Thank you Volunteers, Buzz on brain cells, Next Week in HD
Posted on April 20, 2023
Thank you, HD Research Volunteers! This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d…
Read MoreHD Buzz on the Brain, Vico begins dosing, New Podcast
Posted on April 6, 2023
How does an HD brain find balance? HD Buzz covers the latest clues It is well known that Huntington’s disease…
Read MorePROOF-HD, Rare Patient Voice, This Week in HD History
Posted on March 30, 2023
Last Participant Completes the PROOF-HD Study This week, Prilenia Therapeutics shared a press release announcing the completion of the last…
Read MoreHD gene discovery, Genetic Testing Motivation survey, Novartis News
Posted on March 23, 2023
This Month in HD Research: 30 Year anniversary of the discovery of the HD gene On March 26th, 1993, the discovery of…
Read MoreHuman Biology Project, HDBuzz on Help4HD, HD Research Pipeline
Posted on March 16, 2023
Now Accepting LOIs for HDSA’s HD Human Biology Project Fellowship HDSA is proud to announce the 2023 Request for Proposals…
Read MoreResearch Fellowships, HDSA Convention, HDF Webinar
Posted on March 9, 2023
HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th! With a shared goal of developing the next generation…
Read MoreThe HDSA Podcast, ChANGE-HD, This Week in HD History
Posted on March 2, 2023
This Month on The HDSA Podcast Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…
Read MoreRare Disease Day, Teva’s Austedo-XR Approval, Research Survey
Posted on February 23, 2023
Celebrate Rare Disease Day with HDSA on February 28th When you have a rare disease, you face two battles –…
Read MoreHDSA Centers of Excellence, Research Webinar, GENERATION HD2
Posted on February 16, 2023
HDSA Names 56 Centers of Excellence and 11 Partner Sites in 2023 This week, HDSA announced its Center of…
Read MoreHDSA Year in Review, FOCUS-HD, HDSA Research Spotlight
Posted on February 9, 2023
HDSA publishes 2022 Year in Review Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which…
Read MoreHDSA Research Webinar & Research Opportunities
Posted on January 26, 2023
Register TODAY! HDSA Research Webinar on GENERATION HD2 Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…
Read MoreClinical Trials, Economic Impact of HD, & HD Advocacy
Posted on January 5, 2023
Clinical Trials Corner: End of Year Update from Dr. Ed Wild Last month, the Journal of Huntington’s Disease published…
Read MoreHappy Holidays from HDSA: Research Wrap-Up, Online Surveys & More
Posted on December 22, 2022
Happy Holidays from HDSA Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…
Read MoreHDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey
Posted on December 15, 2022
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD….
Read MoreNovartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications
Posted on December 8, 2022
Novartis Shares Update on VIBRANT-HD Today Novartis shared that they will end development of branaplam for HD. This difficult news…
Read MoreThank You Thursday, HD-ISS, and Gene Therapy 101
Posted on December 1, 2022
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
Read MoreCelebrate #GivingTuesday with HDSA
Posted on November 17, 2022
At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…
Read MoreHighlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day
Posted on November 10, 2022
Highlights from HSG’s Annual Meeting 2022 Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…
Read MoreHDSA Research Awards, Clinical Trials Updates & HD Podcasts
Posted on November 3, 2022
HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022 After thoughtful deliberation by its Scientific Advisory Board,…
Read MoreHDSA Research Webinar, HD Care, & HD History
Posted on October 27, 2022
HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial Last week, PTC Therapeutics shared that its Phase 2…
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