Clinical trials and Disability, POWERHD, Online Survey
Posted on August 22, 2024
Clinical trial Participation and Disability To file a disability claim, medical records are a must. But do clinical trial…
Read MoreResearch Updates, Make-A-Will, Career Milestones
Posted on August 15, 2024
2024 HDF Milton Wexler Biennial Symposium Last week, HDSA staff were excited to join the Hereditary Disease Foundation’s Milton…
Read MoreSupport Innovation in HD Drug Development, HD History
Posted on August 1, 2024
Online Survey: Supporting Innovation in HD Drug Development Provide the Food and Drug Administration, researchers, medical product developers and…
Read More2024 HDSA Research Fellows, HDSA Convention Recap
Posted on July 18, 2024
HDSA Announces 2024 Research Fellowship Recipients Last week, HDSA announced the newest recipients of the Berman-Topper Family HD Career…
Read MoreuniQure Updates, SkyHawk Updates, NIH ENGAGE
Posted on July 11, 2024
uniQure shares update on AMT-130 Earlier this week, uniQure shared an update on their clinical study of AMT-130, an…
Read MoreSELECT-HD Update, PIVOT-HD Update, PT Guidelines
Posted on June 27, 2024
Wave Life Sciences shares SELECT-HD Update Earlier this week, Wave Life Sciences shared the results of SELECT-HD, a small phase…
Read MorePTC518 Update, POWER-HD, The HDSA Podcast
Posted on June 20, 2024
PTC Therapeutics shares update on PTC-518 PTC Therapeutics announced today results from PIVOT-HD, the Phase 2 study of PTC518 for HD….
Read MoreSage Update, HD Research Webinar, Blood Brain Barrier
Posted on June 13, 2024
Sage Therapeutics announces SURVEYOR update Earlier this week, Sage Therapeutics announced the results of the SURVEYOR trial of a…
Read MoreConvention, uniQure news, HTT-lowering & CAG Expansion, Talking HD
Posted on June 6, 2024
HDSA’s 39th Annual Convention Last week, HDSA welcomed over 750 members of the HD community to Spokane, WA for its…
Read MoreInternational Clinical Trials Day, Postcard from Palm Springs, MyHDStory Results
Posted on May 23, 2024
This Week in Research History: International Clinical Trials Day May 20th is recognized as Clinical Trials Day to commemorate what…
Read MoreHD Awareness Day, Today in HD History , HDBuzz at HDA
Posted on May 16, 2024
International HD Awareness Day The global Huntington’s Disease community celebrates May 15 as the International Huntington’s Disease Awareness Day, a…
Read MoreBrain Donation & Mental Health Awareness, CHDI online
Posted on May 9, 2024
Brain Donation Awareness Day HD is frequently studied in animal models that reveal important information about the disease, but…
Read MoreHD Awareness Month, INGREZZA Update, Research Webinar
Posted on May 2, 2024
Happy HD Awareness Month! May is Huntington’s Disease Awareness Month, and we need your help to turn up the volume…
Read MoreNew Research on CAGs, The HDSA Podcast, Online Surveys
Posted on April 25, 2024
HDBuzz: “How many is too many?” New research on CAGs HD is caused by an expansion of C-A-Gs in the…
Read MoreSAGE-718 on Help4HD, TEVA on AUSTEDO, PolyQ research
Posted on April 18, 2024
Help4HD discusses SAGE-718 Cognitive changes are a frequent early symptom of HD that can have major impacts on quality of…
Read MoreTracks of HD tears, Genetic testing impacts, HD history
Posted on April 11, 2024
Tracks of HD Tears: HD Buzz on new markers of HD progression Researchers from Germany and the Netherlands have been…
Read MoreTalk on Tau, Research Webinar, HD on TEDxBath Stage
Posted on April 4, 2024
The Talk on Tau: Cognitive changes in HD The onset of HD symptoms varies; even individuals with the same number…
Read More2024 Human Biology Project Launch, HD History, The Buzz on CAG’s
Posted on March 28, 2024
HDSA Launches 2024 HD Human Biology Project Letter of Intent HDSA is proud to announce the 2024 Request for Proposals…
Read MoreThis Week in HD Research, Survey Opportunities
Posted on March 21, 2024
This Week in HD Research: Discovery of the HD Gene and HD Gratitude Day On March 26th, 1993, the discovery…
Read MorePridopidine update, HDBuzz on Brains, Interview Study
Posted on March 14, 2024
Update from Prilenia: Pursuing pridopidine for HD Earlier this week, Prilenia issued a press release and community letter announcing…
Read More