After extensive review by its Scientific Advisory Board, HDSA is excited to award the Donald A. King Summer Research Fellowship to five researchers. This program, named for former HDSA board chair and tireless advocate Donald King, who passed away in 2004, aims to prepare the next generation of Huntington’s disease (HD) scientists. HDSA is delighted to welcome this year’s award recipients to its research family. To learn more about the fellowship and the projects this year’s recipients will complete, click here.
FDA Launches New Program: “Accelerating Rare Disease Cures”
Earlier this week, the FDA’s Center for Drug Evaluation and Research announced that they have launched a new program, Accelerating Rare disease Cures (ARC). With a goal of driving scientific and regulatory innovation for rare disease therapeutics, the program aims to speed and increase development of effective and safe treatment options for individuals with a rare disease. To learn more about the program and hear Dr. Kerry Jo Lee, Associate Director for Rare Diseases at CDER’s Division of Rare Diseases and Medical Genetics, speak about its potential impacts, click here
HDSA Annual Convention Program Released! Sign up to attend today
The 37th Annual HDSA Convention is just 4 short weeks away! To see which speakers will join us in Atlanta, check out the HDSA Convention program here. If you haven’t already, you can still sign up to attend Convention virtually here.
Inaugural HD Hockey Classic
Join HDSA this HD Awareness Month as it takes on the Huntington’s Society of Canada (HSC) in the first annual HD Hockey Classic. The puck drops Saturday, May 14th at 1:30 PM ET at the RWJBarnabas Health Hockey House in Newark, New Jersey. If you can’t attend in person, you can still join in the fun by live streaming the game or participating in the Virtual Chuck-a-Puck contest. To learn more, click here.
Also in the month of May, keep up with HDSA’s 31 Days, 31 Stories videos in honor of HD Awareness Month. To watch the videos and learn more about how you can raise awareness, click here.