logo
Donate Create or log into HDSA Account
  • About HDSA
  • News
  • Events
  • Advocacy
  • Chapters & Affiliates
  • HDSA Centers of Excellence
  • HDSA’s NYA
  • PUBLICATIONS
  • What is
    HD?
    • What Is HD?

      Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.  It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

      • History and Genetics of Huntington’s Disease
      • Overview of HD
      • Who Is At-Risk?
      • Genetic Testing & Family Planning
      • Juvenile Onset HD
      • History of HD
      • Huntington’s Disease Symptoms
      • The Age of Onset
      • Motor / Physical Symptoms
      • Cognitive Symptoms
      • Behavioral / Psychological Symptoms
      • Stages of Huntington’s Disease
      • Early Stage
      • Middle Stage
      • Late Stage
  • Find
    Help
    • Find Help

      Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families.

      • LOCATE RESOURCES IN YOUR AREA
      • Clinical Care & Services
      • HDSA Centers of Excellence
      • Symptom Management
      • Suicide Prevention
      • Healthcare & Future Planning
      • Genetic Testing & Your Rights
      • Disability Benefits and HD
      • Long-Term HD Care
      • Living Well With HD
      • Nutrition
      • Exercise / Physical Therapy
      • Swallow Dysfunction & Choking
      • Speech
      • Law Enforcement Training Guide
      • Community & Social Support
      • Youth Services
      • Caregiver Services & Resources
      • HDSA Telehealth
      • HDSA Support Groups
      • HDSA Social Workers
      • HDSA Resource Library
  • HD
    Research
    • HD Research

      Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved.

      • Participate in HD Research
      • HD Trialfinder
      • Participate in Online Surveys
      • Enroll-HD
      • Learn About HD Research
      • This Week In HD Research Blog
      • HDSA Research Webinars
      • HDBuzz
      • Annual HDSA Research Reports
      • HD Research in the Pipeline
      • HDSA Research Funding Programs
      • HD Human Biology Project
      • Donald A. King Fellowship
      • Berman-Topper Fellowship
      • Spotlight on HD Researchers
      • HD Cope
      • Scientific Advisory Board
  • Healthcare
    Professional Resources
    • Healthcare Professional resources

      This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories.

      • HD 101: CME SERIES
      • SOCIAL WORKER CONTINUING EDUCATION
      • RESOURCES FOR PHYSICAL THERAPISTS
      • PT CONTINUING EDUCATION
      • RESOURCES FOR SOCIAL WORKERS
      • OT CONTINUING EDUCATION
      • GENETIC COUNSELORS CONTINUING EDUCATION
  • Get
    Involved
    • GET INVOLVED

      When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD.

      • DONATION OPPORTUNITIES
      • One-Time Donation
      • Monthly Giving
      • Tribute & Memorial Donations
      • Stocks / Assets / Real Estate
      • Legacy Giving
      • Matching Gifts Program
      • Workplace Giving
      • Vehicle Donations
      • HDSA Tree of Help & Hope
      • HDSA Family Funds
      • Sweepstakes
      • Corporate Partnerships
      • Volunteer Opportunities
      • Volunteer Registration
      • Volunteer Spotlight
      • HDSA New York City Marathon
      • HD ADVOCACY
      • Team Hope Walk Program
      • HDSA Events
      • HDSA Gear
      • Flowers for HDSA
      • Publications
      • Shop HDSA Partners
  • blog
  • tag
  • research
  • Email
  • Like
  • Tweet
  • Rss

Blog

In this Blog

  • September 2024
  • August 2024
  • July 2024
  • June 2024
  • May 2024
  • April 2024
  • March 2024
  • February 2024
  • January 2024
  • December 2023
  • November 2023
  • October 2023
  • September 2023
  • August 2023
  • July 2023
  • June 2023
  • May 2023
  • April 2023
  • March 2023
  • February 2023
  • January 2023
  • December 2022
  • November 2022
  • October 2022
  • September 2022
  • August 2022
  • July 2022
  • June 2022
  • May 2022
  • April 2022
  • March 2022
  • February 2022
  • January 2022
  • December 2021
  • November 2021
  • October 2021
  • September 2021
  • August 2021
  • July 2021
  • June 2021
  • May 2021
  • April 2021
  • March 2021
  • February 2021
  • January 2021
  • December 2020
  • November 2020
  • October 2020
  • September 2020
  • August 2020
  • July 2020
  • June 2020
  • May 2020
  • April 2020
  • March 2020
  • February 2020
  • January 2020
  • December 2019
  • November 2019
  • October 2019
  • September 2019
  • August 2019
  • July 2019
  • April 2019
  • March 2019
  • February 2019
  • January 2019
  • December 2018
  • November 2018
  • October 2018
  • September 2018
  • August 2018
  • July 2018
  • June 2018
  • May 2018
  • April 2018
  • March 2018
  • February 2018

This Week In Huntington's Disease Research keeps you up-to-date on HDSA research activities, recently published work about Huntington’s disease, historical moments in HD research and more.

HDSA Expands Centers of Excellence Program to 47 Sites

Posted on February 7, 2019

HDSA Centers of Excellence provide world-class multidisciplinary care to families all over the United States. Professionals at these locations include…

Read More
  • CONTACT US

    505 Eighth Avenue / Suite 1402
    New York, NY 10018

    Helpline: 800-345-HDSA (4372)
    National Office: 212-242-1968
    Email: HDSAinfo@HDSA.org
    • What is HD?
    • Find Help
    • HD Research
    • Healthcare Professional Resources
    • Get Involved
    • About HDSA
    • News
    • Events
    • Chapters & Affiliates
    • HDSA Centers of Excellence
    • HDSA National Youth Alliance
    • Publications
    • HDSA Connect
    • Disclosures
    • Tax Returns & Audited Financials
    • Privacy Policy
Donate
  • Charity Navigator Four-Star Rating

© 2025 Huntington’s Disease Society of America. All rights reserved.

Contact Us

Share a link