This week, we announced the winners of the 2018 HD Human Biology Fellowship. These young scientists were chosen for their well-designed projects that focus on understanding Huntington’s disease as it occurs in humans. Below are their names and the basic questions they will focus on in their HD research. 

  • Rossana Foti, University of Copenhagen, Denmark: How do the brain’s support cells contribute to symptoms of depression?
  • Richard Hickman, Columbia University: Learning the art of HD brain banking (working with donated patient tissue)
  • Edith Pfister, University of Massachusetts Medical School: How do different lengths of huntingtin RNA affect HD pathology?
  • Michael Placzek, Massachusetts General Hospital: Developing a tracer for doing PET scans in early HD
  • Isabelle St. Amour, Postdoctoral Fellow, Université Laval: How do micro-RNAs contribute to HD symptoms?

For a complete summary of these five research projects, please click here.


Research Survey About HD Family Communication

Looking for a way to participate in research studies from your own home? HDSA reviews research surveys from students and scientists all over the US and posts institutionally-approved studies on our website. We have several new ones this month, so please check them out and help researchers gather important information about HD.

This week, Amanda Schatzle, a graduate student in the Genetic Counseling Program at Arcadia University, has opened her survey for participation. This study is about identifying coping strategies used by individuals who are symptomatic or pre-symptomatic for Huntington’s Disease, and studying the communication of information about HD risk between those individuals and their siblings and children. The survey is anonymous and takes about 20-30 minutes.  

To be eligible to participate, you must be over the age of 18, have received positive genetic testing for Huntington’s Disease and/or been diagnosed with Huntington’s Disease by a neurologist, and have at least one biological sibling or child.  To participate visit our website or the study link.


FAQ About Upcoming Genentech/Roche Trials

Did you miss our FAQ about the September 26th webinar presented by Genentech/Roche representatives about upcoming clinical trials? HDBuzz liked it so much that they posted it, too!

We look forward to sharing more research updates here in the blog, on our social media such as our facebook page, and at