Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.
Locate HDSA Chapters and Affiliates, Support Groups, Social Workers, and Centers of Excellence in your area as well as additional local medical, legal, social, and therapeutic resources for people with HD and their families.
Since 1999, the Huntington’s Disease Society of America has committed more than $20 million to fund research, with the goal of finding effective treatments to slow Huntington’s disease. Our research efforts have helped to increase the number of scientists working on HD and have shed light on many of the complex biological mechanisms involved.
This section includes online courses for physicians, social workers and therapists who care for people with HD at the local level. Courses deal with cognitive, physical, therapeutic, technological and legal HD issues among other topics. This section also includes reference materials in video and PDF format for Social Workers on HD issues listed by varied categories.
When Marjorie Guthrie founded our organization in 1967, her vow was to “do something” about this devastating disease. Today we continue her legacy by bringing together the entire community to provide help and hope to all families affected by Huntington’s disease. Listed here are some of the ways you can get involved in the fight against HD.
Welcome and Keynote from HDSA on Vimeo.
Driving Issues and HD from HDSA on Vimeo.
Improving Quality of Life through Healthy Living from HDSA on Vimeo.
Survivor Guilt from HDSA on Vimeo.
Huntington’s Disguise from HDSA on Vimeo.
HDSA Research – Ask the Scientist Anything! from HDSA on Vimeo.
Research Keynote from HDSA on Vimeo.
HDSA RESEARCH from HDSA on Vimeo.
Clinical Trials Showcase from HDSA on Vimeo.
Navigating Psychiatric Admissions from HDSA on Vimeo.
Diagnosing JHD and Beyond from HDSA on Vimeo.
Managing Your Psychiatric Symptoms from HDSA on Vimeo.
Genome Editing: CRISPR from HDSA on Vimeo.
Drug Discovery: From Idea to Treatment from HDSA on Vimeo.