Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Human Biology Project Now Accepting Letters of Intent

Posted on April 2, 2020

Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD…

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Anniversary of Discovery of the HD Gene

Posted on March 26, 2020

Today, March 26th, in 1993, the discovery of the CAG repeat mutation that causes Huntington’s disease was published. The authors were the Huntington’s Disease Collaborative Research Group, an…

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Louise Vetter Discusses HDSA’s HD Trialfinder

Posted on March 19, 2020

HDSA’s President and CEO Louise Vetter spoke on Friday, March 13th with James Valvano of We Have a Face, an organization dedicated to broadening global…

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Icons in HD Share Their Stories

Posted on March 11, 2020

HD made big news this week with a story in the New York Times about Dr. Nancy Wexler of the Hereditary Disease…

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HDBuzz Coverage of CHDI’s 15th Annual HD Therapeutics Conference

Posted on March 5, 2020

Our friends at HDBuzz created phenomenal real-time summaries of the presentations at the HD Therapeutics Conference held by CHDI last week in Palm…

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CHDI’s Huntington’s Disease Therapeutics Conference

Posted on February 27, 2020

This week marks the 15th annual HD Therapeutics Conference, hosted by CHDI, a private foundation devoted to HD research. HD…

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HDSA Research Webinar on Brain Development

Posted on February 20, 2020

On Wednesday February 19th, Dr. Peg Nopoulos, Director of the HDSA Center of Excellence at the University of Iowa, presented an…

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Research Survey on HD & Romantic Relationships

Posted on February 13, 2020

HDSA works with students and researchers to review HD research surveys and make them available on our survey page. Participating in…

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HDSA Expands Centers of Excellence Program to 50 Sites

Posted on February 6, 2020

HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. Professionals at these locations include neurologists,…

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NOW AVAILABLE: Research Year in Review Webinar

Posted on January 30, 2020

HDSA’s annual Research Year in Review webinar is now available to view. Check it out for an overview of HDSA’s research…

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HDSA Publishes 2019 Year in Review

Posted on January 23, 2020

This week HDSA issued the 2019 edition of our Year In Review Magazine, which features highlights from HDSA’s Mission-related programs and…

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New Online Application System for HDSA Research Grants

Posted on January 15, 2020

HDSA’s research program has expanded in recent years, and in 2020 we’re using a new online platform to help smooth…

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Upcoming HDSA Research Webinar

Posted on January 9, 2020

2019 was a big year for HD research, and we’ll be recapping HDSA’s research activities, and the field’s major discoveries…

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Wave Life Sciences Announces Data and Expansion of PRECISION-HD Studies

Posted on January 3, 2020

Happy New Year from HDSA! To wrap up 2019, we received some exciting clinical trial news. Wave Life Sciences is conducting…

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HDSA Awards $50,000 in Clinical Research Pilot Grants

Posted on December 24, 2019

This year HDSA was able to offer a new grant mechanism to foster novel clinical research studies within our Centers…

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Roche Video About HD Features Berman-Topper Fellow

Posted on December 11, 2019

Roche recently created a video about Huntington’s disease that is narrated by HDSA Berman-Topper Fellow Lauren Byrne. The video is a…

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STAT Article: HD Clinical Trials Bring Hope

Posted on December 5, 2019

This week an article in STAT talks about the ongoing Roche GENERATION-HD1 trial. The story explains Huntington’s disease and covers the experiences…

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Happy Thanksgiving from HDSA

Posted on November 27, 2019

Happy Thanksgiving from all of us at HDSA! We are especially grateful for your engagement in research – it’s how medicine moves…

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The Marker: HDSA’s 2019 Research Report

Posted on November 21, 2019

Each year, HDSA prepares a report that covers what happened in HD research this year. This year, The Marker includes HDSA research activities…

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HSG Announces New Phase 3 Study To Test Drug For HD Chorea

Posted on November 13, 2019

The Huntington Study Group issued a press release about a new study to treat the movements associated with HD, known as chorea….

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