Community &
Social Support

YOUTH SERVICES

When children are not sure what’s happening to their family because of HD, and not given answers to what they see or an avenue to discuss it, they may create erroneous explanations on their own. Learn how to talk to your kids about HD. >

CAREGIVER SERVICES & RESOURCES

Caregiving is an act of courage, love and sacrifice. As a caregiver, you have chosen to put the wellbeing of a loved one with HD on an equal footing (or even above) your own needs. Learn how to cope with the responsiblity of taking care of your loved one - and yourself! >

HDSA TELEHEALTH

HDSA Telehealth is a free internet-based program powered by Amwell, that brings qualified HD knowledgeable licensed social workers and psychologists to the HD community. Learn how this service can help you. >

HDSA SUPPORT GROUPS

Support groups can offer vital emotional support, valuable advice about community-based resources as well as guidance from other group members about many of HD’s most challenging situations. >

HDSA SOCIAL WORKERS

Social workers offer assistance, information, education and access to community-based services within a specific region. Learn more. >

HDSA RESOURCE LIBRARY

Guide books are available for HD families, caregivers, and healthcare professionals. Learn more >

HDSA CENTERS OF EXCELLENCE

The HDSA Centers of Excellence provide a multidisciplinary approach to HD care and research. >

DISABILITY PROGRAM

HDSA has disability resources to support you
and your family. >

FAMILY EDUCATION

COEs and HDSA Chapters can partner to host community Educational Days with HDSA grant support. >

PROFESSIONAL EDUCATION

Free, continuing education courses for genetic counselors, social workers, OT and PT. >

CLINICAL TRIALS

The HD Trialfinder is a free, easy-to-use platform to help you find HD clinical trials. >

RESEARCH NEWS

HDSA provides worldwide HD research news via blogs, research webinars, and social media. >

HELPLINE

HDSA manages a helpline for HD families and professionals M-F, 9am-5pm EST, staffed by trained HD social workers.
Call (800) 345-HDSA

HDSA ON-DEMAND

All of our videos, webinars, Convention workshops, PSAs and HDSA produced films can be found on HDSA YouTube Channel for on-demand viewing. >

HDSA FAMILY OF SERVICES DOCUMENT

Download the HDSA Family of Services document to share with folks in your community. >