May is Huntington’s Disease Awareness Month, so #LetsTalkAboutHD. Post stories, videos, and photos to social media using #LetsTalkAboutHD. All stories are welcome – research included! Together we can spread awareness about Huntington’s disease. Learn more here.   

Also this month, On Saturday, May 14, 2022, HDSA will face-off against the Huntington Society of Canada (HSC) in the inaugural Huntington’s Disease Hockey Classic! These two organizations work tirelessly to support Huntington’s disease families across North America and will be coming together to raise much-needed funds & awareness in the fight against HD. To learn more, click here 

uniQure announces enrollment success in study of AMT-130 

Earlier this week, uniQure announced it has completed enrollment of a second participant cohort in the U.S. Phase I/II trial of AMT-130, the first experimental gene therapy to be tested in people with Huntington’s disease. uniQure also announced it has completed enrollment in the first cohort of the Phase Ib/II European study of AMT-130. In total, 32 participants across the globe have successfully completed the experimental procedure. uniQure plans to announce one-year safety data from all 10 patients in the first recruitment cohort of the U.S. arm of the study in quarter two of this year. 

Help make May 7th Brain Donation Awareness Day 

Representatives Earl Bumenaur (D-OR) and Brian Fitzpatrick (R-PA) recently introduced legislation to designate May 7th as Brain Donation Awareness Day. Brain tissue is critical to advance research on preventing and treating neurodegenerative disease; this designation will help raise awareness about the importance of brain donation to advance these scientific efforts that will benefit all people affected by neurodegenerative disease.  

A brain donation is an invaluable gift that anyone can make to further how we understand the brain and different diseases that affect it, like HD. To learn more about brain donation visit HDSA’s website, here, or watch the Congressional Neuroscience Caucus briefing on the importance of Brain Donation, hereHDSA will also be hosting a session on Brain Donation for HD Research at HDSA’s Convention, which will be live-streamed for free. You can register to attend Convention virtually or in person here