Today in HD History, HDSA Disability Advocacy Survey, Webinar on Brain Imaging in HD
Posted on April 13, 2023
Today in HD history On April 13th, 1872, George Huntington published a paper called “On Chorea,” describing the disease that…
Read MoreHD Buzz on the Brain, Vico begins dosing, New Podcast
Posted on April 6, 2023
How does an HD brain find balance? HD Buzz covers the latest clues It is well known that Huntington’s disease…
Read MorePROOF-HD, Rare Patient Voice, This Week in HD History
Posted on March 30, 2023
Last Participant Completes the PROOF-HD Study This week, Prilenia Therapeutics shared a press release announcing the completion of the last…
Read MoreHD gene discovery, Genetic Testing Motivation survey, Novartis News
Posted on March 23, 2023
This Month in HD Research: 30 Year anniversary of the discovery of the HD gene On March 26th, 1993, the discovery of…
Read MoreHuman Biology Project, HDBuzz on Help4HD, HD Research Pipeline
Posted on March 16, 2023
Now Accepting LOIs for HDSA’s HD Human Biology Project Fellowship HDSA is proud to announce the 2023 Request for Proposals…
Read MoreResearch Fellowships, HDSA Convention, HDF Webinar
Posted on March 9, 2023
HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th! With a shared goal of developing the next generation…
Read MoreThe HDSA Podcast, ChANGE-HD, This Week in HD History
Posted on March 2, 2023
This Month on The HDSA Podcast Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…
Read MoreRare Disease Day, Teva’s Austedo-XR Approval, Research Survey
Posted on February 23, 2023
Celebrate Rare Disease Day with HDSA on February 28th When you have a rare disease, you face two battles –…
Read MoreHDSA Centers of Excellence, Research Webinar, GENERATION HD2
Posted on February 16, 2023
HDSA Names 56 Centers of Excellence and 11 Partner Sites in 2023 This week, HDSA announced its Center of…
Read MoreHDSA Year in Review, FOCUS-HD, HDSA Research Spotlight
Posted on February 9, 2023
HDSA publishes 2022 Year in Review Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which…
Read MoreResearch Webinars, HDSA Podcast, and HD in the Brain
Posted on February 2, 2023
HDSA Presents: February Research Webinars with Roche and Novartis This month, HDSA has not one, but TWO research webinars…
Read MoreHDSA Research Webinar & Research Opportunities
Posted on January 26, 2023
Register TODAY! HDSA Research Webinar on GENERATION HD2 Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…
Read MoreHDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series
Posted on January 19, 2023
Registration for the 38th Annual HDSA Convention is now open! Join us in New Orleans, Louisiana, from June 1-3…
Read MoreRoche/Genentech Community Letter and More Survey Study Opportunities in the New Year
Posted on January 12, 2023
Roche/Genentech Community Letter: GENERATION HD2 Study Now Open On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…
Read MoreClinical Trials, Economic Impact of HD, & HD Advocacy
Posted on January 5, 2023
Clinical Trials Corner: End of Year Update from Dr. Ed Wild Last month, the Journal of Huntington’s Disease published…
Read MoreHappy Holidays from HDSA: Research Wrap-Up, Online Surveys & More
Posted on December 22, 2022
Happy Holidays from HDSA Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…
Read MoreHDBuzz, STAT News, Ask the Scientists, & More
Posted on December 15, 2022
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD. Dosing of…
Read MoreHDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey
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HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD….
Read MoreNovartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications
Posted on December 8, 2022
Novartis Shares Update on VIBRANT-HD Today Novartis shared that they will end development of branaplam for HD. This difficult news…
Read MoreThank You Thursday, HD-ISS, and Gene Therapy 101
Posted on December 1, 2022
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
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