Pridopidine update, HDBuzz on Brains, Interview Study
Posted on March 14, 2024
Update from Prilenia: Pursuing pridopidine for HD Earlier this week, Prilenia issued a press release and community letter announcing…
Read MoreCHDI Updates: Experts and Advocates; Research Webinar
Posted on March 7, 2024
HDBuzz Updates from the 2024 HD Therapeutics Conference Last week, from February 26th – March 1st, HD researchers from…
Read MoreRare Disease Day, CHDI, Convention Scholarships
Posted on February 22, 2024
Celebrate Rare Disease Day with HDSA on February 29th When you have a rare disease, you face two battles –…
Read More2024 HDSA COE Awards, CRISPR News, Research Webinar
Posted on February 15, 2024
HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024 This week, HDSA announced its Centers of…
Read MoreConvention Scholarships, Research Webinar, DNA Repair
Posted on February 8, 2024
HDSA Convention Scholarship Applications due March 1st Join HDSA in Spokane, Washington from May 30th – June 1st for…
Read MoreResearch Webinar with uniQure, Online Surveys
Posted on February 1, 2024
Upcoming Research Webinar: uniQure discusses AMT-130 Join HDSA on February 13th for a research webinar in which uniQure will present…
Read MoreNeurocrine on INGREZZA, HD-CHARGE, HDBuzz on family planning
Posted on January 18, 2024
Neurocrine discusses INGREZZA with HDSA Last month, HDSA hosted a research webinar with Neurocrine Biosciences, Inc. to discuss INGREZZA, their new…
Read MoreResearch Participation, Trial Stats, Upcoming Webinar
Posted on January 11, 2024
Interested in HD Research? Get Connected with Opportunities to Participate! If you’re interested in learning more in 2024 about HD…
Read MoreHDSA Convention, HDSA-funded research spotlight, New research partnerships
Posted on January 4, 2024
Registration for HDSA’s 39th Annual Convention is now open! Join HDSA in Spokane, Washington, from May 30-June 1, 2024 for…
Read MoreHDSA Research Fellowships, Clinical Trial Updates, Survey
Posted on December 21, 2023
Applications open for the HDSA Berman-Topper and Donald King Fellowships HDSA has launched applications for the 2024 cycles of its…
Read MoreTominersen development continues, Research participation
Posted on December 14, 2023
Continued development of Roche’s huntingtin-lowering drug tominersen Last week, Roche published the results of the GENERATION HD1 study that closed…
Read MoreResearch Fellowships, The Marker, Somatic Expansion
Posted on December 7, 2023
HDSA Awards Six HD Human Biology Project Research Fellowships for 2023 After thoughtful deliberation by its Scientific Advisory Board,…
Read MoreResearch Participation Opportunities & Upcoming Webinar
Posted on November 30, 2023
Online Surveys: Participate in HD Research from home! Online surveys are a great way to make your voice heard…
Read MoreGiving Tuesday, HD Out-of-the-Box, Somatic Instability
Posted on November 23, 2023
Celebrate Giving Tuesday with HDSA! At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of…
Read MoreVICO Therapeutics, INGREZZA update, HD Faculty Opening
Posted on November 16, 2023
VICO Therapeutics on Help4HD Podcast Last week on the Help4HD podcast, host Lauren Holder was joined by Dr. Katja…
Read MoreHSG Annual Meeting, HDF Webinar, Genetic Counselor Day
Posted on November 9, 2023
Updates from the Huntington Study Group Annual Meeting Last week, members of HDSA’s team joined HD clinicians, researchers, and family…
Read MoreHD History, Genetic Testing, HD Voices
Posted on November 3, 2023
This Week in HD History Early November holds two historic milestones in HD research. The first occurred in 1985 before…
Read MoreResearch Participation, HD Research 101, SAGE-718 News
Posted on October 27, 2023
Participate in HD research: Online surveys, observational studies, & more There are dozens of opportunities to participate in HD…
Read MorePlants in HD, Research Webinar, GENERATION HD2 podcast
Posted on October 19, 2023
Could plants hold seeds for new HD treatments? HDBuzz reports Researchers are using plants to look for new routes to…
Read MoreHD Buzz on MSH3, HDSA COEs, Research Study
Posted on October 12, 2023
Somatic Instability: HD Buzz reports what’s with all the hype about MSH3 A group of scientists at UMass Chan Medical…
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