This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Research Participation Opportunities & Upcoming Webinar

Posted on November 30, 2023

Online Surveys: Participate in HD Research from home!   Online surveys are a great way to make your voice heard…

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Giving Tuesday, HD Out-of-the-Box, Somatic Instability

Posted on November 23, 2023

Celebrate Giving Tuesday with HDSA!   At HDSA, we’re grateful for your commitment to HDSA’s vision of a world free of…

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VICO Therapeutics, INGREZZA update, HD Faculty Opening

Posted on November 16, 2023

VICO Therapeutics on Help4HD Podcast   Last week on the Help4HD podcast, host Lauren Holder was joined by Dr. Katja…

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HSG Annual Meeting, HDF Webinar, Genetic Counselor Day

Posted on November 9, 2023

Updates from the Huntington Study Group Annual Meeting Last week, members of HDSA’s team joined HD clinicians, researchers, and family…

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HD History, Genetic Testing, HD Voices

Posted on November 3, 2023

This Week in HD History  Early November holds two historic milestones in HD research. The first occurred in 1985 before…

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Research Participation, HD Research 101, SAGE-718 News

Posted on October 27, 2023

Participate in HD research: Online surveys, observational studies, & more   There are dozens of opportunities to participate in HD…

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Plants in HD, Research Webinar, GENERATION HD2 podcast

Posted on October 19, 2023

Could plants hold seeds for new HD treatments? HDBuzz reports  Researchers are using plants to look for new routes to…

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HD Buzz on MSH3, HDSA COEs, Research Study

Posted on October 12, 2023

Somatic Instability: HD Buzz reports what’s with all the hype about MSH3  A group of scientists at UMass Chan Medical…

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FDA launches START; Roche, Ionis partner; Mental health

Posted on October 5, 2023

FDA Launches the START Pilot Program  This week, the FDA launched the Support for clinical Trials Advancing Rare disease Therapeutics…

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AMT-130 in the News, Research Webinar, HD History

Posted on September 28, 2023

AMT-130 highlighted in Drug Discovery News  HD research was put into the spotlight with a feature on uniQure’s experimental gene…

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Interview Study, HD History, Participant’s Experience

Posted on September 21, 2023

Paid Interview Study Opportunity with Design Science  Design Science is seeking opinions from people with HD and their partners about…

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Founder’s Day, Suicide Prevention, & My VIBE Podcast

Posted on September 14, 2023

HDSA Founder’s Day of Giving   55 Years ago, Marjorie Guthrie sought out volunteers from across the country and created…

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Genetic Modifiers, CSF Flow, and Sleep in HD

Posted on September 7, 2023

HD Buzz on Genetic Modifiers in HD  People with an expanded section of CAG repeats in a copy their huntingtin…

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Leaving a Legacy, HD Drug Delivery, Valbenazine for HD

Posted on August 31, 2023

Leaving a Legacy: Brain Donation in HD Webinar available online  Last week, HDSA was joined by leading researchers, a neurologist…

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Valbenazine Approved, HD History, Gene therapy success

Posted on August 24, 2023

FDA approves Valbenazine to treat HD chorea Last week, on August 18th, Neurocrine Biosciences shared that the FDA has approved…

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Leaving a Legacy, HD Advocates, vUHDRS

Posted on August 17, 2023

Leaving a Legacy: National Make a Will Month & Brain Donation Research Webinar   August is National Make-a-Will month, a…

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Research Webinar, Renewing HD brain cells, HD History

Posted on August 10, 2023

HDSA Research Webinar: Leaving a Legacy, Brain Donation for HD Research   Brain donation is an invaluable gift that makes a…

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Postcard from Dubrovnik, History of Observational Studies, Cell Transplants to Treat HD

Posted on August 3, 2023

Postcard from Dubrovnik  In April of 2023, more than 400 scientists from around the world met in Dubrovnik Croatia for…

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HD Trialfinder, FOCUS-HD, & Young HD Investigators

Posted on July 27, 2023

HD Trialfinder: Sign up or Re-Match Today!   If you’re interested in participating in HD research, HDTrialfinder is a great…

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Summer Survey Extravaganza: Participate today!

Posted on July 20, 2023

Summer Survey Extravaganza  Summertime means dodging heatwaves between beach days, ice cream sundaes, and now, online surveys! HDSA works with…

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