Research Fellowships, HDSA Convention, HDF Webinar
Posted on March 9, 2023
HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th! With a shared goal of developing the next generation…
Read MoreThe HDSA Podcast, ChANGE-HD, This Week in HD History
Posted on March 2, 2023
This Month on The HDSA Podcast Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…
Read MoreRare Disease Day, Teva’s Austedo-XR Approval, Research Survey
Posted on February 23, 2023
Celebrate Rare Disease Day with HDSA on February 28th When you have a rare disease, you face two battles –…
Read MoreHDSA Centers of Excellence, Research Webinar, GENERATION HD2
Posted on February 16, 2023
HDSA Names 56 Centers of Excellence and 11 Partner Sites in 2023 This week, HDSA announced its Center of…
Read MoreHDSA Year in Review, FOCUS-HD, HDSA Research Spotlight
Posted on February 9, 2023
HDSA publishes 2022 Year in Review Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which…
Read MoreHDSA Research Webinar & Research Opportunities
Posted on January 26, 2023
Register TODAY! HDSA Research Webinar on GENERATION HD2 Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…
Read MoreClinical Trials, Economic Impact of HD, & HD Advocacy
Posted on January 5, 2023
Clinical Trials Corner: End of Year Update from Dr. Ed Wild Last month, the Journal of Huntington’s Disease published…
Read MoreHappy Holidays from HDSA: Research Wrap-Up, Online Surveys & More
Posted on December 22, 2022
Happy Holidays from HDSA Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…
Read MoreHDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey
Posted on December 15, 2022
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD….
Read MoreNovartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications
Posted on December 8, 2022
Novartis Shares Update on VIBRANT-HD Today Novartis shared that they will end development of branaplam for HD. This difficult news…
Read MoreThank You Thursday, HD-ISS, and Gene Therapy 101
Posted on December 1, 2022
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
Read MoreCelebrate #GivingTuesday with HDSA
Posted on November 17, 2022
At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…
Read MoreHighlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day
Posted on November 10, 2022
Highlights from HSG’s Annual Meeting 2022 Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…
Read MoreHDSA Research Awards, Clinical Trials Updates & HD Podcasts
Posted on November 3, 2022
HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022 After thoughtful deliberation by its Scientific Advisory Board,…
Read MoreHDSA Research Webinar, HD Care, & HD History
Posted on October 27, 2022
HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial Last week, PTC Therapeutics shared that its Phase 2…
Read MoreClinical Trial News & New Online Survey
Posted on October 20, 2022
PTC Therapeutics provides enrollment update PTC Therapeutics shared a press release this week to confirm that enrollment is active and…
Read MoreHDSA Surveys & Support the HD Parity Act!
Posted on October 13, 2022
Participate in HDSA-Vetted Research Surveys Researchers, clinicians, healthcare professionals, and students studying HD frequently design surveys to get input from…
Read MoreThis Week’s Blog: 10.6.2022
Posted on October 6, 2022
HDBuzz on ASO headlines: What’s the latest on huntingtin-lowering? Recent weeks have brought news for familiar players in the…
Read MoreHD Buzz: Real talk with Roche on GENERATION-HD1
Posted on September 30, 2021
The editors of HD Buzz recently sat down with leaders from Roche to ask questions on behalf of the HD community…
Read MoreNew Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD
Posted on July 15, 2021
Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…
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