860 family members, clinicians, researchers and interested guests attended the 27th Annual HDSA Convention in Las Vegas, June 9-11.

Videos of major symposia and several workshops are available by clicking on the pages below. Powerpoint presentations from other workshops will be available in the next few weeks.

Opening Ceremony

Welcome from Jenny Rogers, Chair of Las Vegas Affiliate of HDSA; Message from HDSA by Don Barr , Chair of HDSA Board of Trustees; State of the Society by Louise Vetter, CEO

We Are HDSA
Panel of HDSA family Members : Ted Krull, Shana Martin, Ken Serbin

Saturday Morning
HDSA Research Keynote Address
Huntington’s Disease – Yes We Can!
Sarah Tabrizi, MD, FRCP, PhD
University College London

 

Clinical Research Showcase

 

Moderator: Ira Shoulson, MD

Panelists:
Bernard Landwehrmeyer, MD, PhD – ENROLL-HD
Jane Paulson, PhD – PREDICT 2.0
Steven Hersch, MD, PhD – CREST-E
Ira Shoulson, MD – Reach2HD

 

Workshops

Movement and HD HD 101: Martha Nance, MD

 

Behavior, Cognition and Movement and HD
Alternative Medicine: Kathleen Shannon, MD

 

Ethical Issues
Psychological Consequences of a Negative Test Result: Carol Manning, PhD

 

Behavior Issues Treatment Options , Pharmacologic Options: Dylan Wint, MD

 

Cognition and HD Detection of Early and Mid Stage Cognition Problems: Don Higgins, Jr., MD

 

 Please check back often. We are posting presentations everyday

Topic Title Speaker Presentation for Download
Behavior Issues Behavior Management Issues in Early HD Lorin Scher, MD Presentation for Download
Cognition and HD Overview of Cognitive Problems and HD Jane Paulsen, PhD Presentation for Download
Movement and HD HD 101 Martha Nance, MD Presentation for Download
Ethical Issues Caring for the Caregiver Amy Chesire, LCSW-R, MSG Presentation for Download
All Attendees Estate Planning MetLife Center for Special Needs Planning,
Robert Westbrook,
CLU, ChFC, CFP© &
Mark Loftis,
CFP©, CLU, ChFC
Presentation for Download
Field Leadership Board, Volunteer and Committee Development Presentation for Download
JHD What Is Juvenile Onset HD? Sandra Kostyk, MD, PhD Presentation for Download
Behavior Issues Managing Behavior
Non-Pharmacologic Approaches
Donna Munic-Miller, PhD Presentation for Download
Cognition and HD Detection of Early and Mid Stage Cognitive Problems Don Higgins, Jr., MD Presentation for Download
Movement and HD Medical Management of Motor Symptoms Victor Sung, MD Presentation for Download
All Attendees How to Start an HDSA Support Group Seth Meyer, LMSW Presentation for Download
HDSA Field Leadership Start a Team Hope Walk in Your Community Presentation for Download
JHD JHD Natural History Jane Paulsen, PhD Presentation for Download
Behavior Issues Treatment Options
Pharmacologic Options
Dylan Wint, MD Presentation for Download
Movement and HD Nutrition Assistance Zhaoping Li, MD Presentation for Download
Ethical Issues Psychological Issues of Testing Positive for HD Kim Quaid, PhD Presentation for Download
All Attendees Advocacy Meet and Greet  Peggy Tighe, JD,
Jason Gromley, Esq.
and Jane Kogan, LMSW
Presentation for Download
Youth, Teens and Young Adults The Genetic Testing Process Unraveled Katie Plunkett, MS Presentation for Download
HDSA Field Leadership Create a New Fundraising Event in Your Community Presentation for Download
JHD Multidisciplinary Approach to Treatment and Care Martha Nance, MD Presentation for Download
HDSA RESEARCH Huntington’s disease – Yes We Can! Sarah Tabrizi, MD, FRCP, PhD Presentation for Download
HDSA RESEARCH CLINICAL RESEARCH SHOWCASE Moderator: Ira Shoulson, MD
Panelists: Bernhard Landwehrmeyer, MD, PhD – ENROLL-HD
Jane Paulsen, PhD – PREDICT 2.0 Steven Hersch, MD, PhD – Crest-E
Ira Shoulson, MD – Reach2HD
Presentation for Download
Behavior, Cognition and Movement and HD Alternative Medicine Kathleen Shannon, MD Presentation for Download
Ethical Issues Family Planning Katie Plunkett, MS and Cheryl Erwin, JD Presentation for Download
Youth, Teens and Young Adults How Youth and Young Adults Can Make a Difference BJ Viau Presentation for Download
Juvenile Onset HD Special Needs Planning MetLife Center for Special Needs Planning
Robert J. Westbrook, CLU, ChFC, CFP® and Donna M. Stefans Esq
Presentation for Download
HDSA RESEARCH Potential New Therapies Moderator: Jang-Ho Cha, MD, PhD
Panelists: Beth Hoffman, PhD – Vertex
Adriana Prundean, MD – Raptor
Holly Kordasiewicz, PhD – Isis
Presentation for Download
HDSA Field Leadership HDSA Clinical Trials Diplomat Training Sam Frank, MD Presentation for Download
Behavior, Cognition and Movement and HD How to Communicate with Your Healthcare Provider Moderator; Donna Munic-Miller, PhD
Panel: Victor Sung, MD and Lorin Scher, MD
Presentation for Download
Ethical Issues Psychological Consequences of a Negative Test Result Carol Manning, PhD Presentation for Download
All Attendees Questions to Ask when Looking for a Long Term Care Facility Rebecca Ferrini, MD and Anthony Lechich, MD Presentation for Download
HDSA RESEARCH More Hope, Less Hype: Understanding HD Science News Jeff Carroll, PhD and Ed Wild, PhD Presentation for Download
HDSA Field Raising Awareness Presentation for Download
Leadership About Your HDSA Events Through Media Presentation for Download