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HDSA Helpline

What is HDSA’s Helpline?

Anyone affected by Huntington’s disease is welcome to call our HDSA Helpline at 1-800-345-HDSA (1-800- 345-4372) for guidance on Huntington’s disease (HD). Individuals at-risk or diagnosed with HD, Family and Friends with a loved one at-risk or diagnosed with HD, and/or Health Care Professionals can call for support. Some examples of calls might include:

  • Help understanding the symptoms of HD and symptom management
  • Finding local options for genetic testing and/or patient care
  • Locating community resources
  • Learning about HDSA’s supportive services including support groups
  • Connecting to a local HDSA chapter or affiliate

 

When is HDSA’s Helpline open?

HDSA’s Helpline is generally available Monday through Friday from 9am-5pm ET. You can also email us with questions at HDSAinfo@HDSA.org. At times, we will not be able to answer calls immediately, please leave a message with your name and phone number. While we strive to return phone calls as soon as possible, it may take up to 2 business days to respond.

  

Who will I speak with on HDSA’s Helpline?

 Compassionate HDSA trained social workers answer Helpline calls and emails

 

What if I need immediate help?

 If you are experiencing a life-threatening emergency, please dial 911. Additional crisis lines are available:
Call or text 988 for the Suicide and Crisis Lifeline for 24/7 free, confidential mental health hotline 
National Domestic Violence Hotline at 1-800-799-SAFE for 24/7 free, confidential support

 

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