This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

HDSA Research Webinar & Research Opportunities

Posted on January 26, 2023

Register TODAY! HDSA Research Webinar on GENERATION HD2  Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…

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HDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series

Posted on January 19, 2023

Registration for the 38th Annual HDSA Convention is now open!   Join us in New Orleans, Louisiana, from June 1-3…

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Roche/Genentech Community Letter and More Survey Study Opportunities in the New Year 

Posted on January 12, 2023

Roche/Genentech Community Letter: GENERATION HD2 Study Now Open  On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…

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Clinical Trials, Economic Impact of HD, & HD Advocacy

Posted on January 5, 2023

Clinical Trials Corner: End of Year Update from Dr. Ed Wild   Last month, the Journal of Huntington’s Disease published…

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Happy Holidays from HDSA: Research Wrap-Up, Online Surveys & More

Posted on December 22, 2022

Happy Holidays from HDSA   Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…

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HDBuzz, STAT News, Ask the Scientists, & More 

Posted on December 15, 2022

HDBuzz Covers Latest Update from Novartis   Last week, Novartis shared that they will end development of branaplam for HD. Dosing of…

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HDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey

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HDBuzz Covers Latest Update from Novartis   Last week, Novartis shared that they will end development of branaplam for HD….

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Novartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications

Posted on December 8, 2022

Novartis Shares Update on VIBRANT-HD   Today Novartis shared that they will end development of branaplam for HD. This difficult news…

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Thank You Thursday, HD-ISS, and Gene Therapy 101

Posted on December 1, 2022

Happy Thank You Thursday from HDSA   Support from HD families like you is what allows HDSA to fight for a…

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Celebrate #GivingTuesday with HDSA

Posted on November 17, 2022

At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…

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Highlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day

Posted on November 10, 2022

Highlights from HSG’s Annual Meeting 2022  Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…

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HDSA Research Awards, Clinical Trials Updates & HD Podcasts

Posted on November 3, 2022

HDSA Awards Six Huntington’s Disease Human Biology Project Research Fellowships for 2022  After thoughtful deliberation by its Scientific Advisory Board,…

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HDSA Research Webinar, HD Care, & HD History

Posted on October 27, 2022

HDSA Research Webinar: Update from PTC Therapeutics on the PIVOT-HD Trial  Last week, PTC Therapeutics shared that its Phase 2…

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Clinical Trial News & New Online Survey

Posted on October 20, 2022

PTC Therapeutics provides enrollment update  PTC Therapeutics shared a press release this week to confirm that enrollment is active and…

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HDSA Surveys & Support the HD Parity Act!

Posted on October 13, 2022

Participate in HDSA-Vetted Research Surveys  Researchers, clinicians, healthcare professionals, and students studying HD frequently design surveys to get input from…

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This Week’s Blog: 10.6.2022

Posted on October 6, 2022

HDBuzz on ASO headlines: What’s the latest on huntingtin-lowering?   Recent weeks have brought news for familiar players in the…

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This Week’s Blog: 9.29.22

Posted on September 29, 2022

Summer Research Recap   This summer was full of ups and downs in HD research. Following a research webinar in August that recapped challenging clinical trials…

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This Week’s Blog: 9.22.22

Posted on September 22, 2022

Wave Life Sciences announces positive results from SELECT-HD  Earlier this week, Wave Life Sciences shared a positive update from the…

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Celebrate HDSA Founder’s Day on September 18th

Posted on September 15, 2022

55 years ago, Marjorie Guthrie sought out volunteers from across the country and created the first network of support for…

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HDSA Research Webinar Recording: All you need to know about PROOF-HD

Posted on September 8, 2022

This week HDSA hosted a research webinar in which Dr. Michael Hayden, CEO of Prilenia, and clinical leads Drs. Andy…

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