Update from Novartis on Planned Trial of Branaplam for Huntington’s Disease
Posted on January 27, 2022
Novartis is developing an experimental HD therapy called branaplam which has the potential to lower huntingtin when taken by mouth. Branaplam…
Read MoreRoche to continue development of tominersen: Community Presentation TODAY
Posted on January 20, 2022
In a community letter released January 18th, Roche announced plans to continue developing the huntingtin-lowering drug tominersen. After analyzing data collected in the Phase III GENERATION HD-1 trial that halted dosing in…
Read MoreResearch Webinar: Roche Joins HDSA to Discuss Latest Data from GENERATION HD-1
Posted on January 13, 2022
One week from today, HDSA will be joined by members of the Roche team at 3:00 PM EST on January 20th for…
Read MoreUpcoming Webinar: New Key Findings from the GENERATION HD-1 Study
Posted on January 6, 2022
Join HDSA at 3:00 PM EST on January 20th for an update from Roche on new findings from the data collected in the GENERATION HD-1 study. This…
Read MoreHappy Holidays from HDSA
Posted on December 23, 2021
Through all the challenges 2021 had in store, the resilience of the HD community has continued to inspire HDSA in our…
Read MoreuniQure opens new study sites and changes inclusion criteria for AMT-130 trial
Posted on December 16, 2021
In a press release published this morning, uniQure announced that AMT-130, an investigational gene therapy for treatment of Huntington’s disease,…
Read MoreA new Biomarker for HD: HDBuzz on radiolabels for mHTT
Posted on December 9, 2021
A research team led by Dr. Celia Dominguez at CHDI has identified a new method to track the presence of…
Read MoreMark Your Calendars: “Ask the Scientists … Anything” HDSA Research Webinar
Posted on December 2, 2021
As November chill slowly turns to December cold, mark your calendars for HDSA’s final research webinar of the year on Tuesday, December 7th. Three editors…
Read MoreNow Accepting Applications for 2022 Berman-Topper and Donald A. King Research Fellowships
Posted on November 18, 2021
Earlier this week on November 16, HDSA launched applications for the 2022 cycles of its prestigious Berman-Topper Family HD Career…
Read MoreWebinar TODAY! Take Action and Support the HD Parity Act
Posted on November 11, 2021
We talk a lot about what we’re hopeful for tomorrow here in the research world, and it’s equally important to…
Read MoreResearch Wrap-Up: HDBuzz Covers EHDN’s Annual Research Conference
Posted on November 4, 2021
In September, the European Huntington’s Disease Network brought together scientists and stakeholders from around the world for updates from experts in…
Read MoreHDSA Research Webinar 11/3/21: Register TODAY!
Posted on October 28, 2021
Dr. Jane Paulsen will join HDSA next week to discuss a new observational trial, PREVENT-HD, Preparing for the Prevention of Huntington’s…
Read MorePrilenia Therapeutics and HSG announce completion of participant enrollment in PROOF-HD
Posted on October 21, 2021
In a recent press release, Prilenia Therapeutics and the Huntington’s Study Group (HSG) announced the completion of participant enrollment in PROOF-HD,…
Read MoreHDSA Awards Five Huntington’s Disease Human Biology Project Research Grants
Posted on October 14, 2021
After thoughtful deliberation by its Scientific Advisory Board, HDSA will award five the Huntington’s Disease Human Biology Project research grants to Joan O’Keefe,…
Read MoreDr. Francis S. Collins to Step Down from Head of NIH
Posted on October 7, 2021
On Tuesday of this week, Francis S. Collins, MD, PhD, announced he would step down from his role as Director of the…
Read MoreHD Buzz: Real talk with Roche on GENERATION-HD1
Posted on September 30, 2021
The editors of HD Buzz recently sat down with leaders from Roche to ask questions on behalf of the HD community…
Read MoreHDSA Research Webinar TODAY!
Posted on September 23, 2021
Join HDSA TODAY at 12PM (ET) for the next HDSA Research Webinar! HDSA Human Biology Project Fellows Dr. Michael Placzek (Massachusetts General…
Read MoreRoche Regroups: New Partnerships forged in HD Research
Posted on September 16, 2021
After an unexpected dosing halt in the GENERATION-HD1 study nearly 6 months ago, Roche is gearing up to increase their…
Read MoreWave Life Sciences begins SELECT-HD Trial
Posted on September 9, 2021
Wave Life Sciences shared a press release this morning announcing that dosing has begun in the SELECT-HD trial. The study…
Read MoreAdvances in Gene Therapy: HDBuzz Covers Exciting New Regulatory System, Xon
Posted on September 2, 2021
Researchers at the Children’s Hospital of Philadelphia have created a system to better regulate gene editing by administration of a secondary activator drug. This novel system, dubbed Xon, acts…
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