This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

HDSA Awards 2022 Berman-Topper Family HD Career Development Fellowship

Posted on June 30, 2022

The 2022 HDSA Berman-Topper Family HD Career Development Fellowship has been awarded to Dr. Sara Sameni (Salk Institute for Biological Sciences). These prestigious fellowships, made…

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uniQure announces positive safety data in study of AMT-130

Posted on June 23, 2022

uniQure announces positive safety data in study of AMT-130  uniQure released a safety update this morning for the first 10 participants…

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Thank You, HDSA Convention Attendees!

Posted on June 16, 2022

It was a pleasure to see so many faces, familiar and new, in Atlanta for the 37th Annual HDSA Convention,…

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Annexon Biosciences announces promising data in Phase 2 trial of ANX005

Posted on June 9, 2022

Earlier this week, Annexon Biosciences announced top-line results of their Phase 2 clinical trial of ANX005 for HD. ANX005 is an antibody administered via IV with the…

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The 37th Annual HDSA Convention begins in ONE WEEK!

Posted on June 2, 2022

HDSA is excited to welcome the HD community to its 37th Annual Convention in Atlanta, GA in just one week! In-person…

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HD Awareness Month: HD in the Media, HD Stories, HD Parity Act, HDSA Convention and More

Posted on May 26, 2022

The month of May might be drawing to a close, but it’s not too late to turn up the volume on HD…

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HDBuzz: Can vitamins be used to treat symptoms of HD?

Posted on May 19, 2022

Researchers in Spain are studying whether a combination of vitamins approved to treat a different brain disorder, biotin-thiamine responsive basal ganglia…

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HDSA Awards Five Donald A. King Summer Research Fellowships

Posted on May 12, 2022

After extensive review by its Scientific Advisory Board, HDSA is excited to award the Donald A. King Summer Research Fellowship to five…

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Posted on May 5, 2022

May is Huntington’s Disease Awareness Month, so #LetsTalkAboutHD. Post stories, videos, and photos to social media using #LetsTalkAboutHD. All stories…

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Supporting people with HD: Researcher Spotlight on Leonard Sokol, MD

Posted on April 28, 2022

The field of HD research is constantly evolving as scientists inch closer to treatments and cures for people affected by HD. But…

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Thank you, HD Research Volunteers!

Posted on April 21, 2022

This week, HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d like to express our heartfelt…

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Participate in research at the HDSA Center of Excellence at Rush University

Posted on April 14, 2022

A group of researchers at the HDSA Center of Excellence at Rush University are studying how the brains of people…

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PTC Therapeutics initiates recruitment of PIVOT-HD study

Posted on April 7, 2022

Last week, PTC Therapeutics announced the initiation of their phase 2 clinical trial, PIVOT-HD, evaluating the effects of PTC518 in…

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Upcoming Research Webinar: HDSA & the HD Research Pipeline Webinar April 6th

Posted on March 31, 2022

On April 6th at 12 PM ET, join HDSA’s Chief Mission Officer, Dr. Arik Johnson, and Assistant Director of Research and…

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Happy World Social Work Month!

Posted on March 24, 2022

The month of March is a time to celebrate and appreciate social workers for all they do! Social workers help…

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HDBuzz covers newly published research on branaplam

Posted on March 17, 2022

A study recently published in Nature detailed scientists’ understanding of how branaplam, a drug originally developed for treatment of spinal muscular atrophy…

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The Editors of HDBuzz cover the CHDI Therapeutics Conference

Posted on March 10, 2022

For the first time in two years, scientists, clinicians, and industry partners convened in Palm Springs, CA for CHDI foundation’s 17th Annual HD Therapeutics Conference….

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HDBuzz Covers the CHDI Conference

Posted on March 3, 2022

CHDI is a privately funded HD research foundation whose mission is to further development of HD therapies. This week, they’re hosting…

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Raise Awareness of Rare Disease Day with HDSA February 28th

Posted on February 24, 2022

When you have a rare disease, you face two battles – one being the illness itself, and the other, living…

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Quick Question: Genetic Testing and Rare Disease

Posted on February 17, 2022

Check out HDSA’s new short video series, “Quick Question,” in which HDSA’s Jennifer Simpson, LCSW (Assistant Director of Youth &…

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