This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Now Accepting Applications for 2022 Berman-Topper and Donald A. King Research Fellowships

Posted on November 18, 2021

Earlier this week on November 16, HDSA launched applications for the 2022 cycles of its prestigious Berman-Topper Family HD Career…

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Webinar TODAY! Take Action and Support the HD Parity Act

Posted on November 11, 2021

We talk a lot about what we’re hopeful for tomorrow here in the research world, and it’s equally important to…

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Research Wrap-Up: HDBuzz Covers EHDN’s Annual Research Conference

Posted on November 4, 2021

In September, the European Huntington’s Disease Network brought together scientists and stakeholders from around the world for updates from experts in…

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HDSA Research Webinar 11/3/21: Register TODAY!

Posted on October 28, 2021

Dr. Jane Paulsen will join HDSA next week to discuss a new observational trial, PREVENT-HD, Preparing for the Prevention of Huntington’s…

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Prilenia Therapeutics and HSG announce completion of participant enrollment in PROOF-HD

Posted on October 21, 2021

In a recent press release, Prilenia Therapeutics and the Huntington’s Study Group (HSG) announced the completion of participant enrollment in PROOF-HD,…

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HDSA Awards Five Huntington’s Disease Human Biology Project Research Grants

Posted on October 14, 2021

After thoughtful deliberation by its Scientific Advisory Board, HDSA will award five the Huntington’s Disease Human Biology Project research grants to Joan O’Keefe,…

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Dr. Francis S. Collins to Step Down from Head of NIH

Posted on October 7, 2021

On Tuesday of this week, Francis S. Collins, MD, PhD, announced he would step down from his role as Director of the…

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HD Buzz: Real talk with Roche on GENERATION-HD1

Posted on September 30, 2021

The editors of HD Buzz recently sat down with leaders from Roche to ask questions on behalf of the HD community…

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HDSA Research Webinar TODAY!

Posted on September 23, 2021

Join HDSA TODAY at 12PM (ET) for the next HDSA Research Webinar! HDSA Human Biology Project Fellows Dr. Michael Placzek (Massachusetts General…

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Roche Regroups: New Partnerships forged in HD Research

Posted on September 16, 2021

After an unexpected dosing halt in the GENERATION-HD1 study nearly 6 months ago, Roche is gearing up to increase their…

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Wave Life Sciences begins SELECT-HD Trial

Posted on September 9, 2021

Wave Life Sciences shared a press release this morning announcing that dosing has begun in the SELECT-HD trial. The study…

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Advances in Gene Therapy: HDBuzz Covers Exciting New Regulatory System, Xon

Posted on September 2, 2021

Researchers at the Children’s Hospital of Philadelphia have created a system to better regulate gene editing by administration of a secondary activator drug. This novel system, dubbed Xon, acts…

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KINECT-HD2: Rollover Study of Valbenazine for Chorea in HD

Posted on August 26, 2021

KINECT-HD2, the open-label extension of KINECT-HD, is seeking 30 new participants to join a study of valbenazine for chorea in Huntington’s disease….

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HDBuzz on Recent News in the HD Research Pipeline

Posted on August 19, 2021

The August 9th press release from Voyager Therapeutics left many of us scratching our heads. Luckily, HDBuzz swooped in with their latest…

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Voyager Therapeutics Shifts Directions

Posted on August 12, 2021

Voyager Therapeutics issued a press release on Monday about their finances, recent leadership transitions, and importantly, a major shift in their…

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HD Parity Act and Pro-Patient Advocacy in the Neurological Disease Community

Posted on August 5, 2021

Last week, Kala Booth, a Huntington’s disease patient, caregiver, advocate, and the 4th known generation in her family to test HD positive appeared before the House…

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HD Advocate Testifies on HD Parity Act

Posted on July 29, 2021

Kala Booth, a Huntington’s disease positive individual and caregiver to her mother, will appear TODAY before the House Committee on Energy & Commerce subcommittee on neurodegenerative diseases. Kala…

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Now Accepting Letters of Intent for 2022 HDSA Centers of Excellence!

Posted on July 22, 2021

HDSA Centers of Excellence provide comprehensive multidisciplinary clinical services to families affected by HD, including neurology, psychology, genetic counseling/testing, social…

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New Biomarkers to Track Disease-Modifying Therapies in Pre-manifest HD

Posted on July 15, 2021

Much of today’s efforts in HD research are focused on lowering huntingtin protein in early stages of the disease. Ideally, clinicians could begin…

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Recorded Sessions From The HDSA Convention Are Now Available

Posted on July 8, 2021

The Virtual 36th Annual HDSA Convention was a spectacular time for researchers, clinicians, family members, and affected individuals to come together for…

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