups of scientists have reported recently on how CAG length “hiccups” or expansions during life can influence the age of…
Read MoreWorld’s First HD Gene Therapy Trial
Posted on October 24, 2019
Boston-based company uniQure is conducting the first HD gene therapy trial of their drug AMT-130. The Phase 1/2 trial is designed to test…
Read MoreHDSA Names Five 2019 HD Human Biology Project Fellows
Posted on October 17, 2019
This week, we announced the winners of the 2019 HD Human Biology Fellowship. These young scientists were chosen for their…
Read MoreThis Week in HD History: Remembering Marjorie Guthrie
Posted on October 10, 2019
On October 6th, 1917, HDSA’s founder Marjorie Guthrie was born. Not only did Marjorie found the Committee to Combat Huntington’s…
Read MoreThis Week in HD History: Huntingtin Aggregates
Posted on October 3, 2019
One of the telltale signs of Huntington’s disease is the clumps of huntingtin protein that build up all over the…
Read MoreMeeting of HDSA’s Scientific Advisory Board
Posted on September 26, 2019
HDSA’s Scientific Advisory Board will gather this week at our national offices in New York City to discuss this year’s…
Read MoreLast Chance to Participate in HDSA’s Survey About PGD-IVF
Posted on September 19, 2019
HDSA’s PGD-IVF survey is closing on September 20th – please add your voice so that we can best serve the…
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