Register Today!

Join us for the
in historic Boston, Massachusetts, at the Marriott Boston Copley Place.
JUNE 27-29, 2019

Upcoming Convention Activities at a Glance

Join us for three days of education, family, fun and camaraderie!


  1. Exhibit Hall
  2. Team Hope Walk
  3. Welcome Reception


  1. Opening Ceremony and Keynote Address
  2. Educational Workshops
  3. HDSA Luncheon
  4. HDSA’s National Youth Alliance Talent Show


  1. Research Forum
  2. Educational Workshops
  3. Convention Gala

Stay tuned for more details!



Registration for Convention does not ensure a room reservation at the Boston Marriott Copley Place in Boston, MA.  You must make your room reservations separately.

Due to an overwhelming response only select nights are available at the $159 rate. HDSA has secured another room block at the same hotel at $269 per night (plus Tax). We strongly urge you to call the hotel directly at 1-877-901-2079 to make you reservation as you will need rooms from both block to attend all days. If you wish to view availability online please visit the following sites

Click here for $159 (plus Tax) Room availability

Click here for $269 (plus Tax) Room availability 

Boston Marriott Copley Place
110 Huntington Avenue
Boston, MA 02116


We have partnered with United Airlines to offer travel discounts to our event.
Visit and enter ZGN9128996 in the Offer Code box.
You may also call United Meeting Reservation Desk at 800-426-1122 Mon-Fri 8am – 10pm ET and Sat/Sun 8am – 6pm ET. Booking fees are waived for Meeting reservations.


Scholarship Opportunities

National Convention Scholarship (Non-Massachusetts Residents)

Thanks to the generous support of Lundbeck, HDSA is pleased to offer scholarship opportunities to attend the 34th Annual HDSA Convention. This scholarship is open to first time Convention attendees who are not Massachusetts residents. (See separate application for Massachusetts residents.)

National Convention Scholarship Application
(Application Deadline: April 10, 2019)


National Youth Alliance (NYA) Scholarship

The HDSA NYA is also offering full and partial scholarships for youth from HD families to attend the Convention and participate in NYA Day, a special day-long program for young members of HD families.  All children and young adults from HD families are encouraged to learn more about the NYA and apply for financial support to attend Convention.  Visit for more information and for free membership.  (NYA members who received a scholarship to the 2018 Convention are not eligible to apply.)

National Youth Alliance Convention Scholarship Application  
(Application Deadline: April 3, 2019)


Convention Scholarship: Massachusetts Residents Only

Thanks to the generous support of Lundbeck, HDSA is pleased to offer scholarship opportunities for Massachusetts residents to attend the 34th Annual HDSA Convention. There are no restrictions for this scholarship regarding prior Convention attendance. 

Convention Scholarship Application: Massachusetts Residents 
(Application Deadline: April 10, 2019)


2018 HDSA Convention Recap Video

Check out the sights and sounds from our 33rd Annual Convention which was held in Los Angeles, California, June 7-9, 2018.


Past Convention Presentations

View videos and reports from past HDSA National Conventions.