Novartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment
Posted on October 22, 2020
This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…
Read MoreuniQure Trial Proceeds; Voyager Receives Regulatory Feedback
Posted on October 15, 2020
This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…
Read MoreHDBuzz Covers Virtual EHDN Conference
Posted on October 8, 2020
The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…
Read MoreHD Trialfinder: Study Updates
Posted on October 1, 2020
HDSA’s HD Trialfinder is an easy-to-use website that lists currently recruiting HD clinical trials in the United States and Canada. By answering some basic questions about…
Read MoreSIGNAL study of pepinemab does not meet key goals for HD patients
Posted on September 24, 2020
The SIGNAL study was carried out by a company called Vaccinex to test whether their drug, pepinemab, could combat brain inflammation and ease symptoms…
Read MoreHighlights from the EHDN Virtual Congress
Posted on September 17, 2020
This week the 2020 European Huntington’s Disease Network (EHDN) hosted a virtual plenary meeting to discuss the latest in HD research…
Read MoreYou Asked the Scientists!
Posted on September 10, 2020
The recording from the latest HDSA Research Webinar, Ask the Scientist Anything, is now available on HDSA’s YouTube channel. Dr….
Read MoreResearch Webinar: Ask the Scientist…Anything!
Posted on September 3, 2020
This coming Tuesday, September 8th, at 12 PM Eastern, Dr. Ed Wild and Dr. Jeff Carroll, creators of HDBuzz, as well as HDBuzz writers Dr….
Read MoreHDBuzz on Somatic Instability
Posted on August 27, 2020
The cause of Huntington’s disease is an extra-long stretch of CAG repeats in the DNA, in a single gene called huntingtin. In…
Read MoreResearch Spotlight: Telemedicine for Huntington’s Disease
Posted on August 20, 2020
Participants diagnosed with HD, ages 18-70, in the Chicago area, are needed for an HDSA-funded study on Telemedicine at Northwestern…
Read MoreHDBuzz: CRISPR Requires Caution
Posted on August 13, 2020
CRISPR is a gene editing technique that has been touted for its potential to treat HD someday in the future. However,…
Read MoreThrowback Thursday: This Week in HD History
Posted on August 6, 2020
The exact sequence and location of the gene that causes Huntington’s disease was published in 1993, but the hunt had…
Read MoreBecoming an HDSA Center of Excellence
Posted on July 30, 2020
This week, HDSA began soliciting Letters of Interest from Huntington’s disease clinics that would like to be considered for HDSA Center…
Read MoreTriplet Therapeutics: Clinical Candidate and Natural History Study
Posted on July 23, 2020
One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…
Read MoreHuntington’s Disease Featured on ABC News
Posted on July 16, 2020
Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…
Read MoreExplore Huntingtin in 3D
Posted on July 2, 2020
HDSA Berman-Topper Fellow Dr. Rachel Harding has been working on understanding the shape of the huntingtin protein and how it interacts with other proteins. She…
Read MoreFirst HD Patients Dosed in uniQure Gene Therapy Study
Posted on June 25, 2020
This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…
Read MoreVirtual HDSA Convention: Research Recap
Posted on June 17, 2020
HDSA’s Virtual 35th Annual Convention included forty sessions in four days, and the HD Community came out in full force. More than…
Read MoreThank You for Participating in Virtual HDSA Convention
Posted on June 11, 2020
We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…
Read MoreVirtual HDSA Convention is This Week!
Posted on June 4, 2020
The 2020 HDSA Convention is this week, and it’s happening virtually. Below is the research-related programming that requires registration. Follow…
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