Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Novartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment

Posted on October 22, 2020

This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…

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uniQure Trial Proceeds; Voyager Receives Regulatory Feedback

Posted on October 15, 2020

This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…

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HDBuzz Covers Virtual EHDN Conference

Posted on October 8, 2020

The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…

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HD Trialfinder: Study Updates

Posted on October 1, 2020

HDSA’s HD Trialfinder is an easy-to-use website that lists currently recruiting HD clinical trials in the United States and Canada. By answering some basic questions about…

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SIGNAL study of pepinemab does not meet key goals for HD patients

Posted on September 24, 2020

The SIGNAL study was carried out by a company called Vaccinex to test whether their drug, pepinemab, could combat brain inflammation and ease symptoms…

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Highlights from the EHDN Virtual Congress

Posted on September 17, 2020

This week the 2020 European Huntington’s Disease Network (EHDN) hosted a virtual plenary meeting to discuss the latest in HD research…

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You Asked the Scientists!

Posted on September 10, 2020

The recording from the latest HDSA Research Webinar, Ask the Scientist Anything, is now available on HDSA’s YouTube channel. Dr….

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Research Webinar: Ask the Scientist…Anything!

Posted on September 3, 2020

This coming Tuesday, September 8th, at 12 PM Eastern, Dr. Ed Wild and Dr. Jeff Carroll, creators of HDBuzz, as well as HDBuzz writers Dr….

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HDBuzz on Somatic Instability

Posted on August 27, 2020

The cause of Huntington’s disease is an extra-long stretch of CAG repeats in the DNA, in a single gene called huntingtin. In…

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Research Spotlight: Telemedicine for Huntington’s Disease

Posted on August 20, 2020

Participants diagnosed with HD, ages 18-70, in the Chicago area, are needed for an HDSA-funded study on Telemedicine at Northwestern…

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HDBuzz: CRISPR Requires Caution

Posted on August 13, 2020

CRISPR is a gene editing technique that has been touted for its potential to treat HD someday in the future. However,…

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Throwback Thursday: This Week in HD History

Posted on August 6, 2020

The exact sequence and location of the gene that causes Huntington’s disease was published in 1993, but the hunt had…

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Becoming an HDSA Center of Excellence

Posted on July 30, 2020

This week, HDSA began soliciting Letters of Interest from Huntington’s disease clinics that would like to be considered for HDSA Center…

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Triplet Therapeutics: Clinical Candidate and Natural History Study

Posted on July 23, 2020

One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…

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Huntington’s Disease Featured on ABC News

Posted on July 16, 2020

Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…

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Explore Huntingtin in 3D

Posted on July 2, 2020

HDSA Berman-Topper Fellow Dr. Rachel Harding has been working on understanding the shape of the huntingtin protein and how it interacts with other proteins. She…

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First HD Patients Dosed in uniQure Gene Therapy Study

Posted on June 25, 2020

This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…

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Virtual HDSA Convention: Research Recap

Posted on June 17, 2020

HDSA’s Virtual 35th Annual Convention included forty sessions in four days, and the HD Community came out in full force. More than…

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Thank You for Participating in Virtual HDSA Convention

Posted on June 11, 2020

We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…

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Virtual HDSA Convention is This Week!

Posted on June 4, 2020

The 2020 HDSA Convention is this week, and it’s happening virtually. Below is the research-related programming that requires registration. Follow…

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