This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

This Week’s Blog: 9.22.22

Posted on September 22, 2022

Wave Life Sciences announces positive results from SELECT-HD  Earlier this week, Wave Life Sciences shared a positive update from the…

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Celebrate HDSA Founder’s Day on September 18th

Posted on September 15, 2022

55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…

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HDSA Research Webinar Recording: All you need to know about PROOF-HD

Posted on September 8, 2022

This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…

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HDSA webinar Sept 7th: All you Need to Know About PROOF-HD

Posted on September 1, 2022

In its Phase III trial, PROOF-HD, Prilenia is currently studying the effects of pridopidine on total functional capacity in people with HD. On…

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Novartis releases community update on VIBRANT-HD

Posted on August 25, 2022

This week, Novartis released a community update on VIBRANT-HD, the phase 2b study of branaplam in adults with HD. The statement…

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HDSA Centers of Excellence program now accepting LOI’s for 2023 designation  

Posted on August 18, 2022

HDSA Centers of Excellence program now accepting LOI’s for 2023 designation   HDSA’s Centers of Excellence (COE) Program is the…

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#LetsTalkAboutHD Clinical Trials

Posted on August 11, 2022

Multiple pieces of news about ongoing clinical trials were shared this week by companies developing therapies for HD. We discuss…

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HDSA Center of Excellence Directors discuss biomarkers for HD

Posted on August 4, 2022

Neurofilament Light Chain (NfL) is a structural protein found in brain cells. In neurodegenerative diseases, circulating levels of NfL tend to be…

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ENROLL-HD Celebrates 10-year Anniversary

Posted on July 28, 2022

On July 25, 2012, the first participant entered ENROLL-HD,  the world’s largest observational study of Huntington’s disease that monitors how the disease…

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HD Buzz Roundtable: HD Scientists talk research with Help4HD

Posted on July 21, 2022

In a new  series on the Help4HD podcast, host Lauren Holder will meet with members of the HDBuzz editorial staff…

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Now Streaming: Recordings from the 37th Annual HDSA Convention are LIVE!

Posted on July 14, 2022

Whether you were unable to join us this year for Convention or just want to brush up on what you learned,…

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Unpacking uniQure’s safety data: HDBuzz breaks down AMT-130 updates

Posted on July 7, 2022

Two weeks ago, uniQure released a safety update for the first 10 participants in the low-dose cohort of the phase I/II trial…

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HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship

Posted on June 30, 2022

The 2022 HDSA Berman-Topper Family HD Career Development Fellowship has been awarded to Dr. Sara Sameni (Salk Institute for Biological Sciences). These prestigious fellowships, made…

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uniQure announces positive safety data in study of AMT-130

Posted on June 23, 2022

uniQure announces positive safety data in study of AMT-130  uniQure released a safety update this morning for the first 10 participants…

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Thank You, HDSA Convention Attendees!

Posted on June 16, 2022

It was a pleasure to see so many faces, familiar and new, in Atlanta for the 37th Annual HDSA Convention,…

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Annexon Biosciences announces promising data in Phase 2 trial of ANX005

Posted on June 9, 2022

Earlier this week, Annexon Biosciences announced top-line results of their Phase 2 clinical trial of ANX005 for HD. ANX005 is an antibody administered via IV with the…

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The 37th Annual HDSA Convention begins in ONE WEEK!

Posted on June 2, 2022

HDSA is excited to welcome the HD community to its 37th Annual Convention in Atlanta, GA in just one week! In-person…

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HD Awareness Month: HD in the Media, HD Stories, HD Parity Act, HDSA Convention and More

Posted on May 26, 2022

The month of May might be drawing to a close, but it’s not too late to turn up the volume on HD…

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HDBuzz: Can vitamins be used to treat symptoms of HD?

Posted on May 19, 2022

Researchers in Spain are studying whether a combination of vitamins approved to treat a different brain disorder, biotin-thiamine responsive basal ganglia…

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HDSA Awards Five Donald A. King Summer Research Fellowships

Posted on May 12, 2022

After extensive review by its Scientific Advisory Board, HDSA is excited to award the Donald A. King Summer Research Fellowship to five…

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