STAT Article: HD Clinical Trials Bring Hope
Posted on December 5, 2019
This week an article in STAT talks about the ongoing Roche GENERATION-HD1 trial. The story explains Huntington’s disease and covers the experiences…
Read MoreHappy Thanksgiving from HDSA
Posted on November 27, 2019
Happy Thanksgiving from all of us at HDSA! We are especially grateful for your engagement in research – it’s how medicine moves…
Read MoreThe Marker: HDSA’s 2019 Research Report
Posted on November 21, 2019
Each year, HDSA prepares a report that covers what happened in HD research this year. This year, The Marker includes HDSA research activities…
Read MoreHSG Announces New Phase 3 Study To Test Drug For HD Chorea
Posted on November 13, 2019
The Huntington Study Group issued a press release about a new study to treat the movements associated with HD, known as chorea….
Read MoreScientists Experiment with a New Huntingtin-Lowering Strategy
Posted on November 7, 2019
The huntingtin-lowering drugs in clinical trials right now are focused on attacking mutant huntingtin on the RNA level – essentially…
Read MoreInsights on HD Age of Onset
Posted on October 31, 2019
Several groups of scientists have reported recently on how CAG length “hiccups” or expansions during life can influence the age of…
Read MoreWorld’s First HD Gene Therapy Trial
Posted on October 24, 2019
Boston-based company uniQure is conducting the first HD gene therapy trial of their drug AMT-130. The Phase 1/2 trial is designed to test…
Read MoreHDSA Names Five 2019 HD Human Biology Project Fellows
Posted on October 17, 2019
This week, we announced the winners of the 2019 HD Human Biology Fellowship. These young scientists were chosen for their…
Read MoreThis Week in HD History: Remembering Marjorie Guthrie
Posted on October 10, 2019
On October 6th, 1917, HDSA’s founder Marjorie Guthrie was born. Not only did Marjorie found the Committee to Combat Huntington’s…
Read MoreThis Week in HD History: Huntingtin Aggregates
Posted on October 3, 2019
One of the telltale signs of Huntington’s disease is the clumps of huntingtin protein that build up all over the…
Read MoreMeeting of HDSA’s Scientific Advisory Board
Posted on September 26, 2019
HDSA’s Scientific Advisory Board will gather this week at our national offices in New York City to discuss this year’s…
Read MoreLast Chance to Participate in HDSA’s Survey About PGD-IVF
Posted on September 19, 2019
HDSA’s PGD-IVF survey is closing on September 20th – please add your voice so that we can best serve the…
Read MoreWhy Families Are Critical To HD Research
Posted on September 12, 2019
Ever wonder why HDSA and the HD research community is always talking about Enroll-HD? Are you curious about the HD…
Read MoreNew HD Research Survey on Occupational Therapy
Posted on September 5, 2019
Occupational therapists at CUNY York College are conducting a 5-minute survey of both patients and caregivers that seeks to understand…
Read MoreTurning Off the Cause of Huntington’s Disease
Posted on August 29, 2019
Blogger and HD advocate “Gene Veritas” shared a post this week about gene editing and an upcoming gene therapy symposium…
Read More“Hiccup” in HD Gene Contributes to Age of HD Onset
Posted on August 22, 2019
The age that Huntington’s disease symptoms appear can vary a lot from person to person. For decades, scientists have been…
Read MoreHDSA Accepting Letters of Interest for 2020 Centers of Excellence Program
Posted on August 15, 2019
HDSA’s Centers of Excellence (COEs) provide multidisciplinary care services to families affected by Huntington’s disease, including neurology, psychology, genetic counseling,…
Read MoreParticipate in HDSA’s Survey About PGD-IVF
Posted on August 8, 2019
HDSA is committed to providing individuals and families impacted by HD with the resources they need to make informed choices….
Read MorePRECISION-HD2 Results from Wave Life Sciences Expected in Late 2019
Posted on August 1, 2019
Wave Life Sciences is conducting two early safety studies of huntingtin-lowering therapies, called PRECISION-HD1 and PRECISION-HD2. In a business update…
Read MoreHD Legacy: Brain Donation for HD Research
Posted on July 25, 2019
To enable cutting-edge Huntington’s disease research, HDSA is collaborating with CHDI to support the donation of brain and other organs…
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