Blog

HDSA Names Five 2019 HD Human Biology Project Fellows

Posted on October 17, 2019

This week, we announced the winners of the 2019 HD Human Biology Fellowship. These young scientists were chosen for their…

This Week in HD History: Remembering Marjorie Guthrie

Posted on October 10, 2019

On October 6th, 1917, HDSA’s founder Marjorie Guthrie was born. Not only did Marjorie found the Committee to Combat Huntington’s…

This Week in HD History: Huntingtin Aggregates

Posted on October 3, 2019

One of the telltale signs of Huntington’s disease is the clumps of huntingtin protein that build up all over the…

Meeting of HDSA’s Scientific Advisory Board

Posted on September 26, 2019

HDSA’s Scientific Advisory Board will gather this week at our national offices in New York City to discuss this year’s…

Last Chance to Participate in HDSA’s Survey About PGD-IVF

Posted on September 19, 2019

HDSA’s PGD-IVF survey is closing on September 20th – please add your voice so that we can best serve the…

Why Families Are Critical To HD Research

Posted on September 12, 2019

Ever wonder why HDSA and the HD research community is always talking about Enroll-HD? Are you curious about the HD…

New HD Research Survey on Occupational Therapy

Posted on September 5, 2019

Occupational therapists at CUNY York College are conducting a 5-minute survey of both patients and caregivers that seeks to understand…

Turning Off the Cause of Huntington’s Disease

Posted on August 29, 2019

Blogger and HD advocate “Gene Veritas” shared a post this week about gene editing and an upcoming gene therapy symposium…

“Hiccup” in HD Gene Contributes to Age of HD Onset

Posted on August 22, 2019

The age that Huntington’s disease symptoms appear can vary a lot from person to person. For decades, scientists have been…

HDSA Accepting Letters of Interest for 2020 Centers of Excellence Program

Posted on August 15, 2019

HDSA’s Centers of Excellence (COEs) provide multidisciplinary care services to families affected by Huntington’s disease, including neurology, psychology, genetic counseling,…

Participate in HDSA’s Survey About PGD-IVF

Posted on August 8, 2019

HDSA is committed to providing individuals and families impacted by HD with the resources they need to make informed choices….

PRECISION-HD2 Results from Wave Life Sciences Expected in Late 2019

Posted on August 1, 2019

Wave Life Sciences is conducting two early safety studies of huntingtin-lowering therapies, called PRECISION-HD1 and PRECISION-HD2. In a business update…

HD Legacy: Brain Donation for HD Research

Posted on July 25, 2019

To enable cutting-edge Huntington’s disease research, HDSA is collaborating with CHDI to support the donation of brain and other organs…

Gene Silencing Therapy for Amyloidosis Approved in the UK

Posted on July 17, 2019

Last week saw the approval of a genetic therapy for a rare disease called hereditary transthyretin-mediated amyloidosis (hATTR amyloidosis). As…

The Blog Returns: 34th Annual HDSA Convention Research Recap

Posted on July 11, 2019

This week, Dr. Fox returns from maternity leave and resumes the HDSA research blog! The 34th Annual HDSA Convention in…

#LetsTalkAboutHD

Posted on April 4, 2019

May is HD awareness month, and every day HDSA will be sharing family stories, celebrity PSAs, HD facts and much…

Roche/Genentech Amends GENERATION-HD1 Study

Posted on March 28, 2019

On Thursday, March 21st, Roche/Genentech released a Community Statement about changes to the GENERATION-HD1 study, the clinical trial testing huntingtin-lowering…

Interview with Roche Representatives

Posted on March 21, 2019

A few weeks ago we blogged about the Annual CHDI Huntington’s disease Therapeutics Conference in Palm Springs, California. This week,…

Gene Therapy 101

Posted on March 14, 2019

In addition to ongoing clinical trials of Roche/Genentech and Wave huntingtin-lowering therapies, a number of other companies are developing drugs…

Annual CHDI Huntington’s Disease Therapeutics Conference

Posted on March 7, 2019

This week in Palm Springs, California, CHDI Foundation hosted the 14th Annual HD Therapeutics Conference. This yearly conference draws academic…