HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
Posted on June 30, 2022
The 2022 HDSA Berman-Topper Family HD Career Development Fellowship has been awarded to Dr. Sara Sameni (Salk Institute for Biological Sciences). These prestigious fellowships, made…
Read MoreuniQure announces positive safety data in study of AMT-130
Posted on June 23, 2022
uniQure announces positive safety data in study of AMT-130 uniQure released a safety update this morning for the first 10 participants…
Read MoreThank You, HDSA Convention Attendees!
Posted on June 16, 2022
It was a pleasure to see so many faces, familiar and new, in Atlanta for the 37th Annual HDSA Convention,…
Read MoreAnnexon Biosciences announces promising data in Phase 2 trial of ANX005
Posted on June 9, 2022
Earlier this week, Annexon Biosciences announced top-line results of their Phase 2 clinical trial of ANX005 for HD. ANX005 is an antibody administered via IV with the…
Read MoreThe 37th Annual HDSA Convention begins in ONE WEEK!
Posted on June 2, 2022
HDSA is excited to welcome the HD community to its 37th Annual Convention in Atlanta, GA in just one week! In-person…
Read MoreHD Awareness Month: HD in the Media, HD Stories, HD Parity Act, HDSA Convention and More
Posted on May 26, 2022
The month of May might be drawing to a close, but it’s not too late to turn up the volume on HD…
Read MoreHDBuzz: Can vitamins be used to treat symptoms of HD?
Posted on May 19, 2022
Researchers in Spain are studying whether a combination of vitamins approved to treat a different brain disorder, biotin-thiamine responsive basal ganglia…
Read MoreHDSA Awards Five Donald A. King Summer Research Fellowships
Posted on May 12, 2022
After extensive review by its Scientific Advisory Board, HDSA is excited to award the Donald A. King Summer Research Fellowship to five…
Read MoreHAPPY HD AWARENESS MONTH!
Posted on May 5, 2022
May is Huntington’s Disease Awareness Month, so #LetsTalkAboutHD. Post stories, videos, and photos to social media using #LetsTalkAboutHD. All stories…
Read MoreSupporting people with HD: Researcher Spotlight on Leonard Sokol, MD
Posted on April 28, 2022
The field of HD research is constantly evolving as scientists inch closer to treatments and cures for people affected by HD. But…
Read MoreThank you, HD Research Volunteers!
Posted on April 21, 2022
This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d like to express our heartfelt…
Read MoreParticipate in research at the HDSA Center of Excellence at Rush University
Posted on April 14, 2022
A group of researchers at the HDSA Center of Excellence at Rush University are studying how the brains of people…
Read MorePTC Therapeutics initiates recruitment of PIVOT-HD study
Posted on April 7, 2022
Last week, PTC Therapeutics announced the initiation of their phase 2 clinical trial, PIVOT-HD, evaluating the effects of PTC518 in…
Read MoreUpcoming Research Webinar: HDSA & the HD Research Pipeline Webinar April 6th
Posted on March 31, 2022
On April 6th at 12 PM ET, join HDSA’s Chief Mission Officer, Dr. Arik Johnson, and Assistant Director of Research and…
Read MoreHappy World Social Work Month!
Posted on March 24, 2022
The month of March is a time to celebrate and appreciate social workers for all they do! Social workers help…
Read MoreHDBuzz covers newly published research on branaplam
Posted on March 17, 2022
A study recently published in Nature detailed scientists’ understanding of how branaplam, a drug originally developed for treatment of spinal muscular atrophy…
Read MoreThe Editors of HDBuzz cover the CHDI Therapeutics Conference
Posted on March 10, 2022
For the first time in two years, scientists, clinicians, and industry partners convened in Palm Springs, CA for CHDI foundation’s 17th Annual HD Therapeutics Conference….
Read MoreHDBuzz Covers the CHDI Conference
Posted on March 3, 2022
CHDI is a privately funded HD research foundation whose mission is to further development of HD therapies. This week, they’re hosting…
Read MoreRaise Awareness of Rare Disease Day with HDSA February 28th
Posted on February 24, 2022
When you have a rare disease, you face two battles – one being the illness itself, and the other, living…
Read MoreQuick Question: Genetic Testing and Rare Disease
Posted on February 17, 2022
Check out HDSA’s new short video series, “Quick Question,” in which HDSA’s Jennifer Simpson, LCSW (Assistant Director of Youth &…
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