Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Roche/Genentech Announces Locations of GENERATION HD1 Drug Study

Posted on December 20, 2018

On Wednesday, December 19th, Roche/Genentech announced the US and Canadian locations for their upcoming study to test efficacy of the huntingtin-lowering…

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HDSA’s 2018 Research Report Is Now Available

Posted on December 13, 2018

This week, HDSA published the 2018 Research Report, a written re-cap of global HD research progress and how HDSA research…

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HD Buzz on Huntingtin-Lowering Strategies

Posted on December 6, 2018

The Ionis/Roche/Genentech Huntington’s program has received a lot of press in recent months. However, several additional companies have been working…

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Happy Thanksgiving!

Posted on November 29, 2018

We hope you had a Happy Thanksgiving, and a big thank you to our readers for your interest in research…

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Roche/Genentech Announces US & Canadian Locations of Observational Natural History Study

Posted on November 15, 2018

On Saturday at the Huntington Study Group Meeting in Houston, Roche/Genentech announced the US and Canadian locations for their Natural…

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Dr. Amber Southwell Featured on UCF Website

Posted on November 8, 2018

HDSA-supported researcher Dr. Amber Southwell is featured this week in an article about huntingtin-lowering. Her lab’s recent publication showed that…

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HDSA Now Accepting Applications for Two HD Research Funding Opportunities

Posted on November 1, 2018

This week, we have opened up applications for HDSA research funding. Learn about how we support HD research and pass…

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HDSA Names Five HD Human Biology Fellows For 2018

Posted on October 25, 2018

This week, we announced the winners of the 2018 HD Human Biology Fellowship. These young scientists were chosen for their…

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FAQ About Upcoming Genentech/Roche Trials

Posted on October 17, 2018

HDSA received hundreds of questions during and after the September 26th webinar presented by Genentech/Roche representatives about upcoming clinical trials….

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Upcoming HDSA Research Webinar on New Strategies for Huntingtin-Lowering

Posted on October 11, 2018

ASOs therapies have dominated the news recently, but did you know that there are many additional strategies being developed in…

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New Study Provides Valuable Insight Into Juvenile Huntington’s Disease

Posted on October 4, 2018

When symptoms of HD start before the age of 20, this is known as juvenile onset Huntington’s disease, or JHD….

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Roche/Genentech Clinical Trial Update Webinar Available to View

Posted on September 27, 2018

If you missed the clinical trials update webinar presented by Roche on Wednesday the 26th, it’s now available for viewing…

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Roche Provides Info About Ongoing HD Program & Announces Two Upcoming Trials; HDSA to Host Webinar

Posted on September 20, 2018

This past Sunday at the plenary meeting of the European Huntington’s Disease Network (EHDN), Roche Pharmaceuticals announced some details about…

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Register for the Upcoming HDSA Webinar with Roche/Genentech on Wed. September 26th

Posted on September 13, 2018

This week, members of the HDSA team are attending the 2018 plenary meeting of the European Huntington’s Disease Network (EHDN)…

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Interview with 2018 Berman-Topper Fellow – Dr. Rachel Harding

Posted on September 6, 2018

This week, meet Dr. Rachel Harding from the University of Toronto, the recipient of this year’s Berman-Topper Family HD Career…

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HD Featured in Science Magazine

Posted on August 30, 2018

The prestigious Science magazine published an article on Huntington’s disease this week, describing the huntingtin-lowering ASO drug developed by Ionis,…

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Proposal to Streamline Gene Therapy Evaluation by the FDA

Posted on August 23, 2018

This week, the FDA released a proposal to streamline the way they oversee the evaluation of protocols related to gene…

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First Gene-Silencing Drug Approved by the FDA

Posted on August 16, 2018

This week marked the first FDA approval of a gene silencing drug, for a rare hereditary disease called ATTR amyloidosis….

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Roche Huntingtin-Lowering Drug Gains PRIME Status from EMA

Posted on August 7, 2018

On August 4th, Roche Pharmaceuticals announced that their huntingtin-lowering therapy was granted PRIME status from the European Medicines Agency (EMA)….

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Voice Your Opinions About The Future Of CRISPR

Posted on August 2, 2018

Community research surveys are valuable ways for researchers to get input from HD patients, families and caregivers about a variety…

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