This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Research Fellows, HD Awareness, Annual Convention

Posted on May 25, 2023

HDSA Awards 2023 Berman-Topper Family HD Career Development Fellowship  This week, HDSA announced the newest recipient of the Berman-Topper Family…

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Research Support, HD Data Collection Initiative, Clinical Trials Day  

Posted on May 18, 2023

Supporting HD families through the ups and downs of clinical trials   Clinical trials are critical for getting us closer…

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HD & Mental Health, Research Webinar, 2023 trials

Posted on May 11, 2023

May Awareness: Mental Health and HD   May is Huntington’s Disease Awareness Month, and HDSA needs your help to turn up…

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HD Research Webinar, HD Awareness, & Youth Research

Posted on May 4, 2023

HDSA & HSC Research Webinar TOMORROW  Tomorrow at 1PM ET, HDSA and the Huntington’s Society of Canada (HSC) will co-host…

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CHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial 

Posted on April 27, 2023

CHDI Therapeutics Conference: Prilenia shares data from the PROOF-HD trial  The CHDI Therapeutics conference is ongoing this week in Dubrovnik,…

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Thank you Volunteers, Buzz on brain cells, Next Week in HD

Posted on April 20, 2023

Thank you, HD Research Volunteers!   This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d…

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Today in HD History, HDSA Disability Advocacy Survey, Webinar on Brain Imaging in HD

Posted on April 13, 2023

Today in HD history  On April 13th, 1872, George Huntington published a paper called “On Chorea,” describing the disease that…

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HD Buzz on the Brain, Vico begins dosing, New Podcast

Posted on April 6, 2023

How does an HD brain find balance? HD Buzz covers the latest clues  It is well known that Huntington’s disease…

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PROOF-HD, Rare Patient Voice, This Week in HD History

Posted on March 30, 2023

Last Participant Completes the PROOF-HD Study   This week, Prilenia Therapeutics shared a press release announcing the completion of the last…

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HD gene discovery, Genetic Testing Motivation survey, Novartis News

Posted on March 23, 2023

This Month in HD Research: 30 Year anniversary of the discovery of the HD gene   On March 26th, 1993, the discovery of…

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Human Biology Project, HDBuzz on Help4HD, HD Research Pipeline

Posted on March 16, 2023

Now Accepting LOIs for HDSA’s HD Human Biology Project Fellowship  HDSA is proud to announce the 2023 Request for Proposals…

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Research Fellowships, HDSA Convention, HDF Webinar

Posted on March 9, 2023

HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th!   With a shared goal of developing the next generation…

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The HDSA Podcast, ChANGE-HD, This Week in HD History

Posted on March 2, 2023

This Month on The HDSA Podcast  Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…

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Rare Disease Day, Teva’s Austedo-XR Approval, Research Survey

Posted on February 23, 2023

Celebrate Rare Disease Day with HDSA on February 28th   When you have a rare disease, you face two battles –…

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HDSA Centers of Excellence, Research Webinar, GENERATION HD2

Posted on February 16, 2023

HDSA Names 56 Centers of Excellence and 11 Partner Sites in 2023   This week, HDSA announced its Center of…

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HDSA Year in Review, FOCUS-HD, HDSA Research Spotlight

Posted on February 9, 2023

HDSA publishes 2022 Year in Review  Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which…

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Research Webinars, HDSA Podcast, and HD in the Brain

Posted on February 2, 2023

HDSA Presents: February Research Webinars with Roche and Novartis   This month, HDSA has not one, but TWO research webinars…

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HDSA Research Webinar & Research Opportunities

Posted on January 26, 2023

Register TODAY! HDSA Research Webinar on GENERATION HD2  Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…

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HDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series

Posted on January 19, 2023

Registration for the 38th Annual HDSA Convention is now open!   Join us in New Orleans, Louisiana, from June 1-3…

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Roche/Genentech Community Letter and More Survey Study Opportunities in the New Year 

Posted on January 12, 2023

Roche/Genentech Community Letter: GENERATION HD2 Study Now Open  On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…

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