Tracks of HD tears, Genetic testing impacts, HD history
Posted on April 11, 2024
Tracks of HD Tears: HD Buzz on new markers of HD progression Researchers from Germany and the Netherlands have been…
Read MorePostcard from Dubrovnik, History of Observational Studies, Cell Transplants to Treat HD
Posted on August 3, 2023
Postcard from Dubrovnik In April of 2023, more than 400 scientists from around the world met in Dubrovnik Croatia for…
Read MoreToday in HD History, HDSA Disability Advocacy Survey, Webinar on Brain Imaging in HD
Posted on April 13, 2023
Today in HD history On April 13th, 1872, George Huntington published a paper called “On Chorea,” describing the disease that…
Read MoreResearch Webinars, HDSA Podcast, and HD in the Brain
Posted on February 2, 2023
HDSA Presents: February Research Webinars with Roche and Novartis This month, HDSA has not one, but TWO research webinars…
Read MoreHDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series
Posted on January 19, 2023
Registration for the 38th Annual HDSA Convention is now open! Join us in New Orleans, Louisiana, from June 1-3…
Read MoreRoche/Genentech Community Letter and More Survey Study Opportunities in the New Year
Posted on January 12, 2023
Roche/Genentech Community Letter: GENERATION HD2 Study Now Open On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…
Read MoreHDBuzz, STAT News, Ask the Scientists, & More
Posted on December 15, 2022
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD. Dosing of…
Read MoreThis Week’s Blog: 9.29.22
Posted on September 29, 2022
Summer Research Recap This summer was full of ups and downs in HD research. Following a research webinar in August that recapped challenging clinical trials…
Read MoreThis Week’s Blog: 9.22.22
Posted on September 22, 2022
Wave Life Sciences announces positive results from SELECT-HD Earlier this week, Wave Life Sciences shared a positive update from the…
Read MoreCelebrate HDSA Founder’s Day on September 18th
Posted on September 15, 2022
55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…
Read MoreHDSA Research Webinar Recording: All you need to know about PROOF-HD
Posted on September 8, 2022
This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…
Read MoreHDSA webinar Sept 7th: All you Need to Know About PROOF-HD
Posted on September 1, 2022
In its Phase III trial, PROOF-HD, Prilenia is currently studying the effects of pridopidine on total functional capacity in people with HD. On…
Read MoreNovartis releases community update on VIBRANT-HD
Posted on August 25, 2022
This week, Novartis released a community update on VIBRANT-HD, the phase 2b study of branaplam in adults with HD. The statement…
Read MoreHDSA Centers of Excellence program now accepting LOI’s for 2023 designation
Posted on August 18, 2022
HDSA Centers of Excellence program now accepting LOI’s for 2023 designation HDSA’s Centers of Excellence (COE) Program is the…
Read More#LetsTalkAboutHD Clinical Trials
Posted on August 11, 2022
Multiple pieces of news about ongoing clinical trials were shared this week by companies developing therapies for HD. We discuss…
Read MoreHDSA Center of Excellence Directors discuss biomarkers for HD
Posted on August 4, 2022
Neurofilament Light Chain (NfL) is a structural protein found in brain cells. In neurodegenerative diseases, circulating levels of NfL tend to be…
Read MoreENROLL-HD Celebrates 10-year Anniversary
Posted on July 28, 2022
On July 25, 2012, the first participant entered ENROLL-HD, the world’s largest observational study of Huntington’s disease that monitors how the disease…
Read MoreHD Buzz Roundtable: HD Scientists talk research with Help4HD
Posted on July 21, 2022
In a new series on the Help4HD podcast, host Lauren Holder will meet with members of the HDBuzz editorial staff…
Read MoreNow Streaming: Recordings from the 37th Annual HDSA Convention are LIVE!
Posted on July 14, 2022
Whether you were unable to join us this year for Convention or just want to brush up on what you learned,…
Read MoreUnpacking uniQure’s safety data: HDBuzz breaks down AMT-130 updates
Posted on July 7, 2022
Two weeks ago, uniQure released a safety update for the first 10 participants in the low-dose cohort of the phase I/II trial…
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