At-Home DNA Kits Require Caution
Posted on July 26, 2018
At-home DNA kits like 23 & Me are growing in popularity, and claim to provide information about your health and…
Read MorePipeline of Therapies for HD
Posted on July 19, 2018
The Rare Disease Report covers stories about medicine, finance, and advocacy in rare disease fields. Last week an article explored…
Read MoreDNA Repair Research Uncovers New Drug Targets
Posted on July 12, 2018
Researchers led by Ray Truant at McMaster University in Canada are investigating how DNA repair could help correct some of…
Read MoreResearch Highlights from the 33rd Annual HDSA Convention
Posted on July 5, 2018
As we ease into the summer, enjoy some highlights from our research sessions at HDSA’s 33rd Annual Convention in Los…
Read MoreHDSA’s 33rd Annual Convention Research Forum Video Now Available
Posted on June 14, 2018
HDSA’s 33rd Annual Convention in Los Angeles from June 7th-9th included the 2018 Research Forum, where ten speakers collaborated to tell…
Read MoreHDSA Convention Research Forum
Posted on June 7, 2018
This week we’re hosting the 33rd Annual HDSA Convention in Los Angeles, California. Tune in to the livestream of our Research Forum…
Read MoreHuntington’s Disease Featured in Nature Outlook
Posted on May 31, 2018
The prestigious journal Nature publishes both research reports and journalistic articles, and is widely read by scientists and non-scientists. This…
Read MoreParticipate in a Research Study at the HDSA Convention
Posted on May 24, 2018
If you are negative for the HD gene, currently participate in Enroll-HD, and will be attending HDSA’s Convention in June,…
Read MoreHDSA Announces 2018 Berman-Topper HD Career Development Fellowship Recipient
Posted on May 17, 2018
The 2018 HDSA Berman-Topper fellowship has been awarded to Dr. Rachel Harding for her proposal entitled “Structural and biophysical investigations…
Read MoreMay is HD Awareness Month
Posted on May 10, 2018
Join the #HDSAFamily as we turn up the global volume on HD awareness. Visit www.HDSA.org/letstalkaboutHD for more info. Don’t forget…
Read MorePositive Trends in Data from Ionis Huntingtin-Lowering Trial
Posted on May 3, 2018
On April 24th, 2018, Ionis Pharmaceuticals made an announcement about the Phase 1/2 clinical trial of their huntingtin-lowering drug, IONIS-HTTRx…
Read MoreIonis/Roche Present Trial Data at World’s Largest Neurology Conference
Posted on April 26, 2018
Huntington’s disease was featured this week at the American Academy of Neurology (AAN) Conference, where 12,000 medical professionals gathered for…
Read MoreAppreciating Research Volunteers
Posted on April 19, 2018
This week HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d like to express our heartfelt…
Read MoreResearch Forum at HDSA’s 33rd Annual Convention
Posted on April 12, 2018
Huntington’s disease research plays a big role at our annual Convention, which is taking place this year on June 7th-9th…
Read MoreInterview Study for Parents and Adolescents about Genetic Risk
Posted on April 5, 2018
If you are 15-17 years old or are the parent of a 15-17 year old, consider participating in an interview…
Read MoreHDSA’s Human Biology Project
Posted on March 29, 2018
The identification of the HD gene led to the development of many animal models that have helped us to better…
Read More25th Anniversary of Discovering the HD gene
Posted on March 22, 2018
This week marks 25 years since the identification of the gene that causes Huntington’s disease. The discovery of the repeating…
Read MoreNew Partnership to Advance Treatments for Brain Disease
Posted on March 15, 2018
On Monday, HDSA announced a partnership with the ALS Association and Teva Pharmaceuticals on a project to help identify new…
Read MoreInterpreting this Week’s News: Data from the First Phase of the Ionis-Roche Trial
Posted on March 8, 2018
This week, Ionis Pharmaceuticals shared data from the successful safety trial for their huntingtin-lowering drug. The data confirms what was…
Read MoreCHDI’s Huntington’s Disease Conference in Palm Springs
Posted on March 1, 2018
This week in Palm Springs, California marks the 13th Annual HD Therapeutics Conference. This yearly conference draws academic and industry…
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