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  • What is
    HD?
    • What Is HD?

      Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain.  It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

      • History and Genetics of Huntington’s Disease
      • Overview of HD
      • Who Is At-Risk?
      • Genetic Testing & Family Planning
      • Juvenile Onset HD
      • History of HD
      • Huntington’s Disease Symptoms
      • The Age of Onset
      • Motor / Physical Symptoms
      • Cognitive Symptoms
      • Behavioral / Psychological Symptoms
      • Stages of Huntington’s Disease
      • Early Stage
      • Middle Stage
      • Late Stage
  • Find
    Help
    • Find Help

      Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families.

      • LOCATE RESOURCES IN YOUR AREA
      • Clinical Care & Services
      • HDSA Centers of Excellence
      • Symptom Management
      • Suicide Prevention
      • Healthcare & Future Planning
      • Genetic Testing & Your Rights
      • Disability Benefits and HD
      • Long-Term HD Care
      • Living Well With HD
      • Nutrition
      • Exercise / Physical Therapy
      • Swallow Dysfunction & Choking
      • Speech
      • Law Enforcement Training Guide
      • Community & Social Support
      • Youth Services
      • Caregiver Services & Resources
      • HDSA Telehealth
      • HDSA Support Groups
      • HDSA Social Workers
      • HDSA Resource Library
  • HD
    Research
    • HD Research

      Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved.

      • Participate in HD Research
      • HD Trialfinder
      • Participate in Online Surveys
      • Enroll-HD
      • Learn About HD Research
      • This Week In HD Research Blog
      • HDSA Research Webinars
      • HDBuzz
      • Annual HDSA Research Reports
      • HD Research in the Pipeline
      • HDSA Research Funding Programs
      • HD Human Biology Project
      • Donald A. King Fellowship
      • Berman-Topper Fellowship
      • Spotlight on HD Researchers
      • HD Cope
      • Scientific Advisory Board
  • Healthcare
    Professional Resources
    • Healthcare Professional resources

      This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories.

      • HD 101: CME SERIES
      • SOCIAL WORKER CONTINUING EDUCATION
      • RESOURCES FOR PHYSICAL THERAPISTS
      • PT CONTINUING EDUCATION
      • RESOURCES FOR SOCIAL WORKERS
      • OT CONTINUING EDUCATION
      • GENETIC COUNSELORS CONTINUING EDUCATION
  • Get
    Involved
    • GET INVOLVED

      When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD.

      • DONATION OPPORTUNITIES
      • One-Time Donation
      • Monthly Giving
      • Tribute & Memorial Donations
      • Stocks / Assets / Real Estate
      • Planned Giving
      • Matching Gifts Program
      • Workplace Giving
      • Vehicle Donations
      • HDSA Tree of Help & Hope
      • HDSA Family Funds
      • Sweepstakes
      • Corporate Partnerships
      • Volunteer Opportunities
      • Volunteer Registration
      • HDSA New York City Marathon
      • HD ADVOCACY
      • Team Hope Walk Program
      • HDSA Events
      • HDSA Shop
      • HDSA Gear
      • Flowers for HDSA
      • Publications
      • Shop HDSA Partners
  • about hdsa
  • annual convention
  • 2017 2
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2017

Video Recordings are now available.

Friday, June 23, 2017

Welcome and Keynote from HDSA on Vimeo.

 

Living Positively (Powerpoint Only)

Driving Issues and HD from HDSA on Vimeo.

Improving Quality of Life through Healthy Living from HDSA on Vimeo.

 

Family Planning (PowerPoint Only)

 

Survivor Guilt from HDSA on Vimeo.

 

Movement Intervention for Neurodegenerative Disease (MIND) (PowerPoint Only)

Making Choices and Communicating with your Healthcare Advocate (PowerPoint Only)

To Test or Not To Test (PowerPoint Only)

Legal Planning When Living with a Chronic Medical Condition (PowerPoint Only)

 

Huntington’s Disguise from HDSA on Vimeo.

 

Managing Your Cognitive Symptoms (PowerPoint Only)

HDSA Research – Ask the Scientist Anything! from HDSA on Vimeo.

 

 What is an HDSA Center of Excellence? (PowerPoint Only)

Saturday, June 24, 2017

Research Keynote from HDSA on Vimeo.

 

HDSA RESEARCH from HDSA on Vimeo.

 

Clinical Trials Showcase from HDSA on Vimeo.

 

Navigating Psychiatric Admissions from HDSA on Vimeo.

 

Negative Isn’t Always Positive: Survivors Guilt (PowerPoint Only)

Music Therapy (PowerPoint Only)

 

Diagnosing JHD and Beyond from HDSA on Vimeo.

 

Sharing JHD Resources (PowerPoint Only)

Managing Your Psychiatric Symptoms from HDSA on Vimeo.

Genome Editing: CRISPR from HDSA on Vimeo.

 

 Life After Testing Positive (PowerPoint Only)

Dealing with Grief and Loss (PowerPoint Only)

 

Drug Discovery: From Idea to Treatment from HDSA on Vimeo.

  • CONTACT US

    505 Eighth Avenue / Suite 902
    New York, NY 10018

    Helpline: 800-345-HDSA (4372)
    National Office: 212-242-1968
    Email: HDSAinfo@HDSA.org
    • What is HD?
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