- HDSA publishes 2022 Year in Review
- FOCUS-HD: CHDI seeks to better understand functional ability changes in HD
- HDSA Researcher Spotlight: Dr. Yifat Glikmann-Johnston
HDSA publishes 2022 Year in Review
Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which features highlights from HDSA’s Mission-related programs and regional events as well as a recap of our research initiatives and scientific achievements in HD. For an overview of HDSA’s progress in 2022, click here.
FOCUS-HD: CHDI seeks to better understand functional ability changes in HD
CHDI Foundation, Inc., is conducting an online study to evaluate the Functional Rating Scale 2.0 (FuRST 2.0). The FuRST 2.0 is a new measure that is being developed to improve the assessment of Huntington’s disease’s (HD) impact on people’s functional abilities. Any person who is 18 years of age or older and self-identifies as having HD (e.g., gene positive pre- or post-clinical motor diagnosis) is invited to participate. The study involves responding to the FuRST 2.0 and two other short questionnaires. The study will take approximately 20 minutes to complete. No compensation is provided for participation. If you are interested in participating, please click here. If you have any questions about this study, please contact FOCUSOnlineStudy@chdifoundation.org.
HDSA Researcher Spotlight: Dr. Yifat Glikmann-Johnston
HDSA’s HD Human Biology Project Fellowship is a reflection of the Society’s commitment to community-centric research that supports development of effective therapies for people with HD. HDSA caught up with 2020 fellow, Dr. Yifat Glikmann-Johnston to learn more about her work, her motivation to study people with HD, and her goals for the future. To read Yifat’s full researcher spotlight, click here.