Appreciating Research Volunteers
Posted on April 19, 2018
This week HDSA is celebrating National Volunteer Appreciation Week. This goes for research, too! We’d like to express our heartfelt…
Read MoreResearch Forum at HDSA’s 33rd Annual Convention
Posted on April 12, 2018
Huntington’s disease research plays a big role at our annual Convention, which is taking place this year on June 7th-9th…
Read MoreInterview Study for Parents and Adolescents about Genetic Risk
Posted on April 5, 2018
If you are 15-17 years old or are the parent of a 15-17 year old, consider participating in an interview…
Read MoreHDSA’s Human Biology Project
Posted on March 29, 2018
The identification of the HD gene led to the development of many animal models that have helped us to better…
Read More25th Anniversary of Discovering the HD gene
Posted on March 22, 2018
This week marks 25 years since the identification of the gene that causes Huntington’s disease. The discovery of the repeating…
Read MoreNew Partnership to Advance Treatments for Brain Disease
Posted on March 15, 2018
On Monday, HDSA announced a partnership with the ALS Association and Teva Pharmaceuticals on a project to help identify new…
Read MoreInterpreting this Week’s News: Data from the First Phase of the Ionis-Roche Trial
Posted on March 8, 2018
This week, Ionis Pharmaceuticals shared data from the successful safety trial for their huntingtin-lowering drug. The data confirms what was…
Read MoreCHDI’s Huntington’s Disease Conference in Palm Springs
Posted on March 1, 2018
This week in Palm Springs, California marks the 13th Annual HD Therapeutics Conference. This yearly conference draws academic and industry…
Read MoreInterpreting this Week’s News: Hope for Gene Therapy, and How to Get it to the Brain
Posted on February 22, 2018
Delivery of genetic therapies to the brain is one of the biggest challenges facing researchers in many fields of neurological…
Read MoreInterpreting This Week’s News: Fighting Cancer…With HD?
Posted on February 15, 2018
Research studies in recent years have shown that people with Huntington’s Disease and related hereditary CAG repeat disorders have lower…
Read MoreFirst HD-COPE Meeting
Posted on February 8, 2018
The first meeting of the Huntington’s Disease Coalition for Patient Engagement (HD-COPE) took place in London this week. HD-COPE unites…
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