Human Biology Project Now Accepting Letters of Intent
Posted on April 2, 2020
Despite the current circumstances, HDSA’s support for HD families will not waver. This includes our commitment to research, and this week, our largest initiative, the HD…
Read MoreAnniversary of Discovery of the HD Gene
Posted on March 26, 2020
Today, March 26th, in 1993, the discovery of the CAG repeat mutation that causes Huntington’s disease was published. The authors were the Huntington’s Disease Collaborative Research Group, an…
Read MoreLouise Vetter Discusses HDSA’s HD Trialfinder
Posted on March 19, 2020
HDSA’s President and CEO Louise Vetter spoke on Friday, March 13th with James Valvano of We Have a Face, an organization dedicated to broadening global…
Read MoreIcons in HD Share Their Stories
Posted on March 11, 2020
HD made big news this week with a story in the New York Times about Dr. Nancy Wexler of the Hereditary Disease…
Read MoreHDBuzz Coverage of CHDI’s 15th Annual HD Therapeutics Conference
Posted on March 5, 2020
Our friends at HDBuzz created phenomenal real-time summaries of the presentations at the HD Therapeutics Conference held by CHDI last week in Palm…
Read MoreCHDI’s Huntington’s Disease Therapeutics Conference
Posted on February 27, 2020
This week marks the 15th annual HD Therapeutics Conference, hosted by CHDI, a private foundation devoted to HD research. HD…
Read MoreHDSA Research Webinar on Brain Development
Posted on February 20, 2020
On Wednesday February 19th, Dr. Peg Nopoulos, Director of the HDSA Center of Excellence at the University of Iowa, presented an…
Read MoreResearch Survey on HD & Romantic Relationships
Posted on February 13, 2020
HDSA works with students and researchers to review HD research surveys and make them available on our survey page. Participating in…
Read MoreHDSA Expands Centers of Excellence Program to 50 Sites
Posted on February 6, 2020
HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. Professionals at these locations include neurologists,…
Read MoreNOW AVAILABLE: Research Year in Review Webinar
Posted on January 30, 2020
HDSA’s annual Research Year in Review webinar is now available to view. Check it out for an overview of HDSA’s research…
Read MoreHDSA Publishes 2019 Year in Review
Posted on January 23, 2020
This week HDSA issued the 2019 edition of our Year In Review Magazine, which features highlights from HDSA’s Mission-related programs and…
Read MoreNew Online Application System for HDSA Research Grants
Posted on January 15, 2020
HDSA’s research program has expanded in recent years, and in 2020 we’re using a new online platform to help smooth…
Read MoreUpcoming HDSA Research Webinar
Posted on January 9, 2020
2019 was a big year for HD research, and we’ll be recapping HDSA’s research activities, and the field’s major discoveries…
Read MoreWave Life Sciences Announces Data and Expansion of PRECISION-HD Studies
Posted on January 3, 2020
Happy New Year from HDSA! To wrap up 2019, we received some exciting clinical trial news. Wave Life Sciences is conducting…
Read MoreHDSA Awards $50,000 in Clinical Research Pilot Grants
Posted on December 24, 2019
This year HDSA was able to offer a new grant mechanism to foster novel clinical research studies within our Centers…
Read MoreRoche Video About HD Features Berman-Topper Fellow
Posted on December 11, 2019
Roche recently created a video about Huntington’s disease that is narrated by HDSA Berman-Topper Fellow Lauren Byrne. The video is a…
Read MoreSTAT Article: HD Clinical Trials Bring Hope
Posted on December 5, 2019
This week an article in STAT talks about the ongoing Roche GENERATION-HD1 trial. The story explains Huntington’s disease and covers the experiences…
Read MoreHappy Thanksgiving from HDSA
Posted on November 27, 2019
Happy Thanksgiving from all of us at HDSA! We are especially grateful for your engagement in research – it’s how medicine moves…
Read MoreThe Marker: HDSA’s 2019 Research Report
Posted on November 21, 2019
Each year, HDSA prepares a report that covers what happened in HD research this year. This year, The Marker includes HDSA research activities…
Read MoreHSG Announces New Phase 3 Study To Test Drug For HD Chorea
Posted on November 13, 2019
The Huntington Study Group issued a press release about a new study to treat the movements associated with HD, known as chorea….
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