Blog

Volunteer Appreciation Week

Posted on April 22, 2021

This is Volunteer Appreciation Week and we would like to thank all the brave individuals who have volunteered their time…

Grieving Setbacks with Hope for the Future

Posted on April 15, 2021

The difficult news of clinical setbacks from Roche and Wave have turned the recent weeks into an emotional rollercoaster for…

Positive News from uniQure: Successful Study Recruitment

Posted on April 8, 2021

uniQure shared a press release this week stating that their safety trial of an HD gene therapy drug, AMT-130, is…

More Disappointment in Wave PRECISION-HD Study Results 

Posted on April 1, 2021

This Monday, March 29th, Wave Life Sciences shared a press release and community letter explaining that data from their PRECISION-HD1…

Disappointing news from Roche about GENERATION-HD1 study 

Posted on March 25, 2021

We were saddened to learn on March 22nd via a press release and community statement from Roche that their Phase 3 study of tominersen, known as…

Brain Awareness Week

Posted on March 18, 2021

Brain Awareness Week is a (March 15th – 21st, 2021) is a global campaign to foster public enthusiasm and support for brain science,…

HDSA Research Webinar: KINECT-HD

Posted on March 11, 2021

If you missed this week’s research webinar about the KINECT-HD clinical study, it is now available on HDSA’s YouTube channel. Dr….

Upcoming HDSA Webinars

Posted on March 4, 2021

HDSA & Me is a web series presenting unique programming to educate and to brighten your day. TODAY, March 4th, at 2:00…

February 28th is Rare Disease Day 

Posted on February 25, 2021

When you have a rare disease, you face two battles – one being the illness itself, and the other, living…

HDBuzz Explores a Novel Huntingtin-lowering Strategy

Posted on February 18, 2021

Huntingtin-lowering is an HD treatment strategy that usually involves targeting the HD gene itself, but some researchers are exploring roundabout ways to achieve…

Upcoming HDSA 2020 Year in Review Webinar

Posted on February 11, 2021

As we mentioned in January, we’ll be hosting an HD Research Year in Review webinar on Thursday, February 18th, at 12 PM…

HDSA Announces 54 Centers of Excellence for 2021  

Posted on February 4, 2021

HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. On February 2nd, HDSA announced…

Recap: PROOF-HD Webinar 

Posted on January 28, 2021

If you missed this week’s research webinar, in which Dr. Sandra Kostyk and Dr. Andrew Feigin discussed a new HD…

Enroll-HD: A Resource For Everyone

Posted on January 21, 2021

Enroll-HD is a worldwide observational study of Huntington’s disease, meaning that it doesn’t involve taking a drug but tracks peoples’ health…

Ask the Doctor…Anything! 

Posted on January 14, 2021

Next Thursday, January 21st, at 2 PM Eastern, HDSA will be hosting an Ask the Doctor Anything webinar. Register today to interact with…

Happy New Year From HDSA 

Posted on January 7, 2021

Last year was a tough one for all of us, but HD research nevertheless made incredible progress, and we are…

Happy Holidays from the HDSA Family 

Posted on December 24, 2020

Despite the challenges of 2020, your support of HDSA this year has continued to remind all of us that in the fight against Huntington’s…

Publication from an HDSA Fellow 

Posted on December 17, 2020

Congratulations to 2019 Berman-Topper Fellow Dr. Lauren Byrne, whose work was recently published in the Journal Science Translational Medicine. She tweeted this week about…

The Marker: HDSA’s Annual Research Report

Posted on December 10, 2020

Each year HDSA’s annual research report, The Marker, covers the past year in HD science and HDSA research activities. Check…

HDSA Announces Four 2020 Human Biology Fellows

Posted on December 3, 2020

This week, HDSA announced the winners of the 2020 HD Human Biology Fellowship. HDSA’s largest research initiative, the Human Biology Project supports projects that focus…