Summer Survey Extravaganza: Participate today!
Posted on July 20, 2023
Summer Survey Extravaganza Summertime means dodging heatwaves between beach days, ice cream sundaes, and now, online surveys! HDSA works with…
Read MoreConvention Videos Live, NIH Funds HD, AD Drug Approval
Posted on July 13, 2023
2023 HDSA Annual Convention content now available online Whether you were unable to join us for this year’s Annual Convention…
Read MoreResearch from HDSA Fellows, Global HD News
Posted on July 6, 2023
Publications from HDSA Berman-Topper Fellows Dr. Rachel Harding received the 2018 Berman-Topper Fellowship for her work on the structure…
Read MoreParticipate in Research, HD History, Scientific Optimism
Posted on June 29, 2023
Participate in HD Research: HD Data Collection Initiative, HD Trialfinder, and more Deciding whether to participate in research and…
Read MoreClinical Research Updates, CHDI Therapeutics Conference, Up & Coming HD Scientists
Posted on June 22, 2023
Clinical Trials News: positive updates from uniQure and PTC Therapeutics This week, we had two updates from major players…
Read MoreDisability Umbrella, Research Awards, & Brain Health
Posted on June 15, 2023
The Disability Umbrella with Allison Bartlett, Esq In her weekly blog, HDSA’s resident expert on social security disability, Allison Bartlett,…
Read MoreHDSA Convention, Research Participation, HDF Webinar
Posted on June 8, 2023
Thank you for attending HDSA’s 38th Annual Convention! HDSA was delighted to welcome over 800 attendees to this year’s…
Read MoreResearch Fellows, HD Awareness, Annual Convention
Posted on May 25, 2023
HDSA Awards 2023 Berman-Topper Family HD Career Development Fellowship This week, HDSA announced the newest recipient of the Berman-Topper Family…
Read MoreResearch Support, HD Data Collection Initiative, Clinical Trials Day
Posted on May 18, 2023
Supporting HD families through the ups and downs of clinical trials Clinical trials are critical for getting us closer…
Read MoreHD & Mental Health, Research Webinar, 2023 trials
Posted on May 11, 2023
May Awareness: Mental Health and HD May is Huntington’s Disease Awareness Month, and HDSA needs your help to turn up…
Read MoreHD Research Webinar, HD Awareness, & Youth Research
Posted on May 4, 2023
HDSA & HSC Research Webinar TOMORROW Tomorrow at 1PM ET, HDSA and the Huntington’s Society of Canada (HSC) will co-host…
Read MoreCHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial
Posted on April 27, 2023
CHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial The CHDI Therapeutics conference is ongoing this week in Dubrovnik,…
Read MoreThank you Volunteers, Buzz on brain cells, Next Week in HD
Posted on April 20, 2023
Thank you, HD Research Volunteers! This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d…
Read MoreToday in HD History, HDSA Disability Advocacy Survey, Webinar on Brain Imaging in HD
Posted on April 13, 2023
Today in HD history On April 13th, 1872, George Huntington published a paper called “On Chorea,” describing the disease that…
Read MoreHD Buzz on the Brain, Vico begins dosing, New Podcast
Posted on April 6, 2023
How does an HD brain find balance? HD Buzz covers the latest clues It is well known that Huntington’s disease…
Read MorePROOF-HD, Rare Patient Voice, This Week in HD History
Posted on March 30, 2023
Last Participant Completes the PROOF-HD Study This week, Prilenia Therapeutics shared a press release announcing the completion of the last…
Read MoreHD gene discovery, Genetic Testing Motivation survey, Novartis News
Posted on March 23, 2023
This Month in HD Research: 30 Year anniversary of the discovery of the HD gene On March 26th, 1993, the discovery of…
Read MoreHuman Biology Project, HDBuzz on Help4HD, HD Research Pipeline
Posted on March 16, 2023
Now Accepting LOIs for HDSA’s HD Human Biology Project Fellowship HDSA is proud to announce the 2023 Request for Proposals…
Read MoreResearch Fellowships, HDSA Convention, HDF Webinar
Posted on March 9, 2023
HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th! With a shared goal of developing the next generation…
Read MoreThe HDSA Podcast, ChANGE-HD, This Week in HD History
Posted on March 2, 2023
This Month on The HDSA Podcast Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…
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