Huntington’s Disease Clinical Trials Survey

Investigators at Stanford University School of Medicine invite you to participate in a research study to share your attitudes and beliefs regarding clinical trials for Huntington’s disease (HD). The primary purpose of this study is to obtain information regarding clinical trial attitudes and beliefs as well as understanding of the clinical trial process in the HD community. This study is being conducted as a part of a genetic counseling student research project.

Individuals with a positive genetic test result for HD, who have a diagnosis of HD, or who are the primary caregiver for an individual with HD are eligible to participate. Individuals must be able to fill out the survey independently.

If you are interested, we welcome you to click the link below for more information about the study. If you agree to participate, we would ask you to compete a one-time, 20-minute online survey at a time and place of your choosing. Participation in this study is voluntary and all responses to this survey will be anonymous.

All interested individuals are eligible to enter a raffle to win one of 10 $25 Amazon gift cards. All interested individuals can enter the raffle by either selecting the link at the end of the survey or by contacting Kristina Cotter at

To begin the survey, please follow the link below:

Participant’s rights questions, contact 1-866-680-2906

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