HDSA Research Webinar & Research Opportunities
Posted on January 26, 2023
Register TODAY! HDSA Research Webinar on GENERATION HD2 Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…
Read MoreHDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series
Posted on January 19, 2023
Registration for the 38th Annual HDSA Convention is now open! Join us in New Orleans, Louisiana, from June 1-3…
Read MoreRoche/Genentech Community Letter and More Survey Study Opportunities in the New Year
Posted on January 12, 2023
Roche/Genentech Community Letter: GENERATION HD2 Study Now Open On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…
Read MoreClinical Trials, Economic Impact of HD, & HD Advocacy
Posted on January 5, 2023
Clinical Trials Corner: End of Year Update from Dr. Ed Wild Last month, the Journal of Huntington’s Disease published…
Read MoreHappy Holidays from HDSA: Research Wrap-Up, Online Surveys & More
Posted on December 22, 2022
Happy Holidays from HDSA Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…
Read MoreHDBuzz, STAT News, Ask the Scientists, & More
Posted on December 15, 2022
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD. Dosing of…
Read MoreHDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey
Posted on
HDBuzz Covers Latest Update from Novartis Last week, Novartis shared that they will end development of branaplam for HD….
Read MoreNovartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications
Posted on December 8, 2022
Novartis Shares Update on VIBRANT-HD Today Novartis shared that they will end development of branaplam for HD. This difficult news…
Read MoreThank You Thursday, HD-ISS, and Gene Therapy 101
Posted on December 1, 2022
Happy Thank You Thursday from HDSA Support from HD families like you is what allows HDSA to fight for a…
Read MoreCelebrate #GivingTuesday with HDSA
Posted on November 17, 2022
At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…
Read MoreHighlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day
Posted on November 10, 2022
Highlights from HSG’s Annual Meeting 2022 Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…
Read MoreHDSA Research Awards, Clinical Trials Updates & HD Podcasts
Posted on November 3, 2022
HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022 After thoughtful deliberation by its Scientific Advisory Board,…
Read MoreHDSA Research Webinar, HD Care, & HD History
Posted on October 27, 2022
HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial Last week, PTC Therapeutics shared that its Phase 2…
Read MoreClinical Trial News & New Online Survey
Posted on October 20, 2022
PTC Therapeutics provides enrollment update PTC Therapeutics shared a press release this week to confirm that enrollment is active and…
Read MoreHDSA Surveys & Support the HD Parity Act!
Posted on October 13, 2022
Participate in HDSA-Vetted Research Surveys Researchers, clinicians, healthcare professionals, and students studying HD frequently design surveys to get input from…
Read MoreThis Week’s Blog: 10.6.2022
Posted on October 6, 2022
HDBuzz on ASO headlines: What’s the latest on huntingtin-lowering? Recent weeks have brought news for familiar players in the…
Read MoreThis Week’s Blog: 9.29.22
Posted on September 29, 2022
Summer Research Recap This summer was full of ups and downs in HD research. Following a research webinar in August that recapped challenging clinical trials…
Read MoreThis Week’s Blog: 9.22.22
Posted on September 22, 2022
Wave Life Sciences announces positive results from SELECT-HD Earlier this week, Wave Life Sciences shared a positive update from the…
Read MoreCelebrate HDSA Founder’s Day on September 18th
Posted on September 15, 2022
55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…
Read MoreHDSA Research Webinar Recording: All you need to know about PROOF-HD
Posted on September 8, 2022
This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…
Read More