Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

HDBuzz: CRISPR Requires Caution

Posted on August 13, 2020

CRISPR is a gene editing technique that has been touted for its potential to treat HD someday in the future. However,…

Read More

Throwback Thursday: This Week in HD History

Posted on August 6, 2020

The exact sequence and location of the gene that causes Huntington’s disease was published in 1993, but the hunt had…

Read More

Becoming an HDSA Center of Excellence

Posted on July 30, 2020

This week, HDSA began soliciting Letters of Interest from Huntington’s disease clinics that would like to be considered for HDSA Center…

Read More

Triplet Therapeutics: Clinical Candidate and Natural History Study

Posted on July 23, 2020

One of the hottest topics in HD research over the past several years is the idea that CAG repeats in the HD…

Read More

Huntington’s Disease Featured on ABC News

Posted on July 16, 2020

Huntington’s disease got the spotlight in early July on national news in a story featuring two families grappling with the diagnosis. The 15-minute segment…

Read More

Explore Huntingtin in 3D

Posted on July 2, 2020

HDSA Berman-Topper Fellow Dr. Rachel Harding has been working on understanding the shape of the huntingtin protein and how it interacts with other proteins. She…

Read More

First HD Patients Dosed in uniQure Gene Therapy Study

Posted on June 25, 2020

This week marks a major milestone in HD research: the first two patients were dosed in the world’s first gene therapy…

Read More

Virtual HDSA Convention: Research Recap

Posted on June 17, 2020

HDSA’s Virtual 35th Annual Convention included forty sessions in four days, and the HD Community came out in full force. More than…

Read More

Thank You for Participating in Virtual HDSA Convention

Posted on June 11, 2020

We’d like to extend a huge thanks to all of those who participated in HDSA’s Virtual Convention from June 4th –…

Read More

Virtual HDSA Convention is This Week!

Posted on June 4, 2020

The 2020 HDSA Convention is this week, and it’s happening virtually. Below is the research-related programming that requires registration. Follow…

Read More

HDSA Announces Recipient of the 2020 Berman-Topper HD Career Development Fellowship

Posted on May 28, 2020

The 2020 HDSA Berman-Topper fellowship has been awarded to Dr. Yasaman Gholamalipour for her proposal entitled “Development and delivery of CRISPR-Cas9 nickases to correct…

Read More

Virtual HDSA Convention Research Forum

Posted on May 21, 2020

HDSA’s 2020 Convention has gone virtual, and participation is free – though registration for some of the sessions is required due to limited space. Virtual…

Read More

Upcoming HDSA Research Webinar

Posted on May 13, 2020

We are excited about an upcoming HDSA research webinar this coming Tuesday, May 19th at 12 PM Eastern. This work, presented by Annexon Biosciences, was born out of studies conducted by HDSA…

Read More

HDSA Awards Five 2020 Donald King Fellowships

Posted on May 7, 2020

HDSA’s Donald King Summer Research Fellowship is an opportunity for undergraduates with an interest in Huntington’s disease research to complete…

Read More

Exercise & HD

Posted on April 30, 2020

Exercise has gotten a lot of media attention in the recent past as a way for people with neurological disorders…

Read More

May Is Huntington’s Disease Awareness Month

Posted on April 23, 2020

 #LetsTalkAboutHD is a social media initiative during Huntington’s Disease Awareness Month in May to encourage families to share their experiences…

Read More

HDSA’s Coffee Walk with Dr. George Yohrling

Posted on April 16, 2020

HDSA’s Coffee Walk is a series of video conversations between Chris Cosentino, Director of Marketing & Communications, and other members…

Read More

PBS Airs “The Gene: An Intimate History”

Posted on April 9, 2020

Huntington’s disease is featured in Part 1 of the Ken Burns film The Gene: An Intimate History, which aired this week on…

Read More

Human Biology Project Now Accepting Letters of Intent

Posted on April 2, 2020

Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD…

Read More

Anniversary of Discovery of the HD Gene

Posted on March 26, 2020

Today, March 26th, in 1993, the discovery of the CAG repeat mutation that causes Huntington’s disease was published. The authors were the Huntington’s Disease Collaborative Research Group, an…

Read More