This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Sage Update, HD Research Webinar, Blood Brain Barrier

Posted on June 13, 2024

Sage Therapeutics announces SURVEYOR update   Earlier this week, Sage Therapeutics announced the results of the SURVEYOR trial of a…

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Convention, uniQure news, HTT-lowering & CAG Expansion, Talking HD  

Posted on June 6, 2024

HDSA’s 39th Annual Convention  Last week, HDSA welcomed over 750 members of the HD community to Spokane, WA for its…

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International Clinical Trials Day, Postcard from Palm Springs, MyHDStory Results

Posted on May 23, 2024

This Week in Research History: International Clinical Trials Day May 20th is recognized as Clinical Trials Day to commemorate what…

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HD Awareness Day, Today in HD History , HDBuzz at HDA

Posted on May 16, 2024

International HD Awareness Day   The global Huntington’s Disease community celebrates May 15 as the International Huntington’s Disease Awareness Day, a…

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Brain Donation & Mental Health Awareness, CHDI online

Posted on May 9, 2024

Brain Donation Awareness Day   HD is frequently studied in animal models that reveal important information about the disease, but…

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HD Awareness Month, INGREZZA Update, Research Webinar

Posted on May 2, 2024

Happy HD Awareness Month!    May is Huntington’s Disease Awareness Month, and we need your help to turn up the volume…

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New Research on CAGs, The HDSA Podcast, Online Surveys

Posted on April 25, 2024

HDBuzz: “How many is too many?” New research on CAGs   HD is caused by an expansion of C-A-Gs in the…

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SAGE-718 on Help4HD, TEVA on AUSTEDO, PolyQ research

Posted on April 18, 2024

Help4HD discusses SAGE-718  Cognitive changes are a frequent early symptom of HD that can have major impacts on quality of…

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Tracks of HD tears, Genetic testing impacts, HD history

Posted on April 11, 2024

Tracks of HD Tears: HD Buzz on new markers of HD progression  Researchers from Germany and the Netherlands have been…

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Talk on Tau, Research Webinar, HD on TEDxBath Stage

Posted on April 4, 2024

The Talk on Tau: Cognitive changes in HD  The onset of HD symptoms varies; even individuals with the same number…

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2024 Human Biology Project Launch, HD History, The Buzz on CAG’s

Posted on March 28, 2024

HDSA Launches 2024 HD Human Biology Project Letter of Intent  HDSA is proud to announce the 2024 Request for Proposals…

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This Week in HD Research, Survey Opportunities

Posted on March 21, 2024

This Week in HD Research: Discovery of the HD Gene and HD Gratitude Day  On March 26th, 1993, the discovery…

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Pridopidine update, HDBuzz on Brains, Interview Study

Posted on March 14, 2024

Update from Prilenia: Pursuing pridopidine for HD   Earlier this week, Prilenia issued a press release and community letter announcing…

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CHDI Updates: Experts and Advocates; Research Webinar

Posted on March 7, 2024

HDBuzz Updates from the 2024 HD Therapeutics Conference   Last week, from February 26th – March 1st, HD researchers from…

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Rare Disease Day, CHDI, Convention Scholarships

Posted on February 22, 2024

Celebrate Rare Disease Day with HDSA on February 29th   When you have a rare disease, you face two battles –…

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2024 HDSA COE Awards, CRISPR News, Research Webinar

Posted on February 15, 2024

HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024    This week, HDSA announced its Centers of…

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Convention Scholarships, Research Webinar, DNA Repair

Posted on February 8, 2024

HDSA Convention Scholarship Applications due March 1st    Join HDSA in Spokane, Washington from May 30th – June 1st for…

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Research Webinar with uniQure, Online Surveys

Posted on February 1, 2024

Upcoming Research Webinar: uniQure discusses AMT-130  Join HDSA on February 13th for a research webinar in which uniQure will present…

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Neurocrine on INGREZZA, HD-CHARGE, HDBuzz on family planning

Posted on January 18, 2024

Neurocrine discusses INGREZZA with HDSA  Last month, HDSA hosted a research webinar with Neurocrine Biosciences, Inc. to discuss INGREZZA, their new…

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Research Participation, Trial Stats, Upcoming Webinar

Posted on January 11, 2024

Interested in HD Research? Get Connected with Opportunities to Participate!   If you’re interested in learning more in 2024 about HD…

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