HDSA received hundreds of questions during and after the September 26th webinar presented by Genentech/Roche representatives about upcoming clinical trials. We thank you for your patience as we prepared responses to your frequently asked questions with input from Genentech/Roche.

This FAQ document can be accessed on our website at the following link: https://hdsa.org/wp-content/uploads/2018/10/FINAL-101518_FAQ-about-Upcoming-Roche-Studies_for-HDSA.pdf

Thanks again to everyone who attended or watched the webinar! We look forward to sharing more research updates here in this blog, on our social media such as our facebook page, and at www.hdtrialfinder.org.


Research Survey: Huntington’s Disease Clinical Trials

Investigators at Stanford University School of Medicine are conducting a research study to investigate attitudes and beliefs regarding clinical trials for Huntington’s disease (HD). This study is being conducted as a part of a genetic counseling student research project.

Individuals with a positive genetic test result for HD, who have a diagnosis of HD, or who are the primary caregiver for an individual with HD are eligible to participate. Individuals must be able to fill out the survey independently. It will take about 20 minutes and you can enter a raffle at the end of the survey to win one of 10 $25 Amazon gift cards. The survey can also be accessed here: http://bit.ly/HD-trial-survey

For questions you may contact Kristina Cotter at kcotter@stanford.edu.