This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Rare Disease Day, CHDI, Convention Scholarships

Posted on February 22, 2024

Celebrate Rare Disease Day with HDSA on February 29th   When you have a rare disease, you face two battles –…

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2024 HDSA COE Awards, CRISPR News, Research Webinar

Posted on February 15, 2024

HDSA Names 57 Centers of Excellence and 11 Partner Sites in 2024    This week, HDSA announced its Centers of…

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Convention Scholarships, Research Webinar, DNA Repair

Posted on February 8, 2024

HDSA Convention Scholarship Applications due March 1st    Join HDSA in Spokane, Washington from May 30th – June 1st for…

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Research Webinar with uniQure, Online Surveys

Posted on February 1, 2024

Upcoming Research Webinar: uniQure discusses AMT-130  Join HDSA on February 13th for a research webinar in which uniQure will present…

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Neurocrine on INGREZZA, HD-CHARGE, HDBuzz on family planning

Posted on January 18, 2024

Neurocrine discusses INGREZZA with HDSA  Last month, HDSA hosted a research webinar with Neurocrine Biosciences, Inc. to discuss INGREZZA, their new…

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Research Participation, Trial Stats, Upcoming Webinar

Posted on January 11, 2024

Interested in HD Research? Get Connected with Opportunities to Participate!   If you’re interested in learning more in 2024 about HD…

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HDSA Convention, HDSA-funded research spotlight, New research partnerships

Posted on January 4, 2024

Registration for HDSA’s 39th Annual Convention is now open!   Join HDSA in Spokane, Washington, from May 30-June 1, 2024 for…

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HDSA Research Fellowships, Clinical Trial Updates, Survey

Posted on December 21, 2023

Applications open for the HDSA Berman-Topper and Donald King Fellowships  HDSA has launched applications for the 2024 cycles of its…

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Tominersen development continues, Research participation

Posted on December 14, 2023

Continued development of Roche’s huntingtin-lowering drug tominersen  Last week, Roche published the results of the GENERATION HD1 study that closed…

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Research Fellowships, The Marker, Somatic Expansion

Posted on December 7, 2023

HDSA Awards Six HD Human Biology Project Research Fellowships for 2023   After thoughtful deliberation by its Scientific Advisory Board,…

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Research Participation Opportunities & Upcoming Webinar

Posted on November 30, 2023

Online Surveys: Participate in HD Research from home!   Online surveys are a great way to make your voice heard…

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Giving Tuesday, HD Out-of-the-Box, Somatic Instability

Posted on November 23, 2023

Celebrate Giving Tuesday with HDSA!   At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of…

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VICO Therapeutics, INGREZZA update, HD Faculty Opening

Posted on November 16, 2023

VICO Therapeutics on Help4HD Podcast   Last week on the Help4HD podcast, host Lauren Holder was joined by Dr. Katja…

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HSG Annual Meeting, HDF Webinar, Genetic Counselor Day

Posted on November 9, 2023

Updates from the Huntington Study Group Annual Meeting Last week, members of HDSA’s team joined HD clinicians, researchers, and family…

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HD History, Genetic Testing, HD Voices

Posted on November 3, 2023

This Week in HD History  Early November holds two historic milestones in HD research. The first occurred in 1985 before…

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Research Participation, HD Research 101, SAGE-718 News

Posted on October 27, 2023

Participate in HD research: Online surveys, observational studies, & more   There are dozens of opportunities to participate in HD…

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Plants in HD, Research Webinar, GENERATION HD2 podcast

Posted on October 19, 2023

Could plants hold seeds for new HD treatments? HDBuzz reports  Researchers are using plants to look for new routes to…

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HD Buzz on MSH3, HDSA COEs, Research Study

Posted on October 12, 2023

Somatic Instability: HD Buzz reports what’s with all the hype about MSH3  A group of scientists at UMass Chan Medical…

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FDA launches START; Roche, Ionis partner; Mental health

Posted on October 5, 2023

FDA Launches the START Pilot Program  This week, the FDA launched the Support for clinical Trials Advancing Rare disease Therapeutics…

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AMT-130 in the News, Research Webinar, HD History

Posted on September 28, 2023

AMT-130 highlighted in Drug Discovery News  HD research was put into the spotlight with a feature on uniQure’s experimental gene…

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