Research Participation Opportunities & Upcoming Webinar
Posted on November 30, 2023
Online Surveys: Participate in HD Research from home! Online surveys are a great way to make your voice heard…
Read MoreGiving Tuesday, HD Out-of-the-Box, Somatic Instability
Posted on November 23, 2023
Celebrate Giving Tuesday with HDSA! At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of…
Read MoreVICO Therapeutics, INGREZZA update, HD Faculty Opening
Posted on November 16, 2023
VICO Therapeutics on Help4HD Podcast Last week on the Help4HD podcast, host Lauren Holder was joined by Dr. Katja…
Read MoreHSG Annual Meeting, HDF Webinar, Genetic Counselor Day
Posted on November 9, 2023
Updates from the Huntington Study Group Annual Meeting Last week, members of HDSA’s team joined HD clinicians, researchers, and family…
Read MoreHD History, Genetic Testing, HD Voices
Posted on November 3, 2023
This Week in HD History Early November holds two historic milestones in HD research. The first occurred in 1985 before…
Read MoreResearch Participation, HD Research 101, SAGE-718 News
Posted on October 27, 2023
Participate in HD research: Online surveys, observational studies, & more There are dozens of opportunities to participate in HD…
Read MorePlants in HD, Research Webinar, GENERATION HD2 podcast
Posted on October 19, 2023
Could plants hold seeds for new HD treatments? HDBuzz reports Researchers are using plants to look for new routes to…
Read MoreHD Buzz on MSH3, HDSA COEs, Research Study
Posted on October 12, 2023
Somatic Instability: HD Buzz reports what’s with all the hype about MSH3 A group of scientists at UMass Chan Medical…
Read MoreFDA launches START; Roche, Ionis partner; Mental health
Posted on October 5, 2023
FDA Launches the START Pilot Program This week, the FDA launched the Support for clinical Trials Advancing Rare disease Therapeutics…
Read MoreAMT-130 in the News, Research Webinar, HD History
Posted on September 28, 2023
AMT-130 highlighted in Drug Discovery News HD research was put into the spotlight with a feature on uniQure’s experimental gene…
Read MoreInterview Study, HD History, Participant’s Experience
Posted on September 21, 2023
Paid Interview Study Opportunity with Design Science Design Science is seeking opinions from people with HD and their partners about…
Read MoreFounder’s Day, Suicide Prevention, & My VIBE Podcast
Posted on September 14, 2023
HDSA Founder’s Day of Giving 55 Years ago, Marjorie Guthrie sought out volunteers from across the country and created…
Read MoreGenetic Modifiers, CSF Flow, and Sleep in HD
Posted on September 7, 2023
HD Buzz on Genetic Modifiers in HD People with an expanded section of CAG repeats in a copy their huntingtin…
Read MoreLeaving a Legacy, HD Drug Delivery, Valbenazine for HD
Posted on August 31, 2023
Leaving a Legacy: Brain Donation in HD Webinar available online Last week, HDSA was joined by leading researchers, a neurologist…
Read MoreValbenazine Approved, HD History, Gene therapy success
Posted on August 24, 2023
FDA approves Valbenazine to treat HD chorea Last week, on August 18th, Neurocrine Biosciences shared that the FDA has approved…
Read MoreLeaving a Legacy, HD Advocates, vUHDRS
Posted on August 17, 2023
Leaving a Legacy: National Make a Will Month & Brain Donation Research Webinar August is National Make-a-Will month, a…
Read MoreResearch Webinar, Renewing HD brain cells, HD History
Posted on August 10, 2023
HDSA Research Webinar: Leaving a Legacy, Brain Donation for HD Research Brain donation is an invaluable gift that makes a…
Read MorePostcard from Dubrovnik, History of Observational Studies, Cell Transplants to Treat HD
Posted on August 3, 2023
Postcard from Dubrovnik In April of 2023, more than 400 scientists from around the world met in Dubrovnik Croatia for…
Read MoreHD Trialfinder, FOCUS-HD, & Young HD Investigators
Posted on July 27, 2023
HD Trialfinder: Sign up or Re-Match Today! If you’re interested in participating in HD research, HDTrialfinder is a great…
Read MoreSummer Survey Extravaganza: Participate today!
Posted on July 20, 2023
Summer Survey Extravaganza Summertime means dodging heatwaves between beach days, ice cream sundaes, and now, online surveys! HDSA works with…
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