This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

PROOF-HD, Rare Patient Voice, This Week in HD History

Posted on March 30, 2023

Last Participant Completes the PROOF-HD Study   This week, Prilenia Therapeutics shared a press release announcing the completion of the last…

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HD gene discovery, Genetic Testing Motivation survey, Novartis News

Posted on March 23, 2023

This Month in HD Research: 30 Year anniversary of the discovery of the HD gene   On March 26th, 1993, the discovery of…

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Human Biology Project, HDBuzz on Help4HD, HD Research Pipeline

Posted on March 16, 2023

Now Accepting LOIs for HDSA’s HD Human Biology Project Fellowship  HDSA is proud to announce the 2023 Request for Proposals…

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Research Fellowships, HDSA Convention, HDF Webinar

Posted on March 9, 2023

HDSA Berman-Topper HD Career Development Fellowship Applications due March 17th!   With a shared goal of developing the next generation…

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The HDSA Podcast, ChANGE-HD, This Week in HD History

Posted on March 2, 2023

This Month on The HDSA Podcast  Last month, HDSA launched “The HDSA Podcast,” where HDSA President & CEO, Louise Vetter,…

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Rare Disease Day, Teva’s Austedo-XR Approval, Research Survey

Posted on February 23, 2023

Celebrate Rare Disease Day with HDSA on February 28th   When you have a rare disease, you face two battles –…

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HDSA Centers of Excellence, Research Webinar, GENERATION HD2

Posted on February 16, 2023

HDSA Names 56 Centers of Excellence and 11 Partner Sites in 2023   This week, HDSA announced its Center of…

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HDSA Year in Review, FOCUS-HD, HDSA Research Spotlight

Posted on February 9, 2023

HDSA publishes 2022 Year in Review  Last week, HDSA issued the 2022 edition of its Year In Review Magazine, which…

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Research Webinars, HDSA Podcast, and HD in the Brain

Posted on February 2, 2023

HDSA Presents: February Research Webinars with Roche and Novartis   This month, HDSA has not one, but TWO research webinars…

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HDSA Research Webinar & Research Opportunities

Posted on January 26, 2023

Register TODAY! HDSA Research Webinar on GENERATION HD2  Roche and Genentech have launched the GENERATION HD2 study of the huntingtin-lowering drug…

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HDSA Convention Registration, Clinical Trial Strategy, HDF Webinar Series

Posted on January 19, 2023

Registration for the 38th Annual HDSA Convention is now open!   Join us in New Orleans, Louisiana, from June 1-3…

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Roche/Genentech Community Letter and More Survey Study Opportunities in the New Year 

Posted on January 12, 2023

Roche/Genentech Community Letter: GENERATION HD2 Study Now Open  On January 11th, Roche/Genentech shared a community letter stating that the GENERATION…

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Clinical Trials, Economic Impact of HD, & HD Advocacy

Posted on January 5, 2023

Clinical Trials Corner: End of Year Update from Dr. Ed Wild   Last month, the Journal of Huntington’s Disease published…

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Happy Holidays from HDSA: Research Wrap-Up, Online Surveys & More

Posted on December 22, 2022

Happy Holidays from HDSA   Despite 2022’s ups and downs in HD research, HDSA has found plenty to celebrate, especially all…

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HDBuzz, STAT News, Ask the Scientists, & More 

Posted on December 15, 2022

HDBuzz Covers Latest Update from Novartis   Last week, Novartis shared that they will end development of branaplam for HD. Dosing of…

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HDBuzz on Novartis, HDSA Research Webinar, STAT News on HD Research, Online Survey

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HDBuzz Covers Latest Update from Novartis   Last week, Novartis shared that they will end development of branaplam for HD….

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Novartis Shares Update on VIBRANT-HD, Ask the Scientists…Anything, and Launch of HDSA Research Fellowship Applications

Posted on December 8, 2022

Novartis Shares Update on VIBRANT-HD   Today Novartis shared that they will end development of branaplam for HD. This difficult news…

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Thank You Thursday, HD-ISS, and Gene Therapy 101

Posted on December 1, 2022

Happy Thank You Thursday from HDSA   Support from HD families like you is what allows HDSA to fight for a…

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Celebrate #GivingTuesday with HDSA

Posted on November 17, 2022

At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of Huntington’s disease and for your…

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Highlights from HSG’s 2022 Annual Meeting, Interview Study, and Genetic Counselor Awareness Day

Posted on November 10, 2022

Highlights from HSG’s Annual Meeting 2022  Last weekend, clinicians, researchers, and industry partners from around the world assembled in Tampa,…

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