Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD Human Biology Project, is accepting letters of intent. The goal of this program, launched in 2013, is to foster innovative research in humans or human tissues, in collaboration with HDSA Centers of Excellence or other HD clinics around the US and the globe. The application is open to any scientist regardless of position or title, and ideas and applications from non-scientists are also encouraged.  


HD TrialFinder Update 

Due to the unprecedented COVID-19 pandemic, many Huntington’s disease clinical trials have paused new enrollment, including Enroll-HD. However, you can still use HD TrialFinder to learn about ongoing studies, match to trials, and contact researchers to discuss future participation. Given the circumstances, please be patient when awaiting a response from study coordinators. HDSA is advising study participants to follow the advice provided by their clinical trial site and site team members and abide by any guidance issued by the local authorities. 


Massachusetts HD Research Study: SPECTRUM 

A new research study at Massachusetts General Hospital called SPECTRUM will be recruiting starting this summer/fall. Although many studies are on hold due to COVID-19, now is a great time to reach out to the coordinators and learn more about participating in the future.  


This is a paid once-yearly study with a total of four visits over the course of three years. Adults over 18 who are HD-positive, HD-negative, or at risk for HD are eligible. For more information see the study flyer 


Massachusetts General Hospital is one of the 50 HDSA Centers of Excellence that provide an elite team approach to HD care and research.