Dr. Leora Fox keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

Enroll-HD: A Resource For Everyone

Posted on January 21, 2021

Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…

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Ask the Doctor…Anything! 

Posted on January 14, 2021

Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…

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Happy New Year From HDSA 

Posted on January 7, 2021

Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…

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Happy Holidays from the HDSA Family 

Posted on December 24, 2020

Despite the challenges of 2020, your support of HDSA this year has continued to remind all of us that in the fight against Huntington’s…

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Publication from an HDSA Fellow 

Posted on December 17, 2020

Congratulations to 2019 Berman-Topper Fellow Dr. Lauren Byrne, whose work was recently published in the Journal Science Translational Medicine. She tweeted this week about…

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The Marker: HDSA’s Annual Research Report

Posted on December 10, 2020

Each year HDSA’s annual research report, The Marker, covers the past year in HD science and HDSA research activities. Check…

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HDSA Announces Four 2020 Human Biology Fellows

Posted on December 3, 2020

This week, HDSA announced the winners of the 2020 HD Human Biology Fellowship. HDSA’s largest research initiative, the Human Biology Project supports projects that focus…

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Happy Thanksgiving

Posted on November 26, 2020

Happy Thanksgiving and a big thank you to members of the HD community for your participation in research. Medicine moves…

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PTC Therapeutics Initiates Phase 1 Clinical Trial

Posted on November 19, 2020

PTC Therapeutics is a company focused on developing genetic and small molecule therapies for rare and serious disorders. This week they issued…

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Triplet Therapeutics SHIELD-HD study fully recruited 

Posted on November 12, 2020

Triplet Therapeutics is a Boston-based biotech company that is developing therapies for CAG repeat disorders like HD. Their focus is studying…

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HDBuzz: Clinical Research Updates from the HSG Conference

Posted on November 5, 2020

The Huntington Study Group hosted a virtual conference from October 29th – 31st, covering clinical trial updates, education, and training for HD…

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HSG 2020: HD in Focus

Posted on October 29, 2020

The Huntington Study Group is a clinical research network focused exclusively on Huntington disease. Each year they host a conference that provides education…

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Novartis Receives FDA Orphan Drug Designation to Study Potential HD Treatment

Posted on October 22, 2020

This week the pharmaceutical company Novartis announced that they had received special status from the FDA, known as Orphan Drug Designation,…

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uniQure Trial Proceeds; Voyager Receives Regulatory Feedback

Posted on October 15, 2020

This week uniQure shared a press release stating that another two patients have entered their HD clinical trial. The drug, AMT-130, is an experimental gene therapy that…

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HDBuzz Covers Virtual EHDN Conference

Posted on October 8, 2020

The European Huntington’s Disease Network hosts a yearly Plenary meeting to discuss the latest in HD science and clinical trials,…

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HD Trialfinder: Study Updates

Posted on October 1, 2020

HDSA’s HD Trialfinder is an easy-to-use website that lists currently recruiting HD clinical trials in the United States and Canada. By answering some basic questions about…

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SIGNAL study of pepinemab does not meet key goals for HD patients  

Posted on September 24, 2020

The SIGNAL study was carried out by a company called Vaccinex to test whether their drug, pepinemab, could combat brain inflammation and ease symptoms…

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Highlights from the EHDN Virtual Congress

Posted on September 17, 2020

This week the 2020 European Huntington’s Disease Network (EHDN) hosted a virtual plenary meeting to discuss the latest in HD research…

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You Asked the Scientists!

Posted on September 10, 2020

The recording from the latest HDSA Research Webinar, Ask the Scientist Anything, is now available on HDSA’s YouTube channel. Dr….

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Research Webinar: Ask the Scientist…Anything! 

Posted on September 3, 2020

This coming Tuesday, September 8th, at 12 PM Eastern, Dr. Ed Wild and Dr. Jeff Carroll, creators of HDBuzz, as well as HDBuzz writers Dr….

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