This Week’s Blog: 9.22.22
Posted on September 22, 2022
Wave Life Sciences announces positive results from SELECT-HD Earlier this week, Wave Life Sciences shared a positive update from the…
Read MoreCelebrate HDSA Founder’s Day on September 18th
Posted on September 15, 2022
55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…
Read MoreHDSA Research Webinar Recording: All you need to know about PROOF-HD
Posted on September 8, 2022
This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…
Read MoreHDSA webinar Sept 7th: All you Need to Know About PROOF-HD
Posted on September 1, 2022
In its Phase III trial, PROOF-HD, Prilenia is currently studying the effects of pridopidine on total functional capacity in people with HD. On…
Read MoreNovartis releases community update on VIBRANT-HD
Posted on August 25, 2022
This week, Novartis released a community update on VIBRANT-HD, the phase 2b study of branaplam in adults with HD. The statement…
Read MoreHDSA Centers of Excellence program now accepting LOI’s for 2023 designation
Posted on August 18, 2022
HDSA Centers of Excellence program now accepting LOI’s for 2023 designation HDSA’s Centers of Excellence (COE) Program is the…
Read More#LetsTalkAboutHD Clinical Trials
Posted on August 11, 2022
Multiple pieces of news about ongoing clinical trials were shared this week by companies developing therapies for HD. We discuss…
Read MoreHDSA Center of Excellence Directors discuss biomarkers for HD
Posted on August 4, 2022
Neurofilament Light Chain (NfL) is a structural protein found in brain cells. In neurodegenerative diseases, circulating levels of NfL tend to be…
Read MoreENROLL-HD Celebrates 10-year Anniversary
Posted on July 28, 2022
On July 25, 2012, the first participant entered ENROLL-HD, the world’s largest observational study of Huntington’s disease that monitors how the disease…
Read MoreHD Buzz Roundtable: HD Scientists talk research with Help4HD
Posted on July 21, 2022
In a new series on the Help4HD podcast, host Lauren Holder will meet with members of the HDBuzz editorial staff…
Read MoreNow Streaming: Recordings from the 37th Annual HDSA Convention are LIVE!
Posted on July 14, 2022
Whether you were unable to join us this year for Convention or just want to brush up on what you learned,…
Read MoreUnpacking uniQure’s safety data: HDBuzz breaks down AMT-130 updates
Posted on July 7, 2022
Two weeks ago, uniQure released a safety update for the first 10 participants in the low-dose cohort of the phase I/II trial…
Read MoreHDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship
Posted on June 30, 2022
The 2022 HDSA Berman-Topper Family HD Career Development Fellowship has been awarded to Dr. Sara Sameni (Salk Institute for Biological Sciences). These prestigious fellowships, made…
Read MoreuniQure announces positive safety data in study of AMT-130
Posted on June 23, 2022
uniQure announces positive safety data in study of AMT-130 uniQure released a safety update this morning for the first 10 participants…
Read MoreThank You, HDSA Convention Attendees!
Posted on June 16, 2022
It was a pleasure to see so many faces, familiar and new, in Atlanta for the 37th Annual HDSA Convention,…
Read MoreAnnexon Biosciences announces promising data in Phase 2 trial of ANX005
Posted on June 9, 2022
Earlier this week, Annexon Biosciences announced top-line results of their Phase 2 clinical trial of ANX005 for HD. ANX005 is an antibody administered via IV with the…
Read MoreThe 37th Annual HDSA Convention begins in ONE WEEK!
Posted on June 2, 2022
HDSA is excited to welcome the HD community to its 37th Annual Convention in Atlanta, GA in just one week! In-person…
Read MoreHD Awareness Month: HD in the Media, HD Stories, HD Parity Act, HDSA Convention and More
Posted on May 26, 2022
The month of May might be drawing to a close, but it’s not too late to turn up the volume on HD…
Read MoreHDBuzz: Can vitamins be used to treat symptoms of HD?
Posted on May 19, 2022
Researchers in Spain are studying whether a combination of vitamins approved to treat a different brain disorder, biotin-thiamine responsive basal ganglia…
Read MoreHDSA Awards Five Donald A. King Summer Research Fellowships
Posted on May 12, 2022
After extensive review by its Scientific Advisory Board, HDSA is excited to award the Donald A. King Summer Research Fellowship to five…
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