Throwback Thursday: This Week in HD History
Posted on August 6, 2020
The exact sequence and location of the gene that causes Huntington’s disease was published in 1993, but the hunt had…
Read MoreBecoming an HDSA Center of Excellence
Posted on July 30, 2020
This week, HDSA began soliciting Letters of Interest from Huntington’s disease clinics that would like to be considered for HDSA Center…
Read MoreTriplet Therapeutics: Clinical Candidate and Natural History Study
Posted on July 23, 2020
One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…
Read MoreHuntington’s Disease Featured on ABC News
Posted on July 16, 2020
Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…
Read MoreExplore Huntingtin in 3D
Posted on July 2, 2020
HDSA Berman-Topper Fellow Dr. Rachel Harding has been working on understanding the shape of the huntingtin protein and how it interacts with other proteins. She…
Read MoreFirst HD Patients Dosed in uniQure Gene Therapy Study
Posted on June 25, 2020
This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…
Read MoreVirtual HDSA Convention: Research Recap
Posted on June 17, 2020
HDSA’s Virtual 35th Annual Convention included forty sessions in four days, and the HD Community came out in full force. More than…
Read MoreThank You for Participating in Virtual HDSA Convention
Posted on June 11, 2020
We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…
Read MoreVirtual HDSA Convention is This Week!
Posted on June 4, 2020
The 2020 HDSA Convention is this week, and it’s happening virtually. Below is the research-related programming that requires registration. Follow…
Read MoreHDSA Announces Recipient of the 2020 Berman-Topper HD Career Development Fellowship
Posted on May 28, 2020
The 2020 HDSA Berman-Topper fellowship has been awarded to Dr. Yasaman Gholamalipour for her proposal entitled “Development and delivery of CRISPR-Cas9 nickases to correct…
Read MoreVirtual HDSA Convention Research Forum
Posted on May 21, 2020
HDSA’s 2020 Convention has gone virtual, and participation is free – though registration for some of the sessions is required due to limited space. Virtual…
Read MoreUpcoming HDSA Research Webinar
Posted on May 13, 2020
We are excited about an upcoming HDSA research webinar this coming Tuesday, May 19th at 12 PM Eastern. This work, presented by Annexon Biosciences, was born out of studies conducted by HDSA…
Read MoreHDSA Awards Five 2020 Donald King Fellowships
Posted on May 7, 2020
HDSA’s Donald King Summer Research Fellowship is an opportunity for undergraduates with an interest in Huntington’s disease research to complete…
Read MoreExercise & HD
Posted on April 30, 2020
Exercise has gotten a lot of media attention in the recent past as a way for people with neurological disorders…
Read MoreMay Is Huntington’s Disease Awareness Month
Posted on April 23, 2020
#LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month in May to encourage families to share their experiences…
Read MoreHDSA’s Coffee Walk with Dr. George Yohrling
Posted on April 16, 2020
HDSA’s Coffee Walk is a series of video conversations between Chris Cosentino, Director of Marketing & Communications, and other members…
Read MorePBS Airs “The Gene: An Intimate History”
Posted on April 9, 2020
Huntington’s disease is featured in Part 1 of the Ken Burns film The Gene: An Intimate History, which aired this week on…
Read MoreHuman Biology Project Now Accepting Letters of Intent
Posted on April 2, 2020
Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD…
Read MoreAnniversary of Discovery of the HD Gene
Posted on March 26, 2020
Today, March 26th, in 1993, the discovery of the CAG repeat mutation that causes Huntington’s disease was published. The authors were the Huntington’s Disease Collaborative Research Group, an…
Read MoreLouise Vetter Discusses HDSA’s HD Trialfinder
Posted on March 19, 2020
HDSA’s President and CEO Louise Vetter spoke on Friday, March 13th with James Valvano of We Have a Face, an organization dedicated to broadening global…
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