Wave Life Sciences begins SELECT-HD Trial
Posted on September 9, 2021
Wave Life Sciences shared a press release this morning announcing that dosing has begun in the SELECT-HD trial. The study…
Read MoreAdvances in Gene Therapy: HDBuzz Covers Exciting New Regulatory System, Xon
Posted on September 2, 2021
Researchers at the Children’s Hospital of Philadelphia have created a system to better regulate gene editing by administration of a secondary activator drug. This novel system, dubbed Xon, acts…
Read MoreKINECT-HD2: Rollover Study of Valbenazine for Chorea in HD
Posted on August 26, 2021
KINECT-HD2, the open-label extension of KINECT-HD, is seeking 30 new participants to join a study of valbenazine for chorea in Huntington’s disease….
Read MoreHDBuzz on Recent News in the HD Research Pipeline
Posted on August 19, 2021
The August 9th press release from Voyager Therapeutics left many of us scratching our heads. Luckily, HDBuzz swooped in with their latest…
Read MoreVoyager Therapeutics Shifts Directions
Posted on August 12, 2021
Voyager Therapeutics issued a press release on Monday about their finances, recent leadership transitions, and importantly, a major shift in their…
Read MoreHD Parity Act and Pro-Patient Advocacy in the Neurological Disease Community
Posted on August 5, 2021
Last week, Kala Booth, a Huntington’s disease patient, caregiver, advocate, and the 4th known generation in her family to test HD positive appeared before the House…
Read MoreHD Advocate Testifies on HD Parity Act
Posted on July 29, 2021
Kala Booth, a Huntington’s disease positive individual and caregiver to her mother, will appear TODAY before the House Committee on Energy & Commerce subcommittee on neurodegenerative diseases. Kala…
Read MoreNow Accepting Letters of Intent for 2022 HDSA Centers of Excellence!
Posted on July 22, 2021
HDSA Centers of Excellence provide comprehensive multidisciplinary clinical services to families affected by HD, including neurology, psychology, genetic counseling/testing, social…
Read MoreRecorded Sessions From The HDSA Convention Are Now Available
Posted on July 8, 2021
The Virtual 36th Annual HDSA Convention was a spectacular time for researchers, clinicians, family members, and affected individuals to come together for…
Read MoreOpportunities to participate in online HD research
Posted on July 1, 2021
Research participation is essential in the quest for HD treatments and knowledge, not only in pursuit of drug development but also to improve care…
Read MoreHDSA Awards Two Berman-Topper Family HD Career Development Fellowships
Posted on June 24, 2021
After careful Scientific Advisory Board review, HDSA is excited to award the Berman-Topper Family HD Career Development Fellowship to Dr. Eduardo Silva Ramos (Max…
Read MoreThank you for attending HDSA’s Virtual 36th Annual Convention!
Posted on June 17, 2021
Thank you to all who attended HDSA’s virtual 36th Annual Convention! If you missed us this time around, don’t stress—recorded sessions will be…
Read MoreVirtual 36th Annual HDSA Convention Begins TODAY!
Posted on June 10, 2021
Join us TODAY for the Virtual 36th Annual HDSA Convention of four days full of meet-and-greets, presentations, Q&A’s, support groups, and more. If you’re…
Read MoreRegister TODAY: Virtual 36th Annual HDSA Convention
Posted on June 3, 2021
Join us virtually from June 10th-13th for the 36th Annual HDSA Convention, beginning one week from today. Register for free…
Read MoreuniQure’s AMT-130 for Treatment of Huntington’s Disease Advances in Phase I/II Clinical Trial
Posted on May 27, 2021
uniQure announced today that they will move forward with the Phase I/II Clinical Trial of AMT-130, a gene therapy candidate for treatment…
Read MoreHappy International Clinical Trials Day: Thank You Researchers & Participants
Posted on May 20, 2021
May 20th is recognized as Clinical Trials Day to commemorate what is regarded as the first randomized clinical trial initiated…
Read MoreWebinar TODAY! HDSA & Me: HD 101 – Getting Started
Posted on May 13, 2021
HDSA is excited to announce a new educational series that will begin TODAY, May 13th at 2PM ET, HDSA &…
Read MoreHDSA Announces 2021 Donald A. King Summer Research Fellows
Posted on May 6, 2021
After Scientific Advisory Board review, HDSA is excited to award the Donald A. King Summer Research Fellowship, to two undergraduate researchers. This program, named for former…
Read MoreWebinar TODAY: Roche Community Update on GENERATION-HD1
Posted on April 29, 2021
Since the announcement in late March that dosing of tominersen in the GENERATION-HD1 trial had been halted, HD researchers and…
Read MoreVolunteer Appreciation Week
Posted on April 22, 2021
This is Volunteer Appreciation Week and we would like to thank all the brave individuals who have volunteered their time…
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