On October 6th, 1917, HDSA’s founder Marjorie Guthrie was born. Not only did Marjorie found the Committee to Combat Huntington’s Disease, which became HDSA, she was a great advocate for HD research. She chaired or was a member of several research-related public and governmental committees, including the National Committee for Research in Neurological and Communicative Disorders, the New York State Commission on Health Education and Illness Prevention, and the New York State Genetic Advisory Committee, and she was a lay advisor to the National Institute of General Medical Science. Knowledge about HD research gives you the power to be a stronger advocate, simply by being able to spread accurate and hopeful information. Learn more about Marjorie and our history at https://hdsa.org/about-hdsa/hdsa-history/
Compensated, At-home HD Research Study in the Los Angeles Area
If you are 18 years or older, have been diagnosed with Stage 1 or Stage 2 Huntington’s disease, and live within 4 hours of Los Angeles, CA, consider participating in an HD research study. Sage Therapeutics is collaborating with Sanguine, a provider of at-home clinical research services, to give you the opportunity to contribute to Huntington’s Disease with a simple one-time blood donation from home. Donating is easy and fast, and you will receive $50 compensation for your time.
To sign up, click here or call (818) 696-4281 to speak with a research coordinator and see if you qualify.
HD Insights Podcast
The Huntington Study Group (HSG) has a new podcast called HD Insights, in which HSG speaks with HD doctors and researchers about their careers and journeys. This week’s interview is with Dr. Vicki Wheelock, who is the director of HDSA’s Center of Excellence at UC Davis. Hear about how her formidable career in HD and the founding of the UC Davis Huntington’s Disease clinic was inspired by HD families.