Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Explore Huntingtin in 3D

Posted on July 2, 2020

HDSA Berman-Topper Fellow Dr. Rachel Harding has been working on understanding the shape of the huntingtin protein and how it interacts with other proteins. She…

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First HD Patients Dosed in uniQure Gene Therapy Study

Posted on June 25, 2020

This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…

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Virtual HDSA Convention: Research Recap

Posted on June 17, 2020

HDSA’s Virtual 35th Annual Convention included forty sessions in four days, and the HD Community came out in full force. More than…

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Thank You for Participating in Virtual HDSA Convention

Posted on June 11, 2020

We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…

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Virtual HDSA Convention is This Week!

Posted on June 4, 2020

The 2020 HDSA Convention is this week, and it’s happening virtually. Below is the research-related programming that requires registration. Follow…

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HDSA Announces Recipient of the 2020 Berman-Topper HD Career Development Fellowship

Posted on May 28, 2020

The 2020 HDSA Berman-Topper fellowship has been awarded to Dr. Yasaman Gholamalipour for her proposal entitled “Development and delivery of CRISPR-Cas9 nickases to correct…

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Virtual HDSA Convention Research Forum

Posted on May 21, 2020

HDSA’s 2020 Convention has gone virtual, and participation is free – though registration for some of the sessions is required due to limited space. Virtual…

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Upcoming HDSA Research Webinar

Posted on May 13, 2020

We are excited about an upcoming HDSA research webinar this coming Tuesday, May 19th at 12 PM Eastern. This work, presented by Annexon Biosciences, was born out of studies conducted by HDSA…

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HDSA Awards Five 2020 Donald King Fellowships

Posted on May 7, 2020

HDSA’s Donald King Summer Research Fellowship is an opportunity for undergraduates with an interest in Huntington’s disease research to complete…

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Exercise & HD

Posted on April 30, 2020

Exercise has gotten a lot of media attention in the recent past as a way for people with neurological disorders…

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May Is Huntington’s Disease Awareness Month

Posted on April 23, 2020

 #LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month in May to encourage families to share their experiences…

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HDSA’s Coffee Walk with Dr. George Yohrling

Posted on April 16, 2020

HDSA’s Coffee Walk is a series of video conversations between Chris Cosentino, Director of Marketing & Communications, and other members…

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PBS Airs “The Gene: An Intimate History”

Posted on April 9, 2020

Huntington’s disease is featured in Part 1 of the Ken Burns film The Gene: An Intimate History, which aired this week on…

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Human Biology Project Now Accepting Letters of Intent

Posted on April 2, 2020

Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD…

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Anniversary of Discovery of the HD Gene

Posted on March 26, 2020

Today, March 26th, in 1993, the discovery of the CAG repeat mutation that causes Huntington’s disease was published. The authors were the Huntington’s Disease Collaborative Research Group, an…

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Louise Vetter Discusses HDSA’s HD Trialfinder

Posted on March 19, 2020

HDSA’s President and CEO Louise Vetter spoke on Friday, March 13th with James Valvano of We Have a Face, an organization dedicated to broadening global…

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Icons in HD Share Their Stories

Posted on March 11, 2020

HD made big news this week with a story in the New York Times about Dr. Nancy Wexler of the Hereditary Disease…

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HDBuzz Coverage of CHDI’s 15th Annual HD Therapeutics Conference

Posted on March 5, 2020

Our friends at HDBuzz created phenomenal real-time summaries of the presentations at the HD Therapeutics Conference held by CHDI last week in Palm…

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CHDI’s Huntington’s Disease Therapeutics Conference

Posted on February 27, 2020

This week marks the 15th annual HD Therapeutics Conference, hosted by CHDI, a private foundation devoted to HD research. HD…

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HDSA Research Webinar on Brain Development

Posted on February 20, 2020

On Wednesday February 19th, Dr. Peg Nopoulos, Director of the HDSA Center of Excellence at the University of Iowa, presented an…

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